Can we have a forum for "older" people with bc?

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  • chisandy
    chisandy Posts: 11,666
    edited April 2016

    Bob insists I not buy him that second pair--“What if these turn out to be uncomfortable?I wouldn’t want to extend their lifespan. What if I want something more fashionable when these wear out?” I swear, he will look for any excuse not to spend money on himself. He got that from his late dad. When his dad needed new walking shoes, he bought one pair on sale. Unbeknownst to him, I bought a second, and hid them in my closet. When his dad died before wearing out the first pair, Bob found the second pair fit him--and he wore them till the soles began falling off. He has a pair of Mephistos--he kept the last pair going for 12 years by constantly getting them re-soled and reconditioned under the warranty, until the factory sent them back as irreparable. They’re not as comfy as the NBs, but they can still be restored. And even though he complains whenever he wears his dress shoes that they’re pinching his feet, he won’t buy a pair that fits, because “I only wear them a few times a year for a couple of hours at a time.” I have to keep checking his closet for frayed cuffs on his Dockers and secretly replace them so he doesn’t notice.

    Yet he doesn’t object to paying $70 for a bottle of cognac or artisanal vodka, $80 (incl. $15 tip) for a haircut from his favorite barber, or when I buy spare sets of compression sleeves & gauntlets so I don’t have to wash & dry them often them on long trips.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2016

    When we pay attention to nature's music, we find that everything on the Earth contributes to its harmony.

    Hazrat Inayat Khan

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2016

    Chi Sandy,

    Too funny -- in a way. I think this is why men really need women on the one hand. They seem to have a big habit of making their life way too simple because they have no notion that too much simplicity throws you the other way -- with frayed cuffs, worn down heels making the good you might have done far too exaggerated in the end. I see Dh here not always seeing the "end" product of some of his actions though I have to admit, a whole lot of the time he is almost the opposite. Has more clothes and shoes then I do--but the end product on that is --- toss out or give away ill fitting now, or un-used in ages clothing, not until the closet explodes from all that is crammed in there. Sigh !!!!!

    Beautiful again today. Keep saying we will get rain, but while there is not the sunshiny morning ( a bit of muted sun ) that we have been having, the balmy air is hanging in there so Capri's again today for me.

    I have a busy morning but will likely be back later.

    Jackie

  • chisandy
    chisandy Posts: 11,666
    edited April 2016

    We had thunder & hail last night--Bob was sure that the roof of the car would get hail damage, but it came through unscathed. Going down to Minooka in a couple hrs. to pick up my friend. Tonight we’ll stay at the Oak Lawn Hilton for a Girls’ Night Out/Last Hurrah before she goes NPO at midnight--sometime tomorrow morning (we don’t have a time yet) we have to be at Christ Hospital for her BMX. (Her surgeon pushed for a BLX--the left breast has multifocal grade 3 DCIS, the other just ADH--but she’s adamant about wanting to get bc behind her even though it’s not an absolute guarantee). They’re keeping her in till Fri.; I’ll stay with her overnight at her house till the handoff to her next-door neighbor on Sat.

    For a political junkie, tonight will be challenging--we have to turn in early, and she doesn’t care about news so no watching primary coverage on CNN (the hotel doesn’t have MSNBC). Good thing there’s nothing I want to watch Fri. (Bill Maher’s taking the week off), since she ditched her TV. I will also be bringing my mini-Keurig and K-cups, because the only coffee in her house is instant decaf--she doesn’t even own a coffeepot. Wish me luck--and be in her pocket.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2016

    ChiSandy, you got it. bummer about missing the first hand tallies from tonight. Hope your friend meets with a smooth no problems surgery. Also a good recovery. Your a good friend to keep her company through this period. Like you, I would have to carry a coffee pot and real coffee in order for me to have any effectiveness at all. Lots of positive energies for you and your friend.

    Jackie

  • sandra4611
    sandra4611 Posts: 1,750
    edited April 2016

    Ryan was supposed to go see the people at the rehab/psych facility on Monday. He said he didn't set his alarm. Promised to go today. Found out this evening that he didn't go. He said his girlfriend tried to commit suicide and is in the hospital. Good enough reason, but...

    Running out of hope

  • chisandy
    chisandy Posts: 11,666
    edited April 2016

    Talk about CrazyTown. We had dinner & drinks tonight and Bob was able to drop by en route home. My friend and I gave each other earplugs so as not to hear each other snore--we have to be up early tomorrow as her first procedure is at 9 am.

    Unfortunately, the earplugs are doing nada to drown out what's going on one room over. Remember that Paul Simon song "Duncan?" ("Couple in the next room, bound to win a prize--they been goin' at it all night long"). Well, I'm tryin' to get some sleep, but THESE hotel walls ain't cheap--for $200 (in a suburb, no less) we expect a little quiet!

    From what we could see on the TVsin the bar, no electoral surprises. Waiting for three weeks of e-mail to finish downloading--so I'm typing this in the loo on my iPad. Check bank in with you tomorrow.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2016

    The only way to live is to accept each minute
    as an unrepeatable miracle, which is exactly
    what it is: a miracle and unrepeatable.

    Storm Jameson

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2016

    It is a wet morning here. Rain late yesterday -- a soaker, and more this morning. Stopped for now, but we are not through. It won't affect our temperatures much so we will just have to wait and see. Sandra, I am thinking of you and saying lots of prayers. All we much ever have is hope that things that are beneficial will work out. As usual no amt. of that can influence anyone to do what they NEED to do. Still, I am hoping for Ryan's sake as you are that he can get this done.

    Chi -- sounds like a horrid night for you. You are right -- for $200.00 a night those walls should have been sound-proofed.

    Hoping for a really good day. In that, I just wish to stay mainly dry.

    Jackie

  • VSB2015
    VSB2015 Posts: 20
    edited April 2016

    To anyone living in US, I just ordered a wig and it seems Medicare does not cover or even contribute to the cost of a wig. Is this true?

  • carolehalston
    carolehalston Posts: 9,175
    edited April 2016

    Just made a quick trip to the Piggly Wiggly to buy apple sauce, apple juice, bread, bananas, sports drink. Food recommended for after-stomach- virus nutrition. I just got over the virus I picked up from my mother and other elderly patients at the nursing home. DH came down with it last night and is resting in bed. I just did some research about the virus and learned that it's normal that my stomach still isn't comfortable dealing with food.

    I'm normally a politics junkie but this Presidential election has me watching H&G instead of MSNBC and CNN. It's all too much coverage. I'm so tired of all the candidates, even the one I half-way support, that I hate the thought of seeing any one of them for four more years! I've talked to a lot of people who wish we had a None of the Above selection when we vote in Nov.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2016

    Carole,

    I've always heard ( when the stomach is queasy ) to use the white food diet -- potatoes, eggs, bananas, white toast, as it is supposed to be very easily digestible foods.

    Assuming the H and G is maybe House & Garden. Here it is called HGTV -- so not sure. We watch that a lot here too. As I'm something of a political junkie too, while I can't say I'm thrilled about a lot of what is going on in politics this yr. I'm far from blacking it out. Still I will attest to extreme annoyance this yr. for sure since it has been upended with the you're fired guy -- really sick of him.

    Jackie

  • wren44
    wren44 Posts: 8,105
    edited April 2016

    Our TV station had a clip of Christie's wife reacting to his woman card remark. Nice eye roll and trying not to laugh.

  • bonnets
    bonnets Posts: 737
    edited April 2016

    Beautiful day after rain yesterday, which we really need. There is a brush fire on the ridge not far from here that has so far burned 2,000 acres!

    Went to go to my senior players group rehearsal and the darned car was deader than a doornail. Put a new battery in this winter when ity was dead and below zero, it's not that, these fancy keyless cars. The start light doesn't go off and the motor is making a high humm. Spent the last hour with Mitsubisi getting a tow arranged .Waiting for them `now.

    Tomorrow go to my surgeon to discuss My Gallbladder sono and possible surgery. If I do the surgery will be Tuesday. Hopefully laparascopic . That will give me almost 4 weeks before we are supposed to leave for a cruise on Chesapeak Bay. Hopefully that won't be a problem. Any one had that surgery?

    Got 2 funerals this weekend, DH cousins wife Friday and friend from church on Saturday. Growing old is such fun!

    Chi, My hubby is stubborn too, the usual reply when I suggest new clothes is "I don't need it!" I tell him he doesn't have to need it, can get something he just likes. No! rather wear the same ole , same ole, T shirts or flannel shirts. Actually convinced him to get a second pair of sneakers the other day!

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2016

    Eye role - roll

    Smile

    Jackie

  • chisandy
    chisandy Posts: 11,666
    edited April 2016

    Bonnets, I was going out to dinner four days after my lap-choly, and driving within a week. You'll likely even go home the same day if you are early on the schedule

  • carolehalston
    carolehalston Posts: 9,175
    edited April 2016

    HGTV--that's the channel, Jackie. Yesterday I watched Fixer Uppers. It's amazing what a person with some design and decorating skill can do with a small dated house. It makes me want to bring somebody in to redo my house!

    We're having a lovely rain. A perfect kind of day for dh to rest and recuperate.

    Bonnets, good luck with the surgery. Very irritating, your car not starting. I love the keyless function. Occasionally I climb into my Prius, press the button and realize I forgot to drop the key into my handbag.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2016

    Carole, I am always amazed at how creative most of the people are on HGTV. Dh and I watch a lot of that program. Of course, I know what you don't 'view' behind the scenes as it is all happening ( mistakes and all ) make it all look un-complicated and they do such great transformations. Of course, within that is often the moving of a doorway or putting a whole kitchen where it has never been --- but I almost never watch one of those programs without wishing for a huge lottery win so I could find a designer and crew to come put my house back together. A few things were 'dated' when we bought the house, but not badly. We have been here nearly 14 yrs. now and those previous plus several more are not quite dated and stale. I'll keep my fingers crossed.

    I don't have a keyless car, but I do have one where the key is a funny straight piece of metal with a couple of cut out areas. It fits in the fob/handle and you push a button to make the key come out or go back in. A couple of times, once when the key was in the ignition still and once when Dh was sitting inside, I got out, shut the door and all the doors locked on me. Not a cool thing to have happen with the keys still in the car. Going to have to go down to the dealership and find out what gives. Don't like thinking I need to have my car keys in hand ALL the time, or at least any time that you might exit the car but ordinarily would not take the key ( like when I stop at our mailbox on the main road, or get out to feed the feral cats ) and feel the door needs to be closed. I also don't wish to have a third key to hide. Most of these newer cars don't have good hiding areas as we tried that with my old Blazer and it didn't have decent spots. You had to be a contortionist.

    Sunny day for tomorrow I'm told. That is nice. I've been getting a little extra work. My little patient is in the hospital again. UTI which I think happens rather easily to some of the older folk. We will see. After, I think another re-hab stay will likely need to happen.

    Jackie

  • chisandy
    chisandy Posts: 11,666
    edited April 2016

    Awful cold, gray, rainy, windy day. Good one to stay cooped up in the Family Surgical Waiting Room. My friend made it through her BMX just fine--all nodes negative. Didn't look like there was anything but DCIS & ADH. If that pans out in the final path report, she's done with treatment--no rads, chemo or hormonal therapy, just concentrate on recovery.

    Gordy is having a blast down in NOLA for Jazz & Heritage Fest. Tonight he ate at Arnaud's. Tomorrow, he'll see my friend (and once & future houseguest) Gina Forsyth play fiddle in Bruce Daigrepont's Cajun band. I think he also has tix at Tipitina's one night, Snug Harbor & Spotted Cat another.

    Bob & I are holed up here in the Oak Lawn Hilton till he releases my friend (he's her PCP) on Fri. This way he can go in early to read EKGs and finish early enough for Hospitality Hour in the hotel's concierge lounge--then it's off to dinner at Cooper's Hawk.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2016

    People who are "being" are fully present. They are totally engaged
    in the moment. This engagement includes an easy appreciation
    and sense of connection with whomever or whatever they are
    relating to at the time. These people are aware of a job well
    done or a difficulty surmounted and will respect and often
    acknowledge the person who has accomplished it. "Being" is a
    state of heart and mind that is receptive and able to listen carefully.

    Sallirae Henderson

  • Chevyboy
    Chevyboy Posts: 10,258
    edited April 2016

    Jackie, my Chevy Cruz has the same type of key fob... I push buttons to open and lock the car... But if my key is in the ignition, and I turn my car off, once in park, and open the door, the bell (warning sound) comes on until I remove the key. It doesn't lock by itself... When I am sitting in the car I DO push the lock button on the dash... like if I am waiting for DH to come back out... When I put the car into any gear, the doors lock.

    I carry an extra key-fob, which I ordered from the dealer, and then he had to program it... It's always in my purse.... just in case.

    Yesterday, I put the emergency brake on, while I was on a hill.... THEN when I started to leave, that dang warning sound, AND light went NUTS! So then I remembered the brake... and released it.... Kind of funny.... the car is smarter than I am!


  • anneb1149
    anneb1149 Posts: 821
    edited April 2016

    Morning all, VSGB- sorry if I got the name wrong- it's on the previous page. I think the trick with the wig is the same as for bras- you have to get a prescription for it to get MedicaRe to pay for it. I've even heard the correct wording for it and most wig places should know how to word it.

    I am aLso a big fan of HGTV, Property Brothers being my favorite. A friend of mine recently went on a cruise they were on. She said they are just as much fun off the camera as they are on. The only thing that bothers me is the continuous repetition of the same four shows- Fixer Upper, Property Brothers, Like it or List it, and Flip or Flop, with a few HouseHunters thrown in. When I first started watching, they had different shows all day, like Designer Challenge- where 3 designers would present the people with their ideas to redo whatever room, then they had to choose which option thy liked best, they also had another that I can't remember the name of, where the spouses had very different ideas of what the wanted and the designer had to figure out how to please them both.

    Sandra - Ryan's reluctance to get help must be very frustrating. As I've said, one of my DD's has had some emotional problems. One night ( she was about 17), she came into my room, crying that she couldn't stop the voices in her head. For some reason, I never aSked what the voices were saying, but begged her to give me 24 hrs. I had no idea where to start, and didn't want to make the situation worse. I went to work at my school, and went in to the administrators, whom I haD great respect for. They told me to make sure wherever we went that they knew my DD's issues were emotional- not drug or alcohol related. She was there for less than 48 hrs when they called us to come pick her up- I was astounded- I said she's a minor and you haven't even talked to us to get some background on why she ended up here? They said that's right- she "says" she no longer feels like she's a danger to herself or others, so we can't keep her. She said that mainly because she was a minor and was not allowed to smoke. Second time pretty much was the same. I finaLly took her to a private psychiatrist who said she had Borderline Personality Disorder, Narcissistic Disorder and PTSD. I could recognize the signs of all of them when I knew whAt to look for. He tried to put her on meds, but even when I taped them to her toothbrush, she refused to take them. There were several years of very scAry situations with her. She went from living with one guy after another, until she started dating the guy responsible for the PTSD again, And three weeks later was pregnant with my precious Victoria, and has been with him since then and as you know, just gave birth to her third child. They live a very unconventional life- right now living in a warehouse with plans to move to the middle of no where and live in old box cars. She also experimented with many drugs, and snuck out of the house at night. She became pregnant but the same guy at 15, but had aN abortion, which I didn't know about for many years.Other than the plans to move away from society and be survivalists, she has been mostly stable since Victoria's birth. There have been some scary times, one of them being her beating the crap out of her new husband outside of the reception hall on their wedding day. But over all, she is pretty stable. Right now I am a little worried aBout her, becaUse she has taken zero time to recover from Alexandria's birth a month ago. Alex is eating every hour to hour and a half, and my DD retuned to life as usual within 4 hours of leAving the hospitAl.

    Other thaN that, todaY is my oldest grAndson's 17th birthday, aNd we are all going out to eat at Outback tonight. He is definitely becoming a young man, with a lot of common sense and maturity. We were laughing last night about the night I was reading a book to him, and I stopped for some reason, aNd he finished reading the book to me. He wasn't even 3 years old. And it was not a book we read all he time, so I knew he hadn't memorize it.

    Places to go and things to do....

    Anne

  • carolehalston
    carolehalston Posts: 9,175
    edited April 2016

    My Prius will not lock the doors when the "key" (actually a small remote with lock and unlock buttons) is in the car. So you can't lock your "key" in the car.

    DH is much better today and ate a bland breakfast this morning. BUT...the a/c doesn't seem to be cooling the house. The a/c man has promised to try to make it here this afternoon. I'm hoping the unit is low on Freon.

    ChiSandy, your son may have chosen the wrong weekend for Jazz Fest. Last weekend was perfect weather but this weekend there's some chance of rain. However, nothing dampens the enthusiasm of Jazz Fest attendees. We live 45 minutes away and don't go. We have gone in the past. The crowds are huge and the food is very pricey. We've become "old fogeys"! Blue grass festivals are more our speed.

    Fortunately, it's a rainy, overcast day. Hoping the sun doesn't come out to heat things up with the a/c not working.

  • bonnets
    bonnets Posts: 737
    edited April 2016

    Hi Ladies, starting to cloud up here. Rain again tonight.

    Went to the surgeon this morning, GB surgery is scheduled for Tuesday. Hope it's not much worse than when I had my tubes tied, also laparoscopic. Also hoping after that it doesn't make my IBSD worse. Have read some people have diarrhea as a side effect!

    Need to call and see if they found out what is the matter with my car. Also is a keyless, was dead yesterday. The battery is only about 2 or 3 months old, so it shudn't be that. Probably haven't put 500 miles on it since it was put in. Keyless took some getting used to.

  • wren44
    wren44 Posts: 8,105
    edited April 2016

    Bonnets, I'm with you. I am so tired of looking at plaid flannel shirts!

    Chi Sandy, Ooooh, Arnauds. Some of the best food I've ever eaten.

  • ade
    ade Posts: 724
    edited April 2016

    I recon I'm the new girl on the block here. I was diagnosed with Mucinous Carcinoma in November with a lumpectomy that was "surely just a cyst", had a bilateral mastectomy right after Christmas, and was on Letrozol January through mid April.

    I lost my insurance due to my husband turning 65 & his going on Medicare but in May I will be 65, eligible for Medicare, and can return to my oncologist to discuss med changes.

    I HAD to go off the Letrozol because I couldn't take the mental and physical pain & turmoil. It was AWFUL! I became so I didn't even care if I lived anymore. I have a very loving family & church folks but just couldn't cope anymore. I feel SO much better OFF the meds now. A friend had the same intolerance and was switched to Aromasin and is doing much better, which gives me some hope at least.

    I have felt quite alone as healthy folks, though they love you, don't understand where you are. This is why I sought out this site...to find some 'birds of a feather'.

    Had anyone had these problems taking hormone therapy? I think that if all of the meds do this to me I will have to stop taking them altogether - and I wonder what my chances of the cancer coming back would be then. Meanwhile I hope my oncology visit in a week will shine some light on the problem.

    Hope to get to know you. :O)

  • Chevyboy
    Chevyboy Posts: 10,258
    edited April 2016

    Hi Ade! I think some of us do well on one thing, but other's don't! I mean SE's happen, even though we read the insert, and like me, I don't believe any of that will happen to me.... I couldn't take Tamoxifen....Lost my hearing from a stroke near the 8th cranial nerve in my brain-stem. But I know others who find they can take it with no problems! It even SAYS "stroke" is one of the possibilities....

    We are all different.... if one doesn't work, maybe another one will... As for me, that experience scared me so much I wouldn't even TRY anything else..... and that's all our own choice. BTW.... what is "GB" surgery?

    Bonnets... sounds like something is draining your battery? A Dealer should be able to diagnose that pretty fast.

    Carole, it's "rainy, snowy, and cold" here.... Ha! Supposed to have this for about 3-4 more days.... Yuk!

  • bonnets
    bonnets Posts: 737
    edited April 2016

    Chevy, GB, gall Bladder surgery! Hoping I don't have any of the lingering side effects, what with my IBSD. They called on the car, can't find anything wrong, but this is the second time in 3 or 4 months this is happened. Only drive it a couple of times a week. Somethings gotta be doing it.

  • illinoislady
    illinoislady Posts: 46,506
    edited April 2016

    Hi ADE, and welcome. I did find pretty much on my 5 yr. pill so I wouldn't be a lot of help. We just never know how any body's body is going to handle some of these things. I hope you can find something that will help you and that you can tolerate w/o major issues.

    Bonnets, I don't know how old your car is, but I think some of them ( Dh many yrs. ago was a Mercedes mechanic ) need to get out on the road somewhere and be driven at a fair speed -- maybe 60 or so, for a few miles. I may be talking through the hole in my head, but he is always telling me that I should get on the Interstate more than I do. I have not had the trouble you mention though as when I go very far --- 20 or so miles from here on the 'old' highway, the speeds do change so I'm going faster or slower depending on where I am. Hope that helps.

    Jackie

  • Chevyboy
    Chevyboy Posts: 10,258
    edited April 2016

    Okay Bonnets.... got it.... (GBS).... Yikes! It will be over pretty soon....! About your car....I looked up what it could be.... If it does this a lot, even though your battery is pretty new, it COULD be a bad cell in it.... OR the alternator is bad.... but if you took it in, they should know.... right? Leaving a dome light on, might do it also.... So it might just be in the battery itself.... and needs to be replaced.

    Yes Jackie.... I remember DH telling me we have to run it FAST! ("To burn the bugs out")..... Those guys were so full of chit! Their middle name is "speed".... Fast is always better.... so many times on the high-way, fishtailing amidst my screams..... Sometimes wouldn't you just like to get out that iron-skillet & let them have it? Funny how things all settle down, when they get older.... Their brains become engaged again, and common sense takes over.