Join us on the mountain
Comments
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I think Monday I will put up my Christmas tree. One year I came home from work and my daughter and DH has put up a tree, made all the decorations, white sparkling beads around the whole tree, made pink breast cancer ribbons with silver glitter hung all over with twinkling lights it was so beautiful. This year am so undecided about decorating it. I like all colors.
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Blue: How nice to see you here at the mountains. I'm sorry you are going through so much stress and worry right now. Know that I am sending lots of support your way.
Sherry: Now you know why I don't like to answer pm's. Or send them. Sometimes people can be mean. Ya know, copy and paste and make fun when a person seems to be reaching out to another.. Like the patients we see everyday. Ya know, the ones with worry in their eyes.
http://uk.youtube.com/watch?v=d-5JvACzGp8
http://uk.youtube.com/watch?v=old6xeBVIfw
I'm in the music mood today and had to pull up a couple of my favorites. I wishing everyone on the mountain a wonderful ThanksGiving. When we are all sitting at the table, I will be thinking of you and saying a special prayer.
Blue - this one is for you. Seems quite appropriate for you this year. Smell that new grand babies head for me.
http://uk.youtube.com/watch?v=0ZW73Qzju4A
Nicki
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Happy Thanksgiving to everyone. Sorry, don't know what you mean Chemo, no one on the mountain has reached out to me. Have a happy day.
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Thank you Nicki. My 2 girls and grandbabe spent the day with me. Took me out to lunch, came back here and we started baking cookies and decorating the house for Xmas. My Ray of sunshine will be pampering me all weekend.......can't wait. Life is always good.
Happy turkey day to all. Enjoy the football.
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Wow, what a wonderful day. Full and happy. Spent time with son and grandson, daughter and son in law, other grandson, granddaughter, mom, then aunts and cousins, then MIL and FIL and BIL and SIL. A very blessed day. I hope everyone here has had such a wonderful day. God bless all of you.
Now it is time to start thinking of Christmas things
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Happy day to all of my mountain friends.
Blue: Sounds like you had a fantastic day although I must admit I'm a little jealous of the pampering your gonna get this week-end. But on the other hand, with everything you are going through, I can't think of anyone that deserves it more than you.
Sherry: Did you end up having to work today or did you get the day off? I hate having to work the day after ThanksGiving. A nurses job is never done. I have to work, but would have loved to sleep in.
Sometimes ignorance is bliss. I'm sitting here with a cold, and my Fibromyalgia decided to kick in. It;s so debilitating at times. I get so upset sometimes because those who don't understand, think Fibromyalgia is a made up disease. Ya know, a label you get when a doctor doesn't know what else to say. Anyways, it's going to be a rough day for me today. Head congestion, cough, and fatigue like you woulnd't believe. Every muscle hurts and I wish I could just stay home. Some people say it's all in my mind! But I say, having chemo just made it worse.
When I get home from work, I will watching my traditional movies that day after ThanksGiving. Miracle on 34th street, A Christmas Story, and The Wizard of Oz. Speaking of Oz, Blue - this is who you remind me of.
http://uk.youtube.com/watch?v=g4Ayq3Q5wFo
For those of you who have off, hoping you have a wonderful day. Shopping til ya drop lol?
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Happy Day on the Mountain.
Poor Chemo, if you are feeling that bad maybe you should call in and not work today. You really can't do a good job when you are miserable. Maybe you will feel better when you are watching your movies this evening. I have been told my an unknowledable person that fibromyalgia is all in the mind but as nurses we know better don't we?
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How about a little fun with our friends before we head back to camp
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Thank you Nicki. Fibro is definitely no picnic. I was diagnosed with fibromyalgia before my Parkinson's diagnosis so am well aware of the treatment options, which are mainly anti-depressants. Being in so much pain, continuously, body and mind, can make someone so miserable, it can lead them to crack. So please take care of yourself Nicki.
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Wow Blue, I was under the impression you thought fibromyalgia was a psychosomatic disease. I'm surprised that you were actually diagnosed yourself!
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Yes, I was Jan. That's why I'm so well versed on it. However, I was later diagnosed with Parkinson's Disease. They goofed in my case, and I was being treated for fibro for 2 years before my PD symptoms progressed enough for the proper diagnoses. I would have preferred to have Fibro Syndrom, which is bad enough, instead of the PD. No such luck.
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It is a psychosomatic disease.
It is a name doctor's give to women who need to lable their misery. Some people need to have "official" sounding ailments to make themselves feel better. I know a woman who never had chemo but acts like just having surgery and radiation is worse than chemo and its aftermath. To make herself gain sympathy, she tells everyone that her cancer was worst than anyone elses because she had this fake disease.
Here is a scholarly article on it= proof
Is This Disease For Real?
Doctors - including the one who wrote the 1990 paper that defined fibromyalgia but who has since changed his mind - say that the disease does not exist and that drugs will be taken by millions of people who do not need them.
As diagnosed, fibromyalgia primarily affects middle-aged women and is characterized by chronic, widespread pain of unknown origin. Many of its sufferers are afflicted by other similarly nebulous conditions, like irritable bowel syndrome.
Advocacy groups and doctors who treat fibromyalgia estimate that 2 to 4 percent of adult Americans, as many as 10 million people, suffer from the disorder. The National Fibromyalgia Association, a patients' advocacy group, receives its financing from drug companies.
Those figures are sharply disputed by those doctors who do not consider fibromyalgia a medically recognizable illness and who say that diagnosing the condition actually worsens suffering by causing patients to obsess over aches that other people simply tolerate. Further, they warn that drugs like Lyrica's side effects, which include severe weight gain, dizziness and edema, are very real, even if fibromyalgia is not.
Dr. Clauw said that brain scans of people who have fibromyalgia reveal differences in the way they process pain, although the doctors acknowledge that they cannot determine who will report having fibromyalgia by looking at a scan.
But doctors who are skeptical of fibromyalgia say vague complaints of chronic pain do not add up to a disease. No biological tests exist to diagnose fibromyalgia, and the condition cannot be linked to any environmental or biological causes.
The diagnosis of fibromyalgia itself worsens the condition by encouraging people to think of themselves as sick and catalog their pain, said Dr. Nortin Hadler, a rheumatologist and professor of medicine at the University of North Carolina who has written extensively about fibromyalgia.
"These people live under a cloud," he said. "And the more they seem to be around the medical establishment, the sicker they get."
Dr. Frederick Wolfe, the director of the National Databank for Rheumatic Diseases and the lead author of the 1990 paper that first defined the diagnostic guidelines for fibromyalgia, says he has become cynical and discouraged about the diagnosis. He now considers the condition a physical response to stress, depression, and economic and social anxiety.
"Some of us in those days thought that we had actually identified a disease, which this clearly is not," Dr. Wolfe said. "To make people ill, to give them an illness, was the wrong thing."
Physicians who are opposed to the fibromyalgia diagnosis say the new drugs will probably do little for patients. Over time, fibromyalgia patients tend to cycle among many different painkillers, sleep medicines and antidepressants, using each for a while until its benefit fades, Dr. Wolfe said.
Dr. Wolfe expects the drugs will be widely used. The companies, he said, are "going to make a fortune."0 -
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And one more from the mountains...
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After all that snow we need some
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chestnuts, that is so 1980's ... it is Not a psychosamatic disease. funny how you just logged in as a new account to post this. feeling a little blue?
Fibromyalgia a ‘Real Disease,' Study Shows
Researchers Say People With Fibromyalgia Have Abnormalities of Blood Flow in the Brain By Caroline Wilbert
WebMD Health News Reviewed by Louise Chang, MDNov. 3, 2008 -- A new brain scan study concludes that fibromyalgia is related to abnormalities of blood flow in the brain.
"Fibromyalgia may be related to a global dysfunction of cerebral pain-processing," study author Eric Guedj, MD, of Centre Hospitalo-Universitaire de la Timone, in Marseille, France, says in a news release. "This study demonstrates that these patients exhibit modifications of brain perfusion not found in healthy subjects and reinforces the idea that fibromyalgia is a 'real disease/disorder.'"
Fibromyalgia is a chronic disorder characterized by widespread muscle pain and fatigue. It affects 2%-4% of people, mostly women. It has been called the "invisible syndrome" because it can't be diagnosed based on a lab test or X-ray.
For this study, researchers took brain scans on 20 women with fibromyalgia and 10 women without the condition. Participants also answered questions to assess measures of pain, disability, anxiety, and depression.
The brain imaging technique, called single photon emission computed tomography (SPECT), is able to detect functional abnormalities in the brain.
Past imaging studies of patients with fibromyalgia had shown abnormalities in cerebral blood flow, also called brain perfusion. In some areas of the brain, blood flow was below normal, and in some areas, it was above normal. In this study, by using whole-brain scans on the participants, researchers were able to analyze how perfusion in each area of the brain related to measures of pain, disability, anxiety, and depression.
Researchers confirmed that patients with fibromyalgia exhibited brain perfusion abnormalities in comparison to the healthy participants. These abnormalities corresponded with the severity of the disease. An increase in blood flow was found in areas of the brain involved in sensing pain and a decrease was found within an area thought to be involved in emotional responses to pain.
There seemed to be no relationship between these abnormalities and presence of depression or anxiety. "We found that these functional abnormalities were independent of anxiety and depression status," Guedj says in a news release.
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From the Mayo Clinic:
Coping and support
Besides dealing with the pain and fatigue of fibromyalgia, you may also have to deal with the frustration of having a condition that's often misunderstood. In addition to educating yourself about fibromyalgia, you may find it helpful to provide your family, friends and co-workers with information.
It's also helpful to know that you're not alone. Organizations such as the Arthritis Foundation and the American Chronic Pain Association provide educational classes and support groups. These groups can often provide a level of help and advice that you might not find anywhere else. They can also help put you in touch with others who have had similar experiences and can understand what you're going through.
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thank you for all your input ftaa, it is much appreciated. You have great knowledge on fibromyalgia, I have 2 friends that suffer from it and one of them cannot even get out of bed when it flares up and you can tell she is in severe pain. It is strange how chestnut logged in a new account, I smell something awfully fishy going on.
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My nice mountain seems to have a avalanche today....
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There is always somebody Mary-Lou
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Yes, Mary-Lou and I do apologize, am so sorry. Some people love trouble so we will have to ignore some and have a happy day anyway.
Grab a sled and hold on tight
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This is so beautiful with the fog (or clouds)
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We built this right outside the tent, we stayed pretty toasty in the tent with a little heater.
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these trees look as if they had already been decorated by God. Enjoy the mountain
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Thanks Spar....Here is a little cheer for you.
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