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  • fairy49
    fairy49 Member Posts: 536
    edited June 2009

    Vivre, I had info on Myomin saved to my favorites in my computer, I had been reading about it for a while, do you think its ok to take along with DIM?

  • fairy49
    fairy49 Member Posts: 536
    edited June 2009

    saw this on the same website.

    Myomin is especially good for fibroid cysts in the breast, uterus, and ovaries, as some of the herbs can help promote shrinkage of tumors.  It has also been effective for cysts in the thyroid, kidney, and liver. Myomin can also regulate excess estrogen and induces more interferon in the system, which helps activate natural killer cells.  Myomin has actions that differ from DIM; therefore, some women choose to take them together for a more aggressive approach.   Of the two, DIM is the stronger metabolizer of estrogen.

  • fairy49
    fairy49 Member Posts: 536
    edited June 2009

    It seems from what I am reading that for menopausal and post Myomin may be the better option......

    Q.  Is it okay to take DIM if I am menopausal or postmenopausal?
    A.  DIM is a stronger metabolizer of excess estrogen than Myomin.  Therefore, Myomin may be a better choice when you are in the menopausal phase and after due to the fact that you will not be producing as much natural estrogen. 

  • althea
    althea Member Posts: 506
    edited June 2009

    So many topics just on this page.  I'll start with my comments on water.  I've been enjoying a sort of homemade vitamin water lately.  Where I live, the water practically smells like a swimming pool as it comes out of the faucet.  Even after the brita filter, it still tastes ghastly.  I'm trying to avoid plastic as much as possible, so I don't like want storebought water ( and neither does my meager pocketbook). 

    I am using a 64-oz clear glass pitcher that once was my great grandmother's.  Every day I drink all 64 oz of water that I combine with:

    1/2 peeled cucumber, thinly sliced
    1 small carrot, thinly sliced
    some leaves of fresh mint
    sliced lemon peel
    several drops of stevia

    I truly enjoy drinking water now.  I am greeted with something attractive and good for me every time I open the refrigerator, and it fills the big gaping hole where the gallon of milk used to sit.  I've gone 3 weeks now without milk.  This is a huge change for me.  All my life I've always had milk in the fridge.  I would go through 2 gallons a week all by myself.  I was hoping the relentless fatigue would finally release its grip on me, but my benefits are found elsewhere.  I sneeze a lot less, my everpresent post nasal drip is GONE, and surprisingly, I sleep better because I'm not getting up to pee as much.  go figure. 

  • lisasayers
    lisasayers Member Posts: 144
    edited June 2009

    Althea...that is similar to my "spa water" that we drink all summer.  I keep a pticher of water and add the sliced cucumbers and sliced lemon and lime!

  • althea
    althea Member Posts: 506
    edited June 2009

    springtime, I echo your sentiment about the conflicting information making your head explode.  I really felt that way last year when I began my learning curve on hypothyroidism and iodine.  The RDA for iodine is only 150 mcg with a caution that it starts being toxic at 1100 mcg.  Then there's literally hundreds of people, if not thousands, on the iodine yahoo group who are taking 50 MG a day!  I doubt the person could even be fired from their government position who came up with the RDA for iodine.  It's been around so long that person is probably dead from old age. 

    As for the budwig protocol, I'm glad to know barleans offers a lower price to cancer patients.  I sort of started on budwig before I ever read about budwig.  Christiane Northrup's book on women's health give flaxseed glowing reviews for benefits, one of which is relief of fatigue.  Her recommendation is mixing plain yogurt with fresh ground flaxseed and a bit of sweetener if desired.  I don't eat this every single day anymore, but I'd estimate 3-5 times a week on average.  Yogurt doesn't have as much sulpher content, but enough to get some benefit.  When I finally read more last summer about budwig, I decided flaxseed oil needed to be in the mix also.  

    In my experience, the only benefit I can be certain of is probably fiber-related.  I started having constipation with the onset of taking tamoxifen and the flaxseed really took care of that problem.  Seven months later I had cholesterol testing, and I was hugely disappointed.  It was practically identical to the test I had shortly before bc dx 4 years prior.  I realize I don't follow the protocol exactly, but dang, if I can't even get my cholesterol down a few points, I sure wouldn't trust it to eliminate a tumor.  

  • Merilee
    Merilee Member Posts: 734
    edited June 2009

    Spa water...what a great idea.

    Also those of you with experience with Milk thistle, Do you take it everyday or just for a week at a time to detox?

  • epohnyc
    epohnyc Member Posts: 1
    edited June 2009

    FLORIDALADY!!!

     You are in my thoughts!! Wishing You a Fruitful experience today!!!

    XOXOX 

  • Springtime
    Springtime Member Posts: 3,372
    edited June 2009

    I love this idea of flavoring the water. I use a Brita pitcher to filter water, I think I may throw some lemon/lime mint in there! Thanks for the idea. Cucumber? I had never thought of this in water, but I'll give it a go!

    On that same Myomin site, It talks about the causes of "estrogen dominence", and both Soy and Flaxseed are listed. No wonder there is so much debate/confusion about Flaxseed and oil.

    Causes of Estrogen Dominance

    * stress
    * obesity
    * poor liver function
    * birth control pills
    * plant estrogens (soy, flaxseed)
    * hormone replacement therapy
    * peri-menopause
    * glandular dysfunction
    * environmental estrogens

    I am going to stick with DIM for now and get that 2:16 test done and see where I am. Then retest. I am saving this info on Myomin though in case it does not go down! 

    Vivre, what a great option to have a consult like that. I am sure it would be enlightening. This fellow is a compounding pharmacist? 

  • Springtime
    Springtime Member Posts: 3,372
    edited June 2009
    Oh, Question, is anybody taking I3C and DIM?
  • lisasayers
    lisasayers Member Posts: 144
    edited June 2009

    Spring I'm just taking the DIM and eating brocco sprouts on a daily basis (well, almost daily!)

  • Springtime
    Springtime Member Posts: 3,372
    edited June 2009

    Brocco sprouts, what a good idea!!

  • fairy49
    fairy49 Member Posts: 536
    edited June 2009

    Springtime, my naturopath gave me a product called EstroDim, its a combo of DIM, 13C and calcium d glucarate, I haven't tried it yet as I have a huge bottle of DIM, plus I already take the calcium d too, AND I am not too sure if I want to take 13C at this point, however she feels that a combo works best.I just ordered a urine test online which I will use to re-test my 2:16 ratio to see what the difference is in the few months since the one I did for the naturopath, if there is no difference I will try the EstroDim.

    Lorraine ox

  • dlb823
    dlb823 Member Posts: 2,701
    edited June 2009

    Here's something very interesting that just arrived in my inbox today from the Environmental Working Group:

    http://www.ewg.org/BPAindustrylobbyists

    It's unbelievable the lengths to which the major U.S. food manufacturers will go (PR, advertising) to "put lipstick on a pig," rather than do anything to remedy a serious problem with our food supply -- a problem that is most-likely making us and our children sick.  Shame on them!      Deanna

  • andrita
    andrita Member Posts: 1
    edited June 2009

    Very glad to have a forum like this--I am a long time survivor--nine years--but it's something that changes your life forever--and you have to share what works and what doesn't. I'm kinda the go-to person in town for women who are newly diagnosed because people know I know a lot about the topic--being a rabid researcher and also rabid about taking care of myself to the point where I look younger than women my age who never even saw the pointy end of a chemo needle. That being said, I started chemo and quit it. To say I didn't like it was an understatement. ANd when I looked at what kind of additional odds it would give me--see, the doctors don't hand those stats out too readily because they're laughably low. So when I looked at my stats--that the chemo would give me an extra 8%--well that just didn't sit well with me, considering how it was making me feel and that it just ran totally contrary to everything I believed in. I believed I would need my immune system, heart, brain, all the stuff chemo damages (yes, "chemo-brain is real). So I asked my naturopath what to do. And then she revealed she had had breast cancer and she took Carnivora--she had studied with Helmut Keller--the German doctor that invented it 30 years ago. She had seen it cure Stage 4 cancers first hand. So armed with this info, I embarked on my naturral protocol. And it worked for me. I also did Alpha Lipoic acid, Wobenzymes, the Hoxsey Formula (to detox the cells) and a great multi vitamin. But the Carnivora was the key ingredient, I believe. It destroys abnormal cells while leaving normal ones completely in tact. There are no side effects. I still take it on occasion when I feel like my immune system needs a boost--it works as a preventative too. Btw, Ronald Reagan took it and it cured his colon cancer and Yul Brenner took it for his lung cancer, went into remission, then stopped taking it and it came back. And yes, diet is critical too--eating sugar--or white flour-- is like giving cancer a vitamin pill!

  • seaotter
    seaotter Member Posts: 642
    edited June 2009

    Hi girls! I need some help. Here is my story: Jan 09 - lumpectomy .8 cm, stage 2a, one positive nodes but my surgeon decided to remove all 30 of them!!!!! I'm finding out he should not have removed all of them but to late now. I wish I would have done my research before surgery. I just wanted it out. I thought he knew what he was doing. He is a boob specialist for God's sake!!!!!! Now my arm will be at risk forever! It does bother me a lot. I had 3 chemo treatments and they just about killed me so my onc said to stop. I guess I'm very sensitive to drugs. I tried Tam. for 2 weeks and hated it and said no more. Well now my dilemma is radiation. I have done some research on that! I can't find out if it will affect my arm. I know they want to radiate the entire breast. I'm thinking of not doing it at all but that seems pretty scary right now since I could not do chemo. So, girls, if you have and thoughts of this, please fire them at me.

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited June 2009

    My favorite was finding out, just this week, they hide MSG in processed foods by calling it something else. It has too many AKA's to list.  Aspartame is listed because they figure we don't know anything about it...yet. 

  • Springtime
    Springtime Member Posts: 3,372
    edited June 2009

    AndRita, do you have a link about Carnivora? Curios to read, I got a bunch of mixed results on Google..

    Lorraine, would you share what lab you do your 2:16 testing with? I'd like to get that done. I hear you. Makes sense to do something, test, and see what's up. That's where I'm at!

    Spring.

  • Springtime
    Springtime Member Posts: 3,372
    edited June 2009

    Seaotter, I will PM you.

  • Firni
    Firni Member Posts: 521
    edited June 2009

    Seaotter, My LE specialist asked me if I was having rads.  When I told her no, she said good because it can really aggravate LE.  If you go ahead with rads, maybe you should see an LE specialist first and start some preventative therapy and instructions.

  • seaotter
    seaotter Member Posts: 642
    edited June 2009

    Thanks Firni but what is a LE specialist? Why did you say no to rads??

  • fairy49
    fairy49 Member Posts: 536
    edited June 2009
  • Merilee
    Merilee Member Posts: 734
    edited June 2009

    Just finished looking up the ingredients in this product.  Looks like an impressive combo.  They do list phyto hormones, so I would want to know the source of those before trying it.

  • vivre
    vivre Member Posts: 881
    edited June 2009

    Seaotter, take the time to research all the effects of rads. I wish I had never consented to it. I just had a thermograph this week, and the effects of the rads are still there, 18 months later. The boost area is lit up like a Christmas tree! I also think that it zapped my thyroid. I am always cold now, and I never sweat anymore. Even when I exercise. I use to sweat so much it would be dripping off my face. I cannot even break a sweat now, and this not good. I have a friend who is having all kinds of breathing problems from rads. Plus they radiated my nodes, even though they were negative, which really pissed me off when I found out! I am not sure my nodes will even work anymore. There are so many other things that  can mop up any free radicals. Find a good holistic minded doctor who can check your blood levels, help you detox, and get your cells healthy so that they knock out any strays. Follow your instincts and you will be able to figure out what to do.I can't believe they took all your lymph nodes. That would make me so damn furious! I really feel for you. Make sure you check out our iodine thread too. Lot's of great info there on iodine being a major preventative to bc.

    Andrita-your protocol sounds really interesting. I hope you keep us all abreast(pun intended!) of how it is going for you.

  • lisasayers
    lisasayers Member Posts: 144
    edited June 2009

    Ivorymom the studies suggest 1 oz of brocco sprouts a day!  That is pretty easy to do!  I put them on my salads and on my wraps, etc.  I love them!

  • vivre
    vivre Member Posts: 881
    edited June 2009

    Lisa- do you buy the sprouts or make your own? I would love to make my own sprouts. I have terrible stomach cramps from eating broccoli. I wonder if the sprouts would behave better?

  • fairy49
    fairy49 Member Posts: 536
    edited June 2009

    Spring! My naturopath did the first tests, but I used the following lab for follow up urine test to keep tabs on the 2:16 ratio

     http://www.rockwellnutrition.com/Lab-Work-Estronex-Breast-Cancer-Risk-Test-urine-by-Metametrix_p_0-1237.html

  • Firni
    Firni Member Posts: 521
    edited June 2009

    seaotter, LE specialist is a lymphedema specialist.  And rads can aggrivate lymphedema.   My onc didn't think I needed rads and I didn't argue with him.  I had more gut fear of rads than chemo.  

     As far as removing all your nodes, my surgeon told me before my surgery that if there were positive nodes, he would do a full axillary dissection (take all the nodes).  I believe that is standard unless you tell them otherwise.  Of course they have to tell you something in order for you to consent or not.  I said ok because I didn't understand all the implications.  My nodes were neg. so BS only took the two sentinel nodes.  I still ended up with mild lymphedema. 

    fairy49, can I ask you how much the 2:16 test costs for the lab to run? 

  • Merilee
    Merilee Member Posts: 734
    edited June 2009

    I use the sprouts wrapped in living lettuce with other goodies in there. Such as a chopped boiled organic egg, or avocado, or an orange segment.