Anyone on just Taxotere and Cytoxan?
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OH MY GOSH OTTER....I can't even imagine how you can do all that and keep everyone in their order. I am a little offended,however,you and I've gone way back to the beginning of Feb. and you didn't remember me with TX x4.(just kiddin ya)Well, really it doesn't surprise me..It's the teacher in you and you have been organized since day one. I've got a college teacher also(my daughter-in-law) and let me tell you she's miss organization.
Planning all the time.
Nioxin...It will cost around $30.00 for the intro kit which is supposed to last you a month. It will be longer if you don't wash your head every day.Of course you must remember that is for a full head of hair. It will take us 3 month (no hair) for sure to use it up.All in all it's worth the money and don't go to Sally's for their imposter brands.
Hugs to all...still in a weaked condition. What happened to my Muscles????
Hey, right now I'd try to get ANYTHING I can on the isurance coverage. Doesn't hurt to try. One Margarita per day..Priceless!
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Hello all- Otter thanks for the chart...you are great to keep up with everyone
Senora - sorry to hear this is the second time
My little journey took me to the lympedema therapist in harrisonburg....now I have 3 wraps on my right arm from my hand to my arm pit...and 4 more appts...harrisonburg is 30 miles away...and I have been spoiled since the cancer center is only about 6 miles from home or work. The next appts they are going to do some lymph node massage...they think since I am not too swollen these appts might take care of it.
Anyway at the appt, I was saying that I just wanted to be able to do things with my right arm like normal...well before I got the word normal out, I had this wave of emotions..and just about lost it...even thinking about normal now makes me crazy....I guess I need to define a new normal...
My good news is that I met my out of pocket expenses...and when I left the therapy they gave me my copay back...and the other is awhile back I took an ACSM certification exam for exercise people to work with cancer patients...I took it 2 days after my first chemo...so i was a little worried...anyway I passed...just found out a couple of minutes ago...
so as soon as I get by graduation here...I will make that website about exercise ....have a great evening
Sharon
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Thanks for the calendar Otter! I think the Hawaii idea is taking off with everyone - so I might just plan a trip for us all when this is over! Anyone game? I won't be done with radiation until October so it might be next spring because I teach. Just an idea!
Great week to everyone! Karen0 -
Oh, Evie, I didn't forget you were TC x 4! (Did you think I was going to make you get two more tx's??) I just put the "x 4" or the "@ 3 wks" on the chart if I saw a post where someone specifically said that was their regimen. I didn't go back too far, though; and I'm assuming the treatments are "x 4" and "@ 3 wks" unless someone posted otherwise. There are hardly any deviations from that standard schedule, but there are a few....
...like our poor sister Senora, who is getting dose-dense Taxotere & Cytoxan! And, to make matters worse, I even posted that your (Senora's) tx on 5/12 was the first one, when it was actually the 3rd! It's a good thing I'm not in charge of real chemo scheduling, isn't it? I'd have everyone in there twice as many times as you're supposed to be.
So, I have a few corrections and changes marked; I'll get those in the chart ASAP. And, it's no big deal to do this for our TC group; but I gave up doing it for the whole April '08 group 'cause it's way too big and I can't keep track. Also, I'm retired, so what else do I have to keep myself busy when I'm not messing around on the boat? My dh wants me to mop floors and wash windows and clean closets, but we know I am too weak and debilitated from chemo to do that stuff...
otter
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Senora, hang in there, this is the 2nd time for me as well, 13 years ago, lump in left breast, this time it is in the left muscle wall.Hopefully this treatment will be a better one for you. Take care and mini s/e
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I have been on the same chemo for three session and have last one next week.
I have not had one side effect except for hair loss. My doctor adds alot of support medicines to the treatment. You take steriod the day be, day of and, day after. There is also atavan and sofran for neausa taken injected before the chemo really starts using the same machine.
They started treatment very slowly. 1st one took five hours with chemo going very slow. As we went on they inccreased the rate of chemo till the last one will only be an hour and a half.
They wanted to see how you tolerated it and that was reason for the slow aproacch.
It had a good record for less reaccurance. Perhaps it is your doctor's methods0 -
Hello Wednesday Treatment Ladies.....
otter ( #3), beachmom13 (#2), Kfalls (#2) and lotodogs !!!
Good Luck to each and everyone of you tomorrow...I hope it is a short and easy day for each of you. We are all here wishing you well.
Otter...you are amazing!! How good you are to us. Thank you. I am always worried I will forget to wish someone good luck. I am on TAC...I am a stow-a-way with this group. I did not realize I was the only one on TAC. Thanks for keeping me!!! I like this group very much it really helps me to get through. I am scheduled for 6 treaments if you want to add them they will be 6/5, 6/26 and 7/17 and then on to surgery in September. I kind of did things backwards as well ...typical me !!!
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Otter, in our grocery stores they sell Paul Newman limeade in the dairy section. I highly recommend it.
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Otter - fantastic job on the chart. thanks. here's a site for limeade. We made it the other day when dd brought home limes from somewhere. If you don't want to use real limes, you can use realime - like lemon juice but with limes.
http://www.cookingforengineers.com/recipe/66/Limeade
Sharon, I had that same feeling when I first heard about the things shouldn't due with the lymph nodes out. The one that burnt me the most was no hot baths. They're better than sleeping pills for me.
I think the plane is almost ready. For those going tomorrow, hurry
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Ladies, I in for the trip to Hawaii, just let me know when you want to go
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Ladies, I'm in for the trip to Hawaii, just let me know when you want to go! I love to travel and bags can be packed quick!!!!!!!!!!!!!!!
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Tigwin, tell us how nice the weather is now in Ca? We have had so MUCH rain here in the northeast, but today was a lovely one in VA.
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I'm not Tigwin, but I think we live in the same part of CA (tigwin, did you get your wig from Enid?) Anyway it was 85 today, predicted to be 95 tomorrow and then over 100 for a few days. Ugh. And in my post chemo days too. The upside, we got solar power a few months ago so I don't have to feel too guilty for cranking up the AC!
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Otter - That chart is something else! I envy those who can do such things!
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Hi Ladies,
Lotodgs..Yes revcat was right...strange enough it was super cold on Monday and we had a drizzle. Today warming up but next three days 100 degrees...we melt in so cal when it gets that hot.
Revcat...yes, I did get my wig at Enids. I did not realize you lived close by. Enid was so sweet. I have not wore the wig yet, sticking to scarfs. I live in Aliso Viejo, where are you? My onc is in Irvine. We should meet for coffee one day. I wish I had solar power..that so good that you have that. I am in a townhouse so we cannot do it. Thanks for loving the environment !!! Go Green.
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Well - my plane for Hawaii did not show up so off I go! Everybody have a great week. Karen
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Hi All,
Otter, Great list! I'm organized, but nothing compared to you. And Goldilocks, sorry for my wining earlier. Good luck with your repair and end of txs. I've found sleeping with pillow under knees works better too.
I've stopped advil and tylenol. So far, claritin is working. If pain returns after implant inflation visit tomorrow, I'll just use advil. Don't want to confuse hay fever congestion with my cold getting worse. Thanks for the reminder warnings on the fever stuff too.
Sun has returned to CT. Hope to enjoy some on my shopping trip today. Hope you all have a great day and can enjoy spring too.
Janice
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Otter - thanks for the table and your tireless dedication to the thread! I bought Limeade at my grocery store. The Simply Limeade brand is good, like the Simply Orange juice. Your margarita mix sounds like a viable alternative, but I would be adding a shot of tequila! No salt.
My #3 went fairly smoothly. My veins, however, still refuse to be on board with this whole thing! As my 2 previous treatments through the fragile hand veins ended with some phlebitis and a chemo burn, the nurses have moved onto the veins in my forearm - a little deeper (OUCH) but a bit larger, thicker and able to handle the poison! All meds infused with no problem and no reactions. Big sigh of relief!
Off to get Neulasta this a.m. and wait for se's to kick in.
How did my Tues. sisters fare? Kat, I agree. I look at my boys, ages 14 & 17 and think that, no matter how much I hate this, it's all for them.
Amy
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Okay, I had my first treatment Monday the 12th. The onc nurse advised I will receive Cytoxan once a month and Taxotere three times a month. The same dose as if I was to receive it once a month but spread out over a months period.
I had an appointment with the surgeon yesterday he advised that my MRI came back with two nodules both at 9 oclock on the left and the right breast. I'm to have an ultrasound with a core needle biopsy with in the week on both. Do you suppose if it comes back positive for cancer they will change the chemo cycles?
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Artsee: Thanks for the pricing for Nioxin. Now, where can I find it?
For all my sisters: Being now a 2 time BC survivor, I thank you for listening and cheering me on. I know that each and everyone of us has a unique story. I have no information on the blood work yet. Still waiting. My calves are still swollen, and hurt. They are trying to figure it all out.
On top of everything, I found out from my insurance that they currently are not going to pay for the OnycoDx test. Spoke with the HR department and they said that I will need to write a letter to the executive board. The HR person suggested that I give them as much information as possible so that they will have the insurance pay for the test in full. Any suggestions? Did anyone else have this issue?
Have a se-free day.
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Treatment 3 went uneventfully, no reactions and the veins are holding up.
Tigwin, I'm over the hills in Corona. We came down to Enid's for a wig (which is lovely, but I haven't worn yet!) on the recommendation of some of my husband's coworkers. I made the connection when you were talking about using Sea Breeze and I knew she recommended that for bald heads!
We have the granddaddy of HMO insurance (Kaiser) and I have to say that so far I've been pleased. No bills show up and it's clear up front what they will cover and what they won't. Now if things need to go off of "standard of care" it may be a different story, but I'm so sorry for all those who have to fight regularly for the care they deserve!
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Goldilocks: I found a 3-bottle set of Nioxin at the wig place for $35. Some hair salons also carry it. One is "shampoo," another is "conditioner," and the last is the therapy treatment. That's not what it says on the bottles, but that's what the wig person (what else can I call her?) said. I use all of them in the morning, then just the treatment at night. Evie's right--you don't have to use very much when there's no or little hair! She may correct what I've just described. Good luck dealing with your insurance on the Oncotype DX test!
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kfalls - hope your treatment went ok...I am all up for a hawaii trip...we have been a few times..and I love it...last trip was 9 years ago for our 40th bdays to Maui.
Beachmom - I know hot baths have always been "my time" - since the boys were little, they knew the house better be burning down if they need to bother me during bath time. The funny thing is they do it too, dh and both boys...and I know they use my bubble bath...the youngest is home from college and I noticed the bubble bath going down...even though I have cut way back on bath time...
Amy - sorry to hear about your veins...I don't think I could have taken them poking around on me....I love my port! And although I am done with chemo...as long as they need to be sticking me that port is staying...
The lympedema wrap today doesn't look to hot...guess we will get it down soon. Go back to the LT on Friday
Had blood work today Reds, hematocrit are both up from last week, but still low...
Hope everyone has a good evening.
Sharon
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Goldylocks....You can get Nioxin at a salon that carries it. A lot do , but I'd call to see if they have it first.
Also if the insurance won't cover (mine didn't) the lab will pay for you and you have to pay a part. The lab person called me and asked me a lot of "income questions" and she was able to tell me right away, the MOST I'd have to pay. My portion was $569.00. They picked up the rest.Sorry, I'm talking about the onco-test!!!
Good luck, Evie
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Hi all,
Glad to hear that everyone is doing pretty well. Had my last tx last Wednesday and the s/e's weren't bad. Mouth is tender today, so I had to have a very large orange freeze for lunch to sooth it. Oh yes!
Have an appt for a mammogram on Friday and for rad mapping on Tuesday, so the beat goes on. I guess I will jump on over to the rads board and get involved there. I'm sure I will find some of you there later.
Our weather is going to get HOT this weekend so my bald head is going to be in. I shaved my head again 2 days ago because I had this 1/4 white stubble. I want it to grow back evenly. I really haven't missed my hair. Everyone loves my wig and it sure looks better than my old hair did. Now I get to start all over.
Otter, awesome job on that chart.
Everyone take care. You will get thru it.
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Hi everyone. My trip to Hawaii was pretty calm. I got the time screwed up, and got there 1 1/2 hours early, so came home and did a few things. Take off was a little shakey - the vein wanted to scoot around, but the nurse is wonderful so it wasn't too bad. The flight over was calm and lasted only 3 hours. I told them that I really didn't have any significant problems last time and wanted to keep it that way, so let's go slow again and they were good with it. There just wasn't as much wait time. The landing was good, we went to dinner and a jeep meeting. I'm hoping the visit will continue to go well.
I hope everyone who went on the trip today had a pleasant ride.
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Hi everybody. Just got done reading the last 3 pgs since I last posted. I have been very busy. My Dh's dad went into the hospital last week and was released Sunday. We have been going to his house everynight after work (we are both working full time) paying his bills, cleaning, laundry, buying an easylift chair, walker, groceries, and talking car of his cats , dishes and banking. Whew!!!! talk about exhausted. I am glad this happened after all my SE's were gone and energy came back up.
Otter.. what a great table its nice to see where everybody is at and have all the names in one place.
Senora... this is also my second battle.You will be fine and I am praying for you (along with all the others).
Hope all the Wednesday ladies are doing well .... Otter, beachfalls 13, kfalls, lotodogs.
Well its off to bed. Not sure whether to take an ambien or not,. My body is exhausted but my brain is going 90 and I can not get enough to eat. Gotta be the steroids. I take 2 pills twice a day the day before chemo and 2 pills the morning of.
All the Thursday ladies not sure who they are, I would have to back and look but I don't want to have to type this over.... good luck and minimal se's.
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Beachmom...glad your trip to Hawaii was fine... I am headed in tomorrow and looking to have the same calm and restful trip. Maybe I will play my Hawaiian Drum music in my ipod...that might help me visualize my favorite Maui.
To all with treatment this week...hope you stay rested and well !!
Revcat....stay cool this week it is getting hot, hot, hot !!! I was running some errands today in my scarf and by the time I got home i was ripping it off to cool down.
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Okay the Thursday Crew....we are headed to Hawaii tomorrow and must have an amazing time !!!
Rj62, Annie39, Sqk, and Tigwin (me) hope we all have a great trip and it is calm and restful.
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So far so good, tomorrow it will be 1 week since tx#1. Feel more like me! Had the runs last night and imsomnia as well. I am taking Tylenol PM tonight and see if I can get some rest. My tomgue is okay. I have to say that the symptoms this time around have been very tolerable.
Did get my wig today
Not sure how I am going to do this, Did buy hats and scarves. Thanks Otter for the schedule. My 2nd tx is 5/29.
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