natural girls
Comments
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Patty, Im so sorry to hear it. There is entirely too much cancer. WTF!! And they are children
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Scary article...very scary. These drugs are supposed to be HELPING people. What on earth are they asking us to take????????? The more I read the more anxious I get.
I'm supposed to be re-starting my Tamoxifen. The doctor had me stop 2 weeks before my exchange surgery in Dec and I didn't re-start because I was flying (vacation) and the issue with blood clots and all and the swelling on my neck was enough for me not to take any chances. My ONC even told me not to start until I got back from vacation...what's that suppose to mean??? Makes me wonder if even he is worried that I'm in that RARE 1% that has blood clots as a side effect.... Anyway, I'm supposed to be take the Tamox for 2 months and then have more bloods taken in April when I see him next. I have to say I'm terrified of taking it and at the same time, really, really scared about not taking it. I've been doing all the right things, DIM, Vit C, Vit D3, probiotics, milk thistle, calcium d-glucarate but I'm worried it's not enough. I need to add magnesium and calcium as well. I know I should add iodine to the mix but I'm waiting to see the Endocrinologist on Wed. I want to run it by him although I know he's going to look at me like I have 3 heads. I've been betrayed by my body once, I'm worried that my supplements aren't enough to see me through this.... I know all of you made the decision and haven't looked back but I'm still on the edge of making the jump.....I guess I need a little push.
Patty: Sorry to hear about your friend... I guess he's doing what he feels is best for him. We're supposed to put our trust in these Doctors and it seems we can't even do that...
As for children with cancer, my grandaughter has fought 2 battles. The first wasa brain tumor at age 3 and then again at 6 with a tumor on her spine.
Terri
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Hi Deanna:
Jaw necrosis is real as some of the Stage 4 ladies will attest.Zometa used for prevention is in much lower doses and less frequently. I believe the dose is 4mg every 6 months for 3 years. I'm just starting these infusions. I was not sold for a long time, but it was actually my Naturopath who did the homework and suggested it "could" be beneificial to me. In the Austrian study 1500 women were given zometa for prevention or to reduce likelihood of spread to bones. None of them developed jaw necrosis with this dosing. The women were also all pre-menopausal like me. The study showed 1/3rd improvement in possible spread to bones. That's good enough for me.
I had a big tumor, nodes, so, yah...I'm doing it.
Good health to all of you!
Christine
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Oh Terri, I can't imagine seeing my granddaughter suffer like that. My heart and prayers go out to you and her. How old is she now? I'm so sorry you are still struggling with the tamox thing. I stopped after 2 weeks of it and hell. I have never looked back. Are you post- men? Hopefully your endo will be helpful
My dd friend is seventeen. She will lose her hair. They don't have much money so I told her I would buy her some head covers. It's the least I could do.
My dh pupil is twelve. The school has been very sweet to her. She got to be a cheerleader from her wheelchair!!!
Lorraine - make sure you tell us your results!!!!
Love to all, Patty
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Patty: Grandaughter Emilie turned 10 yesterday. She's in remission and doing well these days. I have to admit though, the 2nd time around was harder on all of us. Poor little thing, she is a blessing.
How great of you to offer her some head covers. I truly do feel for all these youngsters being affected by this terrible disease.
I guess I'm still struggling with the decision because I feel my body has betrayed me. I did take Tamox for 2 months and then I got that strange swelling on my neck. They're still not sure if it was a clot or if it was a reaction to one of the supplements or both.
Terri
Edited to add: Patty: I was not in meno before I started the Tamox last Sept. After almost 3 months I was in meno. After stopping the Tamox in early Dec my numbers went up again and I was borderline. Recently, as in a couple of weeks ago, I started having hot flashes so I'm assuming that I'm well on my way - Tamox or not !
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Since oral cancer has already been mentioned, I thought I would interrupt things to tell people that a significant number or oral cancers are linked to the Human Papilloma Virus. It is a topic that should be covered by schools during sex education as well as drug DARE programs. I wonder if it might be possible to pick up the virus by sharing a cigarette or joint with a friend?
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Terri...how sorry I am to hear your granddaughter and your family have had this. So happy Emilie is doing well, but still it is sad she has to even know about this awful stuff much less fear it.
Patti...so sad...young people should not have to deal with stuff like this! It is nice they have people like you, your daughter and your husband around who won't disappear because they don't know what to say or do! Sorry about the friend from high school also.
Terri...sorry you are still struggling with the Tamox decision. Learn as much as you can. Pray. Trust your gut. This is not an exact science. There is no one right answer...unfortunately.
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Good Evening ladies! gosh, Patty and Terri, that is all so sad, it breaks my heart,stupid friggin disease!!
I wanted to let you all know that the MRI was clear! whew........thank you all so much for the good vibes and prayers you are all so amazing! I will now relax for the first time since the day I scheduled the damn MRI. I feel so blessed, not just today but every day, if nothing else BC has given me an opportunity to "meet" so many incredible women, now I am going to cry, so nighty night!!
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Fairy, so glad to hear the MRI was clear. What wonderful news!!
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YAY YAY YAY !!!!! Fairy!!!
Now treat yourself to something wonderful and no, I was not thinking of whipped cream straight from the can!
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Yah!! Happy dance for you. ..straight from the can whipped cream is totally permitted in the bedroom!
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Geez - if ever we needed evidence that the "War on Cancer" has been a failure - just read these few posts. Waaaay too much cancer. It makes my heart ache and my blood boil.
Fairy-
Thanks for letting us know your Great news!
Beth
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Fairy....your statement that you were "going to go cry" made me tear up too. It's really something ~ the brave face we have to put on...and then the breath-holding...and then the release/relief! I am so happy to hear about your relief! Many blessings!
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YAY FAIRY !!! Great news! Go and indulge...you deserve it!
Terri
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We have been wasting too much time and money on all this cancer "awareness" crap for way to long. Hell, we are all aware there is too damn much cancer! That is why I really wanted to start this new website. We need to start a groundswell of action to prevent this crap in the first place. We need to demand less toxins in our food, and our environment. We need to advocate for more freedom to pursue natural choices and fight this constant battle between traditional and holistic medicine. We need to demand that they start to examine the root causes of cancer more closely and put and end to it. We will never win his war if all the time and money continues to go towards more drugs. I hope you will all join us in this cause on our new site. Still working out the kinks, but we are on our way.
Oh, and don't go giving our resident cougar any ideas on how to use whipped cream! Use it anyway you want, except don't eat it! That dairy stuff is baaaadddd.
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Yes, way too much cancer in the world! And why is it so hard to figure out the causes and better txs? I just don't get it, especially when you think of the billions of dollars that go into both. It's really hard to wrap our minds around the disconnect between desire+funding & results/current knowledge. Terri, I'm so glad to know your granddaugher is in remission. Did her doctors give you any possible theory for what happened to her, like chemical exposure or ??????
YaYYYYYYYY, Lorraine! I couldn't be happier for you!!! (Big sigh of relief..........)
Christine, thanks for explaining about the dose differences re. Zometa. Since our oncs make no dose adjustments for Tamox or A/I's (whether one is 35 or 60 or weighs 115 or 195), and since I had heard of jaw necrosis here on BCO, it hadn't occured to me that Zometa might be given differently for osteoporisis vs. bc. Thanks for clarifying. Deanna
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Lorraine - OMG I smiled huge when I read the "clear" word. You made my day
. I cry too from being so grateful for all these wonderful ladies!!!!vivre - I am with you!!!
Love to all
Patty
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Thank you! Thank you! Thank you! for all of your kind words and support! The whipped cream made me laugh!! I have moments of pure joy these days, I think of them as my gift, because I didn't fully appreciate them before BC. I have decided that I am going to save my pennies and take hubby to Paris in November, life is too short to think "oh I will do it tomorrow", so f..ck it, I am going to do it now!! I don't care that I should be saving for a rainy day, this life is not a dress rehearsal we don't get to do it over, so thats my plan!
Just waiting for the estriol/progesterone prescripton to arrive, I must say I am excited to be at this point, its taken such a long flippin time to get someone to do this for me. I will keep you all posted!
L
ox
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Oh-oh.
Did Fairy just say she is taking that boy-husband of hers to Paris under the influence of bioidenticals?
More power to you, honey!
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I think you got it
We will expect a full report! LOL
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vivre-
I really wish I could afford to come to Chicago this weekend for the Prevention Convention.
I just read a book on Breast Cancer Prevention that I thought others might be interested in - especially newbies.
It is by Suzy Cohen who is a Pharmacist and is also a member with the Institute of FUnctional Medicine. I wasn't familiar with her, but I guess she writes a syndicated newspaper column. Her book is an e-book which is only 52 pp and can be dowloaded after purchase. It is called: Breast Cancer Protection - Save Your Breasts, Save Your Life. Her website is www.DearPharmacist.com.
SOme of the chapters are: Understanding Hormone Balance;(Mammograms May Become a Thing of the Past; the 8 ways to Produce Healthier Estrogen by-products - Rosemary, Broccolu Extract, Flax Seed, FOlic Acid, B6, B12, Magnesium, Methione; STaying safe on Drug Therapy:ARomatase Inhibitors; Powerful Supplements to Protect your breasts:Germanium, Curcumin, Iodine, Vit D3 and Progestrone Cream; the last Chance to Detoxify: ACtivate your "Quinone Reductase".
I had never heard about Germanium before! Does anyone take that?
Beth
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YAYAYAYAY, Lorraine: Happy dance here also. Now, please remember to give us the info on the provider that can help us obtain some Estriol.......
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Ladies-All of you- I am reluctant to post sometimes because I want to respond to EVERY one of you. I don't want anyone to feel left out or unheard.
Fairy-What a relief! How exciting-to be planing a trip to Paris with the Hubby. Can you stowe me in some carry on luggage...I'm real small
Glad you found a doc for the estriol. vivre-I wish you much success in launching the new website. It's time we get the word out there.
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Fairy: what wonderful news! and the planned trip to Paris is a perfect celebration.
Terri so glad that your grand-daughter is doing so well.
Vivre: I am 100 per cent with you. They can give someone with heart disease information on diet, exercise, and some natural ways to take care or to prevent. For those of us with cancer, they give us one pill after another and disregard that there is a possiblity other than drugs.
Mandy
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Love to all, PattyPOWER OUTAGE At my recent assault trial, I offered a plea of "Guilty with an explanation." The judge asked me what my explanation was, so I told my story.
"Your Honor," I said, "I had a mammogram appointment, which I actually kept. I was met with: 'Hi! I'm Belinda!' This perky clipboard carrier smiled from ear to ear, tilted her head to one side and crooned, 'All I need you to do is step into this room right here, strip to the waist, then slip on this gown. Everything clear?' I'm thinking, 'Belinda, try decaf. This ain't rocket science.' Belinda skipped away to prepare the chamber of horrors.
With the right side finished, Belinda flipped me (literally) to the left and said, 'Hmmmm. Can you stand on your tippy toes and lean in a tad so we can get everything?' 'Fine', I answered. I was freezing, bruised, and out of air, so why not use the remaining circulation in my legs and neck and finish me off? My body was in a holding pattern that defied gravity (with my other breast wedged between those two 4 inch pieces of square glass) when we heard, then felt a zap!
Complete darkness and the power went off! 'Oh, maintenance is working. Bet they hit a snag.' Belinda said, and headed for the door. 'Excuse me! You're not leaving me in this vise alone are you?' I shouted. Belinda kept going and said, 'Oh, you fussy puppy...the door's wide open so you'll have the emergency hall lights. I'll be right back.'
Before I could shout 'NOOOO!' she disappeared. And that's exactly how Bubba and Earl, maintenance men Extraordinaire, found me ... Half-naked with part of me dangling from the Jaws of Life, and the other part smashed between glass! After exchanging a polite 'Hi, how's it going' type greeting, Bubba (or possibly Earl) asked, to my utter disbelief, if I knew the power was off. Trying to disguise my hysteria, I replied with as much calmness as possible 'Uh, yes, yes I did thanks.' 'You bet, take care' Bubba replied and waved good-bye as though I'd been standing in the line at the grocery store.
Two hours later, Belinda breezes in wearing a sheepish grin. Making no attempt to suppress her amusement, she said, 'Oh I am sooo sorry!' The power came back on and I totally forgot about you! And silly me, I went to lunch. Are we upset?'
And that, Your Honor, is exactly how her head ended up between the clamps....."
The judge could hardly contain her laughter as she said 'Case Dismissed!!' :-) 0 -
Patty- I LOVE it!!!
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patty-
ROTFLMAO - I needed a good laugh!
Beth
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Laughter is the best medicine!!!!
Patty
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That was flippin awesome Patty!
laughing so much!!! Thank you!
Lox
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Please send positive light my way this morning. I am going in for treatment #4.
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