Come join others currently navigating treatment in our weekly Zoom Meetup! Register here: Tuesdays, 1pm ET.

Bottle o Tamoxifen

11251261281301311022

Comments

  • Springtime
    Springtime Member Posts: 3,372
    edited August 2009

    Hey ladies,

    Can you tell me if the TailorX study is just for women very recently diagnosed, vs those of us who had dx last year, did chemo, and are now on Tamoxifen? I would love to have the Oncotype DX...

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009

    kari- I just happened to see the promo (you know the BC org things that pop up on the page) about Chemo Brain.

    Check this out:

    Ask-the-Expert Online Conference

    On Wednesday, October 15, 2008, our Ask-the-Expert Online Conference was called Managing Chemo Brain. Christina Meyers, Ph.D., A.B.P.P. and George Sledge, M.D. answered your questions about how long chemo brain can last, what treatments can be helpful, and current research on cognitive effects of breast cancer 

    http://www.breastcancer.org/treatment/planning/ask_expert/2008_10/ 

    And specifically:

    How long does chemo brain last? 

    Linda: I finished chemotherapy in 2007, and I still have problems focusing. How long does chemo brain last?Answers —Christina Meyers, Ph.D., A.B.P.P.: There is a lot of individual variability. In our studies when we tested women a year after their treatment had stopped, half of them had gotten better and half had not. I do chemo brain workshops at my institution on a monthly basis, and I have 10-year survivors who still have it, so for some it may be permanent while others recover. The main thing to keep in mind is that it's generally very handleable, and the alternative is not good.George Sledge, M.D.: Anecdotes are always dangerous, but I'd like to share one. I had a patient several years ago who was a flight attendant and part of her job as a flight attendant was to go up and down the rows in the plane taking drink orders. She said prior to receiving her chemotherapy she could take 6, 8, 10 drink orders with perfect memory. After the chemotherapy, she would write down the orders for the drinks because she couldn't remember them any more. To all the world, she appeared to have the same functionality after as before, because she had made an adjustment for the chemo brain that kept her looking functional, but she could tell the difference. That's a pattern I see fairly commonly.

    Christina Meyers, Ph.D., A.B.P.P.: That's a perfect example. People can retain their functionality, but there's a cost and effort.

    So... may I please go punch that nurse in the mouth now? 

  • my560sel
    my560sel Member Posts: 399
    edited August 2009

    TailorX is to determine whether or not you would benefit from chemo. So you would have to have not started your treatment to be part of the study..... I'm in the study and scored a 9 - that's why I'm on the Tamox - well, actually not yet, but as of 11pm tonight I will be !

    TerriUndecided

  • awb
    awb Member Posts: 213
    edited August 2009

    kookiesmom----my gyn said to keep taking my tamox even when I was having major abdominal surgery (TAH/BSO)--the ironic thing is the nurses forgot to give it to me the 3 days I was in the hospital anyway.

    Anne

  • HelenaJ
    HelenaJ Member Posts: 304
    edited August 2009

    Spring, Oncotype DX is used to assist patients/professionals decide on adjuvent therapy however I'm sure you could do it (if it is just for your own info) at any time as long as you still have a sample preserved.  You may have trouble getting your medical insurance to pay for it though being in retrospect, it is very expensive.  Would you be prepared to see the results though if chemo didn't give a huge advantage? 

    Kari - how about I get my act together and you stop crying when you look in the mirror - deal? :)

    Lisa - have a great time - we need to know everything tomorrow, but I guess that depends on what you get up to!!!   :D

    Carollyn - 3 more to go -  YYEEAAAHHH!!  I love gardening too.

    Rach - not a car person but they look pretty cool.

    see you all tomorrow

    Helena

  • didle20Diane
    didle20Diane Member Posts: 86
    edited August 2009

    Hi BC Beauties.....catching up on so much reading....where do I start responding?

    Sleep  Sorry for those experiencing sleep problems.....UGH I have been lucky so far since being DX but know all too well how being sleep deprived can be......my kids are 4, 3 and 21 months so somebody gets up at least once a night but not for long thank goodness.  I need my energy to take care of them during the day LOL!  Patti, I am sure that part of your problem is your DD.  I don't know how my parents got any sleep with 5 kids.  Don't forget to let me know if she is playing in MD or DC.  Would love to see you!

    Lisa, good luck on your date!  Hope the wait was worth it!  Can't wait to hear how things went.

    Rachel.....I wish I had your energy to write as much as you do....I think about posting so many things then chemo brain kicks in and I can barely complete a sentence.  I love all you do.  You are such an inspiration.  When I come up to NY this fall I am looking you up! 

    Terri-Swallow number one....get it over with!  You will do fine. It's painless.  I take mine each night at 8PM with really no SE's to speak of.

    Helena and Kari I have had very few episodes (so far) but almost once a month for NO reason I tear up....I can be in the line at the grocery store, in a restaurant, at the office....I just suddenly tear up and tell myself to GET IT TOGETHER!  I somehow manage to, haven't had a massive cry over this SFBC since DX.  Maybe I am due OR maybe this is normal.  Who knows...before BC I would tear up over things my kids did....don't we all?  Like dropping off my 3 year old for preschool and driving off watching her sit on the bench waiting to be taken inside with her classmates....silly stuff but it gets to me.  They are growing more independent each day...I just wish time would slow down a bit.  I love them little!

    Spring  Glad you are enjoying your week on vacation......keeping you in my thoughts for your surgery in Sept.

    Everyone I have finally decided on reconstruction.....I was only a candidate for implants and have also decided to have my good breast removed with skin/nipple sparing.  Surgery for TE is Oct 5, then my fills and then will get both implants 3 months later.  I am hoping to be done by 1/16/10....my 1 year anniversary of being DX.  I want this "year" OVER WITH.

    Big hugs and wishing everyone a great weekend.

    Diane

  • LeggyJ
    LeggyJ Member Posts: 195
    edited August 2009

    Before I started Chemo. I went to a seminar on BC, were they had experts on everything, from genetic's to radiation, and they said they don't know how long chemo. brain lasts, and if it ever goes away, totally. They recommended a book, on memory, but I forget the name of it...funny but true.

    I had a crying jag, on Wed. in the lunch room at work...how embarrassing. My asst. manager said something about my hair, in a meeting, with a bunch of guy's.  What a jerk. Now he's an idiot.  Do people really think, I chose to be #$%ing bald, for 6mo.'s, and now want to have this chemo. hair. 

  • HelenaJ
    HelenaJ Member Posts: 304
    edited August 2009

    Leggy - it is just bubbling under the surface isn't it.  And I know there are definitely more idiots around now than before SFBC!!! 

    Diane - big decision but you can now move forward  - so want this year over with - my anniversary coming up just after my nipple recon.  Sigh.  And yes the little ones grow up fast.  I brush my girls hair and always do DD age 10 first because I can then put my arms lower for my DD 7 year old and feel like I still have a small child!!! 

    Feel so much better everyone - cause I know you just can't live without knowing that!!  Seems the anxious periods do seem to be shorter in duration.

    signing off for today

    little miss sunshine but with cloudy periods

    Helena

  • Brendatrue
    Brendatrue Member Posts: 487
    edited August 2009

    Hi, all--I'm thinking about a book I read a while back, something to the effect of "going to pieces without falling apart," and I think about how we sometimes get "all jumbled up" and then have the challenge of finding wholeness again. Although I sometimes think about cancer "after-life" as a process of finding a "new normal," I am leaning away from thinking about it like that. I am thinking more about re-assembling the old parts of me that I want to keep, letting go of those parts that I don't want to be a part of me anymore, creating new parts that feel more joyful and more understanding and more risk-taking and "whatever else I need or want to add", in order to be whole again in a way that makes use of all I have learned through having cancer/treatment/etc. I've had those moments when I look in the mirror and wonder about all kinds of things--I think in a way it's sort of a reckoning; you know how easy it is just to keep on moving through life, then suddenly you're forced to "take stock" in a new way (like a cancer diagnosis...). Perhaps that little moment in the mirror is like taking stock, and you see yourself differently. Sometimes I see glimpses of the person I was before, or I see a wiser and (at times) sadder person, or sometimes I just miss my frigging hair!

    Another note: Terri, I know what you are going through. I finally took Tamox pill #1 last Sunday morning. I'm still here and not crazier yet!

  • LeggyJ
    LeggyJ Member Posts: 195
    edited August 2009

    I miss my hair, too! 

  • terrij152
    terrij152 Member Posts: 63
    edited August 2009

    Hi everyone!  I started my tamoxifen a month ago and I was sooooooo nervous about the SE's!  Well so far so good, no SE's at all!  Hopefully it means it's working.  Not sure how long it take for the SE's to happen, but I feel fine. 

    Hope everyone is doing well!!

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009

    Diane - so happy you are  not having the sleep issues, for my own selfish reasons.  And part of my fear of not sleeping is because my son is 18 months, and I am already having problems keeping up with him.  Actually, I have been trying to get myself to sneak into his room and sleep on the bed in there, because I used to LOVE doing that, but stopped because I was coughing with reflux pre-BC, and then of course post BC, surgery, RADS, etc... so if I am going to have trouble sleeping on Tamox  in a month, I should  get some of that precious time with him now.  When you say I wrote anything helpful it just totally makes my day and babe you BETTER let me know when  you are coming thisaway!!!!

    PattiB- I missed what kind of sport your DD is playing? 

    Leggy- that's too funny, a book on memory you forgot... they should have had it written down, doh!  Oh so now there's two people I want to punch in the mouth.  What freaking horrors these people are!  It's unusual for a man to make a stupid hair comment, isn't it?  Men are completely nuts over their hair, their hair loss... you could say something like... yes well my hair will grow back, will yours?  Or better yet, just think it.  Because soon you will have your hair back and he... wont :)  And I refer you again to the video of Melissa Etheridge at the Grammys- you saw that, right?  Oh man, I am so ready to go after that POS man.

    Brenda- you are definitely crazier- but not due to the Tamox, its from hanging out with US. :D

    So... I have been really busy trying to get this house I saw in PA.  It's for sale but I only want to rent it.  My Dad saw in the basement a sump pump and a water line on the wall, the place floods.  The owners set up an alarm to call them in Cape Cod when the water floods so they can have it cleaned up.  Maybe I wont want to live there once I get the place tested for mold and flood stuff, but if its manageable I would rent it, certainly not buy it.  (If I get this house I am TOTALLY throwing a party for my BC pals.) Enter the treacherous real estate agents.  The listing agents wont even ask the owner if he wants to rent because the commission they'd make would be like $600,  whereas a sale even at a ridiculously low price would mean a commission for them of over $20,000.00.  So I am trying to find the owner's phone number to ask him myself.  I find out he's a doctor, a fairly famous one who went to the same school as my surgeon friend who was just DX'd a few months ago.  She has LCIS and IDC I think.  So I left her a message asking if she can help me find this doctor who owns the house I want to rent.  Further googling discovers that this doctor also wrote articles and books about infertility, so I call my fertility shrink who is the head of the American Fertility Association thinking she would be able to find this owner who is a doctor who does infertility too. 

    What happens next?  My surgeon friend calls me back and says she wanted to talk to me anyway because she's just met with her oncologist and her oncologist said there were calcifications left and her BS who is also my BS is annoyed and telling her that she shouldn't worry about the calcifications, and she's set up for her RADs SIM on Monday but now really confused about what's the right thing to do... asking my advice.  We never get to the part abotu the doctor who owns the house I want to rent.

    and then my fertility shrink says Oh I am so happy you called, this other woman who is a researcher was just DX'd and is not taking the advice of her friends and family and docs about treatment, would I speak to her and help her.  Of course.

    Meanwhile, I found the doctor who owns the house I want to rent in Cape Cod.

    And then I got an email from this friend of my fertility doc - you know where she is, we all do, she somehow was only DX'd 3 days ago but had surgery- so I am figuring she had an excisional biopsy that turned out to be cancer.   I am trying to help her via email- and of course who the hell am I to be "helping" anyone, right?  I definitely have an opinion of what she should do (She said she's got LCIS, DCIC and ADH, her mom had LCIS, chemo rads and biMX ... although I don't have the lowdown of how her mom did, her mom had 13 of 17 positive nodes)  She said almost offhandedly that she opted for breast conserving surgery instead even though she's high risk.  I held back from telling her what high risk really means... 3 days in... she aint ready for that.  She's already resisting even getting second opinions.

    I begin to feel like I am contagious with BC.  I just wanted to find the owner of the damn house so I could rent it.

    Well at least it's nice that people I respect (like youse guys, and now two doctors) think I have a clue wtf  is going on with BC.   

    I just hope that I said the right things to this newly DXd woman.  She said she's also been posting on BC org, but I didn;t ask her name or give her mine here... again, I don't want to freak her out more, as you know I am pretty frank in my bitching and ranting here.

    I did teach her about FSBC though :)

    again,, thanks for the rant ladies... and if and when i get this damn house, you gotta come party with me and the kid 

    oh and there's a flood warning for the area the house is in this weekend hahahahahahaha that should make the owners receptive to my offer to rent!!! 

    Lisa- I totally want all the details :) 

  • Mary22
    Mary22 Member Posts: 428
    edited August 2009

    Boy, so much to read. Hellena, it is frustrating because friends and family figure since tx is over and we look ok we must be ok.

    Terri take the pill, it is not that bad. Remember not everyone gets the se's.

    Rachel, I love your pics.

    Pattimom, I did not have chemo, so I have no excuse. Maybe on top of everything else I am developing Alzheimer's. My grandmother died from it in 1998.

    I got home from another fun day of inservice and made dinner and went to bed. I was exhausted. At least Monday and Tuesday I will be in an air condidtioned blg. Some of the seminars are very infromative and some just do not pertain to my students. One was about inclusion, we are lucky our district is wonderful too all special needs students. We have two students in learning support and all our students go out related arts(PE,Art, Music,Library) the regular ed students pair up w/ our students which is great. Totally off topic. I just hope that I can make it thru the school year.

    My onc wants to change my med from tamox to arimidex, since I am now post menepause.

    Have a great w/e, off to finish up BTS, Staples has Teacher Appreciation DAy today!!!!!

  • my560sel
    my560sel Member Posts: 399
    edited August 2009

    I took it, I took it and nothing happened! I'm still here!!!!!! Thanks everyone for your support.

    Rachel: Good luck with the owner and getting that house. 

    Diane: A good cry every now and then helps make way for better days ahead...hang in there. We all have those days and I think in the end it makes us stronger. Congrats on the recon decision, it'll all be over  before you know it. I'm half way through mine and feeling great.  BTW, your anniversary date is one day after mine Smile

    Terri

  • carollynn79
    carollynn79 Member Posts: 331
    edited August 2009

    Rach, I am on your FB too Hanging in there today, peeling a little more but oh well this too shall pass right?  Would have stayed on the couch all morning but hubby said he would help with apricot jam and then decided to can some apricot nector so glad he got me up, back in the chair with the fan, can watch FoodNetwork this afternoon and nap.  Am bummed because I am missing wild blackberry season, love to wonder the woods looking for berries and what not but not feeling well enough I sure enjoy the berries my hubby finds and brings home though!!!!  Next year.  We have lots of apricots this year and I can go pick these, almost done trying to give the rest away!

    Apricots" mce_src="href="http://www.flickr.com/photos/carollynn79/3800923548/" title="Apricots by carollynn79, on Flickr">Apricots" alt="" border="" hspace="" vspace="" width="" height="" align="" />

  • HelenaJ
    HelenaJ Member Posts: 304
    edited August 2009

    Terri - well done!

    Terrij - no side FX - yay - me too - and I did the CYP2D6 test and came back an Extensive Metaboliser.  Fingers crossed it continues for you.

    Brenda & Meg - crazy is good here  :)  I'm using the "genuine and real" comment all the time now because it is exactly where I want to be.  And yes, I am a little confused at the moment as there is a lot happining inside - my body is doing very well but the soul needs a bit more love and attention - perhaps it isn't the tamoxifen giving me anxiety but this whole taking stock thing.  I see a lot of good stuff emerging so I should just be a little more patient.  And one week down Brenda - soon it will be months.  Thank you both for your inciteful words.

    Mary - I do look the same on the outside which is exactly my intention, I am going to be a little more tolerant of my beautiful friends in the future.  You are so busy with your SFBC recovery, 3 small children and now work - you don't need chemo to give you chemo brain!!!!!  You are a superstar.  Stay cool.  Please stay with us here when you switch to Arimidex.  hugs.

    Carollyn - hey, you got some photos up.  Yum.  We have mandarins, lemons, macadamia nuts and passionfruit, chickens are next on the list (gotta learn how to grown them critters).

    Rachel - I have had 3 "BC referrals" so far as my reconstruction has done so well and have a great new friend from it - I did however unintentionally upset one of them the other day :(   Good luck with the house hunting and make sure you give me lots of notice when you get a date for the party.  Crapola, I am going to be soooo jealous.

    Spring - just reading over my post from before - sounded a little harsh, sorry for that.  Hope you are enjoying the last of your holiday and you are probably counting down the days and exercising madly!!  hugs.

    Lisa - spill it ...

    Have a great day everyone - my little one woke up with a fever and we are heading towards 93 degrees (yeah, did the conversion this time) and it is still winter... what the ....

    big hugs

    Helena

  • my3girls
    my3girls Member Posts: 1,291
    edited August 2009

    Quickly....we met just briefly last night..he had to go and entertain all of his family members that were in town. I had breakfast with him this morning..good conversation, and we are making plans for the next few weekends to see each other. He is very sweet..great lips, good kisser...shorter than anyone I have ever dated...but...the qualities he has,make him VERY TALL!

    bbl...

    Lisa

  • HelenaJ
    HelenaJ Member Posts: 304
    edited August 2009

    Good kisser, good conversation, future plans and breakfast as well - WOW what great news Lisa.  Qualities over height any day.    hugs and I am so happy for you.   :)

  • LeggyJ
    LeggyJ Member Posts: 195
    edited August 2009

    Thanks Rachel, wish you lived closer, so you could punch him in the nose for me!  But I did speak to him about it and asked him stop making fun of my hair, and he said he was sorry.  Boy he kissed my a#$, the next day, and from now on I'll take a notepad to the meetings, and if he says anything like that again, I'll ask him to repeat it, while I write it down, so that I get it right!!!  That will scare him. Oh I had not seen the Melissa Etheridge video, but I found it, thanks again.

    Carolyn, beautiful pictures, you are a gardener! 

    Just a little story, today I went to Walmart, and walking out of the store, several good looking(to me, anyway) tall middle aged men, smiled at me and said hello.  Wow, I said "girl you still got it going on", then I got to my truck and noticed my blouse was unbuttoned, right between my breasts....somehow I still think they were looking at my eyes.

    Have a good one,

    Leggy

  • Rachel_BC
    Rachel_BC Member Posts: 679
    edited August 2009
    Meg- we're all about the "new normal" here in NYC since 9/11.Mary- I am surprised you can stand to see the pics after coming with me to the dealership- twice! :D what is more boring than listening to me talk about cars with the service rep? I have been actively trying to find a signing class for my son to join with deaf kids- or even not with deaf kids.  It just seems so wrong that the deaf kids get set apart just because of their hearing.  I think in an ideal world we'd all know how to sign and read braille.  I did learn that there are different "languages" within sign language, and that was a disappointment too.  I am also hoping you will stick with us when you go to Arimidex, and I wish you could stay on Tamox, but the Arimidex has better numbers for after ovaries are out, right? I can't remember if Renee stayed on Tamox or went to Arimidex?  Oh and my Dad and step mom just checked out some houses in Bethlehem today... poor  you, I may be moving even closer to you! Terri- we have a joke in Z3 land... we buy garages with houses attached.  Living in NYC, my car is 2 blocks away, and I can't even wash my own car.  I drive 2 hours away just to get a driveway.  YAY for you taking pill number one!!!! Hey, do you think top down drives in the winter will help me with hot flashes? j/k  I think we are going to have to organize a drive where we meet at Niagara Falls or somethin...Carollyn, I want to learn about canning.  Can I safely can some of the food we prepare for my kid in his washed baby food jars?  I have been freezing portions in ice cube trays.  Gorgeous fruit trees! Yeah today was the last "Summer Streets" where they shut off Park Avenue for miles and miles to traffic and eveyrone in the city get walk or bike or rollerblade, it's really cool.  Last year I walked about 2 miles with my son:I didn't make it to any part of it this year.  Well, then again, my son now weighs 30 pounds :)  Queen Helena- YAY for looking exactly the same!  I am trying to get rid of some frown lines I am sure came from BC, but that's no go without botox and fillers for now, and uh... no thanks. Yeah, today I spent every spare moment on an email writing answers to questions from my referral.  Interesting woman, and far far ahead of me in terms of how fast she is on the learning curve. We'll probably see her on this thread soon.  She's also a medical researcher by profession and a writer.  You will totally have notice for the party, and I hope its more than one, like a regular hangout. ROFL on the conversion, sorry about the kid's fever!  My son was strange for a while today, crying for no reason we could think of, so I figured he was constipated.  Gave him a ton of macerated boiled prunes, fruit... also he's got a rash that started as spots, so i had to call the doc to see if it was Chicken Pox.  I'd actually be thrilled if it was Chicken Pox, I think getting it is better than the vaccine. Our summer is just beginning to wrap up in it's usual hot sticky clammy wet oven way.Lisa - wow sounds like a great guy!  helluva first date anyway :)  Way to go woman! Leggy- the guy making the joke maybe thought he was being funny in a comeraderie way, like lockerroom humor? Men have smaller communication centers in their brains, and it shows.    Sounds like he really knows he bit the big one.  I hope so anyway.  OMG that Walmart story is so great!!!!!  HA HA that is SO great!!! All of it,  on so many levels. yeah Nice to appreciated for something other than your mind, right? :D    Hugs all 
  • PattiB
    PattiB Member Posts: 107
    edited August 2009

    Lisa - Sounds like you got a winner!

    Helena - My breast center does not do the Cyp2d6 or the CA125 blood test.  The NP gave me a reason but don't remember what she said.  Mandarins and passionfruit - yum.

    Carollyn - The apricots look really good and I also love blackberries, too.  My peeling skin healed really fast once the rads were over, just use the cream that your onc advises.  I felt very tired while on rads too.  I found I took a nap many afternoons this summer.  My energy is still not quite what it was prior to bc.

    Springtime - I consulted with 2 oncs after my surgery.  1st onc. did not mention the oncotype at all, most likely because of my pathology - stage 2, grade 3 and recommended chemo,rads,tamox.  2nd onc. felt it was standard practice since I did fall within genomics perameters for having the test, but most likely would be a number that would high enough to require chemo,rads,tamox.  I went with the 2nd onc. had the test and my number was a 40.  When 2nd onc told me the # and recommended chemo, she did say the 1st onc's experience was most likely that a patient with my pathology would have a number in the high range, so he wouldn't recommend the test.

    Diane - Making these big decisions about treatment and surgeries is enough to make anyone emotional.  Good luck with your mast and reconstruction.

    Terri - You did it!!! Wishes to you for no SE's.

    Rachel - My DD is starting her sophomore year at Indiana University of PA.  She is on their lacrosse team and has an undeclared major so far.  She will be leaving in a week on Sunday.  I have always loved convertibles, so 2 years ago I talked my husband into getting a Toyota Solara Convertable, I love it.  That is great that you are mentoring newly diagnosed bc patients.

    Hair - Now that I have full coverage, I have not worn headgear for about 3-4 weeks.  When I was in my school office a few weeks ago a dad volunteer came in to help (I was wearing headgear the last I saw him).  We looked at each other and I exclaimed "we have the same hairdo" and we both laughed - his hair is very close in color and shape but my new virgin hair is just wayyyy softer.   Last week at the Perelman Cancer Center as I was leaving from my onc. appt. a women in surgical scrubs passed by and told me "I love your haircut". I just had to answer "it's not a cut, it's a growout", she responded with "It's a great look".  My husband has been loving rubbing my head and wants me to keep it short.  Never, ever did I think I would be comfortable wearing a short do and to top it off I don't have to worry about my hair getting mussed when I have my convertable top down!  I am planning on letting it grow into various short do's as it grows out, but I just may keep it on the shorter side from now on.

    Well wishes to all!!!

  • PattiB
    PattiB Member Posts: 107
    edited August 2009

    Rachel - my neice in Florida has a 2 year old son.  At his daycare they teach all the babies,toddlers to sign so they can communicate before they start talking.  I thought that was very interesting when she told me about it.  I also froze homemade baby food in ice cube trays when my daughter was little.  I think you have to use "ball" jars (canning jars) to can.  You can reuse the screw top but you can not reuse the lid that forms the seal from the steam. Never canned before but help my mother-in-law with her tomatoes sometimes.

  • HelenaJ
    HelenaJ Member Posts: 304
    edited August 2009

    Patti - good thing your breast centre doesn't do CA125 - aaaaarrrrrggggghhhhhhhh!!!!  SFTest!!!!!!!!!

    Rach - in an ideal world there would be no deafness or SFBC and no big long legged (sorry leggy) hairy spiders.  And it is even harder when your child can't tell you what is wrong.  TMI alert - had to clean up vomit in car and also in bathroom today - ahhh a mothers love. 

    Leggy - ha ha ha - nice eyes!!!

    big hugs

    Helena

    Late edit - Rach, putting your party in my denial box too - can't stand the thought of not being there and even a lifesize cutout of my madmen atavar just won't make me feel any better so don't suggest it!! 

  • my560sel
    my560sel Member Posts: 399
    edited August 2009

    Helena: Visited Australia and NZ (the Kiwi's..lol) for my 50th birthday present this past January - it's a long, long way away............but your country is just beautiful.

    Rachel: Top down drives in the winter are great! My DH and I did it a couple of times the first year we had the car- get all bundled up, put the heat on and go! We don't drive her in the winter anymore. We get way too much snow and although the car is pretty good with winter tires and a bag of sand in the trunk, it's no match for 3 foot-high snow which hasn't been cleared from the streets yet!

    On another note, took pill # 2 last night and so far the only SE I have is a slight headache both mornings when I woke  up. Actually, maybe the headache I had this morning was due to the wine I had last night! Innocent

    Terri

  • terrij152
    terrij152 Member Posts: 63
    edited August 2009
    Terri, here's hoping for no SE's for you.  I started Tamoxifen over a month ago and so far no major SE's for me.  The only thing I've noticed is that when I finally got my period ( I was a few days late, I'm always on time) it was very light and I hardly had any cramps.  Now that's one SE I like, LOL!!! Wink
  • kfinnigan
    kfinnigan Member Posts: 490
    edited August 2009

    My DH is one of 9 kids, he's #8...his brother (#6) and sister (#7) were born deaf (mom took some medication while pregnant with both that caused it)...and his stories of growing up using homemade 'signs' with them is really trippy.  His brother at one time comtemplated suicide when younger cause he felt like such an outsider.  His parents to this day have a hard time communicating with their own children!  Never tried to learn signing.  My DDs and I took ASL (American Sign Language) a few years ago for a year and it was a big eye opener to us.  It helps to communicate with them and their significant others, etc. 

    Rachel - I hope you find somwhere for your DS to learn to sign.  Simply awesome!  DH bought a spiffy Porsche convertible a few months ago, celebrating post SFBC chemo!  What fun that car is!  Something about the sky above you and a fast car....yum   Good luck with the house hunting, I really like the idea of the Avatar pics at the party! haha

    Lisa - First date sounds like it went very very well!  Like our own little steamy soap opera!   YAY!!!  Keep us posted girl!

    Leggy, funny story @ Walmart!  Love it.

    Terri - glad you started.  Hopefully the headache was from the wine and not the Tamox!

    Helena- hope your DD feels better soon, poor thing. 

    Jealous of all of you with fruit trees!  We planted several citrus trees in pots, so it will be awhile...

  • carollynn79
    carollynn79 Member Posts: 331
    edited August 2009

    Rachel, you can freeze in the babyfood jars but not a good idea to can in them.  I used to make babyfood and freeze it in ice cube trays and then take out how ever many cubes they would eat, even took it to the sitter, my "baby" is now 24 and lives in Vegas!  You need to use regular canning jars where you can buy new sealable lids, you can reuse the rings.

    Photobucket"

     This is the leeks, onions and view of our neighborhood and some of my roses and garlic!

    Roses and garlic"

  • my3girls
    my3girls Member Posts: 1,291
    edited August 2009

    Thanks Helena...and everyone for the good wishes about my date.  It was short...but sweet. Under different circumstances..we would have spent more time together, but it was such a big important weekend for him. He was in town for his son's wedding.  He said he would be back the 2nd weekend of Sept...and would come in on Friday, and maybe we could spend the whole day together. I told him, that I was free labor day weekend, and maybe I could come up for a visit...he liked that idea.  I agree..I used to be so hung up on height..and honestly, in some small way, I do think about it. But hell..look at Sonny and Cher..lol..now I am not Cher...I am only 5'4", he is 5'8"...but I wear heals often...but hell with it. I just really want to get to know him better, and see if all of our feelings, attraction gets even stronger...should be fun!

    Leggy...I read your Walmart encounter...and laughed so hard!! Of course they were looking into your eyes!! You go girl!!

    Patti....your hair growth stories sound just like mine did!! I got compliments all the time about how good I looked with my "haircut", and my response was the same..not a cut, but a growth! Feels so good....to not cover the head..and go out with the "new do".  Mine came in pretty gray, so I had the short short buzz look colored by my hairdresser. That felt even better.

    So far..no real s/e's from the tamox. Like I said...the first time I was on it...really was not that bad at all.

     Here's hoping for no s/e's for all!!

    Also..here's hoping that I have a soap opera to report to you ladies....lol!!!

    xoxo

    Lisa

  • kookiesmom
    kookiesmom Member Posts: 57
    edited August 2009

    I have been off the Tamoxifen for  10 days now cause I had my exchange surgery on Monday and Dr. wanted me off it.  I guess I'll go back on tonight.  Couple things I noticed since my mini break were my knees stopped hurting and my right thumb (my texting digit!) wasn't hurting.  Could be cause I have been a couch potato this week now that I think of it!!!  The hot flashes are still going strong unfortunately.   I am just wondering if anyone else gets freezing cold too after the flash?  I will be in bed with a sheet, bedspread & 2 blankets and actually be shivering!!!  Then I get a weird feeling and I am burning up and my cat has to get off of me quick so I can throw off the blankies.  He thinks I am losing it!  I guess I should mention it to my dr. My internal thermostat is way out of whack!!!  For those who have been on it for along time did the SE ever dimnish or go away?  Please tell me yes....

  • Mary22
    Mary22 Member Posts: 428
    edited August 2009

    Boy, you ladies have been busy. I did go out Saturday and run my errands. We had pizza for dinner.

    Lisa, glad your date went good.

    Terri, glad you finally took that first pill. Keep up the good work.

    Rachel, if you want to learn to can, come up to the Pocono's when my MIL is canning. Of course this year w/ the weather her garden was a bust. Occasionally she will get pears and peaches, then go into canning mode. The first few years I lived up here we made our tomato suace and canned it. Made our own grape jelly and grape juice.

    Hope all had a good w/e. I vegged out most of the w/e. Back to work for 2 days, then off until August 31, the first day of school.