Anyone on just Taxotere and Cytoxan?
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thank you cc4... The only thing I brought up was yellowish.. I seem to be better today, no elephant feeling but coughing a lot and the phlegm is not as heavy. I'm just soooo tired and without patience. I'm bloating like I'm 20 months pregnant! Those damn steroids, only 3 more days of them. I'm starting to have a moon face... Thank God my last treatment is on the 17th. It will suck I won't be able to taste Christmas dinner, but I''ll be done..
Thank you all for the support.
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shiramg what day sis yu feel better 5? I have my fourth and final on tuesday. My bad days last time were 4 and 5. I think I am going to just plan to sleep all day now. That would be friday and saturday. My worst one so far was the last one and that was just really bad fatigue so expecting worse fatigue as the cumulative this time.
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Tx3 was the worst for me, the fatigue was awful! I was expecting Tx4 to be the worst but I have had very little fatigue and I am on day 18 PFC, this round has probably been the easiest on me. Now I just want some hair!!
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dawney that is soooo good to hear because tx 3 was a rough one for me too and tuesday is my tx4. hope im like you!
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I seem to get my worse of my side effects from day 7-14.. Days 3-5 I'm just very tired and lethargic.. Then I seem okay... Day 7 hits and bam, mack truck hits me... This #3 was not worse, not better - just different in terms of side effects. Very tired though...
Even through my tiredness, today I did cleaning, cooking, baking and Christmas decorations. Must be that damn steroid...
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First treatment for me was 7 days ago. I felt really normal, with exception of just a little stomach thing (wouldn't even call it nausea), weakness, very few red bumps, etc. The past couple of days I've been really achy, hard to describe, like flu maybe, and I get moreso tired in the evening. Tongue feels odd, so does mouth, but no sores. Nose bleeds when I blow, but not anything major, just feels really dry. However, judging by this, I'll have to say I fully expect to have more of a rash with round 2, more aches on day 4-7, and more of an issue with my mouth.
Thankfully, my baking and getting ready for Christmas will be done right before my 2nd treatment. The only thing I'll have to struggle to do afterwards is going out for breakfast Christmas morning.
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I just had my first round of TC last Thursday and really, without the Neulasta shot, I think my SE's would have been manageable. Food tastes bad, the only things I can eat is potatoes, crackers, cheese, water and raw nuts.
I've noticed a LOT of you are on steriods. Why is that?? They gave me steriods as a pre-med before they started the chemo. That's it. I'm just curious why so many of you are on the steriods.
Sending all of your SE-free hugs! - Shelle
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ShelMel - I'm on the steroids for 2 weeks post treatment because I get severe hives. The steroids have been keeping my hives in control and also the pain from the Neulasta shot. My side effects have always been mouth related and I have zero taste buds since starting my treatment October 15th. Even water tastes like sawdust and makes me cry. I pray that my taste buds come back. I can't detect salt, sweets - When I say zero food, I mean zero. I close my eyes and I can't tell you what I'm eating.
My side effects also seem worse from day 7-14 - which is now. I have a runny nose, bloody nose when I blow, cough, tired, achyness, swollen gums, weird cheek lining. I'm using Sulcrate, Difflucan, Salt water rinse and biotene toothpaste and mouthwash.
My only light is that my last treatment is next friday, december 17th then I"m DONE!
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Just had my last of 4 pre chemo blood work done. Tomorrow is the last one for me. I am nervous because tx 3 the fatigue was really bad day 4 and 5 and they said cehmo 4 might be worse. But at least this is the last one.
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carrol i had intense stomach issues with round 4 that i did not experience prior. i think its bc once i started feeling better i started eating like a monster. do not do this.
the fatigue was not worse. the chemo brain was really bad. i am seriously mixing up and forgetting words.
good luck on round 4. YOU'RE ALMOST DONE!
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Rachel - that sounds horrible to have NO taste at all. I cannot imagine. I hope that SE goes away soon. Is that a result of the chemo AND the steriods?? My heart goes out to you sweetie.
I'm on day 4 after my 1st round so this is all new to me. I don't know whether my SE's are from the chemo or neulasta shot. I don't even know what's important to tell my oncologist when I go see him on Wednesday. Everything hurts or is weird.
Carrol2 - I hope tomorrow goes well for you and the SE's are minimal. I'm terrified of going to my 2nd one, so I can only image what going to your 4th one is like. HUGS!
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Shel - I would say to tell your onc everything.. One can never be too sure.... I was told that the tast buds issues were a side effect from the Taxotere... I don't know but it's really pissing me off because I'm a huge fan of food and love to cook and I hate cooking for my family, smelling it because I still have my sense of smell, have them tell me it's awesome tasting and all I taste is sawdust!
My side effects are from the chemo.. I haven't experienced side effects from the Neulasta shot but that's probably because of the steroids. I'm using Decadron and they do take the pain away.
I'm not looking forward to #4 because I hear it gets worse as it is cumulative - but I'm looking forward to it because I want done, over and out.
I hope you feel better soon. It is "doable" and I never thought I would get to #4 and here I am already.
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Hi all - just checking in on this thread now that I have finished my 4 treatments - yeah! For all those who may read this after me and are scared to death, I am happy to report that all four treatments were virtually identical in terms of side effects and not too bad. My exact pattern every time was mild muscle aches starting late Friday (after tues infusion), and continued aches (aleve kills them, btw) and tiredness sat thru sun am (I napped a lot during this time). By late sunday the tired and aches stopped, but were replaced with pounding heart/breathlessness upon exertion (flight of stairs is a killer), which gradually goes away by tuesday. I have weird taste issues for about the first 7 - 10 days. Nothing major - I just have a hard time figuring out what sounds good and things that should taste salty don't. But no metallic taste, mouth sores, thrush, or anything like that. Other that these and the hair loss, I had no side effects. No nausea, digestive problems, neuropathy, etc.
My SEs were not cummulative. In fact, the last two seemed slightly easier than the first two. I was fighting off a nasty cold for the first two, so maybe that is the difference for me.
I never needed neulasta as my blood counts always rebounded well. I credit this for feeling so good. I was hoping not to have to do that and am so thankful that I did not need it.
Good luck to all of you with your treatment! I hope your SEs are as mild if not more so than mine! I know I was probably just lucky, but hopefully this will provide a little bit of hope to those who are new to the treatment and are scared. I know I was terrified, and it turns out it was much easier than I ever thought.
Knocking on wood that I do not fall apart here now that it is done!
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ok ran around like a chicken today and got everything i needed done. Forgot to get some frozen meals when i was food shopping so may have to hit the store again on wedneday after neulasta shot. Got plenty to drink and packed a few up for tomorrow. Gonna go put some calcium polish on my nails now before husband gets home for dinner.
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Ir4993 Great to hear your info. Sounds as if I have had the same lack of SE"s as you.. I've feel I've been pretty lucky so far... Now ready for my last one TOMORROW! Then onto HAIR And new boobs in the New Year. WOo HOo! Goold Luck Carroll...Lets write when we feel up to it.
SHel- Tell your nurse/doc everything. Everyone has different experiences but it will help your nurse to identify if you need something else. Hang in there and you will be fine. I only take Sterois the day before and the day after chemo apparently its anti nausea stuff Dexa. I hate the bloating feeling it gives me. But I can handle it.
cc4n - Call your nurse...
Rachel WOOkHOO bring on the 17th eh?
OMG I Can't wait to have back...
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Big hugs to Carrol and Outside on your last treatment! Good thoughts to you both tomorrow. My apologies if I missed anyone!
Tiffany
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Thanks Tiff Will let you know how it goes.... Outside
maybe there is a future after all....
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Ok, posted on the TN thread, but I have a fever tonight. I'm 7 days post 1st TC. I went to a small party Saturday, stayed an hour, ate a little food, that was all. Today went to my PS for a fill, walked in the freezing windy air and knew it was way too cold for me to walk, but I did. And I had to get gas, so was outside again for that. So now, about 3 hours ago, started feeling chilly and not so good. Now I have a fever 100.9, few chills and obviously warm now. No other symptoms. Didn't have a neulasta shot. I so hope this fever goes away by morning. I do NOT want to have to call the onc. Anyone else have a little fever that went away? I'm drinking water in case I'm slightly dehydrated.
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one more time ladies i am almost on the other side and i will wait for all of you there.
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I'm following you Carrol2 --- my last one is next friday!
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Rachel1966...I'l be behind you! Number 5 next Friday (same day as your last) and number 6, 3 weeks after that!
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Hi Angelisa,
I had a fever of 100 degrees a few days after my fourth TC which went away in two plus days. It totally wiped me out - I could not lift my head off my pillow. The key is to be sure that your temp stays at or below where you are now. My onc wanted me to call if it went above 100.5 so please call your onc to be sure that he is comfortable with your temp.
I think that you can ride out tonight, but don't hesitate to call your onc tomorrow. If your temp goes higher, you really need to act before then just to be on the safe side. I hope that you can put up your feet, put a cool towel on your head and see if you can get your temp down. We all tend to have a spike at the end of a long day so that is probably the case with you too. Good luck!
I wish everyone a s/e free day! Best, Beau
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ugh, it's almost 3am and day 12 post TC #3 , I still feel like shit. I'm still coughing and full of phlegm caught in my throat / chest. I have an elephant sitting on my chest and it won't move. Pain between my shoulder blades. I'm not able to bring up any of the phlegm. Not wheezing. No fever. Just can't sleep, can't breathe properly and uncomfortable. I'll call the onc's office tomorrow to see if there's something they can do. If there's no fever, no green mucus - must not be pneumonia right? Is this a Taxoterrible side effect?
I now have the moon face - Because of chronic hives, I have to take that damn steroid for the full 12 days. Today was my last 1/2 pill. How long does the moon face disappear after you've stopped your treatment? My stomach is also reaking havoc of it.. I look like I'm about 20 months pregnant and there's this gnawing, burning pain all the time. I sometimes have to eat just to calm it down. I do take Zantac (Ranitidine) with the steroid but my stomach is not happy.
Ok, enough complaining.. Sorry about that, I'm just feeling alone right now and my 22 month old daughter is sleeping soundly as is my hubby while I've been in the other room tossing and turning, coughing and crying. Last treatment next friday - hopefully!
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Placed a called to the oncologist office at 9am this morning. They got back to me at 2pm this afternoon. They said I need to go see them tomorrow morning at 930 to make sure I don't have pneumonia or am becoming sepsis. If I have a fever, go to ER.... I don't have a fever, never had a fever but feel like shit. I guess I'll see them tomorow morning.. I have a feeling this will delay my final treatment next friday... Ugh!
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Rachel i am sorry yu are so sick. I had very high blood counts from the nelasta taht this time the docotr opeted no to give it to me. Day 2 of my last chemo goiing ok excpet the roids rage doc said i couldgo off them I could not settle dowen. Have not take one since last night but still very antsy. Taking ativan to try to calm down seems to be better but not much. I am pacing and tapping and keeping way busy. Hope tomorrow i can relax more
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I hear ya carrol2 - I hate those steroids and I have to be on them for 2 weeks on a tapering dose. I don't think I've slept since I started chemo October 15th.
Hopefully tomorrow I get some answers and a quick antibiotic and I'm on my way to feeling better. I want my last treatment next week, go through the side effects and then be done with it.
Ativan is no longer working for me. My last count with the Neulasta was also very high at 38.1 but they still gave it to me anyway.
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It's off, I go to the chemo chair once more!! Hoping for no infusion issues this time!!
Have a great day ladies!
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I spent all morning at the hospital. I had blood work done, throat swab, sepsis work up, chest x-ray - I've been poked and stabbed... I'm on antibiotics for the next 7 days and we'll see if I can get my last chemo treatment next friday. My WBC was 14. Doctor says that's due to the Neulasta and Decadron. So, fluids, meds, rest, and hope for the best.
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I wish you were feeling better Rachel. We are stronger than we know aren't we. It's almost over. I ahve my worst two days coming,maybe i can thwart it off with more fluids this time than the last, but then I am done.
Tiffnay I hope your infusion went well. Mine day was was the hardest one yet but yesterday was good and today is so so.
The fatigue is there not full blast but there. I am taking it very easy with naps and fluids.
Husband has nose pollops and the phlegm goes down his throat making him cough. He jsut went to the doctor and alone so i know it's really bad. Hoping they give him something for the sinus swelling.
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Treatment 3 down- 1 to go! No reaction this time! I imagine Sat night or Sun. the yuckies will hit!
Carrol, I hope you get to feeling better soon! And DH too!
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