Bottle o Tamoxifen
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Hugs! Thank you!
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Ok have a question. Since I've been on tamoxifen I have been experiencing problems with my eye. Blurry vision and the fluid in my eyes are more gel than liquid. Well Saturday I woke up to blood on the white part of my eye. Really looked like someone beat the crap out of me, went to the oncologist he suggest I go to the eye doctor. I did eye doctor states very common to get dry eyes and this happen on certain types of medication, (I basically popped a blood vessel), he give me eye drops and said to use them at least 5-7 times a day. On a bright note my eye sight has dramatically improved. So has anyone else experience this or heard of this or I'm I the lone weirdo!
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mstrouble - had very dry eyes, but not popped a blood vessesl. Seems to go with very dry skin, etc. My reading vision disappeared within 2 months of taking tami. Had to get progressive lenses in my glasses, a bit young for them. Had been to my eye dr. less than a year before treatment and everything was okay. Have heard a few people have serious eye problems, so make sure you don't ignore any symptoms, good you got it checked out and it wasn't too serious
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mstrouble - Dry eye here too. Was noticing blurry vision so called Dr and got appointment. Use the drops 3 or 4 times a day and vision is back to normal. I have glasses but vision is corrected to 20 20.
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Hi Ladies
Sorry I have been missing in action for awhile. It has been kinda crazy here. My mom was diagnosed oday with cancer, they are not sure what kind as it is on her liver and dont know if it originated there or her pancreas so more testing. I will fly down Tues to be with her and meet with her doc next fri. She is saying right now she doesnt want any treatment, I am hoping she will choose otherwise... I am just beside myself!
I will keep you all posted!
Love Maria
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Tink - will be thinking of you and praying for for you and your mom. Cancer surely sucks.
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I've been on tami since June 1st and had a broken blood vessel in my eye by the end of June. It took 2 weeks to disappear. I attributed it to taking low dose aspirin that I also started because of my oncologist orders. I was bruising easy so I had cut the aspirin down to every other day. I just made an appt today with the eye MD in a few weeks. I have a few questions to ask him about some of the changes I have noticed recently.
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Tink - Oh crap! Cancer sucks. I am going with you in spirit. Sending prayers for you and your family. Here is a big (((HUG))) Please keep us posted.
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Tink, My heart and prayers are with you and your Mom. I am so glad you can go to her and know your presence and understanding will mean so much to her. Stay strong my friend and may God bless and keep you as you go to support your Mother as she makes her decisions and starts this new stage of her life's journey. May you find strength in each other.
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Oh Tink, crap, crap, crap, crap, crappy.
My heart goes out to you and your family. Having just been through this in the summer with my dad, I know how hard and heart-breaking it is. At 83 and his stage of diagnosis treatment really wasn't a good choice. I hope your mom has better options. I know no matter what that you will be there to support her through her journey. Lots of love and if there is anything I can do or questions I can answer, please post or PM me.
Sending you hugs and love,
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Maria, prayers are with you and your mom and family. (((((Maria)))))
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tink praying for you and your family. Had to go through that last year with my Dad. Glad you will be able to travel to be with your mom. keep posted.
Having a MO appt in a couple of hours. Feeling great so not worried about anything. New boobbies are nice and smooth and soft. After the MO appt I am meeting up with a BCO gal from VA that is having her reconstruction done with the same PS office that I use in San Antonio so DH and I are having dinner wither her and her DH. She flew in yesterday and had her appt with the Dr this morning and is having surgery Monday morning. She has done everthing over the phone and internet so today was the first time she actually meet Dr. A. I can't even imagine. We met up on BCO and she said she wanted the best and had researched and found PRMA so here she is. She is having the Diep flap surgery. If I don't forget to take a picture I'll post it. Hope everyone has a great weekend.
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Maria - I am so terribly sorry. Sending heartfelt hugs and prayers for you & your mom.
Paula - Praying hubby gets called back to work soon!!!
Wishing everyone a peaceful weekend...
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Well all my daughters test results came back positive for the BRCA gene. I'm just so heart broken right now. I feel so numb. This is not want I wanted to pass down to her. I have to try and stay positive for her and it's so hard because I fell so much guilt right now. This day just plain sucks!!!!
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Paula, I know we all can sometimes to feel guilty for things where no fault can not be laid on us, but you should not feel guilt for this. You did not choose to pass on the gene any more than your Mother chose to give it to you, nor could either of you done anything to have kept it from happening. It was purely a matter of chance. At least knowing she has it allows her to seek the best ways available to reduce her risk and to insist on the best possible methods for the earliest possible detection. Poor solace I know. I am so sorry.
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Paula, I know this is not what you wanted. As parents it is always hard to accept that we can't protect our kids from everthing. At least she can be watched carefully. Until a few years ago no one knew about this gene, not like you chose to pass it on. Try and give yourself a break. {{hugs}}
Tink - still thinking of you and hope things are ok
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Thanks girls. I know that I should feel greatful that now we know about the gene, but I still am not there yet in my mind. The doctors will watch her a lot closer now. That was the main reason I asked her to get tested. This dang cancer is striking at a younger age more now then ever. I have expressed to her why I wanted her to get it done and she understands why.
Jane I got a text from Tink and they meet today with the Onc today for another biopsy. They have said that it shows metistatic liver diease. From what I read a 2 biopsy is needed to find out where this started so they can set a course of treatment for it.
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Paula, thanks for the info on Tink - hope they get some answers. Will keep her in my prayers. You and your daughter too.
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Paula - Thanks for the update on Tink. Will keep those prayers coming for her and family as well as you and your daughter.
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Paula - I'm so sorry to hear that your daughter tested positive for the BRCA gene. Because of my recent scare, my MO is going to test me this week to see if I have it (my mother had breast cancer). Lord, I hope not. I can imagine how you must feel, I will worry if I carry it, too
Sherry - I guess your MO is giving you Zometa to help reduce your recurrence rate? Do you remember how much he said it would help? My doctor is thinking about doing that. I'm a little hesitant because I read how it doesn't build your bone back correctly, have you heard that? Do they give it to you through an IV? I have so many decisions again all of a sudden! I see her on Wednesday and I'm dreading having to figure things out again.
I had a diagnostic mammogram last week (again! so tired of them!) and the woman who did it was so rude! I was scared to even be there. I had an appointment the week before and was just too scared to even go. I called them on Monday to reschedule and apologized and said I was sick - bad, I know but I couldn't screw up the courage. So anyway, this technician knew my history, it was all written down there for her, yet she was aggressive and shoved me around. She said she knows this is painful and next time maybe I should take an aspirin or something. I said no, that wouldn't help, I just took a hydrocodone about an hour ago and this still hurts. She said, "I couldn't even stand if I took a hydrocodone!". I thought, well, that was snarky.... So I said I just had knee replacement surgery and when you have pain like that it goes straight to the pain, it doesn't make you feel goofy. Then she said she knows all about pain, she has lupus and she refuses to take prescription medicine because of all the damage it does to your body. I said I have fibromyalgia and that pain medicines don't work on pain from auto-immune diseases anyway, but trying to empathize I said, "I know, I worry about taking medicine because of what the chemo may have done to my liver so I try to keep it down." She said, "Chemo? Oh, no, I'm talking about steroids!" It was like, "No stupid! I'm talking about steroids!!" She said she was just treating it with turmeric. I tried to empathize (for some reason...I'm stupid that way), but if turmeric works at all it couldn't be all that bad. Bitch...haha! Anyway, it made a stressful situation worse and when she came back into the room to tell me the results she just gave me a thumbs up and said "you're good to go." I said, okay, but is the clip the doctor put in there (when he did the stereotactic biopsy) in the right place? (I'm pretty sure that was the MAIN reason for this 2nd mammogram). She said, "Oh, you didn't tell me to check that." I thought, I didn't get a chance because you were arguing with me the whole time. But she went back and asked the radiologist, he said it was and I got the hell out of there. There was a question because the immediate mammo they took while I was still on the table getting the biopsy questioned the location because the degrees, minutes, seconds stuff was different than what the 1st mammo said they should be. Ugh, anyway, I see my BS this week, too, so I can have it all explained to me by a kind, patient, knowledgeable doctor. It was just a nightmare I thought I would tell y'all about. Like we need any more!
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heartnsoul - We don't need to be dealing with rude, insensitive people like that. She must have slept through the class on patient sensitivity. I would not let this go, I would report her immediately. She proabably treats all the patients like that and should not be allowed to get away with it. I am so sorry you had to go through that. (((HUGS)))
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Got endometrial biopsy results. B9, suggesting an endometrial abalation or hysterectomy/ooph. Lots to think about.
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Yeah for B9 results.
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heart n soul sorry to take so long to answer you but the question regarding Zometa. I think I remember it being something like lowering my rish 24%. I was pretty high and since I did not do chemo I felt I needed the extra protection. In fact my MO felt this was a much better option for me than chemo. It is done through an IV and takes about 30 minutes. The main thing is drink lots of water the day before, of and after to keep the kidneys flushed. This will keep you from being aching. Otherwise it has not been bad at all. Can't believe how rude the lady was to you. I think I would report her too. We have all been through enough we don't need rude people like that.
bgirl thank goodness B9. You will make the right decision.
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After two years of chatting on BCO, Jules and I got to meet up with our hubby's and spend the afternoon together in Gruene, Texas. We had so much fun.
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bgirl - Yeah for B9 results! Doing the happy dance.
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what type of eye drops were you given? I'm having trouble too and have been to the eye dr. Can't seem to straighten it out
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jb1952 - I use some heavy moisture drops my pharmacist recommended, couldn't find the exact brand optomitrist had given me a sample of.
If I was post-meno I would just go for hyster/ooph but there seems to be a lot to consider if pre meno. Just got hot flashes/night sweats settled down on Tamox and if I do it they could come back with a vengance. Also insomnia could get worse, if that is possible!? Bone density issues can be worse if ovaries removed before menopause and this concerns me because I have bone/joint problems and don't know if this could make it worse.
Would be nice to be free of crazy flooding/wacky periods, tamox induced multiple cysts on both ovaries (2 cm+ each) and a uterus that is now 2X as big as it should be.
Anyone have any experience doing pre meno hyster without the benefit of HRT? Anyone just give up on Tamox and take their chances? - some of the issues would resolve naturally if I stop taking it.
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bgirl - if you did a hyster pre meno you still would not be able to take HRT since you are ER+/PR+ Unfortunately for me, I am post meno, I was on HRT for 2 1/2 years and got BC.
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HRT is definitely out, so yeah I am concerned about sudden meno symptoms. Hard time at beginning of tamox so not sure if ready to do it all again. Also probably have to do abdominal due to size of uterus (no hormone treatment to shrink it either) so major surgery and I didn't heal well from my c-section.
jo - I guess it is crappy if the HRT may have caused or made your BC worse. Not a great price to pay for just wanting to feel better.
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