Taxotere, Carboplatin and Herceptin
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I had the tearing and blurry eyes, which scared the heck out of me since I had permanent vision damage during my BMX/DIEP due to optic nerve damage. I had the ductal plugs put in by my eye doctor and it made a big difference. Im on just herceptin and still feel my eyes get tired easily and lately I've had this annoying eyelid twitch for the past few weeks. I don't know if its the meds or the fact that I never get enough sleep.
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I'm pretty sure The eyelid twitch is Herceptin.
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SpecialK, thanks! I had stopped using Systane figuring that I had enought moisture, but sounds like that is not the case. I also have crazy twitches in both eyes. Seeing MO tomorrow and will talk about both of these things. I have had terrible dryness problems with my eyes in the past (when I was pregnant I could not wear contacts for about a year) - I used Systane but my eyes still felt like there was grit/sand in them.
I am thinking I probably should see my opthmalogist just to be safe.
For some reason, SEs hit with such a vengeance after Chemo #4. Not looking forward to #5 which is tomorrow.
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Oranje - but after tomorrow you will only have ONE MORE to go! Hang in there. The finish line is in sight - not super close yet, but drawing a little bit nearer each day.
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My eye twitches went away after I was done with chemo. I'm just on Herceptin now, and I don't get them anymore.
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oranje - the eye twitching is also from the drugs, many of us have experienced it, and it goes away after chemo - mine almost simultaneously with the tears. The thing that bugged me was when the eyes twitched at different rates - made me feel a bit crazy! Tx #s 4 & 5 were my worst, number 6 was one of the easiest - go figure!
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I had the eye twitching on TC, but it went away while I was doing H only.
Anyone else have extended eye tearing from Taxotere? I am one year PFC this week (finished H at the end of October) and I feel like the eye tearing is finally almost gone away. Now it just happens in the mornings when I first get up and sometimes at night. If I can remember to put drops in as soon as I get up sometimes that helps. I was beginning to wonder if it would ever go away. Just a few weeks ago I was still carrying tissues everywhere because I never knew when the waterworks would start!
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SpecialK, did you have a runny nose while on chemo? I know people say it's caused by the Herceptin - but once I got my nose hairs back, my nose stopped running. So in my case, I think it was caused by lack of nose hairs. You have any opinion on that?
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slow - yes! I think the absence of nose hairs makes a real difference - or at least if they are there they slow down the runny nose! I had a runny nose at various points during chemo and Herceptin, but it was not a particularly severe SE for me, but when the nose hair came back the runny nose seemed less like a sudden surprise occurrence. I never thought I would be happy to have nose hair again, but I was! Nothing like not having any to realize how much you need it! Leg hair, that's another story ..... Can't find the upside.
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Mine wasn't severe either. Just enough to be annoying once in awhile. To be honest, if it wasn't for the big "C", chemo for me wouldn't have been bad at all. The neulasta shot bone pain wasn't great, but manageable. As time goes by, you forget it all - at least I have. If I hadn't written it all down, I'm not sure I'd even remember what SE's I had. Maybe that's chemo brain. hahaha
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Oranje M.
I finished TC almost 4 weeks ago, still doing H weekly and I have the tears and the nose. Water just drips out.. I started back on the claritin yesterday and am going to continue with it. Today nose/eyes are less runny . I was also told it was from taxotere.
Feel better
V
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bren... Eye md said before bed and upon waking for the tearing.
Oranje.... My 2nd Is tomorrow.
Hair migration of 2014 is happening in earnest now even though shaved head.
I have Raynaud disease so can't ice nails hoping they don't end up just ruined.
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Princess - I never iced my nails (it wasn't general knowledge 5 years ago, and I never heard of it) and nothing bad happened to mine. I never painted them or anything. And they were fine. I don't want you to think that damage or losing them is inevitable if you don't ice. I think different SEs happen to different women and you just don't know ahead of time. So please don't spend energy worrying about it.
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Princess, hope #2 goes well for you. The hair loss period is hard, but you will come through this. At first I really stressed each time I went out of the house over my head covering (wig, halo, hat, scarf, etc). Now I don't worry so much. I really look forward to having hair again but it doesn't stress me like it did 2 months ago.
Tx #5 in in the books! Today I'm seeing the light at the end of the tunnel. I have a feeling it will be a bit dimmer when I hit my low point Tues/Wed next week. But it's there! Got a full dose of Taxotere this time. I have some neuropathy, grade 1 hand & foot syndrome, some edema in hands and feet, and of course the tears. But I can't stay that these SEs are preventing me from going about daily life (yet). So, doc went with the full dose this time, will consider reducing final dose depending on how I do with this one.
I "iced" my mouth during Taxotere this time. We'll see if it makes any difference with thrush/mouth sores.
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oranje, you are almost there! Only one more to go! I hope the mouth icing helps with the sores. I know many had success with doing that.
princess, ditto what Amy said. Some women have very little problems with their nails.
naiviv, you will probably notice the nose dripping gets better before the eye tearing. Hopefully you will see improvement in the next couple weeks.
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I am thinking of asking the MO for something other than Zofran for nausea as it gives me a screaming headache. Any suggestions? The Zofran works, but .......
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Dodgm, I could not take Zofran either because of the headaches. I found that Compazine and Phenergan worked best for me for the nausea. Also are you getting any anti nausea meds in your drips on chemo day? They usually can help with the nausea for a day or so after chemo.
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Bren58 Yes I am get meds during chemo drips. My nausea is under control, thank goodness, with the meds they are giving me. Kinda worried about changing them but the headache I have by the time I am three days out is so bad I can hardly stand it. I thought I would just tough it out, but seeing everyone's advice on the threads about changing meds if you need makes me question that theory. Going today for #3 so I will check with my doc before the start the drip. Thanks for the advice.
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Ddgm, I had Com PAIN too. No headache. Good luck yoday, small SEs. Much love.
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I too had bad headaches with zofran, so MO gave me compazine - which wasn't much better than the zofran. Finally, on my last treatment I tried Phenergan, and that was the best.
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I had terrible headaches with my first chemo. Maybe it was the Zofran, I don't know. I chalked it up to the fact that the smell and taste of coffee because so repulsive I couldn't drink it, and thought they were caffeine withdrawal headaches. I even went so far to drink a sugary sweet awful caffeine energy drink a couple of times (which seemed to help, BTW).
After my taste buds came back after that first chemo, I stayed away from coffee and haven't gone back. So I'm weaned from the caffeine, still taking the Zofran, and no headaches.
I am savoring the moment when chemo is done, taste buds are back, and I can have myself a really awesome cup of coffee . . .
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Oranje mama everything you talk about will happen very soon after you finish chemo. I really enjoyed coffee about a month PFC. So so good the little pleasures in life!
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Hey everybody I've been off for awhile and couldn't sleep so decided to check in. My mom passed away beginning of the month in Fl. her dr called me and said she didn't have much time, so I was by her side. She was 92 and passed away very peacefully. Just took a last breath and that was it. The day before she was calling for her father who passed away when she was 6. Not sure what that meant. I'm back , but still feeling very melancholy. I guess that will take awhile.
I have 2 more herceptin and hopefully will be in ok after that. Special K I've been receiving the iv for 90 minutes instead of 30 and hope its easier on my heart. I will have another echo next week.
I hope everyone is doing well.
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Sasha, my condolences on you mothers passing. It is always hard to lose a parent no matter how old they are.
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thank you Bren. I was lucky that I had warning, but I'm still feeling sad.
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Shasha, so very sorry for your loss. Losing my mom was the hardest thing ever.
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thank you dance. She was tough. Never complained. Told me I would be ok and my hair would come back. At least I have hair now.
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shasha - hoping the 90 min infusion is gentler. So exciting that you are almost done. I am so sorry about the loss of your mom - it doesn't matter how old we are, we are never ready for it. I am glad it was a peaceful event and that you had the opportunity to be there - I found the same to be a comfort. I was not there for my dad, he passed while I was on the plane trying to get there and it upset me for a long time, so I am glad you didn't have that problem.
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Shasha im very sorry for your loss . take care of yourself.
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Shasha, so sorry for your loss.
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