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Bottle o Tamoxifen

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Comments

  • JapanLynn
    JapanLynn Member Posts: 211
    edited July 2008

    Good morning, friends!

     It's good to be back in the US of A...especially with tomorrow being the 4th.  The jet lag is a killer, but it's slowly but surely getting better.

    Sorry to hear about all the back and neck aches.  Virginia, how's the Guitar Hero withdrawal going? :-)  I know one of my friends got carpel tunnel syndrome in college from playing too much Pacman (it was the late 70s) and had to quit.  I hope that's all it is!  Deb, how scary about the place on your lung...thinking of you as you go for your scan.  Sheesh...we all run the gamut w/ the SEs, that's for sure.

    This afternoon I have an appointment w/ one of my breast surgeon's partners; mine wasn't available.  I just want to get my bad boob checked out...it still hurts some, and just seems different to me--a little swollen/hard, tender, and flushed at times.  She'll probably look at me and wonder why I'm wasting her time with nothing.  I went back and forth re: whether to call for an appt. now or just wait until I see my surgeon at the end of July, but I decided better safe than sorry.  I'm probably just inventing a problem.

    Basha, great to hear about your shows!  You're our resident Renaissance woman, although there's lots of talent here, for sure.

    Harley, how's the depression?  Hope you're feeling better.

    What's everyone doing for the 4th?  We're having a cookout at my sister's with my brother-in-law's family...should be fun if the storms stay away until after dark so we can stay on the patio.  It's so good to be back with my family again!

    Happy 4th, everybody...and we should definitely have a barbeque car--great idea, Deb!  I volunteer to be the official taster--especially if it's ribs.  Take care, all!

    Lynn

  • VirginiaNJ
    VirginiaNJ Member Posts: 314
    edited July 2008

    Deb- wishing you all the best karma with you scan!!  We'll be waiting to hear the results!!  My brother works for Novartis and came in the house with BenGay type products for me last night...  Very sweet (and unexpected).  My father took the car out by himself yesterday...I just about had a stroke in front of him...  I was trying not to yell at him, but he CANNOT drive under any circumstances.  VERY VERY scary.  We now have to hide the keys.

    Lynn- glad you had a safe trip!!  It will be so nice for you to see your family...I'm sure.  I am very lucky that all of us live in a 9 mile radius of each other...  Guitar Hero withdrawl is horrible...last night when I got home from my Dad's, I was so upset I made myself a HUGE gin martini...and was VERY tempted to play GH...but I did the Wii Fit instead!  I have the fitness level of a 41 year old...1 year less than I am!  HAHA!!  Good luck with your appt as well.  Seems as though we are ALL seeing our oncs!!  I think I might have a breakdown with GH b/c I ordered the Aerosmith version and it's scheduled to be delivered today...  Embarassed

    Someone had put a question RE memory loss a while back...my memory is SHOT.  I always said that when I turned 40, my brain fell out of my head...then I had chemo and it got worse...and hasn't gotten any better...so not sure if it's Tamox or Herceptin or just my foggy brain...

    Marianne- I went into chemopause too June of last year.  Regular period came back in October of last year.  Gyno was shocked by onc was not...

    Hugs to all!!  Wink  Everyone have a wonderful weekend....  (Sorry to blather on constantly about mostly nonsense...thanks for humoring me!!)

    Virginia

  • Harley44
    Harley44 Member Posts: 2,126
    edited July 2008

    Virginia,

    I hope that our sore neck and shoulders are just that... aches from playing too much, and riding those Roller Coasters!  You know, once, about a month ago, I used the treadmill in our amenity center, and I walk fast/run, but I didn't realize that I was holding on tight to the 'thingies', the handles that measure your heartbeat, cause I was sweating, and my hands slipped.  SO, I was sore for about a week afterward. 

     Too funny, about all the onc appts happening in the coming week.  I am seeing my onc on the 11th.  I was supposed to go on the 22nd, but I got snagged for jury duty, and my onc won't give me a letter of exemption, to get me out of it.  Haven 't we ladies been through enough, and aren't there enough registered drivers out there to make up for us NOT being on jury duty, just for the next year or two?? 

    Lynn,  Thanks for checking on me.  I am feeling better now.  I still have my moments, but I seem to be doing better. 

    I think it is always a good idea to get these things checked out, because otherwise, we sit and worry for nothing.  I hope it turns out to be nothing. 

    I know the feeling.  I'm having some itching and soreness, at the incision where they ps has had my nipple for the past year.  On May 22nd, he moved it and I know have to normal nipples.  But why am I having this irritation at the incision site...scar.  I guess it's just healing, but it seems to be taking TOO long to heal, and of course my mind starts to go places where it shouldn't.  Like why isn't it healing as fast as the rest of me did??  and Is that a RASH I see?  I just read in CURE magazine, where a woman had bc, and the incision site got all red and developed a rash, and she had.... skin mets. 

    So now I have to call my ps to see if I can move my final post op appt. up to next week, so I can get all this checked out.  Does it ever end?

    Sorry for rambling.

    Hope everyone has a WONDERFUL 4th of July!!

    Harley 

  • larousse
    larousse Member Posts: 32
    edited July 2008

    Harley, I had a similar moment yesterday, my nipple is still a bit itchy from rads, and was thinking IBC... We just won't get peace of mind for a while.

    May all the hots, aches and pains be forgotten for a peaceful weekend for all!

  • Harley44
    Harley44 Member Posts: 2,126
    edited July 2008

    Layne,

    Red berries, Blue berries, and ...How about white wine??  LOL

    Thanks for thinking of me... I AM feeling better!  I am tired of this NEW normal, but settling in, I guess...

    Happy Fourth of July!!

    Harley

  • JapanLynn
    JapanLynn Member Posts: 211
    edited July 2008

    Sign me up for berries and wine...sounds very patriotic!

    I'm just back from seeing the surgeon...she sees no sign of infection or anything to be concerned about; said it's probably an inflammatory reaction to the radiation.  Whew...I feel so much better!  Hope you get a similar report, Harley.

    Virigina, you must have flipped out about your dad's driving!  That reminds me of when my stepmother was having all kinds of problems living alone, driving being one of them.  I would hide the keys when I was home in the summer...scary to have someone like her on the roads; of course, in Florida, where we lived, there were plenty of such road menaces.  It's so hard when our parents lose their independence...

    It's getting ready to storm, so I'd best get off the computer.  Happy 4th, all--stay safe!

    Lynn

  • Harley44
    Harley44 Member Posts: 2,126
    edited July 2008

    Lynn,

    Glad that you got a good report, and it was only irritation from rads.  I didnt' get rads, though.  I am wondering why the incision site is still red and sore, since I had the nipple surgery on May 22, and that was OVER a month ago!   

    I had a trans vaginal us on 6/21, and of course, my dr. NEVER called me to tell me the results.  I had to call my pcp drs. office TWICE to get it... but all they did was have a nurse call me to say "Please call the office..."  Now I am worried, because it could be ANYTHING!  I have been getting these tv us on an annual basis, because I have uterine fibroids, so now I'm worried about ca... because I am taking Tamoxifen...  Of course, it IS a holiday weekend, and I am sure that my drs office IS CLOSED tomorrow!! 

    Why do these things keep happening to me???   I am so worried about all this crap!  I don't know how I can have a good holiday when I am just so aggravated.  I hate drs!!  Yes, I wanted to say that if it was anything serious, they would have called me sooner, but I know that dr is WAY backed up, and I could have tested positive for typhoid fever and they wouldn't have called, until I CALLED THEM!!

  • Christianne
    Christianne Member Posts: 9
    edited July 2008

    Just finished my first 30 days on the Tamox and I'm 1/60th done!!

  • Munchy
    Munchy Member Posts: 59
    edited July 2008

    What a relief about the osteoposis.  I got the results of the bone scan back already, and I have something called osteopenia (the beginnings of osteoporosis).  I compared this to a bone scan from three years ago - huge difference.  I had very strong bones at that time.  Could it be from the chemo?  

    My periods stopped right away when chemo began and have not come back 5 months after it ended.  I was already in peri-menopause, so I figure maybe I'm done??  Onc ordered a blood test to be sure, which I will do next week.

    My memory is gone as well... can hardly remember my own name.  Forget to pay bills, forget to feed the dog, forget appointments.  I have to write everything down.  On the bright side, I'm pretty easy to keep entertained - I laugh at the same jokes every time, because they are always new to me, and I can re-read the same books and magazines and re-watch the same movies! 

    Basha, Larousse - I'm a wanna-be artist.  Just finished my degree in Graphic Design, but I think I will put more time into just exploring my creativity since I don't have to work right now. 

    I'm with you Harley, I think once you have had cancer, you should be permanently excused from Jury Duty. (or at least for a few years!)

    My thoughts are with you Deb - hope everything comes out OK. 

  • Munchy
    Munchy Member Posts: 59
    edited July 2008

    As I was composing just the perfect words - presto - 7 of you have posted messages!  I just had to add something for Harley.  The same thing has happened to me a few times.  And they expect you to eat, sleep like normal???  I know, it's tough.  Worrying/thinking about it won't help at all.  (of course easier said than done.  Hang in there.

  • ashaby
    ashaby Member Posts: 200
    edited July 2008

    Munchy, Oh yeah get back to your paints, or whatever your media is. With my son, I can post some of my paintings because, he's a graphic design student!!

    Basha 

  • ashaby
    ashaby Member Posts: 200
    edited July 2008

    Munchy, Oh yeah get back to your paints, or whatever your media is. With my son, I can post some of my paintings because, he's a graphic design student!!

    Basha 

  • sue_blue
    sue_blue Member Posts: 152
    edited July 2008

    Basha, I was hoping you would be able to post some of your paintings when I just read that you could. Excellent! I, also, used to be into art. I first declared art as my major in college and actually had scholarships for art out of high school, a hundred years ago. I keep thinking I would like to get back into it someday. Many of us seem to be about the same age - 50ish.

    Reading all the posts, I feel this must be the new normal... the anxiety, the aches and pains, the memory issues, etc. I seem to be able to identify with much of what is written. So this is the new normal? 

  • larousse
    larousse Member Posts: 32
    edited July 2008
    Wow, cool, a bunch of artsee ladies on tamoxifen!
     
    Munchy, lol about the memory. How can people remember the lines of movies? Last night I felt like an idiot, they were all reciting lines and I couldn't even remember seeing the movies... I would also stay with visual art rather than commercial art if I could. One day I will go back to the paint. Hopefully I won't forget that I can do it. 
     
    Basha, can't wait to see some of your work.  
     
    I am almost 4 weeks into the tamox train, nothing yet... should I rejoice, should I worry, will it hit me in a month? Well, I forgot, I am a bit late with my period.  
     
    Yes, new normal, being on these boards and worrying, hopefully that feeling will fade with a few clear mammos.
     
  • amberyba
    amberyba Member Posts: 180
    edited July 2008

    I had to jump in on this thread....so many posts, definitely a plus, and can gain so much support and reassurance. I posted a thread a few days ago...scared stiff...tamoxifen....and some of you have helped me to take the first step....I just swallowed the first "T" pill....

    it was one of the hardest things I have ever had to do...I guess because it is one of the last things I wanted to do.

    are any of you taking other supplements while taking tamoxifen...?

    One of the studies I read about was adding coq10, riboflavin, and Niacin added to treatment with tamoxifen, I haven't been able to find any riboflavin around here, but did take the coq10 and Niacin before I took the "T".

    I have also read studies that lower doses of tamoxifen may be just as effective as current dosing, yet not having the clear side effects. Wish that there were trial studies going on now and I'd volunteer, hoping to fall into the lower dose group....so I am taking the 20mg recommended dose. but who knows maybe in the next year or so new info will suggest the lower dose.

    Harley, it must really aggravate you when your doctor doesn't let you know the results of your test...especially when you just called. Let us know how everything turns out.

    Layne, my onc told me the same thing about endometrial cancer being rare in premenopausal, said because the lining of the uterus is shed with periods. but that the uterine sarcoma isn't easily detected because it involves the uterine muscle which isn't shed....i'd like to here the rationale why clood clots aren't as common in premeopausal women. One thing I have read is that Tamoxifen stimulates the ovaries to ovulate, (tamoxifen was initially formulated to be a birth control pill....but it stimulated ovulation), and somehow it came to treat us BC girls to help prevent recurrence.

    I'm still scared stiff....but maybe as each day goes by the scaredness will dissipate.

    God bless!

    Amber

  • Harley44
    Harley44 Member Posts: 2,126
    edited July 2008

    I got my dh to go with me to my drs. office yesterday. So we got the tv us results, and I will need an endometrial biopsy.  OUCH!   

     I am only 45, but post menopausal due to Premature Ovarian Failure, and now the us showed that my endometrial stripe is growing, and it's thick...10 mm! 

    I will probably need a hysterectomy, and now I am scared!  I can't do this again...  and possible chemo and rads....  no, I can't do it. 

    I called my gyn, from my bc dx, she ordered the mammos and us last year, in March.  My pcp dr. says he can do the biopsy, but... yuck, he is a man, and I have to wait til July 22nd to have this done. 

    I have had some bleeding issues on and off and now I am scared.  I have uterine fibroids, though so that could be why, even though the drs all tell me that the fibroid is very small and should not be causing me any se's at all.  WTH?

    Harley

  • amberyba
    amberyba Member Posts: 180
    edited July 2008

    Harley, I can understand how you feel, hang in there. praying for you to be strengthened and that you have wonderful and excellent doctors.

    God Bless!

    Amber

    (Philippians 4:13 "I can do all things through Christ who strengthens me")

  • Harley44
    Harley44 Member Posts: 2,126
    edited July 2008

    Amber,


    I called my gyn from last year, and the bc ordeal, and they had a cancellation, so I will be having the biopsy today, at 2:00pm.  Just that word strikes terror in my heart!! I'm upset with my primary care dr., because he sat on my u/s test results for TWO weeks, until I called and asked, "Where is my report from my u/s?"

    Thanks for the prayers, they really help!  It may not be anything, but since things were just starting to settle down from the bc crisis, I'm just so scared!  God listens to our prayers, and I know that HE will get me through this.  

    Harley

  • JapanLynn
    JapanLynn Member Posts: 211
    edited July 2008

    Oh, Harley--

    So sorry you have to have another biopsy, but thank God you were able to get in earlier.  Nothing's worse than waiting.  You've been through the mill...enough already!  I'll be thinking of you and saying a prayer at 2:00; at least we're in the same time zone now.  We'll be waiting to hear from you.

    Amber, glad you joined us here...I'd been reading your other thread.  Our diagnoses are almost identical.  I've been taking tamox since early November...started effexor in February to help w/ hot flashes and depression.  Depression is okay now, but the hot flashes started intensifying in late May...I have no idea what's up with that.  I've been taking supplements since starting the tamox...in addition to a multi-vitamin, I take CoQ10, magnesium, calcium, and glucosamine.  A colleague of mine does lots of research and takes a million supplements--she suffers from fibromyalgia--so she suggested the above.  I've made a list to take to my onc in early Aug. to see if he agrees.  Here's hoping your side effects are minimal!

    I went to gyn yesterday...he said everything looks fine; he ordered a trans-vag ultrasound to check things out.

    Hope all our other riders are doing okay...the thread's been pretty quiet.  I go to Atlanta and Scottsboro, AL next week to see family...can't wait to check out the barbecue!  Take care, ladies...

    Lynn

  • Harley44
    Harley44 Member Posts: 2,126
    edited July 2008

    Thanks, Lynn.  I have also been taking Tamoxifen since November!  I've been having these trans vaginal u/s every year, due to fibroids, so if there was anything to be concerned about, I would think that I would have been told sooner.  But maybe everyone is just being extra cautious, at least, that is how it sounds.  But, that doesn't take away the fear that I'm feeling.

    Thanks for the prayers, I know they work!

    I hope your trans vaginal u/s goes well.  It's just an extra precaution.  I'll be thinking of you when you have your test.  Let me know when you're having it. 



    Hugs

    Harley 

  • ashaby
    ashaby Member Posts: 200
    edited July 2008

    Hope your biopsy went well, Harley.Thinking of you with lots of love.

    Basha 

  • Harley44
    Harley44 Member Posts: 2,126
    edited July 2008

    Hi there Basha, Lynn, and everyone,

    Well the gyn I saw yesterday REFUSED to do the biopsy!  He wants me to see a gyn onc, and the very idea of seeing yet another onc terrifies me! 

    But, tomorrow I will see my onc's P.A., and I will ask her about all this, and see what he thinks.  I have visions of her saying "wait just a minute..."  and then she will run and get my onc, and he will come in, screaming and holding his head!  I am thinking that maybe he can get me in to see this gyn onc SOONER, so I don't have to wait MONTHS to get in to see him!  That would not be good! 

    Meanwhile, my stomach feels so "full", and I just feel real bloaty...  the bloating has been going on for awhile now, but I guess when you are waiting for a test like this, you can imagine all kinds of things.  My brain won't shut off.  Someone said that we have 'squirrels in our head', and it won't let us sleep at night.  That is me. 

    I have already decided that I will just insist on getting a hysterectomy, because I don't want to keep these parts that have never worked properly anyway.

    One good thing is that I talked to someone at work.  She had ovarian cysts and she saw this dr., and he did her hysterectomy.  She said that he is very good, so maybe I am thinking that it is a good thing that I'll be seeing him, and maybe having this onc appt. tomorrow is a blessing, because maybe they can get me in to see him or someone else sooner.

    Thanks for all the prayers.  I really need them!!

    Hope everyone is doing well, and that you are having a smooth ride on this train!  Seems I have just hit a bump, but I am hoping it will smooth out soon!

    Harley

  • dcbkc
    dcbkc Member Posts: 137
    edited July 2008

    Hello to all!  It's been a while since I posted but I was hunkered down until I got through my appt's. 

    Before I update you on my stuff, I want to tell Harley that I'm thinking of you and will keep my fingers crossed for you.

    So the update -- the CT scan came back that the spot is still there but since it hasn't changed since Sept. they are thinking that it's nothing -- like what you said, Layne.  I'll have one more scan in January -- not sure what kind yet, waiting to figure that out with insurance, those SOB's. If it's still the same, then it'll be chalked up to some strange thing from my past (we won't talk about THAT Wink ) and I won't have to have any more.  I talked to med onc about the hot flushes too.  He suggested 800mg of vitamin E to help with them.  He wants to try that before Effexor . I'll see him again in January and report if it helps. So I can breathe again until next month when I have the one-year mammo and u/s. Now, on to the rest of you.

     Lynn,

    So glad that your trip back was a safe one. Glad you were able to get into the doc too. Enjoy your time here.  Have fun in the South -- don't wilt under the humidity and heat.

    Basha,

    How're the shows going? I have no doubt that they are a HUGE success! You make me proud to know you.

    Virginia,

    I know that you were scared with your dad driving but your post cracked me up.  I remember when my grandmother was like that.  She at least ackowledged it and would just pass the keys to whoever was there -- in Florida, where there are more on the road like her than like us. But good idea hiding the keys.  It sounds like he's in good spirits though.  Hey, get your GH fix with your Wii.  You may find that it's a decent sub.  Ok, so I'm trying to put a good face on it.

    Layne,

    I don't envy you  the DC weather.  I remember!  It's not much different here in KC. My parents are planning to come here at the end of the month and I've warned them not to expect much relief.

    But to all of you, Basha, Harley, Lynn, Layne, Virginia and Munchy,

    Thanks for the good wishes and thoughts.  I truly feel lucky to have all of you in my corner.

    BTW-- my hubby, daughter and I have signed up to the Komen Walk here in KC in August (why they do it when the weather is the most beastly, I don't know.) I just felt compelled.

    Hugs to you all,

    Deb

  • ashaby
    ashaby Member Posts: 200
    edited July 2008

    Dear Deb, Thanks for the note. Glad your scans look ok for now.

    I am so frustrated with 2 hospitals. They seem to be objecting to the nudity in my work as if it were 1900. They've directed me to oncology floors which is fine with me, but not one nice comment, like, oh the paintings are great, how brave. It's not their boobies on the line! Basha,s rant. The first show starts Sat at an alternative health clinic. Wish me luck. But those docs loved it.

    xxxxBasha 

    So my first show 

  • wandralong
    wandralong Member Posts: 17
    edited July 2008

    Hello everyone.  I am on my third bottle.  I have been experiencing lots of hot flashes and various aches and pains so far. I haven't gotten a period since I did chemo (I'm 35).  I have come to some kind of peace with not being able to have any more children (I have a 8 year old).

    I have developed a sweet tooth!  I have been baking (from scratch at that) lately.  This cannot be good as I eat whatever I bake since it's only two of us in the house! 

    Ashaby, good luck on  your shows.  You have awesome talent.

  • JapanLynn
    JapanLynn Member Posts: 211
    edited July 2008

    Good morning, all--

    I've been having computer issues at my sister's on and off...yesterday I could read the boards but not post; also couldn't open my hotmail.  Today it's back to normal...for now, anyway.

    Basha, how Victorian of those damn hospitals!  Obviously they can't recognize true talent plus the underlying story of your artwork.  Good luck with your show; once these hospitals see how successful your show is at the clinic, maybe they'll come around.  Sheesh...this is 2008.

    Deb, so happy your scan came back okay!  Long may it stay that way.  Enjoy your Komen walk...I agree--interesting scheduling in the heat of the summer.

    Harley, so sorry you didn't get your biopsy...seems kind of weird to me.  Hysterectomy sounds like a good option at this point...hopefully it'll cut out a lot of these scares and problems you've been having.  You've had enough bumps...if anybody deserves a smooth ride at this point, it's you!  Let us know what you find out from your PA.

    Wandra, I hear you on the hot flashes.  Mine have gotten ridiculous--to me, anyway.  I had three or four yesterday, one the soaking kind.  I was fine last night right before bed--my nephew came home and we talked for awhile...no "personal summer" going on.  Then I laid down and the waterworks started!  Yuck...I hate that feeling, though I know things could be worse.  I'm hoping my onc can do something about it when I see him in early Aug.  I may try to get an earlier appt. in case he's concerned about my hip and wants to do a bone scan or something.  Going to try to get outside and walk this morning...if it turns into a limp I'll just turn around and come home.

    Hi to Virgina, Layne, and all the other riders that my feeble mind can't summon right now.  TGIF!  Take good care...you'll find me in the barbeque car tonight; going out to the only good such restaurant in NY state with my family!

    Lynn

  • amberyba
    amberyba Member Posts: 180
    edited July 2008

    HI all!

    Harley, I'm glad you have appt with your onc. pa... HOw did it go? you  are so funny with anticipating reactions of your doctors...hopefully they can work you in with the gyn onc. quicker, "wonderful and excellent doctors", the waiting is the frustrating part.

    Lynn, thanks for your encouragement, our dx are so close, thanks for sharing about your supplements...BC still scares me and I am trying to give my body all the right ingredients to deter any malignant cells.

    My med onc. wants me to wait until MOnday to retry the Tamoxifen....I had a ? reaction to it and he is cautious....because the ? reaction is a symptom  of impending stroke....(blood clot)....so I hope Monday I breeze through the Taking of the "T" pill. My blood work showed mild anemia, and my Ferritin level was 17....the nurse said it needed to be 100...so I am taking ferrous sullfate for the next 6 weeks.

    I went to my BC surgeon this morning and he did U/S two areas I discovered and took a picture of one area twice, then he told me not to worry about it...I asked him if he would be keeping a check on the pictured area, and he said he would....mostly he thought some of what he saw was scar tissue, but there was something near the scar tissue he is watching. but he told me not to worry.

    needless to  say I had a little crying spell on the 45minute drive home....I tried to analyze why he took a picture of the lumpy area that is just below the end of my scar....

    Does any one else analyze these kind of situations, and then I prayed, Lord I can't handle any more....and the tears dried up, now I'm home and checked these lovely encouraging boards and realized I hadn't seen the new post by you wonderful girls....You all understand because you are going through the same! Thanks for listening.

    Deb, congrats on the scan....such good encouragement, and I think it is wondereful that your onc. suggested the Vit E. I'm going to write down the 800mg part. I think that is one of the vitamins my sister takes, she has been in remission NED for 9 years.

    Wandra, I understand your peace of mind about child bearing, when my children were younger I often played with the thought that I wanted more, but as they got more self sufficient, the idea of having more became less and less. I have to watch that sweet tooth too...it is tempting with kids around to have sweets for them and then I end up eating  more than them...Ha ha!

    Well everyone lots of hugs and  best wishes,

    Amber

  • dcbkc
    dcbkc Member Posts: 137
    edited July 2008

    Basha,

    Those jerks! I think it just scares them so if they get huffy about it, they can scare it away. And then they tell us not to be frightened.  Again, what jerks!

    Wandra,

    Welcome to the baking car! I've been in there for weeks now!  And yes, I've put 5 lbs on. Sheesh. And that's even after I've been working out for the last 5 weeks!  No rest for the wicked.

    Amber,

    Glad to pass along the Vit E suggestion.  It was the first time that I had heard that.  I really like my med onc.  He was rated one of the best in the area by other docs (who would you want to see or have your family see?) so my confidence level is pretty high with him.  Couldn't say the same about my rad onc.

    Lynn,

    Enjoy the time with your family.  Be sure to have some Barbecue for me.  Wish your hot flashes weren't so bad.  I swear if I keep my feet cool, the rest of me does MUCH better. (just so you know, in the winter, the same thing happens -- if my feet are warm, so am I -- strange aren't I?)

    So I heard back about the next scan.  Since the insurance won't allow a PET and CAT scan on the same day, and I don't want to get shot up with radioactive crap twice, the PET has been cancelled by my doc.  But if all is well, I won't have to do another after that. More jerks!

    Have a great weekend everybody!  Try to stay cool.

    Deb

  • Believer0711
    Believer0711 Member Posts: 64
    edited July 2008

    Good afternoon ladies, hope you're all doing well. 

    Anybody had vaginal discharge??? WEIRD! Ok, we were visiting family in Peoria IL last weekend, and I felt a major swoosh, like my period. Hmm, I knew I'm on chemopause, so there's no way. The swoosh just kept coming (I know I'm not aroused or anything, so it can't be an O). So I stood up and I had a big stain on my shorts! This went on all week, and I had to wear pads.

    With Arimidex and Aromasin, I experienced vaginal dryness. Now, swooshes with Tamox. What in the world?!?!

    Aurora

  • amberyba
    amberyba Member Posts: 180
    edited July 2008

    My sister had this happen from the first dose, when she stopped the tamox. the bleeding stopped...she waited a week and the same side effect occured, Tamoxifen does stimulate ovulation, so if it has caused you to ovulate it may cause menstruation as well.

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