Bottle o Tamoxifen
Comments
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Rachel, good that you were able to find someone else. I was going to suggest the boyscouts or girl scouts.
Welcome Newbies. Yes weight gain is a possibility. So far I have managed to remain the same.
Yes Kari, the military becomes your family. My sister is an Air Force Wife and she always had a great deal of support from her military family. However one set of military wives a nd families that so so often get overlooked are the Army National Guard, or Reserve Units. These people do not live on a military base and do not have the same connection. Many live in different communities. I travelled about 45 minutes just to go to the monthly FRG( Family Readiness Group) Meetings. Sorry to be really off topic.
Rachel, my youngest is already in daycare, they were just having an open house to meet the teachers and see what the do in school. I already know the teachers since my 8 yr old went there and I know what they teach, because Kayla comes home and tells me everything. Today they learned about fire and she even sang a song. I really her daycare and the fact that many of the teachers at the school that I work at have sent their children there. They do an awesome job preparing the kids for school!!!
HEY GUESS WHAT???????
IT IS SNOWING HERE!!!!!!! WE ARE SUPPOSE TO GET ABOUT 8 " IT IS ONLY OCTOBER!!!!!!!
Well, maybe we will have a 2 hour delay tomorrow, those are awesome!!!!
Have a great night!!!!
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Great job, Rachel!!!! Thank you for your service to the troops!
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hey, not a done deal yet
and if and when it is done I'm gonna edit those posts I am feelin good tho
(notice marked lack of bitching)
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Rachel--you rock. If there is anything we can do to help, pls let us know.
bcamnb and Kashcraft--thanks so much for the info and links. Hmm, I need to investigate. Too tired now to read as we just got back from a short trip, driving 750 miles in two days--ugh! (With our dog who as not happy about all the car time, poor pup). Got to see Michael Pollan speak though which was great--he's a journalist who writes about bettering our agriculture both for the effect on people and the environment (which is also the effect on people). His last two books were great if anyone is interested....
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Hey, ladies - anyone experiencing difficulty getting to sleep at night while on tamox? I had to take Ambien during the 1st 6 months of everything, and weaned myself off of it this summer and have been able to get to sleep easily and stay asleep. Noticing increasing nights that I am simply not able to fall asleep easily or at my normal time (10:30-11:00 pm). I was up until amost 1 last night, had to take an Ambien. Same thing on Monday night. Is this an SE?
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Rachel, thought you did sound all mellow!!
Allie, looked up Michael Pollan, very interesting!! I've been incorporating more veggies into my diet and have cut out or cut down on a lot of stuff and try try try to do good, but can't be good all the time.
Chelev, seems like every night since I started Tamox that when I get ready to fall asleep all of a sudden I get a very warm flash...every night!! Then that kind of stimulates my brain and its a little harder to fall asleep.
This a.m. I did a pilates dvd before work and had a major foot cramp during one of the exercises! OUCH!
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Chelev,
I did have insomnia for about 2 - 3 months after starting tamox. I am now starting my 3rd year and now I seem to only get up to go pee in the middle of the night (that's what I get for taking tamox at bedtime with a full glass of water!).
Hugs to all!
Trish
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Oh good, maybe it will go away sometime soon! Just when I thought I was not going to get any other se's - maybe they kick in around the 2 month time frame?
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I just started week ago and my onc said to expect side effects between 2-6 months.
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Chelev,
I have been on tam just about 2 years and I have the same problem. Can't sleep and when I do fall asleep, I am tossing, turning and looking at the clock most of the night.
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Oh yes....I have the tossing and turning all night problem too!
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I have been the complete opposite. By the time my head hits the pillow I am dead to the world.
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OK first of all, I have to peek through my fingers at all this sleepless night stuff... so far so good, in fact I am sleeping better than I have in a long time- thanks to you gals. But I am just entering month two- or maybe not, maybe I have finished month 2... hmmm. You know how I work, I have to NOT think about it, just let time pass. I will know a years up each September and that's enough. Thanks to the weather, my evil Tamoxiplan is right on schedule. It's FREEZING here already. I am ready for the hot flashes- I think. I take mine in the morning, so I am going to tell myself that I wont have a problem sleeping. I hope.
Now to the off topic stuff.
I met with the bakery today, they are GUNG HO. Then I met with the post office manager (a feat in NYC, you have no idea) and they will send a truck to pick up the cookies, and then weigh each box and I will affix labels and customs forms and postage. Meanwhile, meg's group in MN is having the kids make the cards that will go along with the cookies to the troops. Those cards will be shrink-wrapped with the cookie boxes inside the shipping boxes. We're all a little concerned about the cookies staying fresh and edible for over a month, but we all think its going to be OK. So I just wrote to the location in Afghanistan that already has too much popcorn and asked them how they feel about cookies. If they want them, then we are golden. And- it will be BETTER than CFKC, although I do think its a bummer we don't get to support the effort against childhood cancer. But evidently, they have enough demand that they can blow me off, so I guess they are doing well enough!
I am thinking about a way to have you gals participate. You could also write cards, and I can put them in with the cookies. Or you could write emails, and I could print them out and put them with the cookies.
I am just blown away and humbled by how powerful and creative a group we have here. SFBC, SFBC.
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Oh hurrah Crystal!!!! Me too!!!! OK so there's hope I will continue to sleep on Tamox! Really, out like a light. Falling asleep in a chair if I go to bed too late.
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I have no problem sleeping, in fact everynight I am completely exhausted. COLD here too!!!!
We got about 6 inches of snow all totalled and it was mixed with rain, so it was heavy and we lost power around 9:30 last night. It finally came back on sometime during the day. Even with fallin gbranches as I was cleaning my car off, there was still school and not even a 2 hr delay!!!!!
Rachel great news for the troops!!!!!!!!! Glad you got it straightened out, at least you had fall back!!!!
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still not a done deal... keep a good thought!
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I've been on Tamox since May. I had major hot flashes and lack of sleep for the summer. Now I've noticed that the hot flashes are really mild or none at all. Is that how it's suppose to go? Is the Tamox still working? I thought the hot flashes were a sign that the stuff was working. I get so paranoid about everything now a days. I just would like to hear from someone that this is normal and not to freak out.
Laurie
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I think they might taper off after a while, Laurie. At least, I hope they do - I have been having increased flashes, but it could also be due to the extreme heat here in Southern Florida. We are having record high temps and are eagerly waiting for it to cool off - that was always a blessing for me with the flashes in the past.
One other little se I'm noticing is if I stand up too quickly after sitting, I get dizzy. Hasn't happened before, so gotta blame it on the tamox. I hope the sleep thing remedies itself pretty darn quick, I was liking that I did not need any help to get to and stay asleep.
Rachel, you are truly a wonder!! I think the cookies will hold for that long - all of that great butter in those Italian cookies . . .OMG, I am craving Vernerios right now!!!! Ooooh, the sticky balls coming soon for the holidays. Geez, I'm going to have to have my sister send me some.
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3 months on Tamox and my only SE's are hot flashes and I too have to take a pill (ambien or ativan) to sleep. I have not been able to sleep without a pill since surgery in January. I think the reason now is a hot flash wakes me, I take of covers, then cold wakes me, cover up, alternates all night. When I take Ambien I sleep through this.
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Rachel--yay! Amazing feat of organization and persistence!! And try to forget what tamoxy-month you are in so you don't self-fulfill any SEs. I was worried about doing that to myself when I read all the horror stories about people's SEs...
Everyone is different and will handle it differently...Mary--I feel for you with that WEATHER!! Good grief. Hope it changes soon...
Laurie--the SEs may not signal that it's working or not working. Some women do not get SEs or mild ones. And I've heard they can fade over time so I wouldn't worry about it.
Is anyone who is having trouble sleeping tried taking it in the morning instead? I take it in the morning and thankfully no issues sleeping. (Thank god!)
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Good Morning,
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Hi All,
Have not read all the posts sounds like all have been busy. Had a great trip out west Albuquerque was really nice, the balloon festival was wonderful. Son, brother and family are doing well. Had some great enchiladas out there. Took a nice walk on the Messa wher you could see the balloon launch on hte horizon it was really nice. Las Vegas was nice my son has a condo just off the strip anad the views is really nice especially at night. We had a great time in Arizona site seeing in Lake Havesu and took on drive on Route 66 thru the mountains, awesome views. Will post pictures, having issues.
Lisa we did not go to Death 'Valley, but had a great time.
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Carollynn, Welcome back, sounds nice! I've done all those things and it ROCKS!! beautiful places, so different in the southwest.
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I've only just started Tamoxifen.
I take my Tamoxifen in the morning. I have numeroous hot flashes throught the day - but they seem to be more prevalent at night. This in turn keeps me from getting sleep. I have Ambien, but I'm trying to avoid taking it. Problem is, I'm really tired from rads, work (and that's only PT), and homelife. I may have no choice about sleep meds if this doesn't pass.
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Hi,
I'm having a problem falling asleep in my recliner every evening in the 8 to 10:00 p.m. time
period when I don't want to ! I do take 2 other prescriptions that cause fatigue and this
might be one to many.
I tried taking it at night, taking half at night and half in the morning, and neither worked. Today
I'm trying the whole pill in the morning.
I know many of you can't sleep.....more than have this, but has anyone out there had my
problem?
Thanks,
CatbirdC
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Little Red- You are going through SO MUCH right now! Like a freakin marathon! If you started RADS 9/28/09 then you are still doing them now? I can only imagine your body is just totally p.o.'d right now. Has your doc mentioned Effexor? A lot of gals getting relief from HF from Effexor, and it doesn't seem to have side effects.
Catbird- Maybe your head is having an argument with your body? Maybe you need the sleep?
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Catbird, I get home from work and use all remaining energy to make dinner and do my evening "chores" for the next day. Most days I crawl into bed around 8 pm completely exhausted. Not sure if it is the tamoxifen, "cancer/rads" related fatigue or just all the stress at work.
Little red, I take effexor but still get mild hotflashes(BUT I did have my ovaries removed in Aug)
A note for all newbies, even some who have been around. Remember our bodies have been through the ringer. Between the stress of SFBC, the surgeries and the treatments, fatigue or even trouble sleeping is probably quite common regardless of the meds. Give yourselves a big break and only do what you body permits you to do! IMHO!!!!!!!!!! Really,this is just only how I see it and how I have managed w/o obsessing over every little ache, pain and sleepless night or a night I go to bed at 6 pm.
Now let me get off of my soapbox and back to reality. After we had snow on Thursday into Friday, guess what Mon and Tues will be in the 50's and by the end of the week it will be in the 60's go figure!! No wonder this is the season everyone gets sick!!!!!
My sister's BRCA test came back negative, I was soooo happy for her!!!!
On Wednesday I get to go for my first post cancer mammo and gyno appt. I am a bit nervous, but what choice do I have???? I have not really thought about it, but as it gets closer it is one more thing to worry about.
Half time is over, time to finish Vikings/ Ravens game.
Have a great day!!!!!!
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rock on Mary
meg- my next appt is in January, and that "administrative ineptitude"
is a bigger fear than anything for me at the moment. I will have zometa, and I know from these boards to have it SLOW like half an hour- 45 minutes (to avoid "flu like symptoms" and joint pain), and to have it in my opposite arm, not the one that had the SNB (to avoid lymphedema)- but my first post DX trip to the cancer center had some idiot repeating the question: "where's your port?" (I have no port, didn't do chemo, have a foot of thick hair - did she not notice any of that??? at the CANCER CENTER???) and then taking blood from the SNB arm, and then screwing up the ordering of the Vit D test so that it was duplicated and canceled.
Then in March I will get the mean and crazy completely inconsiderate MRI techs- who put a cushion in my mouth when my nose was stuffed up so I couldn't breathe, asked if I was "ready" and when I said NO they said "too late, we already started" and this messed up my MRI. (Aside from everything else, that was $2500 out of pocket). They also wont tell me in advance if they need to use an IV, and forget telling them which arm to poke.
The cancer is bad enough, but these horrors that are supposed to be medical technicians are just... appalling.
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Hi, all--Still working on getting rest--ugh,I am TIRED of being TIRED! At least the fatigue insures that I sleep at night (for the most part). I am often ready for bed by 8ish, and I give in on occasion and crash, while other times I just try to push through the wall and at least get some low-energy-required things done. Mary, I hear you on the 'be kind to your body' message, and I am trying not to overdo.
By the way, a while back we were discussing here about reducing clot risk whiile on Tamox, and I think I lamented over not being able to take aspirin (increases ringing in my ears, which already has been increased by chemo). My internist last week suggested taking Omega 3 fish oil capsules twice a day to address this risk. Perhaps others are interested in that approach, too.
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hi, all, well, I've been on the Tamox since Oct. 1 and still have no SEs to repor!
Feeling tired? Yes, occasionally, but I felt that way before starting the Tamox.
Sleeplessness? Occasional, but I've stopped taking Trazodone (anti-depressant which also helped me sleep prior to my mastectomy). Most of the time I can't sleep because I can't get comfortable after my fills (have tissue expanders). I haven't really been able to sleep well since my mastectomy because it was my right breast and I usually slept on the right side.
So I can't really pin anything on the Tamox.....at this point.....except for maybe a slight increase in hot flashes.
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