Can we have a forum for "older" people with bc?

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  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    Judge each day not by the harvest you reap, but by the seeds you plant.
    - Robert Louis Stevenson

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    Good morning to all --- now that it is almost noon.  We are have a cooler but at least sunshiny day.  Yesterday was rainy most of the way to Marion -- 73 miles of it.  Not super major pour-downs like I was concerned about but just annoying ones.  The important part was that we did ok.  Turns out Dh only has to use more eye drops in his eyes.  They are very dry --- and the Dr. he saw says that if you have had cataract ( he has in one eye ) surgery  your eyes will likely be dryer yet.  The Dr. is having some ??better drops sent to him.  Well, that is good.  Dh does a lot of over the counter buying on things like that and I think he gets lured into some of his purchases by the wording on the bottle.  Not always reliable.

    Joan, that is nice to hear about your daughter possibly entertaining the idea of re-marrying the ex.  Sometimes life just happens and we are only along for the ride.  We really have to ( though it may sound a bit selfish, but really isn't ) live for ourselves as we can only 'cause' so much influence elsewhere --- and that is really someone else's life to deal with and make choices for and have to live up to in the long run.  I tend to feel that we are ALL here doing the best we can and sometimes that may not look like the best to someone else -- especially a parent.  Yet for a long time we ( the parent ) feels a bit responsible in a way --- truth is -- we don't know anyone else's path for sure and so even if horror-struck --- sometimes we just have to let go.  I know I have mentioned it, who knows how many times, but once we de-pressurize something by going into total ok-ness with it, it sometimes magically almost comes together ok.  Whether because it did, or we removed enough power and steam from it that we stopped being 'hurt' by it -- but it becomes a livable situation. 

    May we all always be able to de-pressurize things so we can move into the greener and happier pastures that are possible.

    Well, onward to some other things I need to accomplish.  I should be able ( break time ) to come back again a time or two before I go to work tonight.

    See you all later.

    Blessings

    Jackie

  • gardengumby
    gardengumby Posts: 4,860
    edited April 2015

    Comcast just got on my very last nerve, so I cancelled our service.  The replacement company can't install for another week or so.  I may not be on very much for a bit..... 

     

    BTW - when I said we relocated the former feral cats in residence, we didn't just move 'em and dump 'em.  We took them to a lady who wanted them - actually she picked them up in the trap - and kept our have-a-heart.  Maybe she does what y'all talked about and has them neutered.  I didn't look into it - there was too much going on at the time....

  • farmerjo
    farmerjo Posts: 239
    edited April 2015

    Joan...love your "selfie"! Adorable! I'm still trying to get a hand on the selfie thing. 

  • puffin2014
    puffin2014 Posts: 979
    edited April 2015

    Chemo brain struck again, made a double batch of a cranberry apricot salad to take to Easter dinner tomorrow. After driving 2 hours Lew turns to me and says "you did remember to bring the salad didn't you". A little late to remind me, on to plan B, stopped at the grocery store, bought broccoli slaw and poppy seed dressing and will add walnuts and craisens and call it good.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    GG -- I'll be missing you, and hope your next carrier company is far, far better.  Hope you have a great Easter in the mean time.  Happy Easter to all of you here.  I'll be thinking of you. 

    Be back in the morning.

    Blessings,

    Jackie

  • wren44
    wren44 Posts: 8,075
    edited April 2015

    Puffin, We did that with tickets for a special museum showing in Portland. We were about 20 miles from the Oregon border when I asked the question. We drove back to Seattle, got the tickets, and drove back to Portland. It's a 3-4 hr drive each way. It was worth it though for the Monet painting exhibit.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    Never pass up an opportunity to speak a kind word of appreciation.  There are six billion people on the planet, and 5.9 billion of them go to bed every night starving for one honest word of appreciation.  -Matthew Kelly

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    Puff and Wren -- human beings do those things --- take off from home without the most 'important' ingredient.  I have done that on a number of occasions.  If not going too far it's not so bad.  I have had to push my grocery cart aside and rush back home for my wallet etc.  A real irritation, but this town is small and I have to admit it is not truly the time but just the general inconvenience.  Also, feel like people are silently thinking  -  what a scatterbrain. 

    Pretty here this morning and it will stay that way.  Going to take a long walk later and then fix a late dinner -- early afternoon supper.  Just depends on when I decide to put forth the efforts.  No rain today and it will be fairly warm.  Not as much as I'd like but not bad either.  Probably 65 degrees or so.  That is good for a walk. 

    Looking forward to a relaxing day and some loafing which I can do really well -- I can get into that mode like you wouldn't believe.  Getting in is easy -- getting out later is the trick. 

    Hope you all have a truly wonderful Easter Sunday. 

    Blessings

    Jackie

  • mysunshine48
    mysunshine48 Posts: 915
    edited April 2015

    Happy Easter everyone!

    I know January 1 is the real beginning of the year, but to me, I always felt like it was Easter. Spring, flowers popping up, new beginnings. This year that seems especially true. I have a BMX with TE placement this Friday, April 10. Yes, I am very scared, but am ready to take this on and make this a new beginning. I have already been thinking about how blessed I am with my friends and family more than I ever have before. I also find peace reading all the posts from you wonderful, brave women who have been through this. I also know I will need chemo and that scares me more than the surgery.

    One big concern I have is insurance for Arimidex. I will be losing my school insurance soon and need to get a supplemental RX plan. I just retired from teaching - early. I am 66 and have applied for part B Medicare and a supplement plan, but when checking for RX plans, they do not seem to include Arimidex, which I also need.

    If anyone has any information and can share what RX insurance you have that covers it, I would appreciate it.

    Again, have a blessed Easter and make happy memories.

    Lynn

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    Lynn, a couple of things popped into my head almost immediately -- first if you ask I think some drugs companies might help you with your prescription, and as well, Arimidex has a generic -- called Anastrozole.  Also there is Ins. you may be able to get through the ACA to help replace  -- add to your Medicare. 

    Chemo was MY scary part too.  I think most of us feel huge hesitation.  Chemo is by its nature a very harsh intervention, but it has such a HUGE job to do.  It finds and does away with cancer cells and we hope that ALL of the bad cells meet the same destructive fate.  Of course, it also manages to X-out the good cells along with the bad --- but cells after a point reproduce and they are new and un-affected by the stresses that originally produced the mutated cells that turned bad.  It is often very difficult to do chemo treatments ( can go surprisingly well too -- we just don't know for sure ) but the good news is -- we usually only need a standard amount  ( so many rounds ) and then we are through and can move on to what's next in tx.  It is almost scary since you spend several months busy doing what you can to erase the bad cells and render them harmless -- and then all of a sudden you find yourself doing almost nothing.  I think it sorta feels like forgetting to put on your slacks when you go out.  You are somewhere and suddenly realize you don't have your slacks on and you feel un-protected and a mite vulnerable.   That passes as you get comfortable with where you are.

    It is just a wonderful thing ( after the chemo is done ) to realize how GREAT -- yes, I did say GREAT you were, how strong, how capable when you stated out with the wt. of the world on  your shoulders and wondering how you could EVER do this thing.  I did wonder how I would ever do it.  Just for myself, ( this won't be good for everyone ) I tried not to read too much about chemo.  Just a little so I would have some idea of what to expect and just as much the possible fix.  Many strides through the years have been made and you don't have to "suffer" now to use chemo. 

    We will be with you every step of the way -- doing whatever it takes to help you through.  It may be un-pleasant to some degree but shared burdens are almost always much lighter. 

    See you all later.

    Jackie

  • kayarose
    kayarose Posts: 35
    edited April 2015

    Hi Mysunshine48, I don't normally post on this forum but I read it all the time. I live in Northbrook, IL but my DH and I also own a condo down in Bonita Springs. When I saw that you were from Bonita, I just had to say hi. Have to say, I miss my ocean walks every day. Nothing brings me peace like an early morning walk on beautiful, quiet Bonita Beach.

    I was diagnosed in Sept 2014. We had our plane tickets and our bags packed to head south for a few months when I found out I had BC. I had chemo first, then a mastectomy of my left breast and I started radiation on April 1st. I've had 3 treatments - only 30 more to go. My chemo was AC/T. I had the AC first, 4 sessions every other week. After that I had the Taxol treatments - 1 every week for 12 weeks. Don't be afraid of the chemo. It's not easy but you will get through it. They totally control the nausea (which I was so afraid of) these days. I felt queasy but never more than that. The hardest part for me was the fatigue. No energy at all. Food didn't taste right - even water had a funny taste to me. You just have to monitor how you're feeling, keep hydrated and definitely ask your MO for help with any SEs you're having trouble controlling. Taxol was definitely easier on me than the AC.

    I'm also taking Arimidex, the generic form. I'm on Medicare, have BCBS supplemental and my drug plan is Humana. My Arimidex is costing only $4/month. I think any plan will have low costs as long as you use the generic. I've been on it for a few weeks and, so far, haven't noticed any SEs. I'm keeping my fingers crossed it stays that way.

    Anyway, thanks to the ladies of this forum for letting me pop in. I wish everyone a Happy Easter/Passover.


  • Chevyboy
    Chevyboy Posts: 10,258
    edited April 2015

    Kaya, you can pop-in ANYtime....! And Sunshine, Jackie knows what she is talking about..... I only tried Tamoxifen, and that one didn't work....But there are always others to try..... also your age.... I'm much older than almost anyone here, and that sometimes makes a difference in the treatment you are offered....

    Just don't be afraid.... all of us here, went right down that road you are on right now, and we MADE it! Some had a bumpier time than others.... Mine was pretty easy compared to some.... I also only had a Lumpectomy, with the MammoSite for radiation.... You probably won't need some of the treatments because you are having a BMX? So your team will wait for the final pathology report to figure out where to go next.

    Always ask questions, and write the answers down, because you will forget....Winking

    Thanks Jackie and Kaya! We need all the help we can get! And Happy Easter gals!


  • mysunshine48
    mysunshine48 Posts: 915
    edited April 2015

    Kaya, Illinois Lady and Chevyboy,

    Thank you for your replies. Kaya, I will look into that insurance.

    I have another question.....actually a lot! I am told that after a BMX and SLN, I will not be able to move my arms much. I read somewhere on here that you can only move from the elbow down. So, they tell me to wear a button up blouse to surgery - and to wear home. HOW do you get arms in sleeves if you cannot move your arms? I will have drains and am having outpatient surgery.....not what I wanted. My doctor said I was going to the hospital and would stay over one night.....then, he went on vacation. Then, when I picked up my RX at his office this week (he was gone), I was told my surgery was moved to an outpatient center. AND, if I did not like that, I would have to reschedule for a later date. It has already been 3 months since diagnosis. All the tests and apps. were difficult to schedule....and since diagnosis, I broke my leg when someone ran into me on my bike, then, a week later I had to fly (in a wheelchair to Oregon) because my 96 year old mother had a major stroke and passed away a week later. I have just about had it......now this. Sorry to vent, but I am alone and scared. My sister from Oregon is arriving tomorrow night to be with me for 3 weeks. Love her. After that, I am on my own. I am a widow.

    ANY tips would be appreciated!

    Hope you are all enjoying this day. I was going to get out, but feel like I just want to be alone. :(

    Lynn

  • Chevyboy
    Chevyboy Posts: 10,258
    edited April 2015

    Holy Toledo Sunshine! You are in a pickle! I just HATED waiting for my surgery..... don't know anyone who had that type of surgery in an out-patient center, do any of you other gals?

    I wore a button-down blouse, just because it was easier to take off, and didn't mess my hair up.... Ha! Can you call back and see when is the earliest date you could be scheduled? Maybe they will work you in, considering they completely DUMPED you and your plans.... I would not be happy with them. Neither are we.... Just TELL them something to make them feel sorry for you.... even that your SISTER is coming???

    And you broke your leg..... Dagnabbit! WHAT are we going to do with you? Are you getting around okay now? I broke my hip, and man, it still hurts sometimes!

    Sorry about your Mom.....

    Also you will probably be okay after your surgery.... My girls and I and Husband went shopping the next day.... but MY Lumpectomy was pretty easy I guess, and I went home that afternoon!

    That's IT! Have your surgery, and then go shopping..... and go out to restaurants.... It takes your mind off of "stuff."...

    Don't be scared.... we are always here.... SOMEwhere.... Ha! Thinking of you.....! xoxoxoxo


  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    Lynn,

    I only has a lumpectomy, but several ladies here had mastectomy and could likely easily answer your questions about  that --- don't despair -- some are probably doing "Easter" things and they won't be on here that much to find your questions -- so hang in there.  That said, I had a lumpectomy and was wrapped well.  In your case, you will indeed have drains, so it will be different.  Just a guess on my part, but I'm thinking they will have someone to assist you in dressing -- some movement may be limited but as tolerated too -- but that is something of a guess on my part. 

    I was in a same day surgery in  a hospital when I did my surgery.  In fact, I went into surgery at about 1:30 and was dressed and on the way home at about 3:15.  I just say this because I do think many medical ( surgeries ) procedures are faster and easier then they once were and so I would see it as less time being cared for by nursing staff and more time being helped by a family member. 

    Since I don't have a lot of info on the actual surgery you are having about the most I can say is that they should be giving you ( I would think ) adequate instructions and supplies to be able to deal with everything at home. 

    I hope I can be more help to you in the other aspects -- like this is definitely the place to VENT.  Who wants to be knocked for a loop with a cancer diagnosis, then actually knocked off a bike resulting in broken bones -- and then have the issues you had with your Mother.  Lynn, anyone would be ready to come apart.  So, for that reason I am so glad we are here.  Of course you have had it and everything that has been happening seems to have negativity connected to it.  Nothing is simple and there are it seems struggles connected to even the smallest aspects of things --- even things that were it seems to you previously settled before your Dr. went to vacation. 

    This is not to minimize in anyway the fact that you have been through the wringer --- you really have --- but it will work itself out.  Right now you have a lot of frazzled edges getting caught at every turn.  My goodness, how much can one person handle.  But try to take slow deep breaths ( knowing we are given this kind of instruction all the time, but it really does work )  and as you are taking these breaths -- consciously reach for happy thoughts and those that make you feel relaxed. 

    Try to confine your worries to only those things for which you know you absolutely have some control.  You have to think about all of it --- but just give yourself some space on the things you can't do much about.  You can make lists of things to do and you can also find tons of information I do believe in the topics section here at BC. Org.  I found  BC. Org a little later than you so never availed myself of the wealth of info that is here --- but I would definitely use that resource.  In addition to answers, it might also help you with 'questions' that would be specific to you to ask your medical team.

    Also again --- I'm not into the holidays like others.  To me, every day since my diagnosis and successful treatment is a holiday so I'm on here no matter what day -- but others won't be here more than sporadically.  Really nice women come here eager to help others ( we all started out here the same way -- needing others ) and we feel strongly that we want to be here to assist those just beginning.  Take heart.  You are not alone and we will do our best to offer information, comfort, help and a willing ear. 

    I'm glad your sister can come and stay with you.  I'm glad we can be here for you too.

    Blessings,

    Jackie

  • wren44
    wren44 Posts: 8,075
    edited April 2015

    Lynn, This thread has a list of things to do before surgery. I only had 1 removed, but I think you'll be able to move your arms enough to get into a button shirt. Lifting them overhead shouldn't be done until you get the OK. Just don't forget the pillow to go under the seat belt for the ride home. My mx would have been same day surgery, but they didn't get to me until quite late, so they kept me overnight for observation. I was ready to go the next morning early. From reading, it seems like a lot of women with bmx sleep in a recliner chair with lots of pillows at first. It's a lot easier to get up if you're not lying flat. I'm glad your sister is coming and you like her. You'll be in pretty good shape in 3 weeks. Walks are good for both anxiety and depression, so do try to get outside. Hugs.

    https://community.breastcancer.org/forum/91/topic/...

  • sandra4611
    sandra4611 Posts: 1,750
    edited April 2015

    Now I know what you mean when you say you've been away for a couple of days and have so many pages of posts to go through! Goodness, it's taken a hour or more and I was only away from regular reading for three days. The wedding yesterday in Tallahassee, FL was lovely and I did indeed walk the groom down the aisle and give him away. I was in the program as his oldest friend. He said he wanted to put down "high school sweetheart" but the new bride nixed that. He introduced me to several people that way at the rehearsal dinner though and I was surprised when a few said, "Oh you are THAT Sandy. He's talked about you for years."

    What can I say? He waited 50 years for me to change my mind and when I was still married with no change in sight at that point, he said he had come to the realization that it just wouldn't work out for us so he might as well look elsewhere! Now it's been 51 years and he has found Amanda. He does love his new bride, of course and she is a perfect match for him, so I think it worked out for the best. Walking down the aisle he said, "You know, we could have done this 51 years ago or even 45 years ago before you got married. I guess it's too late, right?" He was kidding of course. He adores my husband and they've been friends our whole married life. Tim is a college professor, author of 5 books, extensive world traveler, lecturer and expert on Anarctica. A number of his fellow professors came to the wedding, some from Europe.

    imageWalking him down the aisle, laughing at his question of "Is it too late?"

    imageDaughter Allison, me, Tim, daughter Stephanie. He is their godfather.

    image

    The new Mr. and Mrs. Timothy H. Baughman

    After the reception we all changed clothes and regrouped for the Florida State University Circus. What fun! As my daughters and I were leaving - Stephanie heading 4.5 hours south to St. Petersburg, FL and Allison and I driving 13 hours west back to San Antonio, we decided I needed a beach break! Before I could change my mind, I tossed my bag into Stephanie's car. I'll fly back to Texas next Saturday after some blissful time on my hometown beaches. We got in last night and first thing this morning I was out the door, back to my favorite beach.

    image

    image 

    The water today is clear, calm, the skies are blue, the sand is baby powder soft, and I'm having a great Easter!


     

  • kayarose
    kayarose Posts: 35
    edited April 2015

    Lynn, I had just one breast removed but was able to move my arm around pretty easily. Over the head is the hardest movement to recover. I had some physical therapy to help me. I was worried I wouldn't be able To get my arm in the position necessary for radiation but the PT really helped. It just took time. My surgery was in the hospital and I stayed one night. If you are really uncomfortable with going to a day surgery, ask to have it moved to the hospital. At the least, talk to your doctor's surgical nurse and see if she can ease your fears and answer your questions.

    I'm so sorry for all the troubles you have had to deal with. It's great that your sister is coming. You will definitely need someone around to help for a while - also to do any driving necessary. For the first week or so, all I really did was sit around taking my pain meds and healing.

    The drains are a bit of a pain but you will probably be able to have them removed in a week or so. They are very easy to empty and you can safety pin them to your top to keep them out of the way. I wore a zip up hoodie with inside pockets most of the time. It was perfect for holding the drains.

    The American Cancer Society is a great resource. They offer services like rides to and from appointments, wigs, support groups, etc. it's worth checking out to see what's available in your area.

    Also, my hospital has a breast cancer nurse navigator who assisted me me with all the appointments, questions I had, etc. She has been a tremendous help to me. Check with your hospital to see if they have one.

    Take one day at a time. That's how I've gotten through chemo and surgery and that's how I'm planning to get through radiation.

    Kaya

  • blondiex46
    blondiex46 Posts: 2,726
    edited April 2015

    Ms sunshine we,ck e

    Hello all

    Sandra so happy the u did somethin enjoyable 4 youself. Everyone looks happy loving the beach.. u look so beautiful.

  • Chevyboy
    Chevyboy Posts: 10,258
    edited April 2015

    https://www.youtube.com/watch?v=GbycvPwr1Wg This is just the funniest video.... !

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    What do we live for, if it is not to make life less difficult for each other?
    - George Eliot

  • carolehalston
    carolehalston Posts: 9,016
    edited April 2015

    Reading, reading, reading...  Caught up! 

    Sunshine, I had the same surgery you're having.  Bought a couple of button up blouses prior to surgery, very roomy to allow for drains.  Wore them to dr. visits.  You can move your arms enough to put on the blouses.  You don't lift your arms for a while.  There's an exercise you do when told that it's ok to do it.  Stand by a wall and walk your fingers up the wall, gradually going higher.  Take things a little at a time.  It requires patience. 

    Your dr. may want you to wear a stretchy bra at first.  My dr. supplied the bra.  Later you wear soft sports bras that fasten in the front.  I bought some at Walmart. 

    My ps insisted on a pain pump that was installed at the time of surgery.  It automatically dispensed pain med for 3 days until it ran out of the med.  Helped a lot.  PLEASE inquire about this.  I had to pay for it.  $500 or $300.  I don't remember.  But take up a collection, if necessary, and get it.  I cannot take codeine pain meds so I pretty much relied on OC after the pain pump was removed. 

    As Wren said, there are discussion forums here on bc.org that give you a lot of pre surgery info.  I read them and took the advice.

    You will need someone to stay with you afterwards for 3 to 5 days.  I was fortunate to have a dh who turned into a good nurse. 

    Otherwise, I'm feeling like a human blimp this morning after the Easter dinner yesterday.  Hope to eat healthy this week and lose this bloating.  My "job" this morning is to deal with a car issue.  A motor shield of some sort has come loose and is hanging almost to the ground.  It's very light.  I can push it up into place easily but dh doesn't have the right kind of fastener to put it back into place.  So off to the Toyota dealer after breakfast.  DH has a dr. apptment.   

    Then this afternoon my niece is stopping off at my mother's house on the way to MS to return her two older children to their father.  She had them with her for Easter.  I haven't seen them in several months and haven't seen her youngest child for a while, so I'm planning to go to my mother's house to visit with them a little while. 

    Sandra, I'm so glad you went to the beach!  You deserve some relaxing "me" time. 

    Happy Monday.

  • Suzannecarol
    Suzannecarol Posts: 34
    edited April 2015

    I really like that quot Jackie.

  • puffin2014
    puffin2014 Posts: 979
    edited April 2015

    Sunshine: my friend recently had a BMX. She moved her frequently used glasses, bowls and plates down to the counter before surgery since she wouldn't be able to reach up into the cupboard post op.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    Suzanne -- that quote is a long time favorite of mine as well.  When I see it --- I sort of go into the 'no man is an island' mode.  We all need each other in some way and one of the interesting parts of life ( not always a nice part ) is that negative people and or events teach us what we don't want or shouldn't be --- so everything on Earth has a reason and a place it fits.  Also why the quote about condemning the sin and not the sinner exists too. 

    I could get into a whole thing about SIN.  Much less of that then a lot of people might think --- in the first Bible written, it was in Aramaic.  Sin ( in that translation ) meant only missing your mark.  In other words --- you meant to do something and it didn't turn out as you meant it.  So -- you missed your mark.  I mention this only in relation mainly to the degree that so many things happen just for our learning in some way --- even if it helps us just to define that we don't wish to behave in a certain way or do certain things.  We just need to be aware and try to SEE the sin a little more than the sinner.  Good conscience of course will steer us just fine in the end. 

    Sunshine -- glad you are getting some good information here.  A lot of these things I thought were standard to a degree, but didn't feel like I could elaborate much since I only had a lumpectomy.  At first though --- I was all far having the total upper part of my body removed almost --- I think now-days, if  possible, many Dr.'s opt if their patients are amenable to it, for breast sparing surgery.  For the reason that treatment is usually the same, outcome is usually the same, and the body's structures can be left mainly un-disturbed making recovery faster.  All depends on where the tumor is, the size and a few other factors.  Thank goodness for the women who went before us so that so much could be learned that has changed a lot in treatment for us later gals. 

    I bet we are all glad Sandra headed for a little extra time on the beach.  Hoping for a great renewal Sandra because you have had so much lately in life and a breather was sorely needed.  All good thoughts to you.

    Carole, hope you really enjoy your visit with the kids.  You were so involved in their life and I bet they are looking forward to the visit as well. 

    See you all later.

    Jackie

  • MomMom
    MomMom Posts: 334
    edited April 2015


    Welcome Sunshine!  You are getting great advice and I agree with whomever here said that chemo is entirely doable.  I had the whole enchilada of chemo as you can see from my signature, and did very well.   I managed to exercise daily through every day of it.  It varies from person to person, but I think it's good to know that not everyone has a  bad experience with it.  Stay strong. 

    Way too much to comment on here from all of your wonderful posts, but I must say Sandra, I enjoyed the photos from your best friend's wedding.  He sounds like the very best kind of a friend to have.  How wonderful that at long last he has found a partner!  Glad you were able to have fun at your beach too. 

    This is a new avatar of me with my new short and curly (in the front anyway) "do".  Just had my second hair cut a few weeks ago, as it was getting too long on the sides & back.  As my hair dresser said, I definitely had a Carol Brady mullet going on!  So true!  Just happy to have hair again.  Ah, what a difference a year makes. 

    Paula

  • mysunshine48
    mysunshine48 Posts: 915
    edited April 2015

    Thank you all for your comments. I am just so nervous about the surgery on Friday.....then chemo. After my sister leaves, I will be by myself. Do you think I can drive to chemo and deal with SE by myself?

  • MomMom
    MomMom Posts: 334
    edited April 2015

    Sunshine,

    I think it best if someone goes with you to chemo as they give you anti-nausea & anti-allergy meds in the infusion, prior to getting the actual drugs, that will make you sleepy.  Just because of that alone, best to have someone stay with you or drop you off and be there when you're done.  Prayers for you that the surgery will go perfectly.

    Paula

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2015

    Paula,

    I sooooo like the new you and there it is --- one of the very best compensations for getting through the chemo treatments --- REALLY brand new hair.  You'll be surprised at how fast you can have bad hair days.  It is sorta funny though more than the horrid way it used to be seen. 

    Sunshine,

    I'm betting you do fine in your surgery.  It is the things that come when you don't have help that will likely create issues if there are any.  Just be sure your medical team is highly aware of the fact that you will go through the biggest part of this journey you never wanted to take, pretty much all alone.  As someone here mentioned --- find out if their is a patient Avon Navigator where you will be going -- she can help you tremendously with resources if needed and will guide you every step of the way.  I had a Navigator --- and that was in 2007 and we still email each other as we became so close during that period of surgery and treatments.  Here's the kicker --- she kept helping me even though I got all my chemo through the V.A. at the V.A. Hospital and did not use the Women's Breast Center where she was located. 

    If there is not a navigator it may be possible that the American Cancer Society can find you someone to "buddy" with who has been through all you will go through and can help you out with what to expect.  Also possible resources that you can avail yourself of as needed.  I did have a husband that drove me and I am so glad that he did, but on almost all the occasions we went ( once every three weeks ) for the most part -- save for once or twice, I could have done it myself.  Doing chemo has cycles to it.  It is also cumulative.  Only meaning that when it is time to have more chemo --- most people are in the UP cycle -- feeling fine.  The low part of the  cycle usually comes within 3 or so days after treatment.  It will last maybe four to y days and then you are returning to the UP part of the cycle again. 

    Anything you have never done can seem sooo ominous, and it was for me.  After a couple of chemo treatments I really wondered  why I allowed myself to be so scared.  I think it is still very good to be aware and a bit watchful, but at the same time, once you have done these things a time or two you'll be able to better judge just how things will likely be and what preparations you might need to think about.  Still, do let those who are treating you know ( have a head's up ) how your situation as far as home care etc. will be.  There may be things they can clue you in on and be able to save you some anxieties.

    Blessings,

    Jackie