Taxotere, Carboplatin and Herceptin
Comments
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Need some advice. I had my 5th tx a week ago and have have watery diarrhea for the past 3 days. Everything I drink comes right back out within a half hour or so. Feeling a little bit lightheaded too. I have a number I can call for an on call oncologist because my clinic is closed on the weekends. Should I call or is this something that can wait until Monday?
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JKOmaha - Call and call right now. Sounds like some dehydration already if you're lightheaded. There are lots of OTC meds, but you need a doc to determine if an RX is better.
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I called. Thanks MinusTwo
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Thank you Minus Two!
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JKo I am glad you called. I had the big D every tx. From day 5 to day 10. Ended up dehydrated and in kidney failure. It's not to be played around with! I was taking the max dose of immodium 8 per day. But didn't realize that was too much cause the said if it was more than the max. LOL. Since I was right at the max I didn't worry. So now i know better. The big D takes a lot out of you ( no pun intended) LOL and you don't feel like drinking. I know I had to force myself. The MO prescribed Lomotil for me Diphenhy drate something atropine. That worked but usually only after the 2nd dose so it takes a lot of med to stop it. Also I broke down and went to diapers in the midst of it. It made life that much easier as I didn't have go do 3 or more loads a day.... Good luck and Much love.
PS, feel free to PM me if you want added dupport. I've been there and it ain't pretty.... LOL
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JKO, hope things are better for you today. Wish I had some wise words, but I went in the other direction when on chemo. Best wishes!
flowergirl, my hair is taking awhile to come back. I'm almost 17 wks. from my last chemo and it's coming in slowly. The last two weeks, hair in other places seems to be coming back like crazy. I'm hoping the hair on my head will follow the same pattern. Good luck!
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JKO - what did the doc say? Have they ordered something that's helped? I was like Moon - 15+ days out of the 3 weeks I spent on the porcelain throne and never went w/o "pads" in my panties. I actually lost 60 lbs, most of which I didn't really need to lose. I also insisted that I get an extra liter of fluid at every infusion after that first one & it really helped. With the national Saline shortage right now that may be a problem, but you can always push for it.
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SpecialK, I wanted to thank you about the tip on the Herceptin infusion.
I had them slow down my infusion, and it did make a difference in the
bone pain. I went from 30 min. to 60 min.0 -
slowdeepbreaths - yay! I did mine in 90 minutes from that point on because I was so uncomfortable after the quick one!
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I thought about 90 min. Problem is I drive 1-1/2 hrs. each way so I figured I would see what an hour would do. It made a huge difference. One of these days I'll get wild and extend it to 90 min. lol
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Hey, if 60 mins is working and you have that long of a commute, do what works! I'm so glad it made a difference for you.
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I wish I had insisted on 60 min. Maybe I could have finished Herceptin
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flowergirl, I just went back and looked at my hair regrowth pictures. The one from 11 weeks PFC shows a 5 o'clock shadow of fuzz and by 19 weeks it was filling in pretty good. I am now almost 1 year PFC and the top which I have not let my stylist touch is 3". I know everyone's hair is different but it just seems to grow painfully slow on Herceptin.
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Thanks for your update on your hair, Bren. It is very helpful. I am 14 weeks PFC and have about 3/4 inch of hair.
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Hello, it has been about 3 weeks i noticed that my left fingers always sore n stiff at night now it seems to get worst at night. These past two days i noticed my pinky finger feel kinda stiffand my antecubital feel sore n swollen. a little swollen didnt look that much different then my right arm. this is not my cancer side arm. i am 4 months out of chemo so this cant be nuropathy issue right?
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SORIYA are you on a AI or Tamoxifen? That can cause trigger fingers. I've got one like that.
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moon, i am not on any hormonal pill since im er/per-. i forgot to mention since surgery dec 04, i sleep on my left side a lot cus of TE on my right. Moon u had swollen around your antecubital too?
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Not really swollen just pain down the palm in a line following down from the ring finger on my right hand. But if you are swollen compare your hand to the other side. Take measurements. See how big a difference there is. If it is noticeable you will want to talk to your doc.Much love
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no swollen on my hand just sore n stiff at night. .. but on my antecubital slightly different than my right n sore also.
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Mine s started like thst. Sore at night and finger stuck in the tucked position needed help to straighten it out. Now the pain is also there. Oh well. Just have to keep on going. But if yours us a problem for you it doesnt hurt yo call your onc office and let them know. Much love.
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thank you moon. my mind always think of the worst. Maybe i have bone met or somehting
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soriya - sounds like possible cording if you have discomfort up on your arm,or axillary web syndrome. Ask about some physical therapy when you talk to your onc.
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specialk, but i had my Mx on my right arm so shouldnt affect my left arm right?
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soriya - sorry, should have noticed that! We can blame my anesthetic haze for the oversight! Yes, I would not expect that left arm issues would be due to surgery/SNB if only the right side was operated on. Have you seen any of your docs about this? Maybe you could still have PT - I found that my PT folks were more knowledgeable about what might be causing which kind of discomfort because that is all they deal with all day.
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specialk its ok LOL. my left fingers sore and stiffness been going on for 3 weeks n seems to get worst. i havent mentioned to my dr yet. Had PT this morning n spoke to my PT. first thing she ased me if i sleep on my left side a lot. i told her yes since i had my mx dec 04. she told me try to change my sleep position n only use one pillow cus i used like 3 pillows. so i will give it 2 weeks n if i still have that issue i will talk to my mo cus i will see him in 3 week anyway.
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Tearing like crazy! I'm nearly 12 weeks into TCH. In the last two weeks, the tearing in my eyes has been insane. I carry a tissue at all times, but sometimes when I am typing at work with both hands I end up with tears running down my face. I have tear-track stains all around my eyes every day.
Anyone else experience this? I suspect it is the H, not TC. When I get chemo, I tend to be all dried up so badly that I wake up in the night to put drops in my eyes. Hope I don't have another 9 months of these crying eyes!
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oranje - those are "Taxo-tears", but this can continue for a bit on H alone. It took about eight weeks PFC for mine to subside. I started getting cracks at the corners of my eyes from the salt and it stung! I got creative with Aquaphor and rubbed it under my eyes and dabbed it at the corners to make a barrier between my skin and the tears. It seemed to happen to me most when my eyes were open for too long - such as watching TV or looking at the computer screen. It actually happens as a result of dry eyes - I think it is overcompensation. You can try a lubricating eye drop - not the kind that gets the red out - but one that says lubricating on the label, like Blink, Systane, or Theratears. If it really becomes a problem - see your eye doc - some people require stents in the tear ducts to prevent scarring and closure of the duct.
soriya - another member used a night splint to keep her fingers straight while sleeping - maybe a possibility if the less pillow plan doesn't work!
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thank you specialk!
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SpecialK...so funny you say that. I just had an eye exam Saturday and she said your eyes are dry and I mentioned the tearing. She said it is related to the drugs and to use Systane or Refresh.
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princess - what a conincidence! If you get some dryness try the Aquaphor - I should have purchased stock in it - I put it EVERYWHERE!
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