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Taxotere, Carboplatin and Herceptin

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Comments

  • Viji
    Viji Member Posts: 89
    edited March 2014

    Sasha, thinking of you.

  • Shasha10
    Shasha10 Member Posts: 212
    edited March 2014

    thank you all for your kind words. 

  • Brwneyedgirl
    Brwneyedgirl Member Posts: 70
    edited March 2014

    I noticed that my hair is starting to come back.  I am half way through TCH.  Will it fall out again or is this really regrowth?

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited March 2014

    I kinda had a fuzz for most of tx. But not really hair. Much love

  • mckatherine
    mckatherine Member Posts: 180
    edited March 2014

    Shasha - hugs to you. 

    I finished my last Herceptin in Feb and *think* my hair is growing faster now - but it's still much shorter than I thought it would be at this point.   But the drippy nose hasn't gone away yet.  Maybe soon?  

    The only other lingering effect I'm still having is nail weirdness.  I quit taking all the vitamins I was taking (read too many books about vitamins and had a long conversation with my RO about them) except for the Vit D which I know I need.  But I wonder if I took something with some of the B vitamins if it would help my nails?  Although they are a million times better than they were last year - the pink shading in them is still different along the lines where they loosened last year - maybe it's just from tissue re-growth?  But the nails themselves are still really, really brittle.  I have to keep them crazy-short to keep them from breaking.  

    Is anyone doing anything special to help their nails? 

  • bren58
    bren58 Member Posts: 688
    edited March 2014

    McKatherie, I finished Herceptin in October and my nails continued to be a mess. Cracking and splitting back into the nail bed. I finally decided to get gellish nails for a few months until the H nails completely grow out. I do take Biotin every day. I think it just takes a while for the old nails to completely grow out.

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited March 2014

    I believe it 6 months ,for nails to grow from the bed to the tip. Mine are still brittle. I take B 12 and biotin. It helps but they crack still. 

    My eyes watered for at least 6 weeks after I was done with Chemo and Herceptin.  

    Much love to all

  • soriya123
    soriya123 Member Posts: 384
    edited March 2014

    somwhow i dont have issue with my nails or eyebrows , some off my eye lashes fall out but not that much.  i thought i would have issue with nail too cus i can see weird lines on both of my thumps..but turn out okay.   i am almost 5 months out of chemo my nails grow really fast n i wish my hair grow as fast as my nails.

  • soriya123
    soriya123 Member Posts: 384
    edited March 2014

    OH during chemo i took B complex n vitamin d3...that all.  

  • minustwo
    minustwo Member Posts: 13,356
    edited March 2014

    McCatherine - I iced my fingernails so I haven't actually lost any. But everything else is as you describe - red, brittle & peeling back & breaking at the hint of something like hitting a zipper.  Since starting chemo last April I have taken D3, B6, and B12 as well at Citracal w/D and Centrum Silver.  I had to stop Vit E for chemo and now I've been reading it might not be great for BC.  My MO wouldn't approve Biotin until after all chemo, but he's OK w/me taking it in combination w/Herceptin for the rest of the year.  I added that in January 2014.

    My PCP recommended massaging in Tea Tree Oil.  I'm trying that and also Healthy Hoof (you can google it).  Both at least make my mind think there's progress even if there isn't.

    Bren - I had gel put on only one nail that was splitting back to the cuticle.  I do believe I might end up losing that one due to damage when the gel was removed.

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited March 2014

    Good Afternoon Ladies,

    I have a question regarding chemo brain. I felt fortunate that I didn't think I had chemo brain. My last chemo was on Nov. 4, 2013. The past couple of weeks I've been experiencing some weird things. I'm finding it difficult to keep track of things. I've lost a bunch of items which isn't like me. I'm having difficulty staying on task and multitasking. Also reading - I have to read something three and four times before I can fully comprehend something. Has anyone else experienced these things? If so, how long does it last? I find it odd that I'm experiencing this so far out from chemo which makes me question if it may be something else. I have an appointment with my MO next month, but in the meantime I would appreciate any input.

  • minustwo
    minustwo Member Posts: 13,356
    edited March 2014

    McCatherine - I forgot the most interesting thing about nails.  I have a new PCP who had my blood tested for Zinc because of my nails. My levels were low so now I'm on 50mg Zinc per day.

  • minustwo
    minustwo Member Posts: 13,356
    edited March 2014

    Slow - I had problems w/chemo brain but I don't remember it lasting more than 30-60 days after chemo ended.  Strangely my concentration was worse during radiation than chemo.

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited March 2014

    MinusTwo, Thanks for the response. Maybe I'm going down the wrong path thinking it's the chemo. I'm coming up on my last 7 treatments of radiation, maybe that's what is causing the problem. Guess I'll mention it to the RO as well. Thanks!

  • minustwo
    minustwo Member Posts: 13,356
    edited March 2014

    SlowDeep - I'll be interested to hear what your RO says.  Mine pretty much denies that rads have caused any of my problems so far.

  • carolsue63
    carolsue63 Member Posts: 55
    edited March 2014

    Just a thought... I had many of those "chemo brain" symptoms you mention even before I had chemo. I experienced those symptoms with the hormonal changes I went through with perimenopause. 

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited March 2014

    MinusTwo, I will definitely share whatever insight he can give me.

    carol, Thanks, I will ask about that as well.

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited April 2014

    MinusTwo, I spoke to my RO today after rads and he said it's not a SE of radiation. He said if I had brain radiation, then maybe - but not from full breast radiation. He also said it could be hormone related and suggested I speak to my MO. I will do that at my next appointment. Thank you for the suggestions.

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited April 2014

    SDB, are you having trouble sleeoing? That makes chemo brain worse. Also when is your next muga? Much love. 

  • minustwo
    minustwo Member Posts: 13,356
    edited April 2014

    SlowDeep - interesting about the hormones since you're ER/PR negative.  Thinking about Moon and the Muga.  I get Echocardiograms but wouldn't hurt to get one of the other before you see him.  And maybe test the thyroid?  When do you finish rads?

  • SlowDeepBreaths
    SlowDeepBreaths Member Posts: 6,702
    edited April 2014

    Moon, I've had two Muga scans so far and I just got the call this week to schedule another one. I typically suffer from insomnia, but since I've been doing rads, I haven't had problems sleeping. If anything, I've been having problems staying awake.

    MinusTwo, I've got six boosts left. My RO said it could be due to the hormonal changes from chemo? I'll ask my MO when I see him. I'll also ask about the thyroid. Thanks for the suggestion.

  • moonflwr912
    moonflwr912 Member Posts: 5,938
    edited April 2014

    SDB I'm glad! LOL.  It's good you are on top of things. Much love

  • Unknown
    edited April 2014

    interesting reading in this topic - i had/having this combo. I am definitely experiencing more chemo memory loss ( last treatment was Jan 8 2014) maybe it is hormonal & accelerated by the Herceptin? hope not cuz i'm on that for a year

    my eyelashes fell off after i was done & I have had a terrible time with itchy eye lids - anyone else??

    my nails are not brittle but some of them are white farther down & there seems to be another nail growing under the top one...

    the hair on my head head is taking it's time - but Holy chin hair!

    hang in there, ladies - we'll get there

  • 2ndtime4me
    2ndtime4me Member Posts: 51
    edited April 2014

    Hi Ladies

    I need your opinion on my tx. I had skin sparring mastectomy in Dec. on Left breast with IDC tumors in two areas. Have been on TCH Chemo and saw RO today because I had 3 pos nodes. I will be getting RADS next.

    The problem is I have small area in my incision that has never healed. My PS said she would excise it after chemo & before RADS to let it heal. I have TE in place. No infection right now. My RO today says maybe we should do "more of a mastectomy" to take more skin than just the eraser sized non healing area. This I am assuming would mean take out TE leave me flat. He said I would then need a Flap because after RADS and mastectomy reexcision I wouldn't have enough skin for implant.

    I am just flabbergasted never heard of doing MORE of A mastectomy. Isn't one enough? I had a close margin to my skin and this is why he is considering this. I just want to know if anyone else has ever had this happen after a Mastectomy?

  • minustwo
    minustwo Member Posts: 13,356
    edited April 2014

    Notbuying - I'm on Herceptin for a year too so I agree - chemo brain was the fault of something else.

    I used Latisse all through this TCHP chemo and Systane for red, itchy eyes.  Eyelashes fell out after 2nd chemo with AC when I couldn't use the Latisse due to crusted eyes.  But they came back pretty quick.

    My nails are brittle and red going towards the cuticle, not white.  They break when I try to zip my pants.  I've been taking 5000 mcg Biotin for a month & started Zinc last week since blood test showed I was low.  Hope for results!!

    And oh my goodness the chin hair.  I'd been going to electrolysis off & on for 10 years and it was finally all gone.  Now it looks like I'll start over once my blood it back to normal.

    Yup - we're all hanging around.

  • mckatherine
    mckatherine Member Posts: 180
    edited April 2014

    minus - thanks for the tip about the zinc.   I'll start taking my trace minerals and see if that helps!  

  • Unknown
    edited April 2014

    yes thanks M-2! that is the second time someone has mentioned zinc for the nails..

    my eyelashes are slow to come back -- anyone else try that Latisse?

    on another beauty note :) anyone tried the onions in the shampoo to make your hair grow? thought i was getting April Fool's pranked but I googled it!

  • lovewins
    lovewins Member Posts: 570
    edited April 2014

    Hi NBI>>>I asked my MO for a prescription for Latisse and they never heard of it and when I explained what it did they said my MO was not comfortable with that!  I wonder if we need a precription still?  I can google.  LOL  never heard of the onions!

    I think of you ladies often and continue to read this thread.

    I am praying all goes well for your surgery special K/

  • Unknown
    edited April 2014

    that figures - i have heard it's expensive

    the onions on the other hand are free :) put chopped onions in your shampoo - wait 15 days - then use regularly - spose to grow like crazy                                                                                                             putting them in today

  • princessrn
    princessrn Member Posts: 270
    edited April 2014

    notbuyingit.   Let us know!!