Bottle o Tamoxifen
Comments
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Hi ladies....so much to catch up on! I didn't get a chance to read through all of the posts..I am at work...shhhhhhhhhh...lol
Helena and (sorry forget who else) thanks for the compliments on my pic...but remembering your two pictures...you both look AWESOME...and young!!! Helena..96 lbs...I think I was that in junior high school! lol. I am not a big person. at all, but definately not that tiny! I am a runner too, but have opted for power walking and a great dvd...called 30 minute Shred! It's by Jillian of "The Biggest Looser". It only takes 20 min...and it's awesome. Did it this morning at 6:30am...before work!
I think the tamox may make me a bit queezy. If I remember back to last year, when I took it for a year...I switched and took it at night before bed, so I didn't experience that s/e.
Back to work..I'll try and catch up on posts later!
xoxo
Lisa
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Oh another thing- my firefighter who is organizing this motorcycle ride escort of first responders and 9/11 firefighters taking this steel beam to Fort Benning wants to get some people out along the way to support the riders- and to get some press. It starts on September 12 from NYC and I gotta poke him to get the details- but any of the gals reading this who would like to come out to support the ride, stay tuned. I will poke him now. And when I was looking for the pic of Tom Lynch, I found some more pics to show ya:
My car event we made this banner and sent it and some t shirts to the Navy through a connection in April 2003, shortly after we invaded Iraq:
They sent back a picture with the banner in Iraq:
See the guy to the most left? He came to NYC on September 22, 2003 and i took him to the firehouse:
and then he gave the firefighters (and me!) some t shirts from Iraq
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And here's some firefighters delivering t shirts to me...
and then some of the boxes - I was sending them in those little priority boxes then, that was nuts! And this is at one of my temporary apartments because by then my home had burned down...
and I would send these pics to the troops so they could see what what was happening and have something to look forward to... then they sent the pics back to me when the boxes arrived...
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I might as well add these... September 18, 2001, I finally found a place where I could volunteer:
We were by Pier 40 on the West Side handing out supplies to the rescue convoys
Pier 40 is where you may have recently seen Naomi Campbell doing her community serviceAll kinds of trucks were pressed into service, this is a Fedex Truck we are loading... and i want you to note that one guy has half his head shaved, he was like half man half woman. None of that matter in t he days after 9/11, we were all one people, no politics.
This was a couple from PA who found a way to sneak in to the city to deliver a package... it was no easy feat to get into NYC at that time... bridges and tunnels were blocked... they had to be sneaky... they just felt they had to do SOMETHING... This is how close we were to Ground Zero. And yes, I do wonder if this is how I got breast cancer:
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Patmom- more later I promise but just a quickie... St Anthony's is almost across the street from Ladder 5 Engine 24, they lost 11 men on 9/11 and another 2 2 years ago. If you ever read Cancer Vixen, she illustrates how she lives also across the street and Da Silvano, the ultra chic restaurant her now husband famously owns. She has several pages about her 9/11 experience and how it relates to her breast cancer.
We're all neighbors, we're all the same. Much much love and more to come...
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quickly...Rachel...I read some of your posts...about 9/11 and the firefighters. I have been to NYC several times, right after 9/11 and since. Please get details about the motorcycle ride. Not sure where Fort Benning is..but if he comes through OHIO at any point...I would love to know..and if possible..be there for support...and alert the media as well!
9/11 will never be forgotten...nor all of the countless individuals who selflessly gave up their lives!
back to work...
Lisa
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quickly...Rachel...I read some of your posts...about 9/11 and the firefighters. I have been to NYC several times, right after 9/11 and since. Please get details about the motorcycle ride. Not sure where Fort Benning is..but if he comes through OHIO at any point...I would love to know..and if possible..be there for support...and alert the media as well!
9/11 will never be forgotten...nor all of the countless individuals who selflessly gave up their lives!
back to work...
Lisa
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I looked back...it was Kari..that gave me the compliment. Kari..you don't look old enough to have a 10 and 12 yr old, let alone two children in their 20's!
Helena...I will be 50...in just 5 months..shhhhhh..haha..actually I welcome it! I have a 4 yr old grandson as well. He was adopted, but we have a very healthy open relationship with him! A true blessing! And NO........I don't have anyone knocking on my door to take me out! Maybe I need to put myself out there more. Been on some dates..nothing great. Talking to someone special..but he lives 5 hrs away, and we have not met just yet.....soon!
Lisa
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Rachel!!!!!!!!!!!!! Goose bumps and tears of joy from reading all your posts!!! Took me 2 shifts to read all the posts! My ex-husband was in the Army, we fell in love right after he enlisted when we were 20. We conceived our older DD at Fort Benning! (in Georgia), while I was there to visit! Anyhoo, was an army wife for 13 yrs and our DDs were Army brats til the bottle came between us. He died 4 yrs ago at the early age of 42. I get scared sometimes about dying too young from SFBC! My girls don't deserve 2 parents dying young!! So I refuse to get SFBC again, ok!!!!!!! I really miss military life, I am still so very close with other wives from that time, and we are all over the map....love the internet!! One husband was in the same company as my ex, and he's still in the Special Forces and has been to Iraq and Afghanistan sooooooo many times, I pray for him and the others each day. I am SOOOOOOOO proud of you and all of your efforts, you have just filled my heart today. Big Hugs!
Helena, everytime you write Stupid or refer to it I just CRACK UP!!!!!!!! I find myself saying that a lot about stuff in the office, too funny. Your references to your weight are making me laugh as well, you skinny thing you! Hugs!
Lisa, I am 47...started young I guess! Glad you are talking to someone special, hope you can meet up soon. 5 hrs away does suck though.
Shout outs to all!
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Found the web site for the September 12 ride with the steel beam from the WTC going to Fort Benning:
http://www.ironandsteelnyctofortbenning.org/
You can see my friend Rich on this page, with the event info on it too, here's a summary:
THE RUN IS 12-15 SEPT and the CEREMONY is 17 SEPT 09
To the Soldiers of the United States Army from the First Responders of 9/11/01
This RAIN or SHINE Event departs FLOYD BENNET FIELD, BROOKLYN, NY.
0700 HOURS 12 SEPTEMBER 2009
Registration begins at 0530 HOURS.
Be part of history as Firefighters, Military, Law Enforcement, Veterans, and Citizens escort a section of the WORLD TRADE CENTER from NEW YORK CITY to FORT BENNING, GA
This motorcycle only event welcomes all make and models!! NO ATTITUDES
ALL PROCEEDS FROM THE EVENT WILL SUPPORT THE CONTINUED EFFORTS OF THE FIRE FAMILY TRANSPORT FOUNDATION AND THE WOUNDED WARRIOR PROJECT.
THE FIRE FAMILY TRANSPORT FOUNDATION AND WOUNDED WARRIOR PROJECT ARE 501 (c) (3) ORGANIZATIONS
FLOYD BENNETT FIELD is located off the SHORE PARKWAY also called the BELT PARKWAY, in BROOKLYN, NEW YORK. Exit 11S (Flatbush Ave) The Airfield will be on the left.
To download directions from all points, go to www.mapquest.com ENTER THE FOLLOWING: 50 AVIATION RD in the address box
BROOKLYN in the state box
NY in the city box and 11234 in the ZIP box
DO NOT ENTER "FLOYD BENNETT FIELD" INTO MAPQUEST, IT MAY GIVE INACCURATE INFORMATION!!
After you make the left on to Aviation Rd, proceed past the Guard Shack and make the first turn on to Old Runway 33. The staging area will be on your left.
Registration begins at 5:30AM The escort will depart 7:00AM SHARP!!!!!
IF YOU'RE PRE-REGISTERED ONLINE AND ARE PLANNING ON BEING PART OF THE ESCORT, PLEASE PRINTOUT AND BRING A COPY OF THE PAYMENT CONFIRMATION AND KEEP IT WITH YOU REGARDLESS OF WHERE YOU JOIN THE RUN!!!! THANK YOU!!
Registration at any point during this 4 day run is $40 per motorcycle.
All those who register will receive one free IRON and STEEL Pin and the Foundation will pay the tolls WESTBOUND ONLY out of New York City! Additional pins will be available for purchase. Price to be announced.
IF you chose to bring your E-Z Pass for the return trip from Georgia, be sure to bring the silver "Read Prevention" Bag. They can be ordered from E-Z Pass!
THE TOTAL DISTANCE FOR THE RUN IS 1,040 MILES!!
TRY TO ARRIVE AT FLOYD BENNETT FIELD WITH A FULL TANK OF FUEL. THERE IS A 24HR MOBIL STATION EASTBOUND SHORE PARKWAY JUST BEFORE EXIT 11S. IF YOU STOP AT THIS MOBIL YOU WILL HAVE TO USE EXIT 11N AND TURN AROUND. THERE IS ALSO A 24HR BP ON FLATBUSH AVE 1MILE NORTH ON THE LEFT.
2 POSSIBLE PLACES TO EAT. THE 24HR FLORIDIAN DINER IS LOCATED 2MILES NORTH AT 2301 FLATBUSH AVE AND THE KINGS PLAZA DINER , LOCATED ON AVE U. TURN LEFT ON AVE U THE DINER WILL BE 1 BLOCK ON THE LEFT.
ALSO IF NEEDED THERE IS A 24HR RITE-AID LOCATED ON FLATBUSH AVE CROSS FROM THE FLORIDIAN DINER.
The ENTIRE route will be as follows:
Flatbush Avenue North New York
The Belt/Shore Parkway West New York
Verrazano-Narrows Bridge New York
Staten Island Expressway West New York
Route 440 South New York
Outerbridge Crossing New York/New Jersey
I-287 New Jersey
I-78 New Jersey/Pennsylvania
I-81 Pennsylvania/Maryland/West(by God)Virginia/Virginia
I-77 Virginia/North Carolina
I-85 North Carolina/South Carolina/Georgia
I-185 Georgia
There are 5 overnights planned
1) Sat 12 Sept/ Martinsburg, WV
2) Sun 13 Sept/Christiansburg, VA
3) Mon 14 Sept/ Spartanburg, SC
4) Tues 15 Sept and Wed 16 Sept in Columbus, GA/Fort Benning
There are 4 ORGANIZED Fuel Stops Planned
Day 1) Bloomsbury, NJ
Day 2)NONE
Day 3) Statesville, NC
Day 4) Hoschton/Braselton, GA and Newnan, GA
ITINERARY TIMES ARE APPROXIMATE BE ADVISED; THE PROCESSION DOES NOT STOP IN THE EVENT OF RAIN. THE FUEL/REST STOP PRIOR TO ENTERING ADVERSE WEATHER CONDITIONS IS THE TIME TO DON YOUR RAINGEAR!!
SAT 12 Sept 0700: Depart Floyd Bennett Field, Brooklyn, NY 0900: Arrive Bloomsbury, NJ
The only organized fuel stop on Day 1 will be in Bloomsbury, NJ, I-78 Exit 7. ALL motorcycles will stop in Bloomsbury. The Citgo will be an organized refueling effort. You may however refuel at the 76 or Pilot Truck Stops across the street. It is approximately 75 miles from Floyd Bennett Field and 125 miles to Appalachian Harley-Davidson in Mechanicsburg.
PLEASE BRING AND KEEP SMALL BILLS ON YOU DURING THE 4 DAY RUN, FOR USE AT THE ORGANIZED FUEL STOPS. ALSO, CASH ONLY, AT THESE ORGANIZED FUEL STOPS, PLEASE. THIS WILL STREAMLINE THE FUELING PROCESS FOR THE FUEL TEAMS. ALL FUEL AMOUNTS WILL BE ROUNDED UP TO THE NEXT DOLLAR. AFTER FUELING IS COMPLETED THE ADDITIONAL MONIES COLLECTED ARE DONATED TO THE FOUNDATION!!!
AT THE ORGANIZED FUEL STOPS, WE WILL ATTEMPT TO HAVE FUEL TEAMS PREPOSITIONED TO MINIMIZE DELAYS.
0945: Depart Bloomsbury, NJ
After fueling in Bloomsbury, we will re-stage before heading into Pennsylvania. We cannot guarantee you will end up in the place in the pack.
The escort continues on I-78 to I-81 South. Those bikes with limited range should refuel on I-81 Exit 77, (e-z off and on) 100 miles from Bloomsbury and 25 miles to Appalachian H-D.
1200: Arrive Appalachian Harley-Davidson
The dealership is located I-81 South Exit 57 (SR 114S then SR 11 west). Once at Appalachian you will be able to refuel at several gas stations within 2 miles, grab a bite to eat and relax a bit. This stop will be less than 2 hours.
1330(1:30pm): Depart Appalachian H-D
We will depart the Appalachian heading west on SR11 and re-enter I-81 South. It is 80 miles to Martinsburg, WV from Mechanicsburg, PA.
1530(3:30pm): Arrive Holiday Inn, Martinsburg
Martinsburg, WV will be the first RON (remain overnight) during the 4 day trek. The Holiday Inn (exit 13, I-81) will be the Staging Area for both arrival and departure.
SUN 13 Sept 1000: Depart Holiday Inn
We will re-enter I-81 south and cross into Virginia just a few miles down the road. For those bikes with limited range, there is fuel at I-81 exit 245. It is 25 miles from Shenandoah H-D.
1215: Arrive Shenandoah Harley-Davidson
ARRIVAL AT SHENANDOAH H-D WILL BE A LITTLE TRICKY. IT IS IMPORTANT THAT THE TRACTOR-TRAILER HAULING 343 BE ALLOWED TO ENTER THE DEALERSHIP FIRST!! Mike Stallone/343 will enter the dealership (along with the vehicle hauling the WTC Steel ) to turn his rig 180 degrees without interference. All other vehicles in the procession will be held outside the entrance while this is accomplished. ALL BIKERS will be briefed prior to departing Martinsburg. We will stop for a maximum of 2 hours for a little food, rest, and to refuel. This will not be an organized fuel stop. Refuel on your own.
1400(2pm): Depart Shenandoah H-D
Straight shot to Christiansburg, VA, down I-81 to exit 118.
1545(3:45pm): Arrive New River Valley Harley-Davidson
It is 105 Miles to New River Valley H-D. All the hotels in Christiansburg are within a 1/2 mile radius of the dealership. New River H-D will be the Staging area, with the Super 8 next door as the ALTERNATE Staging Area. Again Mike Stallone will have to enter New River Valley HD first to be given the opportunity to position his rig. Both the Super 8 and Quality Inn are on either side of NRV HD. You have the option of waiting for Mike to get his rig/343 in place or simply park at either hotel and walk across to the dealership. ALL RIDERS WILL BE BRIEFED BEFORE DEPARTING SHENANDOAH HD.
REMEMBER FOLKS WE ARE ARRIVING IN CHRISTIANSBURG, VA ON A SUNDAY. RESPECT THE SABBATH; PLEASE LETS KEEP IT TO A DULL ROAR.
MON 14 Sept 0900: Depart New River Valley H-D
We may utilize BOTH New River Valley and the Super 8 hotel for departure staging, because of their close proximity.
1100: Arrive Statesville Shell station
It is 122 miles to the Shell station in Statesville, NC. (We will be posting a fuel stop for shorter range bikes asap) Rolling Thunder North Carolina Chapter 2 will be spearheading this ORGANIZED fuel stop. Again folks, small bills please, it will speed the refueling process.
1230: Depart Statesville, NC
1445(2:45pm): Arrive Westgate Mall, Spartanburg, SC.
It is 119 miles to the Westgate Mall. (We will be posting a fuel stop for shorter range bikes) The mall parking lot will be the Staging Area for arrival and departure, and will have an area coned off for our use. The Holiday Inn Express is the only hotel at the Staging Area. The other hotels are only 2 miles away.
TUE 15 Sept 0900: Depart Spartanburg, SC.
Folks Day 4 will be very busy with 2 ORGANIZED fuel stops scheduled!!! This is necessary to prevent ANYONE from running out of fuel in the middle of ATLANTA.
1115: Arrive YEAR ONE, Braselton, GA
It is 122 miles from to the first fuel stop at Braselton/Hoschton GA. For those with limited range there are several exits in Georgia you will be able to refuel. Though you will be able to eat and rest a bit we are keeping it an organized fuel stop for minimum time before departing. We will attempt to keep this stop to a maximum of 1-1/2 hours.
1245: Depart Braselton/Hoschton, GA
It is 91 miles to Newnan, GA, the 2nd organized fuel stop.
1430(2:45pm): Arrive Pilot, Newnan, GA
This will be minimum turn time at Newnan for this fuel stop. 45 mins max.
1515(3:15pm): Depart Newnan, GA
The FINAL LEG
1645: ARRIVE FORT BENNING, GEORGIA!!!!!!!
It will be 76 miles to our destination; The National Infantry Museum, Fort Benning, Georgia.
WED 16 Sept 1530(3:30pm) Ft Benning/Columbus, GA
Wednesday - Join us at 2450 Victory Blvd (Waggoner's Trucking) for music and food. A light fundraiser ($5) for the National Infantry Museum to help cover costs for the finishing touches for the memorial. Joey Allcorn is playing as well as the Oneeders and Brent Lindley; also we're roasting a pig. Coolers welcome. Limited 4 wheeler parking on site, but plenty of street parking down 25th & Blanchard directly across Victory Blvd.
http://web.mac.com/seegers6/Brent_Lindley/Welcome.html
THURSDAY 17 SEPTEMBER 2009
Rendezvous will be at the COLUMBUS CIVIC CENTER at 1000HOURS!!
UNFURL YOUR FLAGS FOR THE LAST 5 MILES!!
THE CEREMONY WILL BE AT NATIONAL INFANTRY MUSEUM AT 1100 HOURS!!!!!!!!!!!!!!!
Unfortunately folks much of what we had in the planning stages for entertainment for today (after the Ceremony) will not come to pass. Yes the economic turndown seems to have hit the IRON and STEEL Run. It is, unfortunately, a matter of funding. Please use the day, after the ceremony, to see and take in some of the local flair. The National Infantry Museum of course! Take a ride to Atlanta and checkout the National Museum of Patriotism, Underground Atlanta, or the worlds largest aquarium; The Georgia Aquarium. If you find your cholesterol a little on the low side, I urge you to eat at the famous VARSITY in Atlanta, and wash it all down at the World of Coca-Cola. Coca Cola's world headquaters are located in Atlanta, Georgia.
Again folks we do apologize but the memorial to our troops has been and will continue to be the priority for the Foundation on this particular run!
http://www.georgiaaquarium.org/
http://www.worldofcoca-cola.com/
http://www.museumofpatriotism.org/
http://www.underground-atlanta.com/
http://www.nationalinfantrymuseum.com/
MANY THANKS TO MR JOHN DASKALAKIS, RANGER RALPH MANETTA, THE NATIONAL PARKS SERVICE, THE UNITED STATES MARINE CORPS, THE NYPD AVIATION UNIT, THE NYC DEPT OF SANITATION, AT FLOYD BENNETT FIELD, FOR THEIR CONTINUED SUPPORT.
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Off to work so will read all your stuff 2nite Rachel - I am so proud to know you.
Lisa - I am 47 too, just a few days difference between Kari and me. And I'm 132 pounds apparently - my maths is way out - feel pretty crappy about putting on 40 pounds in a day though - where are those sand bags Meg??????
Kari - hugs for your ex ((hugs)) and I know the feeling about your DD. My mum died when I was 10 and to this day is the saddest thing in my life - I NEVER want my DD's to feel that pain. But we will be fine my friend. We will live long and well.
On that happy note
I am off to work. Have a great day everyone
big hugs
Helena
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Ft Benning is in Georgia, it is were my DH did his basic training over 25yrs ago. Rachel you are very busy. I would love to do the ride down to FT Benning, but I am back at work now, 2 days down and 185 more to go. LOL
It was grueling today setting up the class room, not the work, having my 11 yr old ds and 8 yr old dd. When the moving of desks was done and the putting toys and puzzles back out was done they were borrrrred. Then working out a schedule for the students. We will have kindergarten,1st, 2nd and 3rd grade. So trying to coordinate everything was not fun! Once we get back to school it will all work out!
Have a good day!!!!!!
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Rachel - Thank you so much for helping out the troops and for all that you did after 9/11. I know two boys in Iraq - one is hopefully coming home in November. I am packing up boxes of magazines tonight to send over there cuz they get so bored!
I will attend a golf tournament on Monday, August 24th, in memory of Jennifer Lynn Kane. She was 27 years old and was in the North Tower, working for Marsh, 90th floor. Her mom, Faye, is one of my closest friends. The family has taken their overwhelming sadness and raised money for so many charities in honor of Jen. They have donated to Homes for our Troops, Make a Wish, and they even sponsor young girls at Girl Scout camps.
It just breaks my heart whenever that day comes. Sadly, I ended up knowing 5 people who perished that day ... I live in the Boston area and they were on the planes out of Logan.
Faye's birthday is on Sunday, the day before the tournament. Her birthday in 2001 was the last time she saw Jen - the family had a 50th birthday party for Faye. Jen lived in New Jersey, and worked at the Trade Center, but there was no way she would have missed her mom's 50th. It still seems surreal. Faye and I have shed so many tears together - time has made it a little easier, but it's still very difficult for these families.
I'm trying to stay cool here - it's in the 90's and the damn hot flashes are in full swing.
Have a good night everyone.
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well now you got me crying... and again as quick as I can...
leave it to you guys to once again give me perspective. So funny, like all of you who are going through so much already are trying to do more (and succeeding) for others. Damn I am lucky to know you.
murphmort, this is another lesson I keep needing to learn. when i first left nyc after 9/11, I thought maybe other people wouldn't be sensitive, as the island of manhattan really became a small town that cared... so I was driving to florida and stopped at a rest stop 7-11 type place south of Virginia ish. The kid behind the counter somehow saw that I was coming from NYC and told me someone close to him, I forget now, was on one of the planes.
I live 2 miles from the WTC and I lost no one I knew. You are much closer to what happened than I am.
Wow, my mind is exploding here. So much that means the most to me all coming together. You women are just incredible.
It so FS that we met this way. OK, but at least we did, and I couldn't ask for better company.
OK, I am just going to blurt this out- like... at some times I would hear from these guys the gory details of what happened that they lived through. When I was first DX, I told Rich and of course I was flopping like a fish on the pier dealing with the cancer when he told me about his. But now that I have been through this and seen it from my sisters, I can sort of speak to him on that level, where before all I could do was try not to look stupid while sealing my lips. Weird shit.
Love you
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Wow Rachel, you are one busy woman. Where do you get the time to do all that and to upload all those pictures and info on here? I don't even know how to change my profile picture, LOL.
Well, 1 week since I've started back on the tamoxifen after a 6 wk vacation from it, and I have to report, the vaginal discharge has come back in full force after quite a few weeks of reprieve.
Nothing else has changed, hot flashes still haven't yet gotten back to the frequency they were at before, but I've noticed a difference lately. I'm not getting that aura beforehand that I used to get, it was kind of like a gradual buildup to full heat mode. The past few weeks it's just like all of a sudden I realize that I feel flushed and realize that I'm warm and steamy all over.
One new thing just in this past week is that my MOJO is back, full sensations, responsiveness to stimulation, the whole thing is once again feeling like it did prior to all this perimenopausal sexual dysfunction that I've been struggling with for almost 2 years and that seemed to have gotten even worse after a few months of tamoxifen. I don't know what to attibute it to, the end of perimenopausal hormone fluctuations perhaps?, or the break from the tamoxifen? but whatever it is I'm hoping that it stays this way. This was a problem that impacted my quality of life to a great extent and I'm so thrilled now. Whew hew yippee!
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Hi, all--It's evening for me, and so that usually means not a lot of energy after working all day. Rachel, I don't know how you find the energy to write/post as you do! I hope you are able to give yourself credit for the help you are able to give others and that you aren't hard on yourself for what you are not able to do at this point in your life. From what I hear, you sound as if you are able to be angry at cancer rather than at yourself, which is likely a healthier response. I do know about anger, and I realize that I tend to feel angry when I feel powerless to change a situation. So, I try to determine what I can do in response to an "unjust" or unacceptable situation, then do what I can, otherwise I try to work on letting go of my distress over what I cannot control. So, in the process I tend to be aware more about grief, which is often lurking below the surface of anger. I have had to deal with a lot of grief arising from cancer and its impact on my life, and although I am grateful for what I do have in my life, that does not mean that I should overlook the losses and the grief.
Meg, I understand your approach to anger in terms of focusing on love and goodness. Sometimes, when I am really angry at people and have the impulse to "really let go," I will focus on being as lovingly kind as I can. This often helps to achieve more than confrontation might, although I am typically able to handle confrontation quite well. And usually my anger transforms more into a sense of peace (not acceptance of an unacceptable situation) that allows me to consider other viewpoints and even other options. Helena, I hope you will continue to let people know what is important to you--like not sharing your private health information with others--knowing that, even if they do get upset, you and the other person can work through that as well. I think when we risk being genuine and real, we will have those tense moments, but it's worth it in order to be genuine with yourself and others. (Well, at least as you can, without losing your mind....)
Mary, I hope your return to work won't be too demanding for your body; it sounds like you are trying to be careful. I hope your healing will continue. And by the way, the creativity behind your tatoo design is inspiring. I keep looking for ways to be more creative and playful in my life and to be less serious. I think that's one of the ways in which cancer has impacted my life--I have lost some of my playfulness and sheer joy in living! I think there is a song by Lucinda Williams that says, "You took my joy, and I want it back..." and I think about cancer when I hear that song. Rose G, maybe I will find more joy by getting my mojo back! I'm glad that you have had a resurgence!
No big report on tamoxifen, although I must confess it's been only 4 days. I am staying hopeful!0 -
Rose - go Mojo! Won't your DH be happy!! So the change in the hot flashes is better? I'm hoping it is and that all the other side fx stay manageable and eventually dissipate.
Brenda - yes, genuine and real is exactly where I want to be - thank you for your kind words.
Mary - take it easy - bet you can't even remember your break now!!!!!!
Rachel - you have lived through a lot, done some amazing things which have brought comfort and peace to so many who have suffered. Just like here gorgeous one. Sorry, but you are very special and I'm very soppy and corny, what can you do. Not to mention doing all of this and being a single mum - 9/11, BC, single mum, toddler - enough to test even the strongest.
That photo of ground zero is very haunting.
sleep well everyone
big hugs
Helena
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Good morning ladies, 3 days down and 184 more to go!!!!!!!!
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Brendatrue, I read your post at the perfect time this morning. Been dealing with some pent up issues at home here with DH. A reminder to not concentrate on the anger but be truthful about what was important came at a good time. I have built up some anger after this cancer thing that I didn't use to have and it has changed the dynamics some. Need to work on that
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RAchel - like Rose and Brenda said I don't know how you find the time to post as you do . Please don't be so hard on yourself, as you have read you are helping a lot of women on this board and that is now a major way you are giving back and being involved and making a difference, it is just a different outlet as life situations change.
I had my check up yesterday with NP (onc office) and BS. My BS does the best breast exam I have ever had and since she gave me the "doing great" message, I now have peace of mind
that the surgery, chemo, and rads did their jobs. I will have a "survivorship" appt. with NP (onc's office) in October. This is something new to my onc's office, it is an hour appt., I will get my "Livestrong papers" with info from bloodwork, treatments, etc. with instructions for staying healthy post FC. Mammo and Onc. in Nov., then Onc. every 6 months.0 -
wow...Patti..you are already on the 6month plan? I still go evey 3 months. I was getting a mammo every year, then they changed it to every 6mos. In January I had a small spot, it was just calcification, because my BS did a needle biopbsy, but to be safe. she is saying every 6 mos. I just had another..and all ok.
I can't wait to be on the 6mo. plan!!
Rose..that is great news! I feel sometimes not like a sexual being...after the chemo, drugs and hysterectomy! But...when I talk to the man I have been talking too, and I will be meeting this weekend...I start to get those feelings back...so Maybe!!!
I may be almost 50...but I still feel young in my heart, and feel that I have a full life ahead of me..sex and all!
back to work sisters!
xoxo
Lisa
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I want my MOJO back and so does my DH!!!!!!!!! LOL! Lisa/my3girls - glad you are meeting the guy this weekend!!!!!! YAY for those feelings too!!!!
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Thanks Kari!! My mojo..is KINDA back. Only time will tell there..lol.
I am kinda nervous and excited about meeting him. I haven't felt this way about anyone in awhile..and we haven't met. To me that is strange..but hey...tomorrow we will know if it's real or not. He seems so kind, a true gentleman, very well groomed...all the things I like..well educated..devoted to his adult kids...sounds like the perfect guy for me. He is shorter...and I have always liked men taller. I am 5'4..and I like 6'or more..he is only 5'8..but for some reason...I just don't care. I think all of his other qualities...make him over 6'.
Wish me luck!!!!!!!!!!!!!!!!!!!!!!!
xoxo
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Crikey - you're a sexy bunch this morning!! LOL. So much to do - run, wash hair, get girls to school, work, go out for drinks tonite .... will try and not post after a few wines he he he.
love you all
Helena
very excited for you Lisa...
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Have fun Helena!! Drink one for me!
Crikey...love it!
Australia...is one of the places I have on my "bucket list"...places I HAVE to visit!!
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quickies... well i dont have the time any more so that's the problem... but you make me feel better as always...
and I have those pics posted already on my web site for my firehouse... but I haven't updated that much either, again, no time
and the rest of the time I save by like.. not bathing or brushing my teeth or changing my clothes for days at atime! TMI!!!! Right?
Lisa good luck with the date, I kinda remember sex...again... no time...
my next bday is 50 too...
Rose- BRAVA on the mojo returning. Sounds like the Tamoxibreak worked its miracle for you
PatMom and PattiB and Mary... I hope to make a Philly Breast Bitches party when I get a house in PA... that's my newest pressing project... kid is literally climbing the windows here... we need space!!!!
I am LOVING the kosherdietdelivery.com service- the food is great!
Helena- just hugs and giggles galore...
OK gotta boogie
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Just got home from work, made dinner, then back out to get my son's schedule for intermediate school. Our district does K-5 elementary, 6-7 intermediate,8-9 Jr High and 10-12 High School.
My ds will be in the 6th grade, so he gets to go to a different school this yr, still on the same campus I work at, so that will be good.
Inservice day all day, no air conditioning, I was sweating like a pig! I am soo tired, I do not feel like going out, but have to.
have fun tonight ladies
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Wow , you ladies certainly can write up a storm!!! Wow Rachel, I'm speechless!!! I haven't been posting but I do check up on you!!! Well I'm 3 weeks into Tamox. SE's hmmm well lets see would that be the pain in my muscles and joints (still evident even when I'm taking paracetamol), the hot flushes, vaginal discharge, sleep disturbance and mood swings??? No weigh gain tho' following much effort I have lost 10.5lbs. The HF's and the discharge are bearable. The pain is the most trying and I imagine it is causing the sleep disturbance and then I wonder is the lack of sleep causing the mood swings. Anyway I go back to my onc next week and I don't know what to tell him!!! I still have such an uneasy feeling!! Tomorrow I go for blood tests to check the calcium level in my blood and hopefully the onc will explain the implications of that to me next tues when I see him. Now my 19 year old DD has just come in to beg me to make her hot chocolate and toast!!! She says it tastes better when I make it - I'm so easily swayed!!!! Take it easy ladies.
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Ainm- :::getting down and boogie-ing for your 10.5 pound loss::: WAY TO GO GIRL! Smack me for saying it but the SEs you describe (hot flashes, vag discharge, joint pain) mean your recurrence rate goes waaaay down, the Tamoxifen is working. Mood swings are bad magumbo- and have no good or needed presence. What i have read here is either Effexor or a tamoxibreak has worked for many to relieve the mood swings. Sleep of course is critical- and I am worried about that too. May I ask what happens? Like.. is it difficult to fall asleep or do you wake up a lot while you should be sleeping or do you wake up early?
Wow a 19 year old DD
And hot chocolate and toast... yeah my mom made the best warm drink, some kind of milky tea with honey. Wah, I miss her. Boy, do I miss her. Sounds like a wonderful time (And how do you lose weight and still have hot chocolate and toast??? ) 0 -
Hi Ladies! New to this thread. I'm part of the TailorX Study and rated a 9. That means that it's just Tamoxifen for me, no chemo! Got my prescription today and I have to admit I keep staring at it and all I can hear is my ONC's voice telling me the SE's two of which scare me to death. My 1-2% chance of leg thrombosis and my .04% chance of getting a blood clot in the lungs - both of which he told me if I feel/see my legs swelling or have chest pain to get to the hospital right away! Isn't that an endorsement for Tamoxifen...NOT!
Please help me out here....I've read your posts and you all seem like such a great support group. Everything is going to be OK isn't it??
Terri
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