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  • my560sel
    my560sel Member Posts: 399
    edited December 2009

    Dlb, I don't think he's had that test. I know my DH is slightly diabetic and on pills for that as well. So many pills, surely there must be a better way! I'll look into that coronary calcium test for him...thanks for the info.

    Terri

  • deni63
    deni63 Member Posts: 372
    edited December 2009

    Merilee - the matcha bags are a bit powdery. Here is a link to their site. It actually costs less in Fairway than on their site. But, if you buy from them in bulk, which I will probably do the next time I need some, it is less expensive still.

    http://www.republicoftea.com/templates/detail.asp?navID=1833

    Terri - you and your DH should watch the video "Raw for 30 Days". It documents 5 or 6 individuals with various degrees of diabetes. They take out of their regular environment and bring them to a healing center and putting them on a raw food diet for 30 days. When the 30 days is finished, their diabetes is substantially better or gone. Very interesting film. Here is a trailer on You Tube...

    http://www.youtube.com/watch?v=jSuqCMld00w

  • Merilee
    Merilee Member Posts: 734
    edited December 2009

    Deni

    Thanks for the tea site. I just ordered some.:)

  • deni63
    deni63 Member Posts: 372
    edited December 2009

    The tea is excellent. And, you can easily get 3-4 cups out of just one bag. Let me know how you like it!

  • dghoff
    dghoff Member Posts: 236
    edited December 2009

    Deni, I saw that Raw for 30 Movie as well! So fascinating what a simple diet change did for those people! 

    Fairy, thanks so much for posting that info on cholesterol. It's really amazing how everything is so interconnected. Who knew cholesterol had anything to do with breast cancer? I sure didn't!

  • my560sel
    my560sel Member Posts: 399
    edited December 2009

    Deni, thanks for the video...very interesting. I just emailed it to my DH who's on his laptop at the moment. I know what his reaction will be because although he does eat fairly well, he's in no way going to start eating 100% raw. But at least it'll give him something to think about.

    Terri

  • daffodil45
    daffodil45 Member Posts: 18
    edited December 2009

    Vivre,

    Thank you, you are the only response! I do bounce on a huge ball for the lymphatics, and do manual massage,etc. My issue is water retention. I am 46, and feel like I am supposed to audition for "Charlie &the Chocolate Factory" I am swelling up like a balloon. I am drinking water, and green tea, kombucha tea like crazy. I do have some gyn issues.... bleeding really heavily right now. Maybe that has something to do with it? I am urinating.  Been through "chemopause" twice. Chemo, and Lupron. I am currently on a "Treatment Break" per my onc.

    Anyone have any advise??????

  • althea
    althea Member Posts: 506
    edited December 2009

    terri, I just bumped up a thread I started after reading Dr Ray Strand's book on nutritional medicine.  He explains how we'd benefit from more attention to our homocysteine levels than fretting over cholesterol levels.  A major portion of people suffering heart attacks don't even have high cholesterol. 

    daffodil, I have a rebounder gathering dust.  I'm stubborn about following directions -- I don't want to if the directions require something I don't want to do, in this case wearing shoes.  I used mine barefoot and for some freaky reason that I think is tied to the rebounder, I started having ligament pain in the second toe of my left foot.  Now that it's winter and too cold for flipflops, maybe I'll try it again.  I really liked it aside from the ligament issue.  

    I have some other suggestions for stimulating the lymph system -- I practice abhyanga, which is probably my favorite form of pampering self care.  Basically, it's self massage, rubbing yourself from head to toe with oil.  I use sesame oil or coconut oil.  It's very soothing to my scar tissue from surgery.  I'm 'blessed' with abnormal scar tissue (keloids), which makes scar tissue red, bumpy and uncomfortable.  Plus, we're at risk of developing lymphedema after breast surgery, and I hope that the abhyanga helps keep that at bay also. 

    Those were my reasons for starting.  My top reason for continuing is simply because it's divine. Whatever troubles are following you, they stay outside the door for 30 minutes or more.  Your skin will be soft and moisturized.  Your spirit will be rejuvenated, your body relaxed.  This is pampering self care that anyone can afford.  I highly recommend it.  I found this link with a quick google --  http://www.ayurbalance.com/beauty_massage.htm .  I first learned of it by reading books by Deepak Chopra. 

    Another practice I've adopted is dry skin brushing.  I use a brush made with boar's hair.  googling with bring up many good articles on this.  Our lymph system is throughout our bodies, just below the skin.  I start with my feet and work up, always brushing towards the heart.  Then my arms.  A light touch is all that's needed or desired.  

  • cleomoon
    cleomoon Member Posts: 152
    edited December 2009

    Althea,

    I was just going to post a question about what folks have used to decrease scars. Sesame oil and coconut oil. Why are these good? Anyone have any other suggestions?

  • seaotter
    seaotter Member Posts: 642
    edited December 2009

    Cleo, I used castor oil and really liked it. I massage it on my scars.

    Patty

  • deni63
    deni63 Member Posts: 372
    edited December 2009

    I found this today in Ralph Moss' weekly newsletter:

    In Praise of Seaweed PDF Print E-mail
    Tag it: Delicious Digg ?
    Sunday, 06 December 2009


    The term "seaweed" is imprecise and some people find it deprecatory: why weed, they ask, and not vegetable? I don't agree. The seaweeds are ancient and highly successful plants. They evolved between 150 and 200 million years ago. By comparison, mammals only arrived 70 millions years ago and homo sapiens has been around just 250,000 years. Seaweed actually refers to a large class of multi-cellular marine plants, the red, green and brown algae. (Some people also include blue-green algae in this group.) There are 1,500 to 2,000 species of brown algae alone (Hoek 1995). e in this group.) There are 1,500 to 2,000 species of brown algae alone (Hoek 1995). The seaweeds are ancient and highly successful plants. They evolved between 150 and 200 million years ago. By comparison, mammals only arrived 70 millions years ago and homo sapiens has been around just 250,000 years.


    Seaweed gets a bad rap. There are actually a variety of seaweeds that can be eaten or used in medicine. The one that I am consuming at the moment is Alaria esculenta, which is more commonly known as bladderlocks, dabberlocks or winged kelp. It is similar to the Japanese seaweed called "Wakame," which is best known as the tasty green stuff that floats on the top of miso soup. Alaria is a kelp that grows best in cold northern waters and not surprisingly, therefore is part of the traditional diet in Greenland, Scotland, Iceland and Ireland. In North America it grows in Alaska, Labrador and northern New England.


    Alaria's fronds attach to rocks below the low-water mark and eventually can grow to around 10 feet in length. I recently purchased some alaria from the Maine Seaweed Company. This is a small company run by Larch Hanson of Steuben, Maine and is not to be confused with the much larger Maine Coast Sea Vegetable Company down the coast in Franklin. Larch harvests wild seaweed from the pure waters of Gouldsboro Bay and sells it to serious seaweed lovers via the Internet. I was astonished at the size of the package he sent me.


    Alaria can be eaten raw if it is presoaked and marinated. I tried this, dressing the chopped fronds with sesame oil, lemon juice, tamari sauce and roasted sesame seeds. I liked the taste and texture but it caused some gastric distress. I have now taken to boiling the seaweed for half an hour and then, after it has cooled, trimming away the central stalks. My advice, if you take up the seaweed habit, is to start introducing it into your diet slowly: as you develop a taste for it, you may be tempted to eat it in bulk as you would, say, spinach. You definitely want to let your digestive system adjust to this new and unusual item.


    Seaweed has zero fat and cholesterol and is a good source of beta-carotene (vitamin A), vitamin C, vitamin E (alpha tocopherol), vitamin K, niacin, pantothenic acid and phosphorus, and a very good source of riboflavin, folate, calcium, iron, magnesium, copper and manganese. It is famous for its abundance of iodine. It may surprise you then that I started my seaweed adventures with Alaria esculenta because it has a relatively low iodine content. Since I intend to eat seaweed regularly I do not want to overdose on this necessary, but also potentially toxic, mineral.


    Seaweed can be mixed into a more conventional green salad (such as baby spinach or arugula leaves), green beans, etc. All in all, alaria is a very nice addition to the diet and definitely a dinner conversation piece.

  • Yazmin
    Yazmin Member Posts: 218
    edited December 2009

    Deni: I also received this same newsletter from Dr. Moss today, Hee Hee Hee Smile

    I have been using seaweed in with my poached eggs in the morning, and find it delicious. But Anomdenet said it is impossible to find uncontaminated seaweed nowadays, and I am kind of worried about that....

  • deni63
    deni63 Member Posts: 372
    edited December 2009

    I worry about that too. Plus, the wild salmon and other fish that I eat about once a week. I'm sure there is contamination there too. How could there not be? Is it better to get the omega 3 benefit from the fish or to avoid it and take supplements instead? Yet another point of confusion and controversy!

  • my560sel
    my560sel Member Posts: 399
    edited December 2009

    In my quest to find out what's going on with my blood, I've come across this article and thought it might interest some of you. I was particularly interested in the fact that cruciferous vegetables are blood thinners and my taking DIM. As you know, I've since stopped everything except my Vit D3 until after my surgery and I'll probably stop the Vit D one week before the surgery. Could it have been the DIM, Turmeric and fish oil that caused my blood tests to be so low?

    http://www.ctds.info/natthinners.html

    Terri

  • althea
    althea Member Posts: 506
    edited December 2009

    cleo, If you can't eat it, don't put it on your skin -- that's an ad slogan for some organic skin care products I've seen, but it's something I'm incorporating into my lifestyle.  As if food isn't complicated enough, just look at some the ingredients for skin care!  jeepers alive.  Mineral oil is a petroleum product, and that's just the launching pad into a slew of unpronouncable and artificial ingredients.  We have literally tens of thousands of chemicals in our every day lives.  Only a handful of these chemicals have been studied individually, and even less information is available regarding the results of chemicals being mixed together. I'm placing my faith in Mother Nature.  

    In my own experience, I can only tell you how much better my skin looks and feels when I use the natural products.  I find extra virgin organic coconut oil  at the Vitamin Shoppe.  I use it inside and out.  I keep a big container in the bathroom for my skin, and another one in the kitchen for cooking.  

  • Merilee
    Merilee Member Posts: 734
    edited December 2009

    I am having a full body scan today at noon. Positive light in my direction once again would be appreciated.

  • deni63
    deni63 Member Posts: 372
    edited December 2009

    I spent at least the last 20 years before dx using baby oil on my skin after I showered. As soon as I was dx'd and really paid attention to what it was, I stopped that practice immediately. 20 years of my skin soaking that up! YIKES. It is scary to think of what i was doing to myself, quite innocently, in so many ways.

    Merilee - positive light shining brightly in your direction!! I had a full body scan a couple of months ago. It wasn't too bad. It will give you some piece of mind when everything comes back negative!

  • robyn33
    robyn33 Member Posts: 16
    edited December 2009

    Merilee,

    Prayers and positive vibes to you today!  Deni's right--you'll be celebrating when your scan comes back clean!  :-)  (((HUG))).

    Robyn

  • Suzanne3131
    Suzanne3131 Member Posts: 2,000
    edited December 2009

    Hi all!  I have been reading this thread for a while now, and have found so much wisdom in your posts!  I have recently adopted DIM, kelp and D3 as part of my daily supplements.  I am finishing up my radiation tx this week.  I am concerned that my ordinarily super-low blood pressure (seriously, like 100/50) has shot up to 130/85!  I feel good, but am now concerned that I am causing myself some harm.  What do you think?

  • my560sel
    my560sel Member Posts: 399
    edited December 2009

    Merilee: Positive light being sent your way....!

  • PS73
    PS73 Member Posts: 171
    edited December 2009

    Merliee - good luck!  Lots of good white/pink/golden light your way.

    Terri -  regarding your post - Could it have been the DIM, Turmeric and fish oil that caused my blood tests to be so low?  Are you talking about the INR test for blood clotting issues?  I have blood clots and have to have my blood INR tested every week.  The INR is low to high, and normal is 2-3.  If your number is lower than 2, your blood is considered too thick.  Because of my clot issues with my port, I have not been able to really supplement the way I need to.  I am almost done and getting my port out in two weeks.  I did not do the DIM or 13C yet because vitamin K will make your blood thicker and dim/13C has loads of vitamin K in - I had started at 0.5 after being taken to the ER for the clot issues - arm swelling, pain in the neck, very prominant veins.  There are natural blood thinners that I am looking into as an alternate once I have my port out and go on the DIM or 13C because this is now a concern regarding the vitamin K since I am prone to clotting issues.  I know aloe is a thinner but I need to look at that list you provided and get some stuff in line for myself... 

    Here is a link to some INR info.

    http://www.medterms.com/script/main/art.asp?articlekey=9185

  • seaotter
    seaotter Member Posts: 642
    edited December 2009

    Hey ladies. What is a full body scan? Are you talking pet, mri, ct or something else. I want one but my surgeon or (my fired) onc will not order one because they said they don't work very well. What say you ladies???

    Patty

  • Jennyi1
    Jennyi1 Member Posts: 81
    edited December 2009

    Good morning LadiesSmile

    Whew, talk about a busy 2 weeks for me, with the Holidays, family over, ALL of my different MD appointments, kids, etc, etcSmile.

    Way to go SpringSmile, I am glad that you are up and walking and doing great. I will keep sending healing light your way.

    Deni-Hope DH is still doing ok, ((((Big Hug)))) and positive vibes.

    Crunchi-That is great news about 1st surgery. Keep thinking positive and healing thoughts for 2nd oneSmile.

    Merilee-I hope your scan comes back clean and clear. I had my CT scan last Tuesday and thankfully, it was all clear,yipppeeee, but talk about the anxiety while waiting for the results, jeez.

    Pill-Sooo sorry about what happened to you, that was just plain MEANFrown, I had my initial Rads consultation last Thursday and of course, asked several questions...One in particular question I asked, is there any study regarding double mastectomy and the need for radiation?(he told me the statistical % of Rads vs no RADS-he said that I have a 35% chance of recur without and 5-8% with RADS) He showed me a 20 year old Danish study in a medical book???? Ummm, I asked, is there any RECENT study regarding this?.....He showed me a 10 YEAR OLD Danish study???? HMMM,  is that the most recent there is or is that the most recent that YOU have on hand? I asked. He told me that that was the most recent one there is???? (Hmmm, I don't think so), so, I nicely rolled my eyes and asked if ANY of these studies have anything to do with Triple Negative BC? He replied, "No", it is a study with "women in general that has BC". I sighed....(this kept me from sneering). I did let him proceed (with his used car salesman approach to selling me Rads) and he told me that since my BC was on the Right side, I would not have to worry about the Heart being affected by rads, but 5% of my lung would be affected. Ummm, no it won't, I will not be doing RADS (at least not by him). Another reason that I will not be going to him: While I was asking one of my many questions, he made the comment that "WHEN" I have a recur, I stopped him and said "IF" and I told him that that is a very tiny tiny "IF"Smile. Anywho, I have a call in to my Onco to see if he can give me another referral, hopefully to one that has a better outlook on BC recur and has some sort of  updated knowledge re: TNBC. I'll keep ya'll posted. 

    DeAnn-Your video is absolutely Beautiful!!! Thank you for sharing.

    Boy, I need to stop missing a couple of days on this site, It moves(But I love itSmile)

    Hugs to all

    Jenny. 

  • fairy49
    fairy49 Member Posts: 536
    edited December 2009

    Merilee, positive vibes coming at you lady!!!

    L

    ox

  • Yazmin
    Yazmin Member Posts: 218
    edited December 2009

    Merilee: Positive vibes being sent right NOW....

  • c3353
    c3353 Member Posts: 2
    edited December 2009

    Hi ladies,

    I am a Newbie and I will start radiation sometime this month. I am so glad to hear that there are several woman that are not on Tamoxifen. I decided not to take it and had to hear all the backlash about it. So I am very grateful to read the different comments and the support of other women that have chosen not to take it. Thanks to you all.

    Kim

  • Yazmin
    Yazmin Member Posts: 218
    edited December 2009

    Welcome, c3353. Yes, there are many of us here who have turned down Tamoxifen, including myself, 4 years ago.....

  • Yazmin
    Yazmin Member Posts: 218
    edited December 2009

    Also: Does anybody know anything about the Block Center for Integrative Oncology?

    http://www.blockmd.com/aboutus.htm

    I am looking for a one-stop type integrative (and integrative only) cancer treatment center for possible follow-up check-ups. I contacted the Cancer Treatment Centers of America, and was told that they cannot help me if I don't have an active cancer!

  • deni63
    deni63 Member Posts: 372
    edited December 2009

    Jenny - good for you for questioning the validity of a 20 year old study. Boy, did he have to dust off his book before he showed that study to you?

    Yaz - They were talking about the Block Center on another thread (I don't remember which off hand). There were mixed opinions about it. I have heard of a Mitchell Gaynor in NYC. My gyno told me he is one of the most well known integrative oncs around. Here is his site if you are interested.

    http://www.gaynoroncology.com/

  • Yazmin
    Yazmin Member Posts: 218
    edited December 2009

    OH, THANKS SO MUCH, DENI!!!! I have been wondering about Mitchell Gaynor, and here you are, with this info! I am sooooo grateful. And so happy I am on this side of the forum......