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Bottle o Tamoxifen

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Comments

  • bwuerthele
    bwuerthele Member Posts: 3
    edited July 2008

    Hi y'all!  I've been on vacation and have missed the postings for awhile.  I think I read someone else might have dry eye as a SE, is that right?  I feel like my eyes have changed here and I've only been on this stuff for 1 month.  I had my first radiation treatment today, this daily grind is going to get old fast.  I'll be in the chocolate car recovering  Becki

  • amberyba
    amberyba Member Posts: 180
    edited July 2008

    Becki you are a dear...I like the chocolate car too. yes my eyes are dry and noticibly dryer after taking the "T".

    Deb, I have my spreadsheet...and it is very helpful..and I'm not as nervous taking the T now....

    I do wish T was understood much better though, have any of you T train girls ever wondered why your estradiol levels go up with T....this really bothers me, because I understand that the estradiol is the one that BC feeds on. I had asked my med onc about this estradiol and whether the preliminary blood workup would be needed prior to starting T...he corrected my pronunciation and was very vague about the ?...I have wonderd if that is why some get recurrence, maybe once the 5 yr T is finished, the estradiol level is so high that the BC starts up, but often it is ER-...so I guess it is a mystery.

    Girls are any of you taking any supplements with your T? I am taking CoQ10 and eating ground flaxseed with my oatmeal....I have started taking the T at night so I am eating the oatmeal too late...flaxseed is supposed to help eliminate estrogen and studies seem to point that it increase T's effectiveness. I have read that the CoQ 10 helps too. does anyone know of other good foods or supplements.

    I have taken the T for 8 straight days now....amazing.

    Harley, I am happy that you get a T break! you have been through so much..I have been thinking of you and wondering how you have been!

    Basha, have you had insomnia since starting T? I'm Just 8 days on it and have woke up every night...I got up last night at 2am(hot flash) and decided to take benadryl. I need my sleep!

    Well, you girls are the best! good night to all!

    Amber

  • awb
    awb Member Posts: 213
    edited July 2008

    louishenry--functional ovarian cysts are completely normal and nothing to worry about at all.  All women have them routinely, every month--it's how the egg exits the ovary normally, but "bursting" out by way of the cyst into the fallopian tube and down on into the uterus. It's the "complex" or dermoid cysts that are abnormal. I ended up with multiple cysts (5)--3 were all kinda wrapped up together and dermoid, 1 was in the tube, and 1 was already forming on the other ovary. They had already ruptured by the time I had the CT scan (extremely painful--worse than having my children) and I ended up with a TAH/BSO--fortunately everything was benign.  My gyn said the tamox didn't cause it, but I  don't know if I beleive that or not. If it did, it is a very rare SE.

    Anne

  • Harley44
    Harley44 Member Posts: 2,126
    edited July 2008

    Amber,

    Thanks for thinking of me.  I will see the gyn onc tomorrow, so I'm hoping to have some information and maybe set a date for the hysterectomy, if he'll do it.

    I have found that my onc doesn't really answer my questions, either.  He is very vague.   I am thinking that this gyn onc won't really answer any of my questions, either...  that is what they do best... avoid our questions!

    Congrats on 8 days on Tamoxifen!  Sorry to hear about the hot flashes and not sleeping very well.  I seem to be sleeping better now, but I've been OFF Tamoxifen for 11 days now!! 

     Hugs

    Harley

  • amberyba
    amberyba Member Posts: 180
    edited July 2008

    Harley, here's hoping everything will get scheduled tomorrow,,, I do hope you new onc answers your ?...you made me giggle about the best thing our oncs do: "avoid our ?". rest well!

    Hugs too

    Amber

  • sue_blue
    sue_blue Member Posts: 152
    edited July 2008

    I can understand the overwhelming struggling feeling that some are feeling... I'm there. Just don't feel the energy or desire for much of anything. I can't even get myself to read and I usually love reading. I don't think I would be sleeping either, but so far have been given sleeping pills that help a lot. They tried effexor for me, but it causes restlessness, more disturbed sleep, and sexual side effects, as if my head isn't messed up enough already in that area. Nothing seems to have any meaning and it's so draining just moving through a day.

    Maybe when school starts and I'm back in the classroom around more people, I'll feel better. I am concerned about having the energy for that. 25 eighth graders can be a handful. Most of my family are coming home this weekend, so that should help. There will be little ones around and they are always so full of life and love. 

    Are other experiencing aches and pains in the joints from the tamox? I'm really sore until I get moving around after being still for awhile. Seems like there is a drs. appt. every week. Every little thing has me flipped out that bc has come back. Under the port scar there's a thickening, there's some pain in my shoulder on the rads side, etc. Is this the way it will be? 

  • amberyba
    amberyba Member Posts: 180
    edited July 2008

    Hi Susan,

    I feel your struggle and I am sure others can relate...I had a lump post 2 weeks of rad on the end of the scar..my BC surgeon checked it 2 weeks after that and took ultrasound pictures, but told me not to worry.

    Telling me not to worry is one thing, but actually I still palpate the lump daily to see if it is still there, I noticed that it got bigger when I waited til the evening (36 hours after the last dose) to take the Tamox. after a few days of taking the Tamox in the evening, the lump seems to be decreasing...I guess if it gets bigger then i'll call the surgeon to have him analyze it again.

    Yes my joints ache, but the more I exercise the less they ache...I've read that this is a sign the tamox is working; which side did you have the BC on. my shoulder on the rad side hurts at times to, and I am sore under my arm and my BC breast is tender and sore sometimes too.

    Hang in there and good luck with the 8th graders, my son was one last year...now on to high school. have a great family weekend.

    Amber

  • dcbkc
    dcbkc Member Posts: 137
    edited July 2008

    Ok, Ladies, listen up!  You are NOT alone!!  We are all here for you and truly do understand what you are going through. That's the beauty of us -- we support each other through it all. I know that this whole experience has just pissed me off but anger makes me want to beat this thing with a stick!! Ok, I'm getting off the soap box now -- just wanted you to know that there are many shoulders around you.

    I got my eyes checked last week and it took almost two days for the dilation to wear off -- that had never happened to me before.  Doc thought it might be the tamox and he asked about dry eyes, so it's definitely a possibility.  I know that mine are drier than usual.

    I also had stiff joints when I sat for more than 5 minutes but that was earlier.  I don't have that much of a problem with it now.

    Amber,

    The med onc also started me on Vitamin E and Calcium with D.  The E is to help with hot flashes and the Calcium to avoid osteoporosis.

    Susan,

    Hang in there.  I've been exactly where you are -- I could have written your post. There is light at the end of the tunnel and it's NOT a train coming at you. I too have a soon to be 9th grader and I admire your spirit to deal with 8th graders.

    It's really hot/humid here.  Hope everyone is staying cool.

    Deb

  • murphmort
    murphmort Member Posts: 76
    edited July 2008

    I made an eye doctors appt for Friday, I'll be curious about the dilating.  I'll be sure to mention the Tamax to the doctor.

    One recommendation for everyone is to see the movie "Mamma Mia".  I went with some friends and it made me laugh and forget about life as we all know it.  It was a great release and I felt so good after watching it.  Laughter is the best medicine, right?!  As we say here in Boston, it was "wicked" funny!

    I wasn't so lucky about not getting my period.  It did arrive over the weekend, so I guess I'm not in the lucky 25% of women that stop getting it.  Oh, well!  I was tired on Saturday, did nap for the first time in about a month, but I definitely attribute that to my period.  I am always more tired when I get it, especially that first day. 

    I didn't hear from my insurance company or Myraid so I'm assuming that my genetic testing was approved.  In a way, I just want them to do the testing and not think about it until my 8/13 appt.  My daughter is coming with me for that one as she is concerned. 

    The other news is that I've gone over one week without a hot flash. Not sure if that has any correlation to getting my period or not.  My last one was 7/11 ... Yippee!!!

    Take it easy everyone.  Amber - I give you all the credit in the world for teaching 8th graders ... my 15 year old son is volunteering this week at a youth football camp and said the 5th and 6th graders are so annoying. When one of them swore, he made the boy give him 15 pushups!!  I am in amazement about some of the kids today - I would never last as a teacher!

  • jdg1
    jdg1 Member Posts: 11
    edited July 2008

    Okay I am wondering about bone pain.  Sometimes on my rt leg a sheet can touch the bone and it hurts.  I am not sure if this is just from the Tamoxifen or not, but when I rub it it really is not the bone that is hurting it just feels like it.  I have been getting headaches too.  The hotflashes are not so bad anymore.  I do feel like other areas ache but nothing too bad.  I have been on the Tamoxifen for 4 months now.  I hope it is doing its job.

  • ashaby
    ashaby Member Posts: 200
    edited July 2008

    Hi My Dears, I had a fabulous art show opening on Monday at our local naturopathic clinic. The place was having it's annual meeting, so about 50 people saw the show. I got powerful feedback, and even 1 man "came out" with his prostate cancer. Now that's what the show is for.

    My son turned 21 yesterday and we await a college acceptance. Cross fingers!!

    Ambien is my new best friend as I suddenly after 7 mos stopped sleeping on Tamox. Blessed little blue pill.

    Take care, All.  Basha 

  • JapanLynn
    JapanLynn Member Posts: 211
    edited July 2008

    I'm back from my trip to points South...it was fun, but tiring.  We saw lots of relatives and had a great time.  Too much great food...back to reality/normal eating.

    Congrats on your show, Basha!  I'm so happy it went well, and I'll be keeping a good thought re: college acceptance for your son.  Where does he want to go?

    Sorry--I'm too addled to respond to everyone individually, but there are some interesting issues here w/ tamox.  My hip has been really hurting lately, and I've had some pain in my left elbow and arm (my surgery side).  I hope all these are signs that the tamox is working.  It seems like a number of the "old timers"--those who started taking it with me--are starting to get new SEs.  I was sort of hoping the opposite would happen, and the SEs I had would go away and that would be it.  Next week I see my onc--who I love--and I'll have a better idea of how it's working/what's next/etc.  Harley, wish I could send my onc to NC for you...he's never vague and seems to welcome my questions. 

    Amber, I read about your flax seed...I thought it wasn't good for us if we're ER+.  I used to love to sprinkle flaxseed meal in everything, but I've quit since my diagnosis.  Something to add to the ? list for the onc.

    Virginia, Deb, Murph, Sue, Anne, and all the people I've missed...hope you're doing well.  Wish me luck...tomorrow I have my mammo, and breast and t/v ultrasounds.  Enjoy your day!

    Lynn

  • dcbkc
    dcbkc Member Posts: 137
    edited July 2008

    Basha,

    I'm so proud of you!! What an accomplishment!  Have some chocolate to celebrate!  I have fingers AND toes crossed for your son.  Ambien is a wonderful thing.  I did finally stop taking it about 2 months ago though.  My daughter had gotten thrown up after I went to sleep and I never heard a thing.  Thankfully, my husband was not travelling that night, so he took care of her but it scared the bijeebers out of me that I wouldn't hear her if she needed me.  It took me about a week to get it out of my system.  I'm able to sleep through the nights usually now.

    Murph,

    Sorry you're not one of the 25%.  I am but I'm a little ambivalent about it.  It means that I really am getting old.  But you cracked me up with your 'wicked' comment.  I went to school in Boston (at BU) and haven't heard that expression since then. A blast from the past!

    Lynn,

    Glad your trip went well. I'll be thinking of you as you get your appointments out of the way. 

    I've been thinking that may be we should add a fruit car.  I've been stuffing myself with pineapple and raspberries the last few days like they are going out of style. So good!

    Have a great day everyone!

    Deb

  • ashaby
    ashaby Member Posts: 200
    edited July 2008

    Lynn,

    Thinking of you with your tests today. Best of luck!!

    xxxxBasha 

  • amberyba
    amberyba Member Posts: 180
    edited July 2008

    ladies I have taken 10 tamoxifen tablets and last night I didn't have a hot flash, and I am feeling pretty good, though some pains in the BC breast and underarm. I asked the breast care nurse about breast massage for scar tissue. (I noticed a lump adjacent to the end of the scar about 2 weeks after I finished rads. the surgeon felt it and then sent the nurse for the US machine, saw scar tissue and then told the nurse to take a picture and note it at 9:00 position, but he told me not to worry and he would see me in 6 months) Well tell someone not to look and what do they do? so I read about massaging scar tissue and maybe softening it, but I came accross info that if it was cancerous that massaging could possible make the cancer spread....so I have tried not to worry and thought I would have the nurse check with the doctor about massage...she talked to the office, not the doctor and told me that pictures were routine and massage was OK...but really  he didn't take a picture of the scar or the ridge he looked at but another area near the scar tissue...so that has stumped me...but the Breast Care nurse said if the area changed to tell the surgeon or onc to look at it...so I guess I'm a lump monitor!

    Second, I feel like the body won't cooperate with the will. achy muscles and joints that is lessened by walking the dogs!!!

    Lynn, how much flax meal did you use before diagnosis? people have told me things they used before BC and then stopped...I used natural progesterone cream for 9 years, after my sister was DX with BC, she continues to use it post dx...I was told not to...and thought It didn't prevent BC for me so what the use...I started using CoQ10 after DX and some on this board have told me they didn't use it because they used it before DX and it didn't help. Lynn you and I didn't have cancer in our lymph nodes so maybe the flax protected you and maybe the natural progesterone helped me. I have read a lot about flax helping rid the body of estrogens so that is my goal in using it...and I have read that when it is combined with tamoxifen that the tamoxifen works better...but I think it is a certain amount of flaxseed meal....Lynn hope the test go well!

    Basha, I am sort of new to this thread and was reading your post that you hold art shows...are you an artist as well? Art shows are just lovely...I used to dabble in art before I went to nursing school....I miss it a lot...now I have 2 teenagers and need to work as well..so maybe later.

    Susan good luck with school starting soon, my teens start the 20th of Aug. but my freshman has freshman prep the 13th-15th then he will start with the other highschoolers on the 20th, teachers usually start What? a week or 2 earlier.

    Murph i need a good laugh, I'll try to check on Mamma Mia too.

    The weekend will be here soon, my how the time passes!

    hugs to all

    Amber

  • Jisman
    Jisman Member Posts: 96
    edited July 2008

    Hi All - 

    It has been awhile since I last posted.  I actually start taking Tamoxifen tonight.  Was told to take it nightly with 8 oz of water.  Well if the med doesn't interfere with sleep that amount of water at bedtime likely will!  I'll be on the 20 mg dose.  Premenopauisal and had my period return after chemo.  Talked to Onc about the SOFT clinical trial but thinking I will just stay the course and get the benefits from natural estrogen production on bone and other factors and have the Tamox be the cancer blocker. 

    Lastly, I thought it was only 25% of chemo patients who get their periods back, not the other way around.  Did I have that backwards?

    Joan

  • JapanLynn
    JapanLynn Member Posts: 211
    edited July 2008

    Good news!

    I had my mammo and two ultrasounds today, and everything is fine.  The radiologist came out and talked to me, saying he doesn't see anything except normal post-radiation changes in my breast.  These people are so nice...it's like old home week there.  I see the same ultrasound tech almost every year; she remembered that I have a cat and was showing me pictures of her new kitty.  The radiologist is the one who did my biopsy last year...he even dictated the report right away and gave me copies of everything to take to my surgeon on Tuesday.  Whew...what a relief!  Thanks for all the good thoughts.

    Amber, I never had a ton of flaxseed meal; I'd sprinkle it in yogurt and on cereal.  I probably used one package (can't remember how big--Bob's Red Mill) in a little less than a year.  I'll do some reading on it and ask my onc next week.  I'm probably being silly--I haven't given up red wine, although I have cut back.  I have an idea my onc will say everything in moderation, which is a good practice whether one has bc or not.

    Joan, welcome to the train.  I hear you about the water before bed--I'm up at least twice a night.  I can't help you w/ the periods after chemo, but someone will come around who knows.

    The sun finally came out here in NY after a day and night of thunderstorms.  I loved it--nothing like a good storm...when you don't have to go anywhere. 

    Lynn

  • dcbkc
    dcbkc Member Posts: 137
    edited July 2008

    Lynn,

    WAHOO!!!!  That's great news!  You go girl!

    Send some of the rain this way -- we planted a tree and it needs the water.

    I'm with you guys about 8 OUNCES of water before bed?!?!?! Is your doc nuts?  Does he want you to get up in the middle of the night?!?!?

    Have a great day everyone!

    Deb

  • ashaby
    ashaby Member Posts: 200
    edited July 2008

    Yay, Lynn!! It's great to know everything is working!! Now you relax and have some summer fun.

    And, MY SON GOT INTO COLLEGE! A small local school where he'll get lots of attention and mom and dad can put up their feet for awhile. Whew, what a relief.

    Amber, Painting is my work now. I retired from being a psychotherapist for 30 years 4 years ago. Sure love to paint.

    xxxooo Basha 

  • VirginiaNJ
    VirginiaNJ Member Posts: 314
    edited July 2008

    Lynn!  Whoo HOO!!  That's awesome news!!  It's always such a relief when the news is good. 

    Joan- ugh!  8 ounces of water before bed?  That's officially brutal.  LOL  I was not told that...

    Amber- I have heard too that massaging the scar tissue was a good thing.  I mostly just rubbed cream on my scar and that seemed to help...  I don't know what rubbing could make cancer spread, but I'm most certainly not a doc...

    Deb- LOL, I laughed when you said to add a Fruit Car.  Golly, I wish I could motivate myself to go there...  Yesterday, we had our company picnic, and I had not ONE, but TWO Ben & Jerry's cones.  Gobs of chocolate and nuts...I didn't even LOOK at the calorie content!!

    Murph- good to hear things are going well!  Will add Mama Mia to my Netflix list...  (I don't get out much to the actual movies).  I've been on a Weeds kick (Showtime, but I take them out of my library).  Very very good...

    Susan- it seems as though we've all had our moments...anxiety, lack of sleep, etc.  It's most definitely one of the reasons why I keep coming back to this board for all the moral support...

    Harley- how did you make out at the gyn onc??  I don't remember seeing an update...please touch base.

    Anne- I was in chemopause for about 5 months...  I never had any kinds of TV ultra sound, so my gyn kind of freaked and made me have a couple to check things out.  I had MANY cysts (and who knows, that could have been how I was).  They burst as well (comparing the two diff US) - but now things seem to have calmed down and I'm back to "normal" regular periods.  Although, my gyn seemed to think there was way too much ovary action for someone on Tamox and when I said this to my onc, she didn't agree...  So, I go with the onc (don't think the gyn is all that familiar with tamox and the SE's).

    Basha- congrats on a successful art show and your son getting into college.  It seems like he's really turned his life around...you must be very proud.

    Ok, I was lazy and only noted those that posted on this page...  Layne- thinking of you and hoping all is well!  And all the others that I didn't mention...hugs girlies!!

    Happy Friday!!

    Virginia 

  • Harley44
    Harley44 Member Posts: 2,126
    edited July 2008

    Hey Virginia, Basha, Lynn, Amber, and everyone

    Sorry I haven't been around much but I have been dealing with stupid drs. who really don't have a clue...  My gyn onc appt. was on Tues., and he just kind of breezed right through everything because he is going on vacation for two weeks...  ladies NEVER go see a dr. when they are trying to finish up everything and go on vacation!! 

    My dh was in the room with me, when I talked to the nurse, and then the dr., who is apparently illiterate, because I had to repeat everything, my whole gyn life history of periods and such, to my dh's dismay!  But, we must have been in two separate rooms since I heard things differently than he did...  the way this dr. responded to my concerns was just TOO cavalier!

    This dr. doesn't "think" it's cancer, but he 'thinks' that I may have a polyp, but 'they are usually benign, nothing to worry about.'  I have read otherwise...  He wants me to wait ANOTHER WHOLE MONTH before going back to see him again.... on Aug. 21st, and THEN he will try to schedule the biopsy...  I asked for some kind of anti anxiety med. to help me get through this waiting... this is just bringing back all my memories of last year, in March, and my bc dx.... oh, it's probably nothing... not to worry...  This guy patted me on the head, and said "you don't need anything" for anxiety!   WRONG!

    So anyway the hospital called, for a 'courtesy' call to see how my experience with this appt. was.  I told them...  so they said that they would talk to his nurse and then I guess they talked to him...  The nurse called in a Rx for Xanax, so now I will have something.  AND dr. blase' called me just a little while ago.  He said that the nurse said I had some questions... not really.  Because he refused to do a prophylactic hysterectomy, I will still have to have this biopsy, when the dr. gets back from his two week vacation... remember, NEVER go see a dr. when they are trying to get away on vacation!  But, he did agree to have his office call me back with an earlier appt., for Aug 11th instead of Aug. 21st...  

    Anywho, I have to update all the other threads that I inhabit, since I didn't realize just how many wonderful women are here and how much ya'll really DO care!

  • amberyba
    amberyba Member Posts: 180
    edited July 2008

    Harley,

    I'd fire him! that's How I felt when I read how he treated you...It just makes me so mad. As much problems as you have had you have a right to request a hysterectomy...He is mean.

    And yes we all really do CARE!!!!! thanks for updating us! you are a treasure!

    Basha, congrats to your son! Joan, hope you had a good nights rest and few SE's, the first pill was the hardest one for me to take. Lynn, hooray for the good news! Virginia, I agree with your onc. Tamox stimulates ovulation so it is prudent to believe there is way to much action on the ovary. Deb thanks for sharing about ambien, you just never know how meds will effect you. hope you are resting well.

    You girls know I was concerned about the "lump/scar tissue near the scar", yesterday I recieved an insurance statement that tallies the charges of an office visit or procedure, there was a radiology charge for the surgeon the day he used the U/S machine to look at the lump I was concerned about...it worried me that he took a picture...but now I hope the reason for the picture is for the charge to the insurance company...so I will keep an eye on the thing...but in the back of my mind I'll remember this charge thing.

    It is weekend time!

    Love you girls, God Bless,

    Amber

  • Harley44
    Harley44 Member Posts: 2,126
    edited July 2008

    Well, I'm back on the tamoxi train!  Last night I took the first pill after a 2 week break.  Thursday, I called my regular onc's P.A. and she expressed concern about me going back on Tamoxifen, while I am having these bleeding issues and the THICK endometrial lining.  But, she said that she would talk to my onc about it to see what we should do, since my biopsy is not til Aug. 13th. and I can't be off the hormonal treatment for too long.  Well, they had the nurse, Alicia call me back and all she said was that Dr. McNulty said I should resume my normal schedule with the Tamoxifen.  I told her that I don't think that is wise, considering my bleeding issue.  SO, she had the P.A. call me back, and this time, Jenifer was not nice.  She just said "you can't be off Tamoxifen for that long."  I had asked her about switching to an AI, so when I asked her again, and offered to get bloodwork, proving that I am postmenopausal, she said ok, if I want, I can go for b/w.  BUT, their lab doesn't interpret these kinds of tests, so my primary dr. will have to do it.  I was pissed!  WHY would I lie??  So anyway, I guess I'll be here on the train, at least til I get my results from the biopsy.

    Amber, I can't try to find another dr., because there are none who are in network for my insurance, and even if I can get a referral, I'll have to wait another month til I can see another gyn who in my opinion are all just a bunch of creeps and jerks!!

    I hope your insurance will pay that charge.  I would be upset if the dr. just kept adding on more charges to your bill.

  • JapanLynn
    JapanLynn Member Posts: 211
    edited July 2008

    Good morning, all--

    Man, Harley--you just can't catch a break with these damn drs.!  Welcome back to the train, at least temporarily.  They don't interpret results of that bloodwork??  That sounds strange...

    Basha, I'm so happy your son was accepted...woohoo!  Let the party begin--I'm throwing cherries and cocktail straws and little umbrellas and swords with fruit your way in the bar car. :-)

    Wishing everyone a good Saturday!  Take care...

    Lynn

  • ashaby
    ashaby Member Posts: 200
    edited July 2008

    Lynn, I've had a chocolate cupcake everyday since we found out. Woohoo, let out all the stops!

    Basha 

  • Munchy
    Munchy Member Posts: 59
    edited July 2008

    Hi all!  I'm sending lots of hugs out to Harley especially, who really needs them right now.  Hang in there, this too shall pass.

    Had my first post-Tamox appointment with my onc yesterday.  Blood tests were inconclusive about my being in menopause - most signs point to yes, but have to wait a full year and see if the periods come back.  So far, so good with SEs on the Tamox.  Hot flashes have intensified a little, which can be embarrassing  when sweat stains suddenly appear, especially when I'm out somewhere or all dressed up.  The slight vaginal discharge is actually a good thing, since vaginal dryness was a problem before.  The doc is keeping an eye on the bone loss - he says Tamoxifen will contribute to bone loss in pre-menopausal women, but protects against bone loss after menopause.  Since we're not sure which I am, he is not prescribing meds to bone preservation yet.  We'll just do another bone scan in a year.

    I leave on Monday for a trip to Maui with my entire family - including my parents, brothers and sisters, and their children.  Sooooo looking forward to this trip.  Talk to you all when I return. 

  • Munchy
    Munchy Member Posts: 59
    edited July 2008

    Wow, that last post got long.  But I forgot to mention one thing...  Someone had asked about supplements and one of the most important is Vitamin D3.  The latest research shows that it is way more important than previously thought and that we need more of it than previously recommended.   It helps to regulate cell division in your body and not only ensures that new cells are perfect copies of the old, but also helps ensure that defective copies (the beginnings of cancer) are destroyed before they can multiply.  My doctor tested my blood levels of D to be sure that I was where I should be.  Ask your doc about testing your levels - it's definitely better for them to be higher.

    About the Melatonin - it is a natural substance that your body creates from the amino acids (proteins) that you eat.  It helps to regulate your natural circadian rhythms (sleep cycles) and as a plus, the latest research shows that it is a very strong cancer preventer!  The problem is that your body gets less efficient at producing melatonin as you get older.  So, your body actually needs supplementation for good health.

    I started with 3 mg before bed.  That didn't really do anything, so I increased to 6 mg.  I have been sleeping like a teenager ever since!  and it's totally natural and actually good for me!

    I urge any of you with sleeping problems to give it a try. 

  • amberyba
    amberyba Member Posts: 180
    edited July 2008

    Munchy,

    thanks for the info, I picked up aome melatonin today, the 3 mg....the health food store lady told me to start with 3 then increase to 6 if needed....I was wondering what brand of meloatonin do you get?

    you also mentioned Vit D-3,,,did you start it to?. I will ask my onc to check it in Aug. when he does my CBC.

  • hope4u
    hope4u Member Posts: 2
    edited July 2008

    Basha,

    I like what your breast surgeon said ... "If we are already into menopause while starting Tamoxifen, we're less likely to have prolonged side effects"....  I'm in perimenopause when I started the coctails and did not have anymore periods after the second session ...... so I'll take this good news for me too .... Smile 

    Thanks for sharing!!!

  • dcbkc
    dcbkc Member Posts: 137
    edited July 2008

    Harley,

    Hang in there.  I think these docs don't like it when you question them.  I had similar issues with my rad onc.  I'll never go back to him!  I won't even call if I have a question.  I either ask my med onc or have my husband call. So I totally get where you're coming from.  Go in there armed with your questions -- written down -- and have your husband be the gatekeeper of that list.  He's your best advocate after you. Like all men, they want to fix all of our problems, so this gives him something concrete to do.  We talk through all of the questions in advance and I let him know what concerns me the most.  He asks the follow ups to get the answers.  The docs don't try to appease him or pat me ANYWHERE.  I bet yours will do the same for you. Keep us posted.

    Basha,

    WAHOO to you too!!! Congrats to your son!  More time to paint! Have a cupcake for me.

    Virginia,

    Ok, step away from the Ben & Jerrys'!

    Munch,

    Have a wonderful time in Maui!  Think of us when you are in those warm tropical breezes.

    So we had a traumatic weekend.  We had to put our 18 1/2 year old cat down.  My dh had her when we met and our daughter has always had her.  Fluffy was the queen of the house and she will be missed.

    My parents arrive on Wed. so things should be interesting for the next week.  They are getting out of the DC (Layne, where are you?) weather to come here which is about the same!! Go figure. We've been eating the desserts from the freezer and really enjoying them. 

    Have a great Monday everyone!

    Deb