Exchange City
Comments
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Thanks for asking Laura! My exchange and I are coming to terms but we're still not best friends! She is a bit smaller than my real side and doesn't feel as soft as I would have liked. I had heard that might be an issue prior to the surgery and it surely isn't insurmountable, just not as "real" as I had hoped for. I am unwilling to have my real side augmented at this time so I am putting up with wearing a really good supportive bra and making the best of it. Summer was a bit more of a challenge as swimsuits don't have the same support as my armour-like bra.
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Ss Yvonne... did you get silicone ( ss I do not remember).. Mine are silicone and really soft.. BUT I had both sides done and have not real breast tissue to compare to...
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Oh Celine.....how beautiful and kind your prayer was for Sally.....and Jan
xxoo Kathie
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Thanks everyone for your prayers. I don't have any vacation or sick time to go out and stay with her. I am looking for a cheap fare to go back next week-end.
((Allison)) Welcome this is a great place to get information, comfort, to rant, to cheer each other on and to just "be".
((ANNIE)) You are being prayed for a lot. Please let us know what the BS says, I am so glad that you are taking care of this now and not waiting. Jan
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You might as well add me to this list, but I have no idea when I'll have my exchange surgery! My sister had a BMX last December and had her exchange in May. She had 16 weeks of chemo in between then, too. I had my BMX on 8/12, but luckily I do not need any treatments. I would imagine I would have my surgery around January/February???
I have no idea how many cc's I will go to. I had breast implants above the muscle pre BMX. I used to be a 34B, went to a 34D or DD depending on the bra. I swear I didn't look that big. I had 400 cc's with a moderate profile. Anyway, I'd like to get somewhere around a C this time.
I went grocery shopping tonight. I was wearing this sleeveless shirt that I thought was cute. When I got home, I had to laugh at myself because I look like I have flat discs on my chest! LOL! Oh well, this will have to take time and creative fashion, while I grow with the fills.
This thread is really cool. I'll have to add it to my favorites.
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Welcome Kitty!
Since you live in Vegas.. are you gonna come over to the Mirage and meet the Ta Ta's..:)
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(((((Annie)))))
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Judy- I am glad things are moving along for you. Ah the waiting. Just think how many of your sisters are going to be cheering you on when you cross that finish line
Well how about that it's your BIRTHDAY tomorrow! I hope you have the most marvelous Happy Birthday. 0 -
Annie--lots of hugs to you. I'm praying for you too.
Yvonne--it's so great to see you back!
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Hi Allison--
Like you, I was an A on one side and a B on the other side, bc. I was filled to 1000ccs, and now have an 800cc implant in my cancer side. I have a matched set of Cs, so hopefully that's what you'll have too! (My non-cancer side was augmented). I'm only 5'2", so my expander looked huge on me! My foob looks much better and more proportionate.
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Annie, prayers are with you sister, please let us know whats going on
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OK I just have to say ...WELCOME BACK YVONNE!!! You have been missed!
HUGS!
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Yvonne - Welcome back!!!!
Yes Kitty - you should come visit us at the Mirage - 9/25-9/28.
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Hello all my darling girls: good news today
....BS is not concerned, will see me again in 6 weeks to be super sure. He tells me that if an MRI was all clear in January, there still would be nothing palpable by now. MRIs are catching BC now at a cellular level, how great is that!!Surprising news: he is NOT on board with my plans for a prophy. I did not have lymph node involement or a bad oncotype or genetics. All reasons he would do one. But not for me. He feels a lift and reduce is great down the road, but not to rush into things. Wants an MRI yearly, but I was quite surprised by that one.
LOVE TO ALL OF YOU AND THANK YOU SO MUCH FOR THE SUPPORT. It meant the world to me last night to come here to my girls and have the outpouring of love and help and prayer. God is great and good and I am very blessed today.
I am praying for Jan1's sister big time today. I must pass this blessing on and hope that god will grant her a safe recovery.
Laura, bless you, I love you. Alison, Theresa, prayers for you too. Welcome, love to you and light and blessings.
xoxoxoxoxoxoxo and a big ole WAHOOOOOOOOOOOOOOOOOOOOOOOOOOOOOO
Annie
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Thank you ladies for all of the kind words of wisdom! I will be waiting it out. I've been told by my SO that they look great and appear to be the same size before MX. Maybe it's my eyes....?
Annie - Yipeeeeee!!!!!! Good to hear. Thanks for getting back to us so quickly.
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told ya so.. told ya so..told ya told ya told ya so....( sing along ladies......)
God is good.. all the time!
Love you too Annie girl!
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Hi Diane.. have not seen you around in awhile either... nice to see ya!
((((swest)))))
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Yes, I can come down and visit with you guys at the Mirage.
That would be fun! 0 -
wonderful kitty... jump over on the Ta Ta thread and try and keep up....lol... this will keep you up to date on where we will be...:)
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I just spent a rather intereting hour and a half in the medical records department of the hospital where I had surgery. Because I had some nausea issues, I really wanted to have good anesthesia records, especially because my exchange surgery is not done at the hospital, but at a surgery center (better for infection control my ps said). Anyway, I'd requested some parts of my medical record, and when I received the invoice - $98! - thought I'd just go see if I could whittle down my request. Luckily I was able to get the pertinent info down to ten pages, which they gave me for free - yippee! Just so you know you probably don't have to spend a fortune just to get the info that really belongs to you in the first place!
What I did learn, however, is exactly what TEs I have - not what I thought. I'd never actually asked my ps, though he told me they were 250ccs. I came home from the hospital with Allergan Fill Kits, so I assumed I had Allergan TEs - wrongo. Through measuring I'd figured they were low height - which they are - just different brand. They're actually Mentor's Siltex 6100 -Low Height 250ccs. When I checked out the specs on their website, it's quite interesting the difference in projection between the Allergan and Mentor brands. Mentor, at least in my size, has more projection and less width and height. That explains why my projection seemed more than what I thought it should be considering the allergan dims. Plus they're only 11cm instead of 12 as I thought I'd measured. Knowing this should give me even more info for the implant choice. Word to the wise - don't just guess - check out your records!
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Okay - now I'm totally freaking out! This probably isn't the right place to post this, but since I know you guys, it seems the best.
I was just looking over the records I received, which included the pathology report. I was told by both my oncologist and my bs that I was ER+/PR+/Her2-. Well, NOT SO according to the path report I hold in my shaking hands! It says my Progersterone (1E2) is completely negative (score of 0) and under "status" says "unfavorable." UNFAVORABLE! Then, under the Her-2neu I had a score of 2+ "weak positive". Says on the botton that my her-2neu is referred for FISH. What the heck is FISH? I guess I'll be on the phone to onc first thing in the morning. Any other advice to keep me from totally freaking out? What if I should have had chemo? (my onc said I was on the edge anyway) Is it too late?
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Val: The tissue pathology might have come back reflecting a "positive" Her-2/neu status, HOWEVER, this has to then be tested via FISH - which is fluorescence in situ hybridization. So SURELY they did test this and somewhere within that $98.00 selection of records was PROBABLY the results of the FISH! Yikes!!! FISH is the reliable prognosticator of whether it is negative or positive. [I do not know this HER-1/neu stuff off the top of my head - I just now researched it for you.]
Then referable to the progesterone - well - that's a real pisser, but it would border on professional malpractice ["failure to properly treat"] if this is true and it was not expressed to you and treatment was not recommended in accordance with these findings. Therefore, I can ONLY surmise that further pathological testing was performed and this was corrected to PR positive at some point and thus it was related to you as ER/PR positive.
Think of it this way also: It would be utterly, positively outrageous to have TWO huge blunders of misinformation relayed to you regarding your tumor status - which can only lead me to believe and suspect that there are further pathology records which support different findings. It is just too bizarre.....do you know what I mean? Did you have an oncotype DX performed?
This will all get sorted out...have you looked through ALL of the records you have now?
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Val - Let us know what you find out. I would be wierded out myself if all the things I was told were changed by my path report.
Annie - Hugs my dear! You know we are all thinking of you!
Yvonne - Hi there. We have missed you. I am not on here nearly as often as before, but I do try to drop in every couple of days. But then, of course, there are pages of posts. We are so glad to see your smiling face again.
Kittycat - I will add you as a sister in waiting. Let us know when you get a date!
Alitman - Added you as well to the December list of procedures.
Jan - My thoughts and prayers are going out to you and your family!
I know someone posted about being a bit disappointed just post exchange. Give it a little time. They drop and our eyes get used to the new girls. With a little time they seem like our's.
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Mykidsmom - Put me on the list please, for nips on Friday -- 9/4.
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Robin - That's like this week!! Oh my. Congratulations! Personally I can't wait for my surgery on October 15. Best wishes!
And best wishes to the rest of you scheduled for surgery this week! Two exchange sisters and one nips! That's so cool!
9/4 - Gibby - Exchange surgery rescheduled from December to September!!!
9/4 - Pam1565 - Exchange surgery
9/4 - Firstmate - Nips!!!!
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Val, it sounds like what they may have done is to give you the dominant aspects of your report. Her-2 as a "weak positive" is what I believe I also had...it does not count into your total score. Sort of like the oncotype? I think the FISH is a more specialized test that would have retested and it probably showed up negative with that.
I was on the edge of chemo too. What made them go with it was that since I had rads in that boob before, I couldn't get it again, so no other choice but chemo. I believe that when you can have rads (did you?) chemo is often a not have to do it choice. for me, in the middle meant one or the other. I had no choice but to go chemo.
It's never too late to get chemo I believe if you wanted it. Or rads. I would talk to your onc about this report and have him explain his choices, but usually all the factors are considered in making up a treatment plan for the patient.
good luck with this! It sounds OK. And anyway, tamoxifen and arimidex are already anti cancer drugs, not just anti estrogen drugs, so you are already being treated.
xoxo
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good luck first mate with your new little anchors!!! Yippee!!!
gibby and Pam: soft boobies, rejoice!!!
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p.s. any word from Jan tonight? I will continue to pray for her sister.
Yvonne, missed you too, lady!!!
xoxo to all
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Val... As a HER2+ gal... the 2+ score you got.. is ok.. It does not warrant meds for her2 at this date... you poor scared sister...grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr...
The PR- thing... hm? I was 100% pr- and it said so.
I am not sure that your treatment would have been offered different though. You are getting the meds for being Hormone + right?
Breathe. and let us know what you hear in the morning.
I thought your dh was an MD.. I must have been wrong...
Hang in there and soooooooooooo sorry you saw this.
I am NOT going to mention who... but there is an active gal on BCO that SHOULD have taken meds for hormone+ BC twice.. and never was offered it. This was really wrong. I only know this because my MOM was hormone + BC.
She is doing well and she was DEFINITELY given the wrong advice and or ignored in the beginning.. and imo... the end. She still has not been offered what she needs. My mother was DCIS.. stage 0... 2mm and on 5 yrs tamox.. and this BCO gal is doing great.. meds or no meds...:)
What you are on sister.. is right.. being pr- ... and the her2thing... ok... as far as chemo... ??
That is what you need to find out. I am SURE it is fine. Remember... Deborah had some experience with these things in her career.. and she point this out.
((hugs))
it will be ok...
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UPDATE from Saturday...
I waned to share that the antibiotics appear to have worked and the infection looks like it's gone. I will be taking the antibiotics for another 7 days...they're stoing and the hurt my stomach a little. Well worth it though. I would have been upset if I would have gotten a bad infection and jeopardized the implant. Thanks for the advice on calling the Dr. immediately.....I think I would have let it wait until after the weekend and really been in a bad situation......
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