Bottle o Tamoxifen
Comments
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Kfinnigan - I am a cheap date, and now I am a trophy wife...with my no boobs and man hair! My husband is a lucky man!!
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j414- hey wouldja PM me your great derm's name? I went to a couple- all of them were highly rated/recommended/castle connolly whatever and they stunko!
I am SOOOOO jealous you saw Hugh Jackman and family... and near my nabe!!! There's few stars I care for, and man, he's one. I think he also married a woman who is like 10 or 15 years older than him. He is just totally my hero.
rofl Crystal, cheap date, trophy wife, no boobs and man hair...
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J414 - we had a couple of pages dedicated to Hugh a few months ago - he's a honey!!
Man hair, cheap date, trophy wife... he he he he, love it!
Have a great day everyone
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Hello to all!!!! Hope everyone had a good day!!!!!. Shelley, where in Northeast Pa is your vacation home, I live in the Poconos!
I too am a cheap date, dh took me to lunch yesterday, then we had some afternoon delight!!!
I am tired, to debating about youngest dd's daycare open house!!!! It is at 7pm. We shall see!
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Its so hard to tell if I have Tamoxifen- related rage when people are so freaking annoying.
Oh Mary- caught in the nursery school jam like me after all eh?
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Hey gorgeous Rach - I swear there are more ignoramus' out there since SFBC, either that or we just notice them more, being more enlightened and all that we are now
hugs.Mary you and your mojo make me sick.... just kidding.. holy carumba woman!!!!!
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Can we drink white wine?????? I'm an IM and haven't been a cheap date in a long time...but thanks for the List j414, TX must be working pretty good on me, since I have all the side effects, except nausea.
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AllieM22,
Inhibitors of Cytochrome P-450 2D6 and therfore Tamoxifen Effectiveness
amiodarone
clomipramine
halofantrine
pimozide
amitriptyline
cocaine
haloperidol
propafenone
bupropion
desipramine
hydroxyzine
quinidine/quinine
celecoxib
diphenhydramine
imipramine
ritonavir
chlorpheniramine
doxepin
levomepromazine
Sensipar
chlorpheniramine
duloxetine
methadone
sertraline
chlorpromazine
escitalopram
metoclopramide
terbinafine
cimetidine
fluoxetine
moclobemide
thioridazine
cinacalcet
fluvoxamine
paroxetine
ticlopidine
citalopram
goldenseal
perphenazine
A drug list of inhibitors and substrates is at http://www.healthanddna.com/Druglist.pdf. If you are an IM or PM; you should be aware that all 2D6 substrates are affected by your genetic type. http://www.genemedrx.com/explainreport.ppt explains this well0 -
OK this is totally off-topic - but I like the people on this thread today more than I do other people, and feel more comfy bitching off here with you, and maybe someone knows a solution and I'm going crazy. Over the weekend the Cookies for Kids Cancer people I have been working with (or thought I was) since May just informed me that although I ordered tens of thousands of chocolate cookies to send to the troops in packaging I selected, with cards that explain that they are from me, the FDNY firefighters and the CFKC people, they decided they will only send individually wrapped shortbread cookies, no card, no nothing, no discussion, no information, I have never even see the cookies they plan to send- take it or leave it.
Like a Marine in Afghanistan needs one anonymous shortbread cookie. They decided this on their own and just dumped it on me, now I have 30 days to get something for the troops by the mailing deadline, Nov 13. Worse, my fallback is a great company that makes chocolate popcorn and has worked with me for the last 3 years, great people, honored to be helping the troops- but at least one of my troop locations already has popcorn coming out of their ears, and a couple of the others got popcorn before. The whole point I am trying to make is that people care about the troops, especially at holiday time, and these people have put me in a spot where I am making the opposite point, that no one cares enough except the same 'ol people.
It makes me sick that people get off on dissing the troops because they think that's like protesting the war. This aint about politics, but I smell it from CFKC, they have put me in a position where I can't help the children and the troops at the same time- for no discernable reason and there's nothing I can do about it.
I know I could ask my pals here and the FDNY guys to bake cookies, but trying to pack thousands of cookies coming in from all over the place and properly address them to get to the troops and have them stay edible for 2 months until Christmas too much for me with a 20 month old and SFBC and a court case beginning Nov 5 to get back into my home is just not logistically feasible, even for me.
On 9/11 a sister of a firefighter lost on 9/11 came running up to me and introduced me to her father and said I was doing such great work, the firefighters whose hands are tied and pockets are empty are heartened by the work I am doing in their name, and I just can't let them and the troops down.
Talk about nauseous, and losing sleep...
Does anyone know a great cookie or brownie making company or a charity that sells these kinds of goodies and can ship to APO addresses? I am calling all over, checking every charity gift shop I can find- because its nice to give the money to a charity to buy the goods, because the FDNY firefighters can no longer sell their own gear, and even if they could, shirts are $15 a pop minimum, I can reach far less troops like that. But I will buy from regular companies as long as the product rocks and they can do APO mailing. It also makes me sick that so many companies don't do APO mailings. I'd like to support businesses that go the extra mile for our troops.
I am so embarrassed to post this but I'll do pretty much anything to fulfill my obligation.
thanks in advance for any help.
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Rachael, Were you prescribed cortisone? All I was told to do if this developed was load on the glaxal cream. (Then when it continued after the rad, I was told to back off the cream and reduce the 2-3 x/day). Are you 'airing' it (leaving the boob totally exposed for at least an hour a day to dissipate the heat)? I found to air the under-fold, I had to sort of recline with my arm over my head....
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Hi Allie, One of the Canadian provinces' breast cancer site lists the following:
The following products (pills, powders, teas, etc.) are known to contain hormones in a variety of doses and formulations1. Check the product label carefully as some products may contain a combination of ingredients from the list below. Other products also may contain hormones but may not have been tested.
African Wild Potato
- Aletris
- Alfalfa
- Androstenedione
- Anise
- Asparagus racemosus
- Beta-sitosterols
- Bitter yam
- Black cohosh
- Blue Cohosh
- Black Currant
- Bladderwrack
- Boron
- Burdock
- Chasteberry
- Chrysin
- Cola Nut
- DHEA
- Dong Quai
- Dyer's Broom
- Epimedium
- Evening Primrose Oil
- Fennel
- Flaxseed (not including flaxseed oil)
- Flor*Essence® (contains red clover)
- Fo-ti
- Genistein (combined polysaccharide)
- German Chamomile
- Ginseng (all types)
- Guarana
- Guggul
- Hops
- Hu-Zhang
- Ipriflavone
- Job's tears
- Kudzu
- Lavender
- Licorice
- Milk Thistle
- Mountain Flax
- Oregano
- Panax (pseudo ginseng)
- Pleurisy root
- Pomegranate seeds
- Pregnenolone
- Raspberry leaf
- Red clover
- Resveratrol
- Scarlet pimpernel
- Sage
- Schisandra
- Soy supplements
- Star Anise
- Tea tree oil
- Tinospora cordifolia
- Wild carrot
- Wild yam
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as far as I can figure, Leggy, the resveratrol we are supposed to avoid is in the skin of grapes (as well as cocoa) and as white wine is made from the pulp and no skin, I figure it should be fine.
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I've never heard about the wine thing...I've talked to my onc and other gals I know have too and the seminar I went to for SFBC and a video from UCLA about what to do after SFBC doesn't mention to avoid wine. The common theme amongst oncs for ER/PR + gals is to not overdo the drinking. 3-4 drinks per week is ok, but I've been limiting to about 2 or even less.
Rachel, good luck with the cookie thing, hope Meg's link pans out for ya, that's just bad news as far as your current cookie people. I agree that an anonymous individually wrapped cookie isn't somethin special, and especially at the holidays, those guys are so lonely, they need that personal touch. My contact isn't due back over there til Feb. I will see if I can find out anything else and if I do, will let you know. Hugs, and sorry about the irritated underboob. SFrashes!
Crystal, you made me laugh! Your hubby is a lucky guy
My older DD's name is Krystle!! love that name.Mary, check you out, gettin all busy in the afternoon! You go girl!
I had a long talk with a gal from our other office, she called me about something, and we got on the subject of losing the "mojo"...she is going through menopause naturally, this is like her 2nd year, and lemme tell ya, she is experiencing the bitchiness, hot flashes,night sweats, no mojo...sounds like Tamox huh?! She can't take the hormone replacement stuff cause she's had a bunch of the pre-cancerous cysts so she suffers. But I have to say, she seems to have it so much worse than me. I'm a lucky gal after all!
Ok, I'm off to veg out and go to bed soon, love ya girls, big Hugs!
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I have been reading that chamomile and resveratrol are natural aromatase inhibitors. So, does that mean they are good or bad for SFBC?
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Rachel, excuse me if I am being the devils advocate but as far as filling your obligation, well life has taken some crazy old turns in your life. I'm not sure what your obligation is, whether it is helping the troops, the kids cancer or both but if the task at hand isn't what you envisaged is there any way that you could do something else to support both of these great causes which doesn't impact so much on your everyday life? I don't know about all the other lovely ladies here but geez I'm just managing to keep my own head above water let alone anything else. Don't be so hard on yourself, you have done SOOOOOOOOOOOOOOOOOOOOOOOO much already!!
On the other hand, not being the devils advocate and being sweety pie happy face ... LOL .. if its cookies you want.. well I can't really help there. Us Aussies are great at the lamingtons and pavlovas.. hope someone turns up who can help out.
big hugs
Helena
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meg- I am on those cookie people, thank you! I sent them email b/c it was too late last night and too early this morning. Thank you! Helena, if you got someone who can produce and ship lamingtons and pavlovas, and ship them to military addresses, even though I don't know what they are, I'd send 'em. I've got letters from Aussie and NZ troops who got some of the stuff from sharing with US soldiers. kari's got it right, its not about the cookie, its about someone caring. Thats also what hurts. I also am bugging a great cookie place here, they do ship but they don't know the difference between an APO and a P.O. Box... but if they can produce and package the cookies, I will find a way to schlep them to the post office and fill out a hundred copies of the forms... it would not be the first time.
As far as my obligation, its just promises I made to myself after 9/11. I was helpless to help anyone else then, so this is my way. I have no other way to help the FDNY firefighters, and then I promised the troops as long as they were there for me, I am going to be there for them. There's nothing quite like seeing the military coming to help and defend your city- and they were here in the days and weeks after 9/11, guarding the bridges and tunnels, working at Ground Zero. And then its also my way of saying FU to SFBC, because it aint gonna stop me. It was sweeter when the money was going to fight children's cancer, and sucks much they let me down.
As an aside (to my aside) I called on my firefighter connections, and found them broken - not the connection, the firefighters. The 9/11 firefighters are suffering. The rescue work made them sick ( a lot of cancer) , most of them retired, the economy and all the funerals and pulling together to support families who lost their fathers have wiped them out, and they wont complain. It hurts them that they can't contribute and they know me 8 years so they let me do things in their name, admitting that I was having trouble was hard. I know it means a lot to them what I am doing, because they tell me when I see them at 9/11 mass. So I have to do this, for the firefighters and the troops and my own soul- even though if I couldn't do it, the firefighters and the troops would understand. They know all about being let down and not blaming anyone else. I just hate that. And I hate it that the ones who care are the same ones who are too broken to do anything about it while those who benefitted the most sit back and do nothing. OK, enough of that.
at least my boob rash stopped hurting.
bcamb, my RAD ONC was great in that she gave me the kind of RADs that wouldn't touch my ribs or heart or lung, but other than that she was completely useless in terms of SEs and skin care, and also the dermatologists were completely useless. I got a very very bad burn, as my big ol floppy boob heated up everything underboob, and I - following instructions- kept ripping off my skin. (Way too much info, I know, sorry) But it was back in May that I ended RADS, so I am thinking this is just part of radiation-skin being more vulnerable to rashes and stuff, but maybe its still cooking... it's still puffier than the other boob. and on the alcohol, wine and other stuff, I asked my ONC if I could take benadryl if I get hives or other allergic reaction and I asked if I could have some booze some times- even tie one on, both of which do not often happen and he allowed it, he said ti would be no problem for me, especially on an occasional basis... again, that's just me, so I ain't sweatin it. I aint touchin' soy (except soy sauce) because I read fully both sides of that argument and there is no definitive answer yet, although the definitive tests are currently underway. I also got a big ol' boob cyst 6 months before DX when I started gulping chocolate soy milk. I can do without soy, just leave me my chocolate please!
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oooooo good news... a famous famous local bakery is working with me on the cookies for the troops. Its an Italian bakery, and the woman in charge is French, and she's so cute when she says "oh it eez for ze troops so it must be the best and I will cut you ze break on ze cost, such a big order oh la la!" they can also shrink wrap the cookies so they will stay fresher longer. The best in New York City is coming through for the troops and the firefighters!!! We'll see tomorrow, working out the details.
meg- I will still try to work out something with the cookiecart folks.
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Would this be the venerable Veneros???
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I can't give up red wine...ever.
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Chelev- you betcha babe!!!! http://www.venierospastry.com/
I dont; want to jinx it, its not a done deal yet... but since i have bothered everyone with all the bad news, here's the current possible plan... cookies from venieros (the BEST) and cards from cookiecart kids (also the BEST), picked up by USPS, frozen and shrink wrapped by venieros for freshness...
Possibly shlepped also by FDNY Battalion 2... but we'll have to see about that too... I'm so excited... but not counting my chickens yet.
Oh and the popcorn folks are standing by ready to do whatever I need, as they have for 3 years running, with gusto and love - if anyone wants popcorn, hamptonpopcorn.com
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Crystal, since the red wine is good for our heart and we did the Avastin, I think the red wine is good for us! LOL!!!
Rachel you be da bomb!!!!!!!!!!!!!!! I love you! And the firefighters and troops love you too, thanks for being you...you big ole softy!
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Yes...I like it. Red wine fixes heart damage done by Avastin.
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I just reconciled my bank statements back to June... looks like the worst of my side effects (aside from the insanity with the burns) was the months AFTER RADS Anyone who is doubting if they are really having radiation brain, I am here to testify. I can't speak to chemo brain, but it stands to reason imho. I can tell sometimes just by how someone is posting. This crap really messes with your cognitive functions. kari- thank you, it means a lot to me knowing you come from military, but I never meant to make any of this public. Just when there is a chance that I wont reach the troops or have nothing to give, then I go to emergency measures. I hope tomorrow I will have this sorted out, then i just need to confirm with my contacts "over there" and we're good to go. Doing this is completely selfish, its for the great feeling I get from it. If I didn't do it, my heart would hurt during the holidays. Since the mailing deadline is November 13, by (USA) Thanksgiving my heart is already full, half the time the troops have already got the stuff by then- I don't know how to tell them to save it for Christmas, but I try to send so much there's some left by then. OK OK Christmas, Hanuka, Kwanzaa, Winter Solstice, whatever... no matter what your beliefs, when its Christmastime and there's no gift for you- and if you are stationed in Iraq or Afghanistan, far from family and friends, well that just sucks. I can't stand it.And don't let that stuff about me being a big softie get around, OK? I work hard to keep my bitch reputation...:)0
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Rachel, you just get it, you do....I grew up with my daughters, we grew up together I should say amongst military and we were either 3,000 miles from home or 1,500 miles from home. The military and their families were our family. I'm still closer to those people to this day than I am to my own family. During the holidays, when our 'men' were out of the country, we pulled together and did the holidays with each other...when single guys had nowhere to go, they came to our house, always had guys over and an open door...and there were times when we had parties that guys were so wasted they slept outside on the ground, I laugh at it now, and actually those were some good memories and some good times. That's when I was most proud of my ex, and he was so proud of being a soldier. It meant everything to him. Its a whole different world...a special world.
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I am also taking Tamoxifen...but was told that it could possibly cause weight gain. Anyone else told that? Fortunately I have lost weight while on, which is a good thing, but I have been more careful about what I eat too....Comments please.
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I started Tamox on Sunday night. Today is pill #5. So far I don't feel ANYTHING different. I do have some hot flashes but I've been having them all through since chemo. I would say that MAYBE my stomach feels a tiny bit funny and I don't feel like eating as much, but that could be all in my head.
From some of the stuff I read on other threads, I half expected to take the first pill and start breathing fire and have sparks come shooting out of various places on me. But it's been a good week. Does it take a while for things to happen or could I just be ok?
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I have been taking Tamoxifen for about 5 weeks and no fire breathing or sparks shooting here. I have heard lots of people say that they have gained weight while on Tamoxifen. I was nervous about that, as I was of gaining weight through chemo. I have been VERY careful about what I eat, and I am basically the same weight that I was before chemo. I figured I lost about three pounds of boob after surgery, so that didn't really count. My oncologist told me that there are just as many women that have little to no SE's from Tamoxifen as the ones that have terrible SE's.
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Oh yeah Crystal- you got it right. I am always posting these studies of 13K women that show that yes, many women report SEs on Tamoxifen, but the funny thing is, the women on placebo had just about all the same SEs... except the hot flashes.
Then there is the Helena effect: We eat more cake because we damn well deserve cake!
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Sorry Amy, missed your post. The fire breathing and sparks (and HF) should kick in after a couple months - is what I hear. I'm still a newbie too
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I just hope that I don't breath fire or shoot sparks out of anything. I felt like I was doing both of those things during chemo, and I had enough of that fun!
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