Bottle o Tamoxifen
Comments
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patti- thanks again for flaxseed info, smart to call nutritionist! boy, those U of P folks do have their poop together for cancer patients!
kari- good for you, and I love your rad onc. confirms what i was saying too, no extra worries for your heart
mary- I vote for sticking tamoxifen up DH's nostrils, for no particular reason
leggy- mmMMMMmmmmm chopped liver!!!!! Yummy! and yeah to patti b, liver and onions with BACON yeah!
Kookiesmom- eating take out eh? so this leg problem has turned you into a New Yorker! major drag about the housekeeper though, and pretty amazing in this economy... talk about major drags, what a shocker for you with the cysts and fibroids... you probably know by now (I am two pages behind here catching up) that we get cysts and fibroids all the time, nothing to do with cancer, and we never know about it unless a problem happens or someone gives you an TVUS. I found out about all this when I started IVF, in that case the TVUS is without the bladder full, so I was VERY surprised when I heard abotu the bladder full for the kind of TVUS. With IVF the freaking TVUS wand was like my boyfriend, it shoulda bought me dinner and a movie at least. Anyway, fibroids grow and turns out my uterus was fibroid city, the reproductive endocrinologist was like, "your uterus is like a lunar landscape, boy am I glad I am not trying to implant you" (I had a surrogate deliver my son). Cysts can be anything, its a catch-all term. When our ovum are not fertilized each month, they become "cysts", but not the same kind of cysts. But... like with everything else now as cancer patients, you stub your toe and any good doctor will check to see if its cancer first... kinda makes you boomerang, because you had forgotten the cancer for the moment, and here its stuck in your face again, like as if you had a pop-quiz mammogram, but then you gotta be happy they are checking this crap out. So... something new to worry about while you sit around with your feet up incapacitated- argh!!! There is no reason to believe that this is more likely to be a problem because of Tamox, as far as I know, in fact the Tamox should be shrinking fibroids (in PRE-meno women, Tamox reduces fibroids, because fibroids feed on estrogen, but in POST-meno women Tamox could grow fibroids because post-meno women got no estrogen and the thing abotu Tamox acting as a "weak" estrogen.) I know about this b/c of my pre-existing monster fibroids and my originally looking forward to menopause shrinking them, and when I found out about the Post Meno fibroids growing, I asked my ONC... ) Well it totally sucks that you got sucker punched like that, but at least they got you in quickly, you'll take the test, they are watching you so... you're in good care.
Trish- I remember reading about your cyst/fibroid stuff, it may have been one of the reasons why i asked my ONC what was up. Any chance what I just said above jives with what you have been learning? The uterine stuff certainly is a Tamox concern, but the ovary stuff i thought was not?
carollyn- I can't help myself, you guys are freaking harvesting wheat but growing broccoli sprouts seems difficult????
OK gotta get to next page to see what happened next - and as usual I agree 1000% with Helena...
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well talk about CRS, this was the same page, and I obviously can't even find my way around one thread... :::making idiot sounds:::
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oh and i mean wow, fluttering?
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I have a lot of fibroid tumors. Like you Rachel, I was looking forward to menopause and having fewer problems. I really am attached to my uterus and didn't like the feeling that my gyn was always trying to prepare me mentally for a hysterectomy. Anyway, now I am post menopausal and taking tamoxifen. No problems at all with the fibroids. I had a ultrasound last year and my gyn just said "well it shows you have fibroid tumors, but we knew that."
I won't have another ultrasound unless I have symptoms. I hate them . . worse than mammograms, imo.
Kookiesmom, it is a drag to be on bedrest and to have to keep your leg elevated. I had to do that when I had cellulitis and I hated it because it was so hard to do anything, even read. We don't have cable, so don't have TV and I was bored! I hope you get released to go back to normal activity soon and the cysts turn out not to be anything important!
I am very happy because it is Friday, I will be done working soon, and I am going to go to the climbing gym!
Take care all!
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UUUMMMM don't forget the mashed potatoes...Sorry Kookiesmom, I'm still waiting for my results. Yes Rachel, the wand is....OK I can't even say it.
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Rachal, Correction we are planting wheat and rye! I am confident that I can grow anything I WANT to!!! I promise when I get caught up I will try them, they just do not sound good. Had a great soup today though, canneloni and red beans I cooked from dry bean, 2 pieces of bacon, vegtable and chicken broth, leeks, garlic, carrots, kholarabi, and swiss chard all from the garden then added a little homemade salsa for a kick! Of course the peach tart was good too!!! Love this fall weather, hate the fatigue oh well 2 months and 3 weeks down only 4 years, 9 months and a week to go!!!
I have fibroid tumors also but they do not bother me at this time, they will watch them along with the little tumor at the nerve end on my foot and all those nodules on my thyroid, I am begiining to think little tumors are the norm, at least they are not big ones right!
Hope all have a good weekend, planning on canning plums and tomatos.
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Carolynn, can I move in with you??? I'll clean your house.
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Yum, carollyn!! I love soups but it has been too warm here. Fall is still another month away, even though the days are getting shorter. Anyway, did you get the email I sent you with the Death Valley pdf?
edited for spelling. . .I always notice an error as soon as I hit the submit button.
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Hello, I really think I got my point across to dadh, I took the kids to his mom's tonight and did my shopping. And this morning he did not have his banana, because I did not go to the store on thursday. He was a bit upset, but he went out thurs. to get a haircut w/o kids he could have gotten his sf bananas. OOPS sorry to complain. I am getting married to someone else, I proposed today to one of the bus drivers. Yes, was supper nice today, he told me that he only had one of our students. Anytime we have a student out, it is just that much easier. Also another student went home w/possible chicken pox( he had vaccine), this was actually a good thing since he throws charis and hits, kicks, and bites. I really do hope that he does not have chicken pox though, because that would just be mean. It made for a nice Friday, however I am still having a few rum and dt cokes.
Have a great weekend!!!!!
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Mary- you're already marrying me, you can't marry the bus driver too!! Ah, such is my lot in life, to be dumped for the bus driver. Hey if the kid has chicken pox maybe I should bring my son to play with him, I prefer the pox than the vaccine...
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We can move to Utah where poligomy is legal!!!!
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Mary, I can't quit you, but now I am in love with Wolfie. I'm marrying Wolfie. LEEEEGGGYYYYYY Where's my picture of you and Wolfie????
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LOL!!! TOO FUNNY!!! Right about now I am wishing I would have gone to Vegas, for the Ta Tas.
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DH didn't get his bananas .... I thought you got your mojo back Mary....
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KARI ... can't believe I missed your post about your radiation. That is just the best news. I am so relieved for you, bet you feel fantastic. Big hugs, damn the fipples... (((((((hugs))))))
And with that I will leave as my football team (rugby league) is playing for a place in the Grand Final tonite and I am just about to down a glass of wine in anticipation. My DH's team won their game last nite so it would be just soooo cool if we both were in the grand final... and my team win of course heheheheh.
Have a great nite/day everyone.
Helena
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Leggy- sure you can!
Lisa- I received it thanks, talked to son and he thinks its is a good idea, he will decide what we are doing when I get out there, he is worried about what the weather will be like, me I am just looking forward to seeing him and relaxing for a bit.
Leggy, he likes to cook too and is closer but really busy he works 60+ hours a week!
Helena hope you had a great game
To All, sorry happily married so will not be joining you in Utah!!! LOL, we can continue with our online affair though!!!!
It is stomping time again, I am making our favorite Youngs Farm Rose, it is a mix from the differnt types of grapes in our garden! Busy weekend.
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Helena, you made me laugh this morning.
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Good morning ladies!! My question to all of you is this:
I have been having the WORST leg and foot cramps at night
, anyone else experiencing this and if so; what have you tried that worked to get rid of them?? The started about a month ago (I have been taking Tamox since 12/01/08). I had one wake me up this morning at 4am and it lasted about 45 minutes...I can handle the "power surges" and thinning hair but these leg cramps SUCK!
Patti
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Hiya ZM
Welcome! Here's a bit about night leg cramps from the Mayo Clinic:http://www.mayoclinic.com/health/night-leg-cramps/MY00410
with some things to try and a "when to call the doctor" page.
Yeah, it may be Tamox and that's worth checking out with your doc, but maybe its some thing else that just started a month ago, 'cause you have been on Tamox nearly a year. Most folks I have read about have less SEs nearly a year later, instead of more... I hope so as I just started.
Last week one of ours on here was afraid her head was itching from Tamox... turned out to be head lice... so let's hope your leg cramps are something else!
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Stupid football!
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INTERMEDIATE METABOLIZER
Just got the results of my DNA tests. Anyone out there an intermediate metabolizer? Was your tamoxifen dosage changed? More/less? Any comments would be greatly appreciated. I suspect I'll be on tamox by the end of the week. Cheers all
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Kookiesmom: "I just hate all this drama in my life. It is getting embarrassing." I understand! I have had multiple health problems and especially over the last fourteen years with cancer and long term problems from cancer treatment. I had this image of myself as a healthy person in spite of having really messed up knees, and then I got cancer once, twice, three times! Oh, the indignity of it all! Really! I was embarrassed, and at times ashamed (which is a really toxic feeling that I had to address). Part of it came from the belief that I had somehow done something really wrong, and I did not even realize that I had that belief for a while! Then, once I recognized that and managed to let go of that, I realized that I was embarrassed to think that others would see me somehow as pitiful or weak or defective or whatever. So, I then had to work through that one! I realized that I am much stronger than I even previously believed when I saw myself as healthy, because I have overcome so many obstacles to good health and I keep on going, keep on living, keep on trying to be as well as I can be.
Having said all that, I am glad that you ranted and I hope you feel well supported by the strong women here (that includes those of us who cry, or rant, or just freak from time to time!). Be lovingly kind to yourself and keep us posted on how you are doing. We care!
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Really nice Brenda, I wish I could be as strong as you, and I've only gone through this SFBC once and don't intend on going through it again. Good luck Kookiesmom! My gyno. emailed today and reported that there was no sign of cancer from my biopsy,,,,,there she called it a biopsy, not an Endometrial sampling, Thank God, I don't have to go through anymore of that business for now. She let me know before the weekend, so I wouldn't worry, which was nice of her. Rachel, I can kiss that bloody wand GOODBYE! Good god, when she finished and held that thing up wiping it off, I almost fainted....No thanks, I don't want a boyfriend that BIG.
Here's Wolfie, it's time for his dinner.
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The Gyno. emailed me before she left for the weekend, saying that the biopsy was neg. for cancer!! There she called it a biopsy, not a sampling, oh well no uterine cancer, THANK GOD!
Brenda, great post for Kookiesmom, sure wish I can be as strong as you, but hopefully I won't have to go through anymore cancer bullshit.
Rachel, I said something naughty about the wand, so I deleted it, but here's WOLFIE!
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oh... my... gawd... I come here to make some semi smartass post and find you women being mind blowing again...
Brenda- applause applause for putting it so well into words, I am going to have to copy that down and use it to explain the phenom about how we as cancer patients end up feeling. Beautiful. And man, that sucketh much!
LEEEGGGGYYYYYYYYYYYYY- How freaking cool is that? How awesome that your Gyno not only jumped on it when you told her your symptoms but also emailed you on a Saturday to give you good results. You must be floating on air! And the picture of you and Wolfie ROCKS!!!!!!!!! (I can use my imagination for the naughty wand remark, but of course I'd love to see it!)
OK back to my semi-smartass post... So I bought 24 apples at the farmer's market on my block this morning, because the kid likes apples and I could use some apples and they were like a buck a dozen, and its fall and all... so then my high school gal pal comes to visit from PA and brings me an apple cake (oh man I ate wayyyy too much of that... please never bring me a cake!!!!) and a dozen ears of corn and a half dozen apples and a half dozen pears... thinking I live in the city and have no farmer's market, sweet girl... but now I have a Baby Boom situation on my hands... so many apples and pears. So... anyone got a nice recipe for stewing or baking or making some sort of fresh compote without a lot of sugar I can freeze for the kid over the winter?
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Rachel, make apple sauce. Chop up the apples, add some water - to cover - and simmer uncovered. Stir occasioanlly. Towards the end add a bit of lemon juice and sugar to taste.
Leggy, I saw the naughty wand remark before you removed it and I thought it was pretty darn funny.
I am glad the results were good.0 -
Yeah, it was naughty. Hey, I'll bet Carollynn has a good recipe for anything! I always, wanted to have a farm.
Speaking of farms, my ex-boyfriend stopped by today, and brought me three bags full of goodies. Tomatoes from his garden, pasta sauce made with his tomatoes and his lamb meat (poor sheep), eggs from his chickens and all kinds of stuff. YUMMY. He's a nice guy, who lost his sister to cancer about 10 years ago. She went the holistic route after surgery, even went out to New Mexico did the Indian Healing thing, which didn't exactly have the results, she was looking for. I think he just wants to look out after me, or fatten me up, not sure
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WOW! I've read just about all of this thread in 1 sitting. You women are amazing! I only wish I would of found this site 5 years ago.
I keep looking for information on women who LOST weight when finally done with Tamoxifen. Been on this toxic stuff for 5 years and will be finished next month WOOHOOO! I can not tell you how excited I am to finally be thru with this. I gained 35 pounds. I think I had every side effect you can get with this. Thinning hair, super emotional, horrible leg cramps, nightsweats then chills, hotflashes so bad I would have to wash my hair 2 times a day. Does anyone know of anyone who when finished with tamoxifen lost some weight? I'm convinced it changes your metabolism, makes you hungry for sweets, and tired.
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LeggyJ - is Wolfie a Schnauzer? I can't tell from the picture, but i'm seeing Terrier. I'm on the verge of getting a dog - I love all dogs, they are all beautiful to me. I always had dogs growing up (I brought my first puppy home when I was about 9, forced him on my parents) and when I got older I started abducting stray kittens off the street - they all ended up at my parents too. My parents would always complain, but in no time at all, my dad was cradeling them all like a baby and my mom was warming up their food. And I'm very happy the endometrial sample was negative. Although the risks for cancer (resulting from Tamox) are very small, I would get that checked out too - pronto. I'm not leaving anything to chance ever again.
Rachel - spoke with my oncologist about the CYP test (and me being pre-menopausal) and he still insists that I take it - of course I will, but it pisses me off that he didn't mention this very relevant fact when he went through his 5 minute tamox schpeel. I also had an appointment with the radiation oncologist (love her) for a skin check and also asked her about tamox and she feels it's a key component to avoiding a recurrence. I'm on day 24 and haven't felt anything - no SE yet (not that I'm complaining). Interestingly, my Mom said she didn't have any hotflashes during menopause - indeed, she was always cranking the heat up and my dad was always moving it down (incidentally, my mom was also dignosed w/ ER+ BC almost 14 years ago and she's doing great).
Kimmergal - congrats on the tamox! As I said, I haven't felt anything yet, but interestingly, I do have a reduced interest in sweets. I would usally have one cupcake a week (there's a great cupcake bakery in my hood) - a reward for going to the gym all week. But lately, I haven't been in the mood at all. Yesterday we walked by the shop, I looked in the window and felt nothing - I hope it lasts!
Lastly - a question about etiquette. I had my surgery the last week of May and finally sent my gyno and radiologist "thank you" notes. The gyno kept tabs on me throughout my diagnosis and treatment - called me once a week and literally picked my team of doctors and they all snapped to it b/c she was always in the background (she's "well known"). As an aside, I was not getting regular mammos, met with this gyno for the first time in march and she insisted on thorough screening b/c of my family history (my former gyno repeatedly said it wasn't necesaary yet - moron). And the radiologist followed me outside her office (as I was leaving after my mammo) to convince me that I did in fact need an MRI (which ultimatley, and immediately detected my tumor). I had no communication with the radiologist at all since the day of my surgery - although she did call me, and I called her back and left a message w/ her receptionist that I was fine etc. Also, the gyno and radiologist are BFFs - so she knew the surgery went well etc. I sent gushing thank you notes to both (they both walk on water from my perspective), but didn't get around to it until last week. How bad is this - my friend said I should have done it two months ago, or not at all. In my defense, I was just trying to get through treatment and was overwhelmend w/ work and family stuff and as soon as treatment ended went on vacation, came back and wrote the cards. Was this really that bad?
Thanks all - and have a great sunday (although it's crappy and raining in NYC!).
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Rachal, Applesauce is always good as Lisa said, when my boys were younger I would make it and freeze it in ice cube trays or as they got older cupcake tins, pop out, freeze in freezer. ( I made all theri babyfood and froze it this way, could not afford to buy it) I would take them out let them thaw and even took this to the sitter. My kids favorite as babies was apple and sweet potato cooked together, puree and freeze it is good for adults too! Cook the pears in pineapple juice, you wil not have to add sugar, you can then freeze, can or just enjoy for a few days. Keep them sliced for you and puree or mash with a potoato masher for a littel texture. Let me know if you want any corn recipes, gotta go hubby is here we are going to can tomato juice.
Leggy I too had a uterine ultrasound and have a lot of improper things to say about the "wand", I figured a man designed it you think?? LOL
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