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Anyone on just Taxotere and Cytoxan?

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Comments

  • sugar77
    sugar77 Member Posts: 1,328
    edited December 2009

    Dogsaver, 

    Glad to hear you're done and beginning to feel like yourself again!  Just curious about the eye brows, did they just thin to the point where you can fill in with pencil?  Also, did you lose your eye lashes?  If so, are they now starting to grow in?

    Today was my first TC treatment and I'm trying to figure out if I'll lose my brows and eye lashes.

    Sherri 

  • dogsaver
    dogsaver Member Posts: 110
    edited December 2009

    My eyebrows were thick to start so they look as if they were just waxed.haven't had to use a pencil yet. I'm hoping I'm in the safe zone. Haven't lost any lashes.I'm preparing myself though, just in case

  • one-L
    one-L Member Posts: 653
    edited December 2009

    Ladies, my internet has been down since Friday, so it is going to take me a couple of days to catch up. 

    I had my 3rd tx on Friday and all went well until today.  I went to the LGFB meeting today and it took everything out of me.  I have been trying to recover since about 4:00.  I am  feeling better, but I guess I pushed myself too hard.  I will feel better tomorrow.  All else  seems to be going OK.

    I really just wanted to check in and let you know I was still alive.

    Juannelle

  • chrisct
    chrisct Member Posts: 310
    edited December 2009

    Hi ladies - I'm 12 weeks out from 4 x T/C and I was lucky to have only thinning of the brows and lashes - so far.  My daughter commented that my brows looked thin before I even noticed.  I had to use only a little eyebrow pencil to fill in a small section that was very thin.  My lashes started to go right after I hit the 8 week mark.  I was hoping I was going to luck out, but I did lose a bunch.  The lower lashes all went.  I lost about half of the upper lashes, but they were spread out enough that I could still put on mascara without looking too stupid. (Or maybe I've just lowered my standards.)  I am now noticing that I have a lot of half grown in upper lashes.  I noticed just today that my lower lashes are coming in very well too.  Just for kicks, I tried putting mascara on the lower lashes to see how it looked and there were many more there than I realized.  I am hoping that if the rest of the upper lashes go, enough new ones are in far enough that it still looks okay with mascara.  I am very lucky that they didn't all fall out at once and that my brows only thinned.  I am utterly hopeless when it comes to putting on makeup. 

    Thanks to Chelev for the heads up that it can take 2 months for lashes and brows to start to fall and that they might fall out again in cycles.  As anxious as I was waiting to see what would happen, I was glad I knew what could happen. 

  • lottie
    lottie Member Posts: 160
    edited December 2009

    Hi Everybody - Just checking in. My 4th round seemed to knock me harder. New things I notice are thick, thick brain fog and constantly running eyes. I can only laugh still -- none of the side effects have knocked me down, just slowed me down. The skin reaction was much more severe this time and the doc put me on a short but high dose series of steroids. I finished them up this morning, thank goodness. If I get the rash again I think I'll try to tough it out. Prednisone is a very nasty drug and hits harder and longer than the decadron some of us get during infusion.

     I have two more treatments to go. Next one is 12/16. One thing I noticed this time is that I don't think I hydrated enough before or after tx and that may have led to getting hit harder. I'll try to remember that this time. Also, for the nasty mouth stuff from taxotere ... ask for a cup of ice chips to chew on while the taxotere is running, I think it made a difference for me this time ... the problems w/ raw/burnt feeling mouth didn't last as long.

    The explanation I got for doing 6 tx instead of 4 was sort of vague. The doc mentioned my oncotype score 27, the size of the tumor 1.7 cm, my age, all as reasons for doing 6. He also said that the standard treatment for women with BC who are doing TAC is always 6, so since the "A" is left out of our mix, 6 is probably best. I don't remember what "A" stands for, but, I think those of us on TC rather than TAC definitely have it easier.

    Have a great week everyone. And, congrats again dogsaver.  

    Lottie 

  • one-L
    one-L Member Posts: 653
    edited December 2009

    I am post TC x 3 and I still have lashes and brows.  I still have head hair, but I do believe that if it was not shaved it would come out.  It is not growing now.  Arm hair is thin, but hanging in, no pit hair, hardly any leg hair.  The other region is thin, but still there. 

    I have often wondered how it is decided how many treatments we all get.  I know there are many factors, size, node involvement and mets.  Oh well, I guess it doesn't really matter, as long as in the end, we don't have recurrence.  That is my goal.

    I always stop and get me a big drink right before my TX, then I chomp on the ice the whole tx.  I have not had any mouth sores and no bad tastes as the meds so in.

    Have a good day ladies.

    Juannelle

  • sugar77
    sugar77 Member Posts: 1,328
    edited December 2009

    Hi Juannelle,

    I had my first TX yesterday and have taken all the advice you sent me.  I chomped on ice chips, too.  I've been eating benefibre and eating Fibre One for breastfast since Sunday and have had to constipation whatsoever.  I've also just taken a Claritan and the nurse is coming in about an hour to give me the Neulasta shot (let's hope this helps avoid a lot of bone pain).  I checked with my onc yesterday and he said he was okay with me trying it.  I feel not too bad today but expect the next few days might be worse. I even walked on the treadmill for 30 minutes this morning. I've booked an appt. for next Monday to get my hair buzzed.  I'm so stressed thinking about it. I think once I get it buzzed and have my meltdown, it'll be better. 

    I can't thank you enough for the great advice!

    Sherri 

  • josie2009
    josie2009 Member Posts: 6
    edited December 2009

    I have not been to this site since last week and on last Friday I had my first Chemo treatment.  I appreciated everyone's prior posts because they helped to understand kind of what to expect, but I am a unclear what to expect now.  I made it through the weekend without getting real sick.  I was ok for the most part - a little slow. One thing that has been happening that I haven't heard other people mention is the nevousness or the feeling like you are under water and your eyes are bulging.  Has anyone had this feeling?  I went back to work on Monday after had a Neulasta shot in the morning and did not make it as long as I expected.  I had a hard time with balance and could not really feel my head?  Does this seem normal?  By the afternoon the Neulasta shot was affecting me and the bone pain began.  I am told it will go away in approx. 48 hours - which will be tomorrow morning.  Does this sound right ?  Anyone else have an estimate on how long the bone pain will last?  My biggest question is what is coming next?  After the bone pain, am I pretty clear from throwing up and other affects?  Will it start to get better until the the next Chemo treatment or do the side efffects just keep coming an going? I know the hair loss will come and sounds like all other hair too, but what about feeling ok?

    For those that are reading for the first time - the chemo session was not bad.  I now value the nurses more than ever - they really made me feel comfortable and helped me to relax.  They are a great source for what to expect - more that the Dr.

  • Jillilene
    Jillilene Member Posts: 3
    edited December 2009

    Hello All - THANK YOU to all who have so diligently posted and shared your stories, humor and hope.  I have been reading the postings on this site since I began my T/C treatments in August.  I am so glad that I happened upon this specific thread because it has been enormously helpful to me as I wondered about what to expect and if my symptoms were normal.  This Friday, 12/11, I will have my 6th of 6 treatments and look forward to having this behind me.

    I will share my experience especially for those new to the land of Taxotere and Cytoxin, as so many others have so generously done.  After my first treatment I have awful neck and shoulder pain, which I found is fairly common.  All in all, my side effects have been minimal and manageable.  I have treatments on Fridays and feel fine until Sunday evening (thanks to the Decadron which I take Thursday, Friday and Saturday).  Then I have about 2 days of "ick" and "queasea," which is a cross between queaziness and nausea.  I have never vomited.  After this passes, it takes perhaps 3-5 days until my energy is mostly returned.  By day #16 I'm feeling much better as if I have my old energy back. 

    Tricks that helped me manage the infusion and the side effects:

    1) I learned to not go to my treatments with an empty stomach.  Everything hits harder without food in the system.  I felt completely buzzed when I received Benedryl in my IV the first time, so eating a banana at exactly that time helped.  2) Drinking lots of water helps me throughout all of chemo. I remember the saying, "the more I pee, the more they flee!"  3)  For me, the scalp pain was relieved when I buzzed my hair off on day # 17 after my first treatment.  I was prepared with hats and a wig.  Like others....my eyebrows are thinning and that just started in the last 2 weeks.  (And I am NO artist when it comes to trying to pencil them on - ridiculous!)  4)  I have tried to keep up exercise throughout my treatments, taking my "icky" days off. 5) I receive acupuncture 2 times/week to strengthen my immune system.  My onc was fine with this.  6) I read this and other sites that offered hope and strength.

    I realize this post is now lengthy, but I hope it can be of some help and encouragement to those of you starting out.  Athough it seems like such a long road, it really is possible to put one foot in front of the other and make it through.  Again, thanks to all of you for sharing so willingly, even as all I could do was lurk and read. 

    I wish everyone a week with as few side effects as possible!

  • chynadollsmom
    chynadollsmom Member Posts: 43
    edited December 2009

    Josie - Yes.  I've felt just like what you mentioned.  I've felt like my insides were trembling and like I was walking under water and my head was almost detached.  I've had that with each treatment.  I also have several days to a week of my heart pounding which I think aggravates the problem.  It seems that the biggest days for nausea are the 3rd to 6th days after treatment.  My Onc. gives me pills that I take once a day during those days, and so I've not really had to deal with nausea.  During my worst days I have no appetite, but at least I'm not typically very nauseous.  The Neulasta or the chemo, will give me aches for sometimes about a week.  If I take something for the pain, darvocet or Aleve, it's pretty manageable.  Keep in mind that side effects can vary pretty widely from one person to another.  I've found that whatever happened after the 1st chemo was pretty much the pattern for me, with the exception that the symptoms worsened a little with each treatment.  After this, my final chemo, the fatigue seems to be the longest lasting issue.  For me, the first week is the worst.  2nd week I'm functional.  3rd week (just before the next chemo) I'm a human being again.  Since you're just a few days out from your first chemo, during the next few days you may have issues with your mouth.  Mine gets numb, dry, swollen, inflamed (hard to explain) feeling for about a week starting around day 4 after each chemo.  Around the 2nd week the inside of my nose goes crazy.  It gets dry, cracked, and tender on the inside.  (I use saline spray and some neosporin to combat that.)  Beginning around day 2 and for about a week my bowels get messed up.  I go anywhere from sort of constipated to having diarrhea.  Just keep in mind that these are some of my SE's.  That doesn't mean you'll have them.  Honestly, it's not been as bad, overall, as what I thought it would be.  My stamina is definitely off.  Lost that a little more with each treatment, but I'm sure that it'll build back up now that I'm finally done with treatments.  I'm hoping by Christmas to be able to start walking with my dogs again.  Just take each day as it comes.  Rest when your body says rest.  And let the people around you who love you help take care of you.  You'll find yourself taking your final chemo before you even know what happened!  Hang in there girl.  Go back and read some of the older posts on this site.  It helped me immensely to be prepared for what lay ahead and to know that what I was experiencing was typical (or at least not unheard of). Stay strong and stay positive.  My family and I joke about the things I'm going through often.  I'll say, "Man I need to lay down and take a nap.  Sure hope I don't mess up my hair!"  They'll laugh and say, "Yeah, think you'll be okay there."  My brother will stop in to see me and then before he leaves he says, "Well, I'll get outta your hair...."  Just those little inside jokes that help us take control of this thing instead of it taking control of us.  Take care!

  • chynadollsmom
    chynadollsmom Member Posts: 43
    edited December 2009
    Jillilene - Try using an eyebrow brush and a container of eyebrow "cake" rather than a pencil.  It is so much easier to brush on the eyebrows rather than drawing them on with a pencil.  Looks a lot more natural.
  • Adnerb
    Adnerb Member Posts: 727
    edited December 2009

    My third round of T/C was six days ago.  The diarrhea is not as bad, but it's there.  

    Thanks, ladies, for sharing your experiences with T/C.  I thought it was going to be so much easier than A/C.  I was wrong!  These cocktails affect people differently.

    What do you do to get rid of your white tongue?  No amount of brushing with baking soda and salt seems to help.  It only happens on the worst days, from days 4 to 11.

    Thanks. 

  • josie2009
    josie2009 Member Posts: 6
    edited December 2009

    Thanks Jillilene and Chynadollsm for the information you shared.  I am releived to hear that things should be getting a little better as the time goes on and that the pain I am feeling is normal.  I was thinking that once I get through one round, I will know generally what to expect and that looks like it is true.  Even though this is happening and I am living it, it is hard to wrap your mind around it - I was such a strong person with no health problems ever. I am not used to taking help.  I am catching on and every day is getting better.  So far only 2 meltdowns - 2 days before chemo when 3 relatives decided to stay with us and Monday afternoon when I could not make it at work any longer and had to go home.  I took yesterday off to rest and will hit it again today. Very cautiosly.  I thought I was going to be able to work without many people knowing about  the cancer - I thought that woud help me push through - but I am seeing now I am going to have to talk to some people.  They are used to me perfoming at 110% and I can't do it right now.  My biggest issue is that I am the problem solver and when complex issues arise now, I just want to tell them to figure it out on thier own.... Not too good.  If I say something they will back off - I work with very compassionate people.

    So I am off to work. 

     I feel like I am taking and not giving to this discussion board right now - hopefully that will change once I regroup.

  • chynadollsmom
    chynadollsmom Member Posts: 43
    edited December 2009

    Adnerb - I haven't found anything to help the swamp thing that my tongue becomes during that week and a half or so.  I'm dealing with that myself right now.  Hate the way it makes eating feel and such, don't you?

    Josie -  Give yourself a break. I think you're in the hardest part of all this right now.  Experiencing all this for the first time, coming to grips with it.  I don't think I even joined this forum to post until I'd been through 1 or 2 of my treatments.  I'd just get on here and read and read.  I felt like crap -- so many new SE's, were they normal, weren't they. It was just so comforting to have all these wonderful women who knew how I felt and how I would feel.  And yes, you need to tell the people you work with.  I only missed a day or so my first chemo.  Now I miss several days each time.   My head gets so foggy (and I'm a bookkeeper) I know I'll make mistakes if I work, not to mention I feel just so weak.  I've nearly passed out several times.  I don't go to work until I know I won't do that. 

     Well, I need a shower.  I have my first blood test from my final TC and then I need to see the radiologist for my mapping for my radiation.  And then, off to work.  Hope everyone's day goes well.

  • one-L
    one-L Member Posts: 653
    edited December 2009

    Sherri, glad you are doing well so far.  Mine usually hits on the 5 day from the day of tx.  Biggest deal is fatigue.  I just have no stamina and have to take everything very slow.  But if that is the worst, then it is doable.  Keep me posted on how you are doing.  I had a complete melt down about my hair.  I did get it buzzed one week after my first tx, but I was an emotional basket case.  Once it was gone, it was OK, it was just everything leading up to the buzz.  Glad you are facing it head on.

    josie, we all have different experiences from chemo and you are right the nurses rock.  The ones at my clinic are great and can answer just about any question you have.  Within a couple of days you will face some fatigue, and there are other things like depressions, mode swings, consitpation, more mode swings more fatigue, but you will feel better.  After the first tx, I had about 8 days of feeling normal before the next tx, then after the 2nd I was fatigued longer.  I just had my 3rd tx last Friday and I just have no energy.  But I plan on feeling better by the weekend.  I don't try to work the week after chemo, I just don't think I could make it.  But I get in about 2 weeks before the next one, so that is good.  Hope all goes well for you.

    Sending hugs to everyone.

    Juannelle

  • josie2009
    josie2009 Member Posts: 6
    edited December 2009

    I went to work today and it went well.  I did not push and came home early. he next time I have Chemo I am going to plan to be out for the first week.  I am fortunate that I can work a little at home and my team can handle the res for a bit. Plus, the person who mentioned that one week out is not a big deal, beacuse then you can give 2 weeks, is right. That is very manageable - I just did not know.  I read a book called "Uplift" and it appeared everyone in the book received chemo and went right back to work like nothing happened.  I know now that is not real - maybe I read it wrong???

     I hope tomorrow is even better than today - I was still clinging to a few walls to help me stay on my feet.  No one notices and that is the strange thing.  They talk to me like normal and I feel like screaming at them - I am not feeling well - get to the point! It is odd to look so normal and feel so strange. I did tell some more people today and they were surprised and supportive. 

    Going to Integrated Medicine (Homopathy) on Friday for an assessment.  I am hoping to gain some stress relieving advice and nutrition advice.  Looking forword to the weekend so I can get off a schedule.

    Goodnight!

  • Jillilene
    Jillilene Member Posts: 3
    edited December 2009

    Chynadollsmom - Thanks for the suggestion about the eyebrow "cake."  I'll definitely try it out.  It sounds like we are on a similar schedule.  I have my final TC treatment on 12/11, and then my radiation mapping on 12/18.

    I believe it is true that if ever there was a time to take some days off work and give ourselves breaks in any ways we can, this is the time, like One-L and Josie named.  I hope you are able to take the time off to rest and recover in between treatments.

  • chrisct
    chrisct Member Posts: 310
    edited December 2009

    Adnerb -  about the white tongue...  I remember having a white-ish tongue at times. I used Biotene toothpaste and Biotene mouthwash which I think  might have helped.  In case it is thrush, maybe eating yogurt would help?  Hope those aren't stupid answers...

  • chynadollsmom
    chynadollsmom Member Posts: 43
    edited December 2009

    Big day today.  I'm tired.  Had my mapping for my radiation this morning.  Jillilene, it wasn't bad, but they position you and tell you you're not going to be able to move for about 25 minutes.  It didn't actually seem like that long, though, so all in all no big deal.  Then on to my blood test.  Looks good there.  Had a low grade fever?  Better keep an eye on that.  Then off to work.  Had a hard time focusing.  I'm still shaking pretty badly, very fatigued, and still have some low grade aches.  Once I got myself collected, though, I made some progress and got a lot of work done.  Couldn't wait to leave, though, and when I got home I plopped and did basically nothing all evening.  I'm a little worried about my nails.  The appearance of the nail bed seems to be changing.  I'm hoping it's all in my head and not that my nails are on their way out.  Scalp's sore today.  My stubble's still there, though, so no major additional hair loss, at least yet.  My taste's been definitely off the last few days.  Between food feeling wrong with my inflamed tongue and tasting wrong, I'm not enjoying my food.  I've been eating a lot of poached eggs and toast.  For some reason, maybe because it's not a strong flavor, that always sits well for me.  Jillilene, I'm really excited for you to have your last chemo Friday.  Hopefully by New Year's we'll be ready to ring in a brand new year -- Cancer Free!!  Well, have to take something for the blasted heartburn and then off to bed.  Can't hardly stay awake.  Night all.

  • one-L
    one-L Member Posts: 653
    edited December 2009

    I went to Onc today for blood work  and my WBC is down down down again.  She gave me a Neupogen shot today, will get another tomorrow and if my insurance approved, then two over the weekend.  Then go back for a blood test on Monday.  I thought I was doing so well, just fatigued now, but that is getting better also.  She gave me an antibiotic to take for 5 days to help me get through this period.  No sick people.  But they are everywhere.  Oh well, I just have to remember, one more, one more, one more.

    I  also talked to her about my neuropothy in my fingers and toes.  She said unless it just got unbearable, then she would not give me anything, because she just didn't want to give me any more meds.  It is  not  too bad, and she said  it should go away, at least most of it several months after the tx is over. 

    I guess there is no way to get out of this without something lasting years or a lifetime.

    Juannelle

  • chynadollsmom
    chynadollsmom Member Posts: 43
    edited December 2009

    Oh Juannelle, sorry to hear things are so rough for you right now.  After my first TC I lost my white counts all together.  I took the antibiotic and stayed away from public places for the week and I was okay.  I'll pray that you'll be kept from any infections too.  Hang in there.  You'll soon be done!  And I can't imagine what the neuropothy is like.  That was one of my biggest fears, and blessedly I've not had it.  Just an occasional feeling like my fingers were a little numb.

    My energy level is still low a week and a half out from my 4th & final TC.  Still shaking.  And I feel significantly worse after meals.  Does digestion take that much out of you???  I also have a little difficulty staying focused at work, course I'm not sleeping well right now either.  A new SE is facial and muscle spasms.  The left side of my face is jumping practically constantly, and occasionally other muscles in my body will spasm for a few seconds.  I looked around on the net and I guess that this is yet another SE.  I hadn't seen that one on here before.  I'm definitely going to have at least ridges in my nails.  I read that it's from an interruption in the growth.  It's going to look freaky, but I'd rather have that than losing my nails altogether.  Take care everyone.

  • one-L
    one-L Member Posts: 653
    edited December 2009

    chynadollsmon, on the WBC will come up, I will get enough Neupogen shots to take care of that, it is just time of year there are so many things to do and I can't get out in public.  There is a Christmas party that I always look forward to that I will not be able to attend and it is just a downer, but this to shall pass.

    Well, I have had three treatments and I have just about lost all of my head hair.  I still have a little, but I do think if it was not all the way down to my scalp that I could pull  it out.  My head is pretty slick, I guess I could shine it up.

    My energy level is coming up, I don't think I could overdo on anything, but I can at least get dressed and get my makeup on without taking a 15 minute break.  This makes me feel so old, I am like an 80 year old, maybe not even that good.

    Sending Hugs to everyone and wishing everyone a great weekend.

    Juannelle

  • jenw
    jenw Member Posts: 31
    edited December 2009
    Magob-The steroid weight going away was the best news I have heard yet!  I gained 12 pounds  during chemo and I feel so uncomfortable in my skin!  I have lost one pound, but really want to loose all 12 if not more!  I am 5 weeks post chemo and am in radiation and also on Tamoxifen.  I just want my cloths to fit right again!  Anyhow, thank you for that little bit of hope!  My hair is also covering my head, just not thick enough to go without a hat or scarf yet- but it's ok, every night when I go to bed, I know that I will have more hair when I wake up! I LOVE it! Take care!
  • cka0706
    cka0706 Member Posts: 23
    edited December 2009

    adnerb: about the white tongue - it could be "thrush" which is a yeast infection in your mouth. My onc noticed it on this week's appointment and ordered some oral Nystatin (anti-fungal rinse). It's doing the trick but you have to take it four times a day for 10 days. I don't care since it helps. Ask your onc on your next visit or call their office. Good luck.

    Carolyn

  • lilintexas
    lilintexas Member Posts: 11
    edited December 2009

    Hello Ladies...

    I to am excited to report that I finished my 4th round just over 2 weeks ago!  Each TX was progressively worse for me (sorry) I had well over a week of nausea with my last one, I was poppin so many meds it was ridiculous.  I had to take an entire week off of work on TX #3 & 4.  My WBC's were extremely low (as they were for every TX b/c I refused the Neulesta) BUT I made it w/out any infections!  I stayed home for the periods of being very low & was on Levaquin as well. I constantly washed my hands but did run a few errands as needed....just tried to stay out of peoples faces.  I work in a school clinic so I had to take off work.

    I had lost about 7 lbs the first few weeks of tx's, but then all of a sudden I gained 11 lbs & it seems to keep rising.  This happened right before & continued into tx #4.  I'm also glad to hear the news of someone losing it quickly!!!!  Starting the 2nd week of tx #4 I also am having this pouring from my eyes...LOTTIE..OR ANYONE...any tips on how to help this??? Claritan doesn't seem to work.  I look like I'm crying constantly & am worried I'm rubbing my eyelashes out (I still have about 3/4 of them).  Other than that...feeling a little stronger each day...still have that darn metallic taste though!

    For those of you that are finished...how long did you wait before starting the Tamoxifen??? 

  • lottie
    lottie Member Posts: 160
    edited December 2009

    LillinTexas -- so are you done at 4x or are you doing 6? If you're done WOOO HOOO! and CONGRATULATIONS!

    I wish I had a cure for the constantly running eyes (and nose) ... I don't and it's a royal pain! I went to work in Boston yesterday and put on a little make up -- it was probably all washed away by the time I got there. Although it isn't the worst side effect by far, it is a constant reminder of what's going on and therefore depressing. I try hard not to rub my eyes. I still have lashes but my eyebrows, I think, are on their way out ... very thin. I've never worn a lot of makeup and I'm worried about being able to use eyebrow pencil or whatever to fill them in... any advice?

    Also, although I doubt I'll do it, I'm thinking about pulling my wig out of the closet. Last night I was waiting for the train and sat at the bar to have my 1 allowed glass of wine. The bartender is a smart-ass and remarked about my black wool cap -- he said "what're doing after this, robbing a bank?" Normally, honestly, I'd reply w/ some equally asinine  remark, but I said, "no, I'm doing chemo and I have no hair" and started crying instead. Well he felt like an ass and showed me a tattoo of his sister's name on his arm ... died of BC two years ago. So, we both felt like crap ... not the best outcome.

    The fatigue I've had after tx #4 has to be 3 times worse than after any other treatment. I swear I just started to feel sort of normal this morning, and my 5th tx is Wednesday. I'm working at my office on Monday and Tuesday and I must tell my boss that we need to lower expectations about how much I'll be able to work over the course of my last two treatments. I've been working from home every day and going into my office about 3 days every 3 weeks or so, right before my treatments. But, I haven't been so productive at home ... fatigue and brain fog have been really pronounced this time. I feel thick, slow and kind of stupid.

    I'm curious about how long after chemo one starts tamoxifen or whatever hormone blocker is prescribed. I'd kind of appreciate a drug holiday myself when this is over. My last tx is 1/6. 

  • one-L
    one-L Member Posts: 653
    edited December 2009

    Lottie, I hope the bartender paid for your drink.  I had almost the same thing happen to me last week.  I went to a company function dinner and I had a a pretty scarf, well someone walked up to me and said "What is going with with the new head dress and where is all that hair?"  I just replied that I had cancer and was going through chemo and happened to be bald at the moment.  He felt really bad.  I didn't cry or anything, but I know he felt bad.

    I finished tx #3 last week and I am still so tired.  I just can't seem to get my energy back.  I am glad I only have one more to go.  I was going to try and at least work 2 full weeks between tx, but that is not happening, they are very good, because the only solution for me is to go out on short term disability and they don't want me to do that.

    Hope you get to feeling better.

    Juannelle

  • josie2009
    josie2009 Member Posts: 6
    edited December 2009

    Hi everyone

    Friday was 1 week after my first treatment and I went to the onc for a blood test.  I too have very low WBC and am quarenteened until Tuesday, when the Neulestra should kick in.  I thought it was already working as I have had the bone pain.  Lilin Texas - why have you been refusing it.  I am wondering if I will be able to handle it going forward - especially if the SEs get worse each TX.  I went to see a Naturopathic Dr. on Friday too, and she recommended some products to help relieve some of the systems of Chemo.  She thought that that by taking a 1.5 teaspoons of a mushroom blend that I may not need the Nuelestra.    I was thinking about trying it once more and see what happens.

    I am missing our big work party tonight and a dinner with my golfing Girlfriends tomorrow, but my favorite party is on Tuesday and I am happy to be able to attend that one.

    I have a new SE - it has been happening for 2 days - my inside will just all hurt from the top to the bottom of my body. It is not a bone pain, but it feels like my guts are loose (if that makes sense). It comes and goes quickly. It takes teh breathout of me. Has anyone else had this?

     My big news is that I made an appointment to shave my head. The 23rd.  I am hoping my hair stays until then - the hair stylist who specializes in cancer says it will (Chemo on the 4th - 19 days). They will shave my head and fit my wig. 

    So many of you are so far down the line - this is going to be along haul....

    No worries for tonight.

  • one-L
    one-L Member Posts: 653
    edited December 2009

    Josie, it does seem like forever when you first start, but really it goes by fast.  I have my last tx on 12/24 and it is just right around the corner.  I am also home bound because of low WBC.  With each tx the fatigue lasts longer, but the other SEs have not gotten any worse.  You just learn to manage them, get started before there is a problem.  I have had low WBC with each tx and I have always gotten a Neulasta shot, until my last tx.  Then I was to just get Neupogen, but my Prescription Pharmacy did not send enough, so I am very very low.  Will go get another blood test on Monday.  So I am right there with you sister.

    Good luck on shaving the head.  It was the most traumatic part of this whole journey, but once it was gone, I was over it. 

    We are here for you and be sure to ask about anything that might make your life easier through this, we are as you say, further down the line.

    Best of luck to you.

    Juannelle

  • jeanl151
    jeanl151 Member Posts: 36
    edited December 2009

    Hi girls,  I had #3 (out of 6) on Wednesday and this seems to be the easiest so far. I complained to onc that days 3-5 last time I was like a zombie!  Instead of dropping the steroids so fast, he has me tappering down (days 3-5).  It really seems to have helped.  I didn't sleep the days away, just rested.   I also had the Neulasta shot again this time but took Claritin on day of shot and have been taking Advil since....so far no bone pain!!!

      Unless something sneaks up in the next couple of days, hopefully this will be a smooth run.

    Hoping everyones WBC build quickly....enjoy the season as best you can,,,,Jean