natural girls
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Julia: It was good to hear from you. Post whenever you feel you want to. Take care. Mandy
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Thanks, girls... Raili, I'm sorry you've been going through a tough time too... I don't really have a good outlet for my feelings. Last year I lost about a dozen of my very closest friends. My husband is a good sounding-board, but I can't vent all the time about everything to him.
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OMG Raili! You are getting there! It may not seem like it, but you really are healing. I too had my aha moment while doing yoga. There was something so releasing about simply putting my hands on my sternum, in prayer pose. It was the first time I was able to cry, and it gave me such a release. It still took me months of walking to come to terms with all my issues, but I did. For many of us, the emotional trauma of cancer is much harder than the physical part. But it is essential that we heal our souls, or like Dr. S-S says, we will never be well. His book is definitely a must read for everyone.
You gals, still healing all you emotional scars, keep plugging away, but give yourself time. You need to deal with all the anger, remorse, emotional pain, etc etc. But eventually you will find the silver lining in all of these clouds. I know I did, and I am so close to saying, I am glad I got cancer. Blessings to you all.
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Thanks so much, Vivre. Hugs to you!
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Raili, my heart goes out to you. I really admire your yoga teacher - how wise and nurturing she is.
Ladies, our girl Fairy is having a follow up MRI today. Please send her some natural girls energy.
Here is an interesting article about freezing tumors
Cryoablation (also called cryosurgery) is a "new" treatment for breast cancer that has been waiting in the wings for decades. While fairly often used in prostate cancer, the use of cold probes to destroy breast or other types of tumors has never been widely accepted. Recently, however, the University of Michigan Comprehensive Cancer Center announced some very exciting results. They found that quickly freezing a tumor not only kills that tumor but also stops the spread of the disease. With rapid freezing, there was improved survival compared to surgery alone..
http://www.cancerdecisions.com/content/view/416/2/lang,english/
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Fairy...I just know your MRI will be fine! At least you will have it behind you and the results very soon and then you can RELAX!:) We rely on you. We need you to be fine. Just keep reminding yourself that whether you are having follow up tests or not, you have prayers going up for you on a very regular basis.
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Lorraine ~ You're in my prayers this a.m.! Deanna
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Greetings! I am new to this site. You all seem to be extremely supportive AND open-minded!! Can someone tell me who is Dr. S-S?? And the name of her book? Many thanks.
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Fairy, all your Fairy Godmothers are at work today. You are in our prayers, but we know it will all be fine. Get it done and detox that junk out!
Welcome Lava, S-S is Dr. David SeverinScheiber who wrote "Anti Cancer". He has had brain cancer twice and battling it for almost twenty years with a lot of natural health weapons. It is a must read.
PS, they have known for ages that extreme heat, and extreme cold kills cancer. It is kinda infuriating that these safer alternatives are not given more credence. A drug seems to get out there quickly, even if it only has a 50% success rate but anything that is not drug related seems to be deemed useless unless it is a 100% cure. URGGGGH!
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hi lava! Dr. David Servan-Schrieber, and the book is Anticancer.
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Lorraine -
Thinking of you today! Praying for good news.
Beth
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Lorraine - Sending prayers and positive vibes your way...
Terri
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You girls rock!!! All done! It was horrid, I simply have the hardest time staying still! They couldn't find a vein, that took FOREVER! The last 5 mins were the worst, I had to go to my happy place! LOL!! Glad its over!! The gals there told me the dye is only in your system 4 hours, I drank soooo much flippin water yesterday and this morning, I should have it flushed by noon!
they showed me how much dye goes in, approx 2" was all, then saline flush, so I am not too worried about that. The hardest part was dangling these foobies through the holes, having my face squished into another hole and then my arms above my head, my arms went numb, so once it was over, I couldn't get myself up off the bed!! lay there for a bit, then managed to schooch down the table, hysterical! Things we do!! I will keep you all posted!!On another note, I had my consult on Friday with a wonderful naturopath in NY, she was quite amazing. She prescribed Estriol/Progesterone cream, plus Estriol syringes for my you know where
. I am thrilled that I was finally able to talk to someone who knows the benefits of estriol and progesterone and isn't afraid to prescribe them to BC survivors. I will keep you posted on this too.L
ox
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Glad that's over with, Fairy! Yah ~ the things we have to do
Terri ~ Nice to see you again!
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Lorraine-
Glad that your MRI is over.
So glad to hear that the appt went well on Friday and that you are finally getting your hormone RX!
Beth
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lorraine, so glad your mri is over. Hope you get great results. What did you decide about a colonoscopy? I had found some information that convinced me not to get one. ...not that I need much convincing. lol I place way more faith in the quality of my diet for colon health than some invasive procedure that requires anasthesia. Now I can't find those pages, but if I recall correctly, the vast majority of people have no polyps to find. Plus, there's a danger of accidental perforation, which the lance armstrong site says happens once every 1,000 colonoscopies. That's a mighty small percentage, but boy howdy, I wouldn't want to that one person.
The armstrong site also indicated that recommended guidelines do not include people over 70 something, which makes me wonder why my 82 yo mom is being told it's time for another colonoscopy. She doesn't do well at all after hers, they've never found anything of concern in there, and obviously this is another reason I hesitate to put myself through it.
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Hi Lorraine - Glad things went well
I know lying still for that amount of time can be trying to say the least. Well, it's all behind you now girl ! Great news about finding a Naturopath that "gets us". I'm still looking.... My next appointment is with an Endocrinologist. As I may have mentioned, I'm hypothyroid and all of a sudden, I've become hyperthyroid...my TSH is way low. I'm thinking it's the DIM. Just wait till I tell this new guy I'm on DIM and wanting to switch from Synthroid to Naturethroid and that I'm also going to start taking iodine...I can't wait to see his reaction
. Stay tuned...........!Hi Suzanne !
Edited: because I can't spell....lol
Terri
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Lorraine: I am so glad your MRI went well....I am looking forward to hearing more about your naturopath, now. And you are right: this thread rocks. Big time. All the time...
Raili: You are one strong lady. You sure are going through a whole lot right now..... I know you'll do everything you can to keep your beloved cat, at least: he is part of your healing.
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After Fairy's description of the MRI, I'm a bit nervous about the one I have coming up. It's my first breast one - the one my surgeon needs. It doesn't sound like an inspiring moment.
As for the colonoscopy - I had one done a few months ago because my dad had colon cancer. I freaked out when they wanted to put me under. I don't like drugs - especially ones that render me unconsious - so I did it totally awake. Got to watch the monitor and it was actually kind on interesting to see what's inside. There were some "heavy gas pain moments" but it wasn't terrible. And recovery time was really short.
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I LOVE this thread! You are all so informative and active and generous with your information!
Thank you, Vivre and Raili, I will definitely get the "Anticancer" book.
You are correct that the only treatments that get investigated (and thus "approved") are the ones that can be patented money-makers------NOT necessarily the ones that offer the most success. It's all about money..........:((
Kudos to all of you for being so persistent!
(I can't spell anymore. Cancer brain, I guess.)
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LiveForever-
I have a friend who had no issues with her MRI. But not me!
The only way I got t hrough my MRI's was Xanax - I never take drugs - but I am soooo claustrophobic that it was the only way I could get through. My doc prescribed just two tablets for me that I brought along. The first time I didn't take it ahead of time and brought it with me just in case. I freaked out so bad when they slid me into that "cave" - I pushed the panic button and I had to take two and then wait 45 minutes for them to put me back in. They were so nice - they let me bring a CD of music they liked that they played into my headphones they had me wear for the noise.
You might want to ask your facility if you can bring music and if you are claustrophobic or particularly anxious, you might want to consider taking something to relax ahead of time.
Best of Luck,
Beth
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raili, you reminded of a workshop I attended shortly after I lost my sweet kitty Eudora. She was the mother of the kitty in my avatar pic. I can't even remember the topic of the workshop, but it was led by woman of lakota indian descent, and we literally hugged trees, got on the ground in a circle while she beat on a drum. It was a letting go cermony I think, and I imagined the painful things I'd be letting go would've been my painfully empty marriage that sucked me dry in every way imaginable, my bankruptcy, my divorce, my bc dx, the chemicals from all the chemo, the itchy red scars from surgery, the fatigue that penetrates all the way to my bone marrow.
But on that day, it was my cat. I didn't want to let go of my cat. I wanted her back and I wanted my life to just get better after sucking for such a frightfully long time. I'm telling you, I was sobbing in that group, in front of my sister in law and a bunch of strangers. I was so embarrassed. Yet, every single person in the group was kind and compassionate toward me.
I've been told the only way out is through, that there's no short cuts to processing grief. My dad died when I was barely 3, from stomach cancer. I've been prone to weepy meltdowns all my life. It's been a never ending source of frustration to me that I can't seem to just get a grip on this aspect in my life. I posted a link 2 weeks ago to free audios regarding meridian tapping, aka EFT. One speaker really caught my attention when she said grief and all kinds of negative emotions can get trapped in our bodies, the same way toxins that overload our liver can end up in our fat tissue. This information resonates with me. Whenever I start to feel weepy again, I do the meridian tapping, and I feel more in control over it. It is a tool to release the negative emotions and limiting beliefs. I'll report further when I reach the 27-day mark, which is how long something or other takes to do whatever it is.... it's 'out there' kinda of stuff.
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PS73, noticed you asked how I managed with iscador. Just finished the first round of 14 (every other day) today. No se's. By the end I started getting big welts at the injection site...but, I was warned this could happen, it goes down in a day or two. I break now for 2 weeks and begin another 14. The needles are frightful, but I just do it.
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YAY !!! Fairy...glad it is over.
Know EXACTLY about the "Can't Find a Vein". Sorry you had to deal with that too. All my surgeries and the only thing I dread is the IVs and bloodwork because they always stick me several times. Went for some bloodwork the other day and not only could the person not get the vein but finally just had the needle in my arm next to the vein waiting for another vampire to come in and help her thread the needle into the vein. That really freaked me out and I said get me someone else. I had actually asked the first vamp whether it was her first day because she had on one of those disposable lab coats. I bet it was! Isn't it silly that any surgery and any recuperation is fine with me...it is the needle sticks I hate????? That is why I was so excited that one of my surgeries to take out an infected TE got done right in the PS's office...no IV..and actually...there were only two people who touched me with just donned gloves which made me feel there was a lot less exposure to germs as well.
I was told that it might be dehydration from fasting that makes it difficult to take blood and put in IVs...but if you were that hydrated, it kinda blows that theory. Next time before I have blood drawn, I am going to try drinking tons of water and see if it helps. That won't help much for my next surgery IV since they won't let me drink anything after midnight.
YAY..Lorraine for finding a naturopath with the good sense to provide what you need. Keep us posted. Also, please chime in as soon as you hear the ALL Clear on the MRI !!!
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Raili...I am so sorry you are having to endure so much. I hope you get to keep your cat or maybe you have someone who can keep it for you temporarily.
Althea...I am so sorry for all you have endured also.
I wish I could help you both with the load somehow.
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viv/lava - true that. its ridiculous that we were not given these options up front. it took me ten months just to find out all the 'other' regimens taken here.
althea, i didn't see that post - Ill need to go back. i also agree that the nutrition is just a part of it. my doctor told me that if i have any negative feelings or thoughts that just pop into my head, i need to replace it with a good thought on the same subject.
let it be - yah, no SEs! how many more rounds will you need to do?
fairy - phew - done. im thinking only good results for you!!!
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PS73: another round of 14 in 2 weeks. So 28 injections total every other day with a 2 week break in between. The vials begin at a low dose then increase towards the end of the cycle.
I will look back at this in disbelief that I have been pushing needles into my belly! What we do to keep the beast at bay!!
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Anyone getting or considering getting Zometa should be sure to read up on this potential but devastating SE. Our oncs lead us to believe that it's extremely rare, but the numbers here don't sound that small to me:
Deanna
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Thanks, Deanna. Are there any safe drugs left? (see that other post under "Hormonal Therapy", "Med alert, Fasomax."
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Deanna - Yikes, that is so sad.
Speaking about sad. My daughter came home from school yesterday and told me one of her friends has some kind of lymphoma. She will have to have chemo. My dh is a teacher and he has a pupil that has been battling bone cancer for 3 years. She is not doing well. The entire school is upset. A friend of mine from high school just finished his rads and chemo for cancer in his neck. He had to have lymph nodes removed from his neck. He had to have a feeding tube put in because his throat has been fried and his taste buds and saliva glands are shot. His doctors told him his cancer was caused by a virus. His doctors told him to stop taking supplements because they will not help. I have tried to convince him otherwise but he thinks his doctors know what they are talking about.
I just want to cure everyone. I'm sorry to be "Debbie Downer" Cancer sucks
Patty
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