Can we have a forum for "older" people with bc?

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  • chisandy
    chisandy Member Posts: 11,408
    edited July 2022

    Welcome, Snowghost. We don't have a live chat room per se, though some of us did try a weekly Zoom session last fall & winter. Was kind of tough getting everyone together on a Saturday morning (especially those of us--who shall go nameless--who are not "morning people").

    Sad that science is now considered a "political" issue--especially with new heat records being set daily, rivers & lakes drying up, flooding and storms becoming more intense (and the boundaries of "Tornado Alley" inexorably expanding).

    Today was my meeting with my ortho to discuss the results of my spinal MRI. It was the first time I actually saw the MRI imaging. I could see the spurs on the x-rays done earlier, but the MRI was sobering--she pointed out where the discs were herniating; and unlike on x-ray I could actually see the spinal cord, which looked like a pinched twisted ribbon. I'm surprised I don't feel worse--and she's surprised that the pain is in my R leg because the arthritis is more advanced on the L. Yesterday & today have been "good back days;" Mon. morning I needed a Baclofen and a dropperful of CBD+turmeric, plus 20 min. of slow stretching in order to finally stand up straight. I notice my leg is worse when I get up from a low (toilet) or soft (recliner) seat unless I prop my butt up with a cushion. It's not bad getting out of my car, but getting out of a sedan taxi or rideshare has me waddling for a few minutes. I have an appt. with the physiatrist on Aug. 10 (first I can get) to discuss whether, how, & in which facet joint(s) to get the cortisone/lidocaine shot(s). With all the reading I've been doing about the procedure and all the possible side effects (including immunosuppression & weight gain), I am definitely having second thoughts so long as I'm able to continue to avoid having my back lock up. Maybe some different PT and traction sessions? (I have a cervical traction apparatus, which helped my neck tremendously--maybe there's something for the back other than a gravity inversion table which would be a disaster for my GERD).

    Last night, I was awakened twice out of a deep sleep by my bunion--first time that ever happened barefoot and non-weightbearing. But Cindy, I'm also having second thoughts about bunion surgery, since (if I read correctly) it doesn't seem to have helped you. I don't mind giving up the heels; I do have some decent-looking flats I can wear without socks for a few hours at a time; and sandals in summer and UGGs in winter for non-dresswear work fine for me. But I'm increasingly having difficulty finding sneakers with toe boxes wide & deep enough to accommodate loose socks, orthotics and my bunion/3rd toe-tip callus. Even in my Hokas I have to choose between socks and orthotics--can't wear both. And the thought of not being able to stand on tiptoe---at 5'2.5" and shrinking--does not appeal one bit. I can't keep "reacher" tools in every room of my house--especially the bathroom. My podiatrist will not fix my bunion unless he can also fuse that joint.

  • cindyny
    cindyny Member Posts: 1,320
    edited July 2022

    Sandy I sent you a PM on my toes. I’ve also seen a physiatrist for my back. Degenerative disk disease, arthritis, with bulging disks all around. But L2-L5 we’re the ones causing horrible back pain. I saw a physiatrist on recommendation of step son, now a gastroenterologist, back then I think doing his residency. After X-rays and an MRI the physiatrist did a steroid injection under live X-ray while I was in my workout clothes, easy pull down pants, lying on the table. It was a little painful as the injection takes up space in an area without much space to give. It was quick, I was given an ice pack and had to sit for a while before they let me go. I think I hurt more leaving then when I got there. That night I went to sleep as usual and was wide awake 3 hours later from the steroid. Dr called me the next day to see how I was, not much to report. Long story to say, it really didn’t help me. On my return visit w Dr it was almost like nothing more he could do. He told me that many people live with pain and use pain management. The injection didn’t make me any worse that I could tell, just didn’t make it any better.

    We’re hoping to see a concert tonight, Shemekia Copeland is playing for free along with 2 local blues bands at an outdoor venue. But the forecast is calling for storms beginning around 2-3 pm. She’s the headliner and probably won’t be out until after 7 pm. So with rain and temps up in the 90’s, I won’t know if I’m going until 6:30 pm. I hate outdoor events where the weather may be bad. Are we going? Are we staying home? Unknown.

    Hoping the weather is better where you are! Have a great day ladies.

  • illinoislady
    illinoislady Member Posts: 39,608
    edited July 2022

    The universe was created in utter perfection and does not need our

    help to improve it. Humanity's attempts to override nature have

    separated us from our source and destroyed what can save us. A

    camera can point to the glory of a pristine forest, but cannot create

    it. No smartphone is smart enough to spin a planet into orbit. God

    speaks to us daily, but we rarely take the time to listen. Nature is

    my church. When I walk in nature I know the Tao. No building,

    altar, or ritual is necessary. Human beings have created magnificent,

    awe-inspiring cathedrals, but none can surpass the wonder of a starry night.

    Alan Cohen

    The Tao Made Easy

  • illinoislady
    illinoislady Member Posts: 39,608
    edited July 2022

    Taco, and everyone. Speaking generally about the weather ( bad in so many places right now ) is not really getting into politics. Now were we to get into naming names and finding entities to blame for what is going on, that would get us into partisan bickering and there goes what we have worked diligently to achieve here -- a quiet, peaceful place for everyone who comes..

    I, along with most of you am fearful for us with 'climate' change which keeps changing for the worst.

    We keep waiting for rain, but the past day and a half it seems to have eluded us. I worry the humidity will come up which hasn't been nearly as bad as I expected. Fingers crossed on that one. The sun is once again muted -- so there are some clouds roaming around but none that seem too dark right now.

    All I have going on for today is a trip out for supplies/groceries. We had planned to go to Mt.Vernon to the Kroger store, but I cancelled that. It is Ch. Supper day and we would not get back in time, plus I have stocked up on the items that come from Krogers that I like which are lo-salt. It is really then cheaper for us to go to Walmarts. Sometimes I don't like going there, but we don't have a lot of stores that are close enough here so having forced others out that is our main choice. I do go to Schucks ( our only other grocery store ) for some things as well.They have a brand ( it is actually a 'store' brand ) of bread and butter pickle with no salt. So there are a few things that get in that category.

    I know it is hard to keep stock of 'foods' for people with medical issues. Just fortunate I noticed them. For a short while I had quit reading labels every time I shopped for food, but now am back to it for sure -- mainly checking for salt and then fat. Sort of tough since that is what flavors so much of what we eat.

    Hope you all have a great day.

  • cardplayer
    cardplayer Member Posts: 2,051
    edited July 2022

    Trying to get motivated this afternoon to do some cleaning. Walked around the lake this morning with DH. It was steamy outside, but in low 70s. I sat in our basement to cool off when we returned home. Expecting thunderstorms this afternoon as usual. Had REIKI therapy this morning. She worked on the numbness I have on the left side of my face. Seems to have helped somewhat. I see my neurologist in a couple of weeks and know if I bring it up to him that the numbness has increased, he'll increase my medication. The medication makes me really drowsy, so I take it before bed. But when I wake up at night, I'm really unsteady on my feet. The numbness started while I was doing targeted treatment. Could be related or just a coincidence.

    Lunch yesterday with DH, my brother, SIL and daughter was nice. Always fun to catch up. My daughter is 7+ months along and is feeling good. It's a little girl.

    Enjoy your day.

  • chisandy
    chisandy Member Posts: 11,408
    edited July 2022

    Cindy, I'm inclined to do as much as possible stretching-and-topicals-wise before I submit to cortisone shots for my back. I think the injection pain, immunosuppression, insomnia and weight gain would be deal-breakers for me unless my back is "locked up" in utter agony. As to the (alleged) sciatica, I really think that what I'm feeling in my hip & thigh when walking is something else. I've had sciatica once (when I was pregnant) and it was a constant burning pain fro my back down my hamstring. Bob is prone to it if (and while) driving too long without a break, especially using the accelerator--but not so much in the new car. OTOH, I have no problem while sitting or driving--my hip & thigh pain feels arthritic, and only when weightbearing after I get up from a low or soft seat. I wonder if there are Synvisc (hyaluronic acid gel shots) for hips the way there are for knees? Or if there's a hand-held-bulb lumbar traction machine that works the way my cervical traction device does? I will also ask about gravity inversion--whether it's possible to do if I fast and take a PPI before each session. The exercise that seemed to work best for me (and was actually sort of "zen") in my PT sessions was the "reformer" apparatus (sort of a supine leg-press using springs & the body rather than weights), which I hear is fundamental to Pilates. I know that reputable Pilates instructors will insist patients do PT before starting Pilates, and I don't think one would let me just use the reformer.

  • cindyny
    cindyny Member Posts: 1,320
    edited July 2022

    I took Pilates for quite a while. Loved it and was core strong but I lost no weight did lose inches) so opted for personal trainer. Turned into a 5x a week gym rat. But back to Pilates, most of my instructors were Physical Therapists, two had worked w Olympic teams. In honesty I don’t think my back bothered me before or during Pilates. They required private lessons prior to group and I was barefoot, thinking of any foot or toe pain. What helped me in the end, and I still see her, is a Muscle Therapist Chiropractor. Session runs an hour or more, massage and loosening of muscles she finds tense, and an adjustment at the end. She accepts no insurance coverage, all out of pocket.

    Our storms passed thru and dumped a lot of water but were over fast and not severe. My new gutter Leaf Filters worked great, no overflowing gutters. We were able to get out to see the concert and got to enjoy the evening.

  • mcbaker
    mcbaker Member Posts: 1,833
    edited July 2022

    Welcome, Snowghost. Hope you stay around. We are chatty, all right here, unless we want to use the PM function.

    Jackie, I enjoy your daily reports. I often post my daily reports without responding to others', mostly because I am in a rush. And backtracking will not work with these short pages, unless I save before backtracking.

    Sandy, I have been having problems with a sciatic point in my left hip, and pain in my left knee. I need to use both hiking poles. I certainly hope you get those difficulties sorted out quick. I simply avoid sitting on low surfaces, except my bed, which is low for Tippy's sake. Because I was so active yesterday, my right knee was bothering me, but after a half-hour of immobility it settled down. Our internet and TV were down for about twelve hours.

    Cindy, glad you got a window of time in which to enjoy the concert. A friend and I are going to our concert in the park next week.

    Jackie, I agree with you that climate change has gone beyond politics. But the political situation-- too much power to the wealthy, was partially founded on the status quo in respecting Creation. My dehumidifier helps immensely, for a small apartment. You can order no/low salt from Amazon or Wal Mart-- no travel needed. Of course, no perishables are available unless you live near/in a large city.

    cardplayer, with Neurotonin/gabapentin you need coverage all hours of the day. Unless your insurance will cover for the expensive timed-release version. Those side effects will wear off. I have mild CP, plus balancing on a slippery knee joint can be quite a tight-wire act, but I can make it to the bathroom OK, although I believe that I touch the walls on the way.

    I will update on me later. Tippy demands a walk, and I am not dressed yet.

  • carolehalston
    carolehalston Member Posts: 8,192
    edited July 2022

    Today we plan to go bicycling, as we did last Friday. The weather looks perfect, not too hot and not windy. We load the bikes into a bike rack and drive to a parking lot along the paved biking trail that goes for miles, connecting small towns. DH has a new bike that doesn't have the high cross bar that had become a problem for him.

    Happy Friday to all.

  • illinoislady
    illinoislady Member Posts: 39,608
    edited July 2022

    Adversity, if for no other reason, is of benefit, since it is sure
    to bring a season of sober reflection. People see clearer
    at such times. Storms purify the atmosphere.

    Henry Ward Beecher

  • illinoislady
    illinoislady Member Posts: 39,608
    edited July 2022

    Muted sun again today. I have plenty to keep me busy so I'm fairly okay with the weather I think. Yesterday ( after a long wait for rain that didn't come ) we went to the store late -- and you might know. Rained buckets. Didn't have an umbrella or rainhat or anything with us so we all got wet. I look outside and not a leaf stirring on the tree. Ground is still wet and muddy looking from yesterday. I think we got nearly two inches in a short amt. of time. Just a mess.

    Back down to my fighting wt. of 146. My meds seem to be working well for me. I go first part of next week back to the Cardiologist at Marion. Every othr visit she has me come in. She keeps adjusting my meds and so far it has all worked out well. Only negative part is that I end up with a ot of meds I've paid for and can't use. I will ask my PCP what to do with it all. A shame for it to sit here doing no one any good. Some were changed before they were even opened since I am sent enough for 3 months at a time.

    I also hopefully will have my last ( fingers crossed ) visit with the Pulmonologist. Like my Urologist -- I have to have four 'good' tests in a row to get released to a once a yr. level. I am already sort of on that through my PCP and she would be the one to check the yearly report. Sure hope I can say good-bye to Dr. Dave. I'm on twice a yr. right now with the Urologist.

    Hope you all have a good day.

  • cardplayer
    cardplayer Member Posts: 2,051
    edited July 2022

    Good Morning. Another overcast day with rain and thunderstorms in the forecast. Got our walk in, a few rain drops, then nothing. We could really use a nice soaking rain.

    I use to get sciatica and frequent lower back pain. Had epidural injections in L3 and L4 plus PT. Since I had PRP injections in my right hip (after replacement), I haven’t had any sciatica or need for injections. Still do PT occasionally for lower back and neck issues though.

    Wish my insurance allowed timed released gabapentin, but it doesn’t. Spent lots of time on the phone with Express Scripts yesterday. They had quoted me a price for my Restasis eye drops that was significantly cheaper (half) than what CVS was going to charge for my refill. So I transferred the prescription. Next thing I get a charge on my credit card for almost the same amount CVS was going to charge. When I spoke to Express Scripts customer service, she said it’s because I was getting 6 vials rather than 3 vials in my 90 day supply. That made no sense to me. It’s still a 90 day supply. She hung up on me, so I called back. Got the call escalated to a supervisor. She got a pharmacist on the line. Turns out, my doctor rewrote the prescription ordering 6 boxes instead of my usual 3 boxes of vials of eye drops. I’m getting double what I usually get, more like a 180 day supply. Still cheaper than CVS.

    Have a wonderful day

  • mcbaker
    mcbaker Member Posts: 1,833
    edited July 2022

    False report. The new sciatica on the left is running all the way down, and that is with oodles and loads of gabapentin.

    So, anyway, I made a mistake with my meds night before last, and Fitbit said that I did not sleep at all, when in fact, i dreamed all night. I am an active dreamer. The dreams were all about the failures in my life. I was full of bad thoughts when I woke up. I started telling a friend about the dreams, and he was able to reframe my mistakes into a balanced blaming of others. Last night my Fitbit report was 7 hours, and with the hour of active dreaming added in, it was eight hours.

    So, then, internet and TV went out, and everyone was cranky, but visiting each other a lot more. Then I got my garment rack for the craft fair a day late, with a damaged box. One envelope of small parts was missing. I found a way to contact UPS, but it was bogus. I am now on my way out to Ace hardware to get replacement parts, and they have easy access to UPS. Then, yesterday my ban on using the vacuum cleaner was lifted (surgery was six weeks ago), and I vacuumed the floor, but the vacuum was noisy and vibrated too much. My cleaning lady is intellectually slow, and had basically destroyed it in her attempt to clean the roller (it was a mess, but any seamstress should know to clean that regularly). I went to bed and slept well, to a new day.

    More later, when I get time. Whenever.

  • cindyny
    cindyny Member Posts: 1,320
    edited July 2022

    I’ve just started wearing the FitBit for the cancer study. So far I’ve gotten 3 nights of sleep monitoring. I’ve said I get 7 hours of sleep, but FitBit tells a different story: 6 hrs 47 mins; 6 hrs 25 mins; 5 hrs 18 mins. Last night I was awake on & off for nearly an hour. I think my stress level will increase as I see my lack of sleep. HAHA!It’s new so I’m checking it out a lot, maybe as time goes by I’ll ignore it.

    It’s a pleasant 78 outside, with a high up to 88. If humidity stays on the lower side, I’d like that. We need to pack for a week on Cape Cod. The less humid, the better. Enjoy your Friday!

  • mcbaker
    mcbaker Member Posts: 1,833
    edited July 2022

    That "active dreaming" thing had me going for the longest time. I only got it figured out about a week ago, when I realized that those "awake" times coincided with waking up and remembering dreams.

  • illinoislady
    illinoislady Member Posts: 39,608
    edited July 2022

    MC -- while they are not fun and are painful often I look at the majority of my failures in two ways -- as a heavy duty learning experience and as the impetus to find a way to improve as much as possible. Sort of goes along with my idea that if everything in our life was perfect it would be so difficult for us to learn since we would never get the negative inputs. I still have plenty of failures ( although they generally seem a lot smaller now ) and while I can't say I welcome them, I don't attach the 'dread' to the event so much as I use to.

    Glad you had someone who cared to talk you down. Mistakes and failures help you grow and they seem slow and tedious ( painful ) but I'm convinced it is a much faster way to learn because we can compare.

    No fitbit here but still having to take a blood pressure reading several times through the day to make sure to not throw myself into blood pressure imbalances. Not sure how 'good' we can get my blood pressure but maybe I'll ask the Cardio Dr. when I see her. It is staying ( upper ) around 99 to 114, and ( lower ) between 74 to 79.

    Maybe coincidence cardplayer, but our weather sounds pretty close. I live about in the middle of the state so an hr. or so going east or west or north east will get me into another state. Close to Missouri, Tennessee, and Indiana.

  • cardplayer
    cardplayer Member Posts: 2,051
    edited July 2022

    I think we get your Illinois weather about a day late. We’re in the northern part of Virginia, near the WVA border about 80 miles west of Washington DC. Today has been odd. Cloudy, then rain, sunny, more rain. Now cloudy again. We needed the rain though.

  • surviving60
    surviving60 Member Posts: 2
    edited July 2022

    I turned 60 this year and also diagnosed with BC. I have it in opposite quadrants of one breast so I will loose that one for sure. Thinking of taking the other so I am balanced as I hate wearing a bra. Thinking it might be nice to go braless (I'm a 40DD). I feel pretty confident that I would be ok going flat but I guessing its the fear of what i don't know or can't imagine that has me reaching out for others experiences with going flat. Anyone?

  • keywestfan
    keywestfan Member Posts: 367
    edited July 2022

    I've been in absentia because I've spent every spare moment educating myself about total hip replacement and, Sandy you've been a big source of knowledge. Saw my PCP Thursday who I call “ The Divine Patrick Logan" because I'm crazy about him and feel he really knows me and cares. He told me, when he came to the waiting room to get me that it hurt him to see me walk, that he still couldn't believe I was 88, that he had looked at my Xrays from Skokie and that I MUST have hip replacement, bone on bone. Platelets and splenectomy a problem, but I must do it because "of who I am,"a walker, a fit person and because if I don't do it I will be in intractable pain and in a wheelchair. And that I can't have a spinal because of a possible bleed. I told him I had an appointment in the afternoon with Dr. David Biegler who 3 people at this retirement home have used. He said use Dr. Michael O'Rourke who I'll see 8/16. Biegler could do the surgery 9/19.Biegler also said a general anaesthtic could “ scramble your brains." O'Rourke is busier and may have to wait too long. Biegler said I should go home after surgery, not to a Rehab or to the skilled nursing here, too much bacteria in all these places, etc. But have bending restrictions for 3 months, obsessing about how I will get dressed,put compression socks on, etc. May have to find a nurse for an hour a day for a week- probably not even possible.

    Of equal consequence and concern, I've been on a 6 week break from Arimidex and must contact MO on Monday. Have taken it for exactly 3 years, feel, even with this horrid hip, light years better off of it; much less stiff, more like myself, like before. Whether I would go back on is the question- could I even go back on with the coming up hip surgery?

    All these questions, so reminiscent of my franticstate of mind after BC diagnosis.

  • reader425
    reader425 Member Posts: 953
    edited July 2022

    Surviving 60 welcome to the club no one wants to join. This is a friendly group but may not have specific information about going flat. I *think* there is an actual thread called "going flat" or similar on this site that might be helpful.

    Key west hoping for continued reassurance as you come to each decision point on this hip replacement journey.

    I am ready for the weekend. Too many Dr. Appts, blood tests, PT, and medical stuff lately. It wears me out thinking about the various things, mainly. We have a 50th anniversary party to attend on Saturday which should be fun. I hope you all have a good weekend also.

  • cardplayer
    cardplayer Member Posts: 2,051
    edited July 2022

    surviving60 - welcome to this topic. I can't speak to going flat. I was a 38GG before my diagnosis, and by the time all was said and done went smaller with implants. I'm about 34E/F. Every once in a while I do second guess myself and think that I should have gone flat. There may be a topic specifically about going flat. The MODs may be able to point you in the right direction.

    Keywestfan - Hope you get all the logistics arranged before your replacement. Those compression stockings are tricky.

  • 1946taco
    1946taco Member Posts: 300
    edited July 2022

    key western - I did less than 3 years of AI's and I'm not sorry. It certainly was a quality of life decision for me. If you don't stop, please talk to both your MO and your surgeon. I am convinced that my knee replacement recovery was hindered by the AI's but surgeon didn't look at my chart closely enough to catch it.

    Another quiet weekend for us. Hope to be able to play golf. The weather hasn't been a golfers friend this week. On the other hand, rain is desperately needed. The south and east side of Phoenix tends to get much more than we do, northwest of the city.

    If my friend gets moved from Mayo to a local rehab, will stop in there. Took them forever to diagnosis her lymphoma and she got so weak that she can't go home yet. She said her first chemo treatment wasn't too bad though and she seems to be realistic about not being able to manage at home.

    Surviving60 - be sure to look for the thread for those who choose to go flat. I don't think any of us made that decision. If you can't find it, go to the moderators for help. This site isn't always easy to navigate so try to be patient - something I know is hard to do when you are trying to make all kinds of decisions.

    You will find lots of support from this chatty group. Fill in your profile and make each answer "public".

    Have a good weekend, everyone.

    Marge, aka Taco


  • mcbaker
    mcbaker Member Posts: 1,833
    edited July 2022

    Surviving60. As you review the stories of those who chose to go flat, you might note that those who did so were originally rather small in the chest. Going flat would be a huge adjustment for a person who was originally large. Going flat and wearing bras with prostheses is not really satisfactory, because they tend to move around into strange configurations, and the wearer has to take time out from normal activities to adjust it.

    Off to WalMart to get price tags. I will have to set up some signs as to what other services I will be offering. I have three more caftan tops to make. One will be a more creative design.

  • cardplayer
    cardplayer Member Posts: 2,051
    edited July 2022

    A beautiful sunny day after the rains last night. It was warm when we took our walk this morning but we had a nice breeze. Almost felt like we were at the beach. Except there was no sand or ocean.

    Did my usual Saturday routine - watered a few indoor plants and made hummingbird water. We haven't had as many hummingbirds as we did last summer. Miss seeing them feed. The cats were quite active this morning. Maybe they're waiting for us to put clean sheets on the bed. That seems to be one of their favorite activities.

    It's funny how even in retirement, we have our routines. I've always been an organized person, a list maker and a planner. Now Alexa reminds me to do things, DH and I have shared lists in OneNote and we are able to see what we have on each other's calendars.

    Enjoy your day.

  • illinoislady
    illinoislady Member Posts: 39,608
    edited July 2022

    If we could but recognize our common humanity, that we do belong together,
    that our destinies are bound up in one another's, that we can be free only together,
    that we can be human only together, then a glorious world would come into being
    where all of us lived harmoniously together as members of one family, the human family.

    Desmond Tutu

  • illinoislady
    illinoislady Member Posts: 39,608
    edited July 2022

    I don't have any of the issues that people need answers for right now, but as for myself -- i usually contemplate all the information I can get and then go with what my heart/gut says. You know best what you can live with or in some cases without. All of you who contributed had wonderful suggestions, ideas and personal stories. There is a wealth of information on BC. Org although I've relied mostly on 'friends' I've met on this bog -- much like I do when I ask my 'close' neighbors and friends here where I live As the site has made some changes it likely may be easier to ask the mods to point out some forums that would enhance your knowledge.

    Going to be hot today so won't be doing much save for things to do inside. Yesterday was though pretty comfy at 81 degrees. Yesterday we saw a doe ( no mother in sight ) several times through the day in the same place. Never decided for sure if there was a mom or if something happened. If I see the little doe today I may call my frined who is a wildlife rehab specialist and see what she might offer in the way of info or help. She has raised a lot of baby deer, starting them out in her bathtub in her bathroom. She will surely be blessed for the work she does with all sorts of 'babies' and or injured owls, eagles etc.

    Her daughter used to sort of hate riding with her mom -- who often would insist on stopping to pick up 'roadkill' because some of the wildlife she nursed back to health has that as their principle diet. Hmmm, I guess I can understand that. Most people seeing you do that wouldn't automatically think of this older woman picking up something off the highway as a wildlife expert who needs this to feed the animal'bird she is nursing back to health.

    Sorry -- I got way off the subject.

    Hope you all have a wonderful day.

  • wishiwasnthere
    wishiwasnthere Member Posts: 4
    edited July 2022
    • Hello. I'm new here. 68 years old with new diagnosis of Invasive Lobular Carcinomma. Haven't seen surgeon yet, and not handling it very well. Pretty scared right now. How do I not let this consume me? It's all I can think about.
  • 1946taco
    1946taco Member Posts: 300
    edited July 2022

    wishiwasnthere - the saying here is welcome to the club none of us wanted to join. I'm glad you found us. I went to various chat rooms as my treatment progressed. I suggest that you also go to the IDC group at this site.

    Of course you are scared and anxious. It gets a little better when you have more information from your team. Once you have a treatment plan, it won't seem quite so overwhelming. In addition to the surgeon, you will have a RO (radiology) and MO (medical oncologist). They should explain your options and the reasons for recommending them. It's OK to ask for a second option from any or all of these specialists.

    That a partner or friend to all of these appointments if you can. It's OK for you or your partner to take notes.

    Hang in there. I hope your appointment with the surgeon is soon. Many of us find the need to take some kind of anti-anxiety or sleep medication. If you need it, ask for it.

    Stay close and we will support your journey.

    Taco/Marge

  • cindyny
    cindyny Member Posts: 1,320
    edited July 2022

    IllinoisLady- on our way out of NY on I-90 a deer came down off a small hill and ended up bouncing off my far back quarter panel. I let out a yell and slammed on my brakes, the doe saw me and seemed to put her brakes on as well. She kind of turned back but momentum had her bounce off my car. I saw in my rear view mirror she made it off the side of the road into more woods. I was going 74, and it was crowded and only around 1 pm - full day light and hot out. It’s the first time a deer hit me, and the closest to me ever hitting one. We got to the next exit and checked the car, I found 2 hairs attached to the panel, but no blood from the doe or damage to the car. Assuming she’s injured (bruised? sore?) from the collision but will live to see another day. I would never hurt an animal, so scary.

    I booked the ferry to Boston for Wednesday and tickets to the aquarium. Planning on beach and lots of relaxing the rest of the week. Wishing you all the same, a relaxing week!

  • illinoislady
    illinoislady Member Posts: 39,608
    edited July 2022

    Cindy, I'm hoping it means I can relax, but late yesterday afternoon the little baby deer( fawn ) was gone when we checked for the last time. We didn't see it this morning nor this afternoon. Either the mother really was around or someone else who knew a wildlife expert got it some help. I will have to hope that 'good' things took place and that the fawn is safe and sound. There was as well yesterday a doe and her twins not far from the little one, but there were never any signs of recognition or interest in any of them to the other.

    I have always been fearful of hitting a deer ( or anything for that matter ) as while one could say they are interlopers to a degree when they take up an area -- we as well push them away from the cities and housing tracts we keep building everywhere.We don't have the synergism down very well of having space for everything and everyone -- meaning the animal kingdom that we often displace. Where we live was many acres of mainly woods. A lot is carved out now. We are fortunate to have two big ravines on either side of us so hoping we will never have many neighbors and will keep our woodsy effect. Most of the houses here are on ten acres minimum of land so that it keeps the neighborhood from getting TOO populated. Suits me fine. Only three houses on my Lane but I'm in the middle with a ravine on either side of me. There just is no more room for building here.

    Anyway, several of my friends have hit deer and often the deer dies and severe damage to the car. Usually they are just shook up. I will say though, when that happens, usually an animal warden is called, gets the deceased animal, and they have butchers who will take care of the deer quickly and the meat is distributed to people who are needy. I still hate thinking about it though.

    Glad you came through the incident and that the doe seems to have as well.