Exchange City
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ANNIE... I just KNEW you had another new job keeping you from us....:)... I missed your spirit...
KAREN... I am going to send you my private e-mail... send me a picture of yourself. I have a rads boob too you know... I can see if it looks normal for now.... if you want me to...
Sandy... did you know you only live about 3 1/2 hours from me... we so need to get together sometime before next yr... I am game... say in Jan... to have a big slumber party here at my house for whomever wants to drive... there are about 5-8 of us that live in driving distance... how fun that could be.... I will kick the guys out and we can have Fri and Sat all to ourselves here.. cooking and playing games.. talking... chick flicks.... how fun..:)
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PS... if anyone actually wants to fly... you could come too.... it is CHEAP to fly to KC in Jan and Feb...:) It could be a cheap trip... we will all just stay at my house.. cook here and just hang together... hmmmmmmmmmmmmmm... I am game...
I just would get the blow-up beds and mucho towels...:)... kick the men out... and we have a modest size PARTY HOUSE.....LOL
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Laura what ever the distance I would love to come sometime
But I really thought Bellevue Iowa was about 6 hours away
maybe I'm wrong...lol 1st time for everything
oh thanks for making me laugh when you weren't even trying... I needed that
things have just been a little stressful lately
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Volleygirl ~ Glad to be of help. I had to run off to work this morning but I would like to add...another way to keep the saliva glands flowing is to chew gum...sugarfree of course. There is an ingre. called xyletol in most sugarfree gums that help to inhibit the bacterial growth that causes decay. Trident gum has this. If you decide to try the Prevident make sure you brush and spit out the excess & DO NOT rinse it out & do not eat, drink, or rinse for 30 mins....I know it doesn't sound great not to rinse afterwards but this allows the fluoride to provide a protective coating on your teeth. Plus, a little dab of the paste/get goes a long way. Also, check into other products for dry mouth...besides Biotene...Oral Gel has an oral moisturizer. I tell my patients to keep a T.brush in the shower & do an extra brushing. As you probably have figuired out I am all about teeth!!! As my boys will tell you...there goes mom again on & on & on about oral hygiene!
By the way...hope you are recovering well.I was so bummed today because I missed a call from my surgery coordinator. She had wanted to see if I was avail. on Nov. 24th. Unfortunately, I did not have access to my phone. By the time I returned her call (2 hrs. later), the time slot was taken by another patient. I was told my surgery is considered an elective so I am not given priorty status. She added I may not have a surgery date any time soon. After reading many of the posts here I know there are a lot of you that have had to wait some time to reach your goals of completion. Lately, emotionally I have been feeling down
....after missing this call today...all the more down. Physically ok...just want to move on....a little quicker! I have decided to take pics of myself on this journey. Maybe some day when I figuire out how to do this I will post them in the forum. I am not computer savvy so I will have to ask my son how to do this. Continual thoughts & prayers to each & everyone of you!!!!
NAE
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Laura,
I love that idea. A big slumber party! Chick flicks, wine and lots of catching up! Feb would work best for me but Ill make it happen no matter when it is.
Teresa
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Athena: Ditto. I hope to be jazzercising in a few more weeks.
All: A girls get-together would do wonders for me but unfortunately I have to use all my days off from work to complete my surgeries, treatment & doctors. The only treatment I get is Zometa but it requires at least a 1/2 day off and with travel, a full day works better.
I come here to keep my spirits up. I just cannot seem to shake the "glass half empty, waiting for the other shoe to drop, etc." I have no reason to feel that way. My treatment has one well. My reconstruction has gone well. It's just me battling me. Thanks to all of you for making me smile.
I received the information about posting photos and will try and get that done this weekend. I think my implants look good but I have nothing to compare it to. My rad side and non-cancer side look very similar.
Love and prayers,
Jane
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Laura...wish I was closer to you! I would be there in a "New York minute!"
But calling all NYC and environs chicks....there is a get together planned for Nov. 21st. at the South Street Seaport at 1:00 PM at the food court...all are welcomed!
Check out New York, New York thread!
God Bless!
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How fun for you all Angel! Tell the girls... ESTEPP says hello...:)... wish I could be there!
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Hi ladies!
janloy, sorry you are having to go through all of this. I am having trouble, too, with the Beast looking over my shoulder. I have started attending a cancer support group I found last month, and it is really helping me. Maybe you could check around at your local hospitals, which is how I found mine(a BC fundraising event). Looks like you have a real full plate, too! I take Zometa every two months, it seems like it takes the whole day away(I live an hour away). As NAE says, take real good care of your teeth! Zometa can have some bad side effects on your teeth.
Laura, how fun!
annie, good luck on your tests!
Michelle, glad your surgery went well. Hope you continue to love your new ones!:)
I am now at 6 mos post exchange. I think some of my feeling is returning, but not too much. I have weird nerve twangs under my foobs on the outside. The pain in my upper arms is getting worse, so I need to see the BS(per my PS). I don't know what it is, but I think it might be nerve damage, since I've had it since BMX, just not so bad until now. Any thoughts on this?
The fat/lipo seems to be staying put. My tummy is hard and lumpy from the lipo, but still pretty flat. I wore girdles after the lipo to prevent this, but maybe I didn't wear them long enough? Anyone else have this problem?
Hope everyone has a great weekend,
Deen
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Deen: Thanks. I went to a support group when I was first diagnosed and found it depressing. I really should revisit it or at least look to another one. There are 3 close by to me.
Jane
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Hi sweetie pies, just checking in and thank you to everyone for the prayers and good vibes. I am so hopeful that all will be well....
Yup, new job is great, lots of work!
Re: support groups: girls we have the very best of the best support right here!!!! I've gone to a few and nothing compares to the love and help we all give each other. I think they can be helpful tho if you need "in person" help and sometimes a co ordinator can be a mental health pro who can see if there's depression going on. Your local hospital or cancer center can get you a list.
How about us? Anybody in your neck of the woods?
love to all
annie
*Pls send a prayer up to heaven for my little boy Jamie, who was a stillbirth. I remember him on his due date which was 11/14. His sister Emily is there also, 4/27. I have my girl here with me and what a joy to have her, all grown up now. But those due dates are tough to get thru as a mom. Thanks, guys.
xoxoxox
xoxoxo
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Annie
I am so sorry that you have these sad dates to remember. Your little angels do not need prayer because they are in the arms of Jesus but dear Annie I will say a prayer for you and your family as you remember your lost children. ((((((prayers)))))
Love to you
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Hugs for you ((Annie))
God Bless
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(((((Annie))))) I lost two pregnancies before my first born.......I'm a "date" person, too.........
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Angel10 - How are you feeling? I'm trying to remember....did you have the c-v flap procedure?
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hi ladies...i have a really bad cold & feel like shit..so excuse me for making this short...we r going w/ the 1 step but he will b bringing in the TE just in case. Most of the med questions will have to be directed to BS in Dec. i will have mentor silicone high profile & approx 400 cc but he may do the 500 cc b/c it may be to small b/c of projection even though i want to be smaller. It will b under the muscle & not allowed to do much for 10 days no lifting my arms over my head..gotta start shopping for button down shirts & jammies..LOL drains on his part 2 on each side & for 3- 4 days...hospital stay 1-2 days but depends on how i feel & my bs. i have all notes not near me & i cant get up now..LOL
i wish i could of had someone w/ me, but that was NOT possible..i will have a dear frioend help me out for a while afte rthe surgery & my "dh" but i wont get as much as i want after a few days w/ DH, so i'll have friends ...
thx for everything ladies...i am closing off for now b/c i feel like sh*t.
hugs
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Shoshi - sorry you're feeling under the weather, but so glad you got answers to many of your questions. Sounds like you're on your way. Do line up some help for when you get home for a week or so.....just my recommendation......you'll want to rest.......and heal..... The button-front shirts and jammies are a must....it takes awhile to be able to pull your tops on over your head....for me it was more than a couple weeks, but everybody's different. Do you have a surgery date yet?
Rest and feel better soon!
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Val, I am doing better today, thanks for asking;but no I had the "Twist and Shout" nipples! That procedure didn't seem to bother me at all, but in order to do that the lift on the CA side (I was heading south west on the left side), the implant was removed I had internal stitching on the inframammary fold and then the implant went back in. I was quite sore from that, but it is better today; And I think it looks better today, too! I went with the stage 2 bra last night instead of the surgical vest that I had been earing 24/7, and it seemed to allow for some filling out, so I have less striations than I had earlier in the week! So I am happier tonight....but still a bit sore....
I just asked my DH when am I going to get my energy back...I just don't have the get up and go I had last year. He said everytime you are getting better, you have another surgery! True enough....but I sure hope the energy comes back soon. I am ready for bed and it isn't quite 8 PM! Sheesh!
Feel better Shoshi!!God Bless!
Angel Diagnosis: 2/6/2009, ILC, 2cm, Stage IIa, Grade 3, 0/15 nodes, ER+/PR+, HER2-0 -
" it is a holy an wholesome thought to pray for the dead..."
Annie... I will pray for your children ( I am sure they are with our Lord now too....but... I will be holy... and pray....). OMGOSH... I am just SAD for you this day... for any of us who have lost children. I am sorry and I am with Linda and the other sisters.... HUGE HUGS to you !!
Janloy.... I agree.. maybe you could fine a lady here that lives close to you.. for support. WE ARE ALL HERE FOR YOU TOO!!!.... i know what you mean about local support groups... ours here... SOOOOOOOOOOOOOOOO depressing !!!!!!!! Everyone down... well, I was down too... and I know now... that was NOT want I needed.. I need to be lifted...:)
We are here, I am here...:)..PM me anytime.
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Laura - count me in on the slumber party! What fun we will have.
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shoshi a thing to look for are also zip up shirts that have pockets
depending on how they make the pocket...sometimes it creates a pocket on the inside which work great for holding drains. I had several zip up fleece shirts like that
Laura as long as the weather is good for driving I would be game
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shoshi check out this thread lots of helpful info
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I know Sandy... Driving to KC.. out of Iowa... lol..... In Feb... is dependent on the weather.
I suppose I could get a head count... set a weekend... and if it snow... we will just call it off mid week... I will not buy any food till I knew if it was to snow or ice storm...:)
I KNEW DENISE and TERESA would come...wahooooooooooo.... and I Think I can get a great fun gal from Springfield to come... CHRISTI... you all will like her... and I would LOVE to see anyone who can fly here to come.. I will pic you up at KCI Airport
If you could all land Friday before noon....Sandy... IT CANNOT SNOW!!! How far is WI?? Maybe Packer and Steph could drive?? Heck... I have no idea how far apart states are...LOL....I am getting ahead of myself..:) PM me if you are interested... I will keep this off EC....:).... I will take it to TA TA VEGAS thread..... since that is where we met...:)
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Say...I happen to catch on the Today Show an appalling story about a woman, Trista Joy Lathern, in Waco, Texas that was caught for victimizing people into believing she had breast cancer. She receivied donations from fundraisers. She then took all the money & used it to have breast implants for cosmetic reasons only!!! How pathetic and how low this is!!!!!
Annie, my prayers go to you!!! Children are sooo precious & although they are with our Lord they will always be here within your heart! Many hugs!!!
Hmm...I hope I get out of this emotional state I've been in lately!
Been feeling nervous w/ insomnia as well. My PS's nurse said to call back my surgery coordinator to let her know I will take any date & that I do not have to be asked if I want it otherwise if they want an answer from me, we will be playing phone tag for a long time & will miss opportunities to schedule anything.I think I need another MOJITO hour wih DH!!!
NAE
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Hi all,
Day 3 and I am spending it mostly in bed. I still have the sharp pain from the internal stitches. I had this from my BLM, same spot too. I can't remember how long it lasted. I have to go to work on Monday and it hurts when I stand. Did anyone else have this? Next up for me in Jan. is the nipple reconstruction. My PS says he does the V-flap?? Not sure of the name. He definately does not do the grafting. Has anyone had this and do you have any tips? (Haha!)
Don23 - Glad your exhange went well. I was able to take my first shower this morning and was surprised at how flat I am. They look like they are the same size (I had a BLM) and are even but just really flat. I guess I will just wait for them to drop and fluff.
Nedeza - So sorry you missed the opportunity for the 11/24 surgery date. The waiting is definately one of the hardest things about this BC stuff. Thanks for the dental hygiene info.
Janloy - I haven't felt the need to seek out any local support groups since my surgery but I know I sure could have used some right after I was diagnosed when I had no clue of how to make a treatment decision. Unfortunately, I didn't find this site until my decision was made but it has been extremely helpful post-surgery.
Anniealso - I am so sorry to hear about your lost babies. Thoughts and prayers to you and your family.
Estepp - I wish I lived closer. Northern Michigan is miles from everywhere it seems. Sounds like you will all have a blast.
O2BHealthy - You stopped at IHOP? Too funny! I guess it went ok then.
Take care all,
Jeana
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NAE....That emotional state... is normal sister. I am very sorry you are in it now. Boy do I remember my first 6-8 months... WOW.. it was so hard... it is for all of us. We are here for you...ok...:).... just hang in... and get it out...PM any of us you feel close to... or comfortable with... I can guarantee... you will get a big hug from any of us! I also can say....When I was going through 6 months of chemo..... a little MOJITO.( as you say....:).. HELPS!...:)
I was bald... burned from rads... and had these retarded TE in... LOL... Mojo was what kept me feeling... female ....LOL... GO GET that DH !!!!!
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Jeana....Keep healing sister!
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Estepp ~ Thanks!! You're so sweet!!! I know a lot of you have gone through so much more than me. Talk about strength...you're all so wonderful!
NAE
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Laura -- I'll fly. Let me know when you plan it --- sounds like a blast.
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Hello to all of you EC gals! After lurking on & off for the past few months, I have FINALLY read all 263 pages of this thread. You are such a supportive, smart, wonderful, and wacky group of women that I felt I could not post until I finshed reading about all of you. What a true group of TaTa Sisterhood! Do you have room for 1 more?
I will try to give a quick history of me: My ride with cancer started in March of 2008 with a diagnosis of kidney cancer. I had my kidney removed in May of 2008. Never had a problem with a mammogram before and in June was diagnosed with DCIS. Lumpectomy did not get clear margins and IDC was also found. I had a Bi-MX with LD flap reconstruction on Sept. 11. I am lugging around my 660cc TEs like many of you. I am so happy to finally have a date of Jan. 8 for my exchange date! Meanwhile, I am going in for a hysterectomy on Monday. I am making the pre-emptive strike to lessen my chance of 3 more cancers!
Deborah- Your vast knowledge and way of "mothering" and responding while retaining a sense of humor is awesome! Have you ever taught school? I am a first grade teacher and have to use those same response tools all the time with my students!
I hope that all healing is going well and that all of you enjoy your Saturday!
Lisa
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