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  • lisasayers
    lisasayers Member Posts: 144
    edited June 2009

    Hey Ivorymom...I buy the sprouts and they come in 4 oz packaging...so I try to eat a quarter of the package a day! LOL 

  • Merilee
    Merilee Member Posts: 734
    edited June 2009

    I have just discovered the Ezekeal sprouted grain english muffins. Delish!

  • seaotter
    seaotter Member Posts: 642
    edited June 2009

    Thanks girls for your suggestions. I can't afford the naturopath doctors so I read all the posts from you girls and doing research. I'm taking iodoral, dim, calcium d-glucarate,and some anti-oxidents. I'm feeling great!!!! With the discussion about dim for post-menopausal women (which I am) and saying it is a strong metabolizer for estrogen does that mean it may not be doing its job with me? Or should I just take a low dose? What do you think?

  • lisasayers
    lisasayers Member Posts: 144
    edited June 2009

    Merilee I love the Ezekiel english muffins...well, I love all their products! LOL 

  • Springtime
    Springtime Member Posts: 3,372
    edited June 2009

    Fairy, thanks for the link to the 2:16 test place, that is the lowest price I've seen on the Web. Appreciate you sharing it! I assume you can order it yourself and you don't need a MD?

    I am so glad to hear about brocco sprouts. I think it would be pretty easy to eat 1/4 of a package a day, as compared to eating broccoli.... Sort of a quicker, friendlier version?

    Ivorymom, your sandwich sounds delish!!!

  • dlb823
    dlb823 Member Posts: 2,701
    edited June 2009

    seaotter ~  Is there any reason you can't get a blood test to see where your estrogen and Estradiol levels are?  That would be the best way to know if the DIM and other supplements are doing what you want them to do, and to be sure your estrogen levels are low.  Depending on what other treatment you've had, it's probably a good idea to get all of your blood levels checked. Chemo & rads messed up my blood in ways I wasn't even aware (cholesterol, homocysteines, etc.) until my PCP checked everything.  Just see if your PCP will order very complete blood work for you, including your Vitamin D and estrogen levels, and thyroid, too.   Deanna

  • Springtime
    Springtime Member Posts: 3,372
    edited June 2009

    Fairy, I looked up EstroDim, as I have DIM and I3C, so wanted to see what 'amounts" of each are in those pills.

    FYI below:  Ingredients from here

    EstroDim

    Can anybody tell me, is Calcium D-Glucorate any different than calcium+Vit D? I am confused on this point. 

    Spring.

  • FloridaLady
    FloridaLady Member Posts: 158
    edited June 2009

     I just started another trial and this is the list of no no's that are most common they don't want us too use.

    Ginkgo, biloba, kava, grape seed (first that I heard of this) valerian, ginseng (green tea) echinancea, evening primrose oil, St John Worts.

    Flalady

  • Springtime
    Springtime Member Posts: 3,372
    edited June 2009

    No green tea? You hang in there Fla Lady....

  • rgiuff
    rgiuff Member Posts: 339
    edited June 2009

    I'm still swaying back and forth on this whole tamoxifen thing, whether to stay on it or not.  Hot flashes have gotten so bad that I've started taking herbals {which I know are controversial} to combat it,  low libido, difficulty with orgasms {just recently started on Wellbutrin, which surprisingly, increased all the sensations down there and  also stopped the frequent crying spells}, but started having heart palpitations from it, so the doc wants me to go off of it.  I'm currently trying a lower dose instead  to see how that works out.  Keeping my fingers crossed!  I've also had this feeling of chest tightness for the last 2 months, and suspecting that it has to be the tamoxifen or maybe delayed reaction to the radiation, I don't really know.  I had a stress echo done for this problem and it showed no cardiac problems.

    So my question is, if I go off of it, where do I start as far as supplements go and do I look for a naturopatth doctor or do many of you have General family type doctors who will work with you on this?  In many ways, I feel like the tamoxifen would be cheaper and simpler, which is why I haven't made the switch yet.  Does this have to be a very expensive and complicated proposition?

    Also I don't know if I'm post menopausal.  I was perimenopausal before this all started, skipping periods for months at a time.  I had them all summer up until August and then nothing for months {started tamox in November} but then got 2 periods in Feb and 1 in March and nothing else since.

  • dlb823
    dlb823 Member Posts: 2,701
    edited June 2009

    I know we have several open questions right now waiting for wise advice, but I wanted to throw out one more before I forget it.  I recently heard that putting milk in tea significantly diminishes the effect of whatever is so healthy about tea to begin with.  I'd never heard that before and wanted to both pass it along, as well as ask if anyone else is aware of it and doesn't put milk in tea for that reason.  I usually put a splash of organic milk in my hot tea (white tea is my favorite), and I was disappointed to think that it's just one more thing that I'm going to have to give up.  It frustrating when you think that you're doing something very healthy to find out that you're not getting the healthy benefit of it afterall, and that you have to give up eating/drinking one more thing you enjoy...

    Flalady ~ Are you taking many of those supplements you listed now, and, if so, are you going to stop them for this new chemo?  Although nothing like your situation, I had read during chemo that other women's oncs were telling them no Vitamin C, which I've taken for 30+ years.  So, out of concern that I might be diminishing the effects of the chemo (even though my onc had not given me those instructions), to err on the safe side, I stopped taking my 500 mg. of C -- and promptly got sicker than I've ever been (like near pneumonia).  Sometimes it's so hard to know what to do because I don't think our docs know for sure how these natural antioxidants will affect our tx either.  Anyway, we are all pulling for you!!!  (((Hugs)))  Deanna

  • Merilee
    Merilee Member Posts: 734
    edited June 2009

    http://www.naturopathic.org/AF_MemberDirectory.asp

     I just found this sight where you can put in your town and they give you a list of Naturopaths in your area. I came up with 4 that are in my area. One was an hour drive away but when I checked her web site I found she also has an office in my town. I have inquired about insurance and if she does not take it, I have asked the price of a nutritional consult

  • fairy49
    fairy49 Member Posts: 536
    edited June 2009

    Hi Firni! The original tests done by the naturopath was $300.00, but the urine test I ordered online is $138.00, if you click on the link above it will take you directly there.

    Lorraine

  • Firni
    Firni Member Posts: 521
    edited June 2009

    Thanks Lorraine.  And thank you marilee for that link to find an ND.  I found one not too far from my house that specializes in cancer care.  Now it's just a matter of the $.

  • FloridaLady
    FloridaLady Member Posts: 158
    edited June 2009

    dlb823

    I'm not taking anything on the no no list but I will continue to take supplements.  They said it was Ok and I would have done it any way.  I find it interesting in Phase I trials they will let you do more because they want this trial to look good for side effects.  I do not take supplements the day before chemo or day of or the next day.  I than start back to taking them.  500 of C is not that much to worry about.  A large dose of C is 1500 a day.  That is the key not to mega dose anything while on chemo but keep a good balance of supplements covering a lot of problem areas you can run into with treatment.  Like Milk thistle for the liver.  I do take this while on chemo.

    Flalady

  • vivre
    vivre Member Posts: 881
    edited June 2009

    Fla Lady, I have heard not to take everything on the list except the grape seed oil. That one is supposed to be antioxidant. I would love for you to find out why that is on the list? I still think that Dr. Strand has it right. He has had very good results with his patients when he insisted they take antioxidants while going through treatments. He has proven that they help to keep the good cells alive. I haven't read his book in a while, (What your doctor doesn't know about Nutrtion may be killing you), but I remember that he explained that cancer cells multiple from inside. They are not nourished by what we consume the way regular cells are. The doctors who are now doing integrated treatments, like Dr. Block from the Block center in Chicago, believe that good cells need to be built up in order to withstand chemo. They maintain that nutrition feeds cancer is a fallacy and that most people who die of cancer, die of malnutrition from not eating anything healthy during chemo.

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited June 2009

    This is one research paper that talks about depleting anti-oxidant vitamins, A & E and the tumors weren't nourished.

    http://jn.nutrition.org/cgi/content/abstract/134/5/1139

    I've read the same thing about B1 & B12.  When taken in high doses, the tumor was nourished.  I don't know what they consider a high dose to be.  There might be conflicting research out there, but from what I've read before some vitamins help in tumor growth. 

    And here's a fuller explanation of antioxidants during treatments:

    http://jn.nutrition.org/cgi/content/full/134/11/3179S

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited June 2009

    Deannna,

    I did read that about not putting milk or sugar in green or black teas.  I'm pretty sure I read it in a research paper somewhere along the route.  And someone found a paper talking about adding lemon to the tea and it helps release the nutrients.  I got hooked on adding fresh ginger to green tea, by my 4th cup, I lost my voice.  It was worth it, but I stopped doing it.

    "Citric juices of fruits like lemon and orange might boost the health benefits of green tea, suggests a new study.

    Green tea has certain antioxidants or disease fighting properties. Juices of lemon, orange, lime and grapefruit enable these antioxidants to remain after digestion making the pairing even healthier than previously thought, the scientists fund.

    Researchers at Purdue University compared the effect of various beverage additives including juices and creamers on catechins, naturally occurring antioxidants found in tea.Green tea has certain disease fighting properties. Juices of citric fruits enable these antioxidants to remain after digestion making the pairing even healthier than previously thought.

    They found that complementing green tea with either citrus juices or vitamin C increases the amount of catechins available for the body to absorb, reported health portal Medical News Today.

    Catechins display health-promoting qualities and may be responsible for some of green tea's reported health benefits, like reducing risk of cancer, heart attack and stroke.

    The problem, the scientists said, is that catechins are relatively unstable in non-acidic environments such as the intestines, and less than 20 per cent of the total remains after digestion.

    Citrus juices enable these antioxidants to remain after digestion. The study found that lemon juice in particular caused 80 percent of tea's catechins to remain. Following lemon, in terms of stabilising power, were orange, lime and grapefruit juices."

  • havehope
    havehope Member Posts: 77
    edited June 2009

    Here is an article about estrogen dominance. It is long,  but it is worth reading.

    http://www.drlam.com/articles/Estrogen_Dominance.asp

    Another article:

    Tamoxifen

    A Major Medical Mistake?

    http://www.all-natural.com/tamox.html

  • Merilee
    Merilee Member Posts: 734
    edited June 2009

    Simvog

    That was a good read about Tamoxifen. Sadly it conformed what I already suspected.

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited June 2009

    Thanks simvog,

     There is lots of good info from Dr. Lam.  Good find.

  • seaotter
    seaotter Member Posts: 642
    edited June 2009
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  • Cheyanne
    Cheyanne Member Posts: 33
    edited June 2009

    Is there any reason you can't get a blood test to see where your estrogen and Estradiol levels are?

    How would one get this performed?  My doctors haven't mentioned anything like this....

  • vivre
    vivre Member Posts: 881
    edited June 2009

    Sim-great articles on tamox and estrogen. Why don't our doctors know about all this?

    Cheyanne-You can get a blood test for estrogens. The problem is you need a doctor who knows how to read them and what kind is best for you. I have had my blood and urine  tested. Both give slightly different information, as does a saliva test. So no test is definitive in every case. It all depends on what information a doctor is looking for. That is why I skipped my onc and GP and went straight to a doctor who specializes in hormones. I could not find an endocrinologist but did find a former gynie who understands it all. It is a bit of a hunt, but worth it when you find the right doctor. You would be surprised too at how much more chiropractors and naturopaths know about this than MD's. They are of the mindset of treating a problem from the cause, not just handing out a pill for symtoms. In fact, I started out with a chiro, who ran my bloodwork and got me started. I still go to her, but also use the other doc for more specifics.

  • saltykm
    saltykm Member Posts: 77
    edited June 2009

    could someone please tell me what DIM and 13c are. Very interested in this.Am feeling tired allthe time hands hurt SE from femara,and do you still take the estregen blockers. Have any of you tried turmeric for the joint pain

  • Merilee
    Merilee Member Posts: 734
    edited June 2009

    saltkm

    I take Tumeric but not for pain. I also take DIM which is made from vegatabes. It  has a simalar effect as Tamoxofen but is not toxic.  13c is in DIM.   I took 13C first then learned that when you take it in the DIM it stays in the body longer and is able to do more because of that. If you put DIM into a search engine you will get lots of good info.

  • althea
    althea Member Posts: 506
    edited June 2009

    saltykm, I haven't used turmeric yet, but I do drink fresh fruit and vegetable juice nearly every day since last August.  I had been tinkering with getting more vegetables into my juice without grimacing when it was time to drink it.  Finally, I hit on a combination I liked, and it included a slice of ginger.  I had developed a left hip that was aching every day over the summer.  After about a month of drinking my new juice recipe, the ache in my hip disappeared. 

    I wish I could report that all my juicing got rid of my fatigue also, but that one is an ongoing struggle. 

  • saltykm
    saltykm Member Posts: 77
    edited June 2009

    Please let me know if you find something. Perhaps you could share your juice recipe? I just started the turmeric so I will let you know.

  • Rose47
    Rose47 Member Posts: 33
    edited June 2009

    Ok, refresh my memory or give me a link - what exactly is turmeric, what are it's benefits and what food do you add it to? What does it taste like?

  • havehope
    havehope Member Posts: 77
    edited June 2009

    bump