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  • althea
    althea Member Posts: 506
    edited August 2009

    amber, my former internist wouldn't even test my free T3 or free T4 levels when I presented more than once with TSH levels of 6.2 or more.  I seriously doubt he would've been iodine literate, and I if there is an iodine literate doctor in my community, I don't know who it is.  Chances are, even if I did find one, I wouldn't be able to afford going there. I don't even go to my oncologist anymore.  They don't even do a blood pressure reading correctly.  How can I have confidence in anything else they do?  I haven't been to any kind of doctor in over a year.  Money is the main obstacle, but beyond that I suspect I'll need to travel to seek the kind of medical care I can trust. 

    I am interested, however, in the thyroid panel available at canaryclub.org for $180.  They test TSH, free T3, free T4, and thyroid peroxidase antibody.  

    PS73, have you tried juicing your watermelon?  I've been drinking it every day for two month and love it.  It's best on an empty stomach, so I start my day with it. The water at my house is horrible also.

  • AllieM22
    AllieM22 Member Posts: 188
    edited August 2009

    Amber--that is my concern too. I would like to be tested to find out what my levels are before supplementing. I do not have thyroid problems--had a test for it a few months ago when I had a full blood work along with vitamins test. I don't want to screw up my thyroid or anything else by self-medicating. I know people have had great results with it--I just would want some parameters. I will chk that link you provided althea.

  • chelev
    chelev Member Posts: 417
    edited August 2009

    I am so excited - my mother has bought me a juicer for christmas.  Now I just have to wait until then to see her and get it!   Can't wait to start juicing everything - watermelon sounds yummy - I love that stuff.

  • my560sel
    my560sel Member Posts: 399
    edited August 2009

    Just read an article that fruit is best eaten on an empty stomach....that way the antioxidants can do their thing and not have to compete with your system trying to digest whatever else you've just eaten. 

    Terri

  • MBROWNING
    MBROWNING Member Posts: 34
    edited August 2009

    PS73~

    Just this a.m., I read a similar article on I3C/DIM and Tamoxifen.  You can find it at www.jbc.org/cgi/content/full/280/10/8756

    I believe the study dates to 2004 and is quite encouraging....I recently started taking DIM (very light dose to start) as an alternative to the tamoxifen RX I rec'd (but have yet to fill).  I'm still doing alot of reading, however, on the whole "goitrogenic" effect of cruciferous vegetables (same component found in DIM) and am intrigued by the need to supplement ioding while taking DIM.  But, like Allie and Amber, I'm very concerned about messing with thyroid via iodine supplementation.   Melissa

  • amberyba
    amberyba Member Posts: 180
    edited August 2009

    Althea, you make me grin with your comments. i dread going to the doctor too. with 2 children going to dentist and orthodontist, and their dermatologist and pediatrician...it is quite ridiculous...

    Allie and Melissa....I just thought of something. last November, when I told the oncologists PA that I didn't want to continue the tamoxifen, I mentioned that I was dabbing  tincture of Iodine on my breast. she told me that was fine, and that tamoxifen wasn't for everyone...

    I read that if the iodine disappeared within a short time that it meant you needed some iodine.....but some other website someone said it wasn't really reliable.  I did it for a while..and then quit when I read the latter...but then when I read a few comments here, I was noticing that my Breast that cancer had been in, was tender and thickened, so I dabbed some on last night and today I can tell a difference. Tincture of Iodine is what my grandmother and mother religiously used for scraps and such...neither one of them had BC....my sister and I did. I have also read that our salt is not really iodized...my morton salt girl says iodized,  

    My mom also told me that tincture of iodine is hard to find....I have 2 small bottles I purchased at Walmart in the first aid section. I do dot it on my inner wrist sometime, maybe since those veins are close to the surface they will absorb some of the iodine.  and when ever I have a scrap or hang nail, i use the stuff....figure it couldn't hurt.

  • vivre
    vivre Member Posts: 881
    edited August 2009

    Besides the improvement I can see in my breasts since taking iodine, I have also noticed that my plantars warts are drying up. Also, I got some poison ivy on my foot while pulling weeds in my yard. I also saw a couple of blisters on my forearm, but it never spread, but crusted over right away. Iodine is antifungal. Yes, our grandmothers used it for everything. It was just in the past 40 years or so when we began to get sold on big Pharma drugs. I believe that iodine is the single most important thing I am doing to prevent a recurrance.

    BigPharma is out to get rid of iodine. The FDA has somehow convinced the EU that it is dangerous, in the guise of the fact that it is used to make meth. People in Eu who are using it for their health are in a panic because they cannot get it. We have to stay on this issue and not allow it to be outlawed here. We have to keep an eye on what the government is doing right now. It is all about control. If we do not stay informed, we could lose our choices.

  • amberyba
    amberyba Member Posts: 180
    edited August 2009

    vivre, how do you take iodine? what brand?

  • anondenet
    anondenet Member Posts: 261
    edited August 2009

    You can see how Iodoral is taken here.

    www.breastcancerchoices.org/iprotocol

    <

  • Munchy
    Munchy Member Posts: 59
    edited August 2009

    I just had complete blood work done - including TSH and T3 and T4.  The problem is that I don't know what they mean.  Can anyone recommend a website that tells me where to go from here as far as Iodine supplementation? 

  • althea
    althea Member Posts: 506
    edited August 2009

    munchy, the link anom provided has an abundance of great information about iodine.  There's an iodine research project also, which is funded by their sales of iodoral, plus, they have the best price if you can swing the minimum order for free shipping. 

    Another good place to read is naturalthyroidchoices.com.  The creator of that site also moderates the iodine yahoo group, and you could go there to ask for help with understanding your test results.  

  • cleomoon
    cleomoon Member Posts: 152
    edited August 2009

    Hi,

    Just started DIM a few weeks ago. Has anyone had weight loss or a decreased appetite while taking it?

  • AllieM22
    AllieM22 Member Posts: 188
    edited September 2009

    Munchy--whoever took the test should be able to give you the normal ranges for all. Just call. I had a nurse do it over the phone or you can get the printout showing all of it from your dr. I reviewed mine with my onc and she answered all my questions including the difference between, for example, the different vitamin D tests they do and which ones are important to watch (in case you are wondering, it's the D3).

  • makingway
    makingway Member Posts: 465
    edited September 2009

    This was pretty ironic.I went to Home Depot to buy some 'natural pesticide' and this is what I found.
    EcoSense Indoor Insect Killer kills on contact
    Roach and Mosquito

    View a demonstration video showing how Indoor Insect Killer stops a cockroach dead in its tracks with its active ingredient, 100% natural soybean oil.

    » Watch the video

    I guess the same crap the food industry is putting in all our food works just as well to KILL bugs!!!

  • amberyba
    amberyba Member Posts: 180
    edited September 2009

    thanks making way...that is very interesting

  • PS73
    PS73 Member Posts: 171
    edited September 2009

    Hi gals.  Thanks for the great information!  I talked to my onc yesterday and mentioned the indole to be used shot gun with the tamoxifen.  Im printing out my studies along w/ the Melissa's.  He is open to it.  He also said that he read the study regarding the ER negative cancer increase and said it was due to the tamoxifen knocking out the ER positive, therefore it shows its ugly head post tamoxifen at times.  Since the indole fights the ER negative, I think I may have a shot at doing both or just the indole.  He also said that since Im almost ER negative that the tamoxifen is not as important as the ACT.  Again I am being hopeful.  I meet with him on Wed to give him the studies and discuss the indole in greater detail.  Ill let you all know what he says.

    I think I may have a lead on a good compounder - again hopeful.

    ...just curious regarding the Iodine.  I was wondering what everybodies take on Vitamin C during treatment is?  I read that we need to supplement the C if doing Iodine.  I am a little worried bc I was told to stay away from C - from Columbia.  ...I don' t mean any disrespect, just trying to understand it all, keeping in mind big pharma and its ways, which is why Im on this thread in the first place. 

    Peace ladies!

  • vivre
    vivre Member Posts: 881
    edited September 2009

    Makingway-interesting on the soy, bug killer. I have been maintaining all along that the reason is so bad is because it is the most GMO and sprayed product that we have. Maybe I will go get some soybean oil and spray it on those Japanese beetles that keep attacking my roses.

    Cleo-wish I could say that DIM helped me lose weight. We would all be double dosing!

    PS-Interesting that your doc would say that the higher rate of agressive recurrance with tamox was because of an "inbalance". DUH!!!! Isn't that the argument for using BHRT. Getting the progesterone and good estrogen up instead of knocking out all of them seems like a more logical solution-and well proven by Dr. Lee and others. Also, it is my impression that tamox and DIM both work to inhibit the hormone receptors, not change your estrogen levels. So I do not understand his comment at all. Maybe he needs to do some more homework as to what tamox actually does. Also, as far as the vit C goes, it is important to take it with iodine, they are synergistic. I think they told you not to use C because there was some study that indicated it caused tumors to grow with lung cancer patients. I do remember a discussion on this study and I think we determined it was contradictory. I am surprised that they would tell you not to take C because of one study. The fact is, we need stronger immune systems, and vit C is essential for that. I plan to make sure my Vit c and D levels stay high during this upcoming flu epidemic. I do not trust those vaccinnes and I think boosting the immune system is the key. Also, in Dr. Strand's book, he talks about the fact that a lot of these studies that take only one supplement and test them individually are not usually credible because he says that they usually use very small, insignificant doses, and also that supplements work better if taken  together. It is a complete nutrition program that is important, not just one thing. It sure seems logical to me. Read Strand's book "What your doctor does not know about Nutrition may be killing you".

    Amber-the iodine I take is from my compounding pharmacy. He makes up his own combo, using lugols formula with a couple of cofactors. He is a bib proponent of Dr. Brownstein, and has attended seminars with him, so I really trust him. I am just too lazy to order on line, although I think bcchoices is a little cheaper. Probably works out the same with shipping.

  • PS73
    PS73 Member Posts: 171
    edited September 2009

    Hi vivre, My Dr is a smart man and open to me doing some alternative therapies, I may have written what he said inacurately as Im sure it's not such a simple process.  We are to discuss this tomorrow at my apt and Ill have the articles in hand.  Im almost ER negative so I personally feel that its complicated for me to self treat which is why I need to find an excellent nutritionist, naturopath and compounder to complement my oncologist.  Near impossible - maybe, but Im hopeful.  I enjoy reading this thread and finding a lot of important information - I have stacks of notes :)

    I have been re-reading this entire thread and am so impressed with you all for doing so well the vitamins and supplements and overall GREAT attitude.  Im a little late in the game now but will not let that stand in my way.  Im half and half - medical and alternative and hope that I am welcome here.  If not, Ill crawl back to my cancer hole :(

    Before my potential exile, someone posted about throwing away old by products of juicing and I have a suggestion.  I used to be a beverage technologist - food science (please dont judge) and pectin is found in the cells walls of many fruits - esp apples. Ive been meaning to try this as an emulsifyer for home made veggie patties.  Its a natural thickener and stabilizer (like soy lecithin) and we used to make shelf stable smoothies with it since its a strong enough ingredient for making coffee smoothies, which have high acidity.  ...prob not necessary for home made ready to drink beverages but in terms of removing starches and eggs from your diet, it might work really well as an emulsifyer (imho).  Im going to try it with veggie patties and let you all know if you are interested.   xo

  • amberyba
    amberyba Member Posts: 180
    edited September 2009

    thanks vivre, you are so lucky to have this pharmacist and his fortunate friendship with Dr. Brownstein, I have 2 friends who are pharmacist, one is older and has always given me sound advise....I will try to see if he can help me on this.

    PS73, hope all goes well tomorrow...great idea....please let us know ( in detail ) about using the pulp/by product...i hate throwing the good stuff away.

  • vivre
    vivre Member Posts: 881
    edited September 2009

    PS73-Please do not ever think you are not welcome here. We are here to learn from each other. I have learned a lot and, every day I still seem to learn something new. For instance, I like your idea about the pectin. I know my grandmother always used it for her preserves. Sometimes the old ways are still the best. Let us know how that works out. I agree that we need to find doctors who can help us through this. But it is not an easy hunt, as we all will attest. But I am heartened by how many more doctors are getting into this field, integrating medicine,  after becoming disillusioned with the status quo. Dr. Christiane Northrup and Dr. Brownstein and Dr. Ray Strand are prime examples. They decided it was more important to find solutions to help their patients heal, instead of just giving them a drug that will get rid of the symptoms. Most of us here want to do whatever we can to be healthy at the cellular level and we love to explore all the possibilities with each other. I look forward to you imput too.

  • vivre
    vivre Member Posts: 881
    edited September 2009

    PS73-I just wanted to add that i have heard of someone who was triple neg, and had a recurrance and then was ER pos. That is why I think it is so important that we all have our hormones tested. I think that is a much better indicator of what we need to do than to just look at our pathology reports. I just do not understand how they can push arimidex and tamox on us without doing these tests first. How do we know taking the drugs makes any difference? We need to have a complete hormone work up done so that we can follow our progress and make changes if something does not seem to be working. Otherwise we are just wasting our time.

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited September 2009

    I can see why soybean oil can kill bugs on contact, it has a residue of the same chemical they use in drano.  Disgusting.  I can barely eat anything with mayo anymore.

    Instead of thinking of those things soy, I found something for us. 

    In yet another study in the same journal, researchers found that dietary fiber intake reduced the risk of breast cancer, confirming previous research. That study, the National Institutes of Health--AARP Diet and Health Study, looked at the intake of fiber to breast cancer among more than 185,000 postmenopausal women, with an average age of 62.

    The researchers found 5,461 cases of breast cancer during an average of seven years of follow-up. Those who ate the most dietary fiber -- 26 grams a day -- had about a 13 percent reduction in risk of breast cancer compared to those who ate the least, just 11 grams a day.

    An intake of 25 grams a day of fiber is considered adequate for adult women.

  • althea
    althea Member Posts: 506
    edited September 2009

    PS73, welcome to this thread.  I can't think of anyone posting in this section who has opted for alternative thereapies completely.  I personally went through chemo, surgery, rads and two years of tamoxifen.  I post here mainly because I'm tired all the time, I feel certain my thyroid is out of whack, and all the doctors I used to go to would just shrug their shoulders when I complained of fatigue.  Occasionally a test or two would be conducted, but even with TSH of 6.2 and more, my internist seemed only interested in my elevated cholesterol, told me to exercise more and lose weight.  The dear ladies here are part of my lifeline!

    I noticed your mention of food science background.  Would you know how to calculate the amount of vitamin C I get from the fresh watermelon juice I make every day?  I start my day with at least 12 ounces, sometimes as much as 24.  

  • AllieM22
    AllieM22 Member Posts: 188
    edited September 2009

    I read something too about "indiscriminately" boosting your immune system for fear that it could also help boost any cancer cells--which I found pretty alarming. It was a well-respected cancer specialist but unfortunately he didn't elaborate on the video. I am taking vitamin C as part of the supplement line-up but I think the amt is considered in normal range--I forget what that is.

    It's really interesting (and alarming!) that patients with ER+ tumors can later get the ER- kind. They've got to get a handle on how this works. (OK understatement of the century...)  

    Have a good night ladies!! 

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited September 2009

    Under the heading of: I didn't know this...they're high in fiber.

    1. AVOCADO. One whole, medium avocado contains 17 grams of carbohydrate and a truly impressive 11 grams of fiber. That's almost half of the daily recommended minimum intake of fiber!

    The avocado is a real diabetes superfood, providing an excellent dose of those good-for-you, unsaturated fatty acids. And avocados deliver almost 20 vitamins, minerals, and phytonutrients -- the special plant chemicals that convey myriad health benefits. Plus, what is more fun than growing an avocado plant from the pit?

    Plus, I didn't know we could grow our own from a pit.  Live and learn.

  • vivre
    vivre Member Posts: 881
    edited September 2009

    Thanks for the good news about avocado's Rosemary. My favorite lunch is a whole avocado and some salsa and some greek olives. Did you know you can just cut it in half and squeeze everything out of the skin. The seed just pops out this way. I remember my aunt growing them in her windowsill. She suspended it half in and half out of water to root by putting toothpicks in it and balancing it on the rim of the glass. Thanks for the reminder. I just might try an avocado tree. I wonder how many years they take to produce. LOL!!!

  • Rosemary44
    Rosemary44 Member Posts: 272
    edited September 2009

    Vivre,

    They grow in trees?  Oh.  Here I thought it was a plant.  I use to eat avocados a lot (with a few other things) to lower cholesterol which worked, but once I got my numbers down I got away from them. 

    Last week I went to the Dr. for blood tests.  They call me and said all's well, and I asked for them to send me my results.   Still waiting...so I have to call again.  What's the point of them not doing their jobs?  I'm just going to call back.  I want to know these numbers because I have some new stuff to try and I don't want to waste my money if I don't have to.  Geez.  We need our fiber so I'll just get the avocados anyway. 

  • Calypso
    Calypso Member Posts: 132
    edited September 2009

    Hey Vivre, you mentioned keeping your vitamin C level up.  Is there a vitamin c level blood test that you know of?

  • deni63
    deni63 Member Posts: 372
    edited September 2009

    Calypso, there is a vitamin c level test that you can take. I do IV vitamin drips and everytime they raise the amount of C they put into the drip, they check my vitamin c levels to see how I am handling the increase. It is a blood test that is taken immediately following a drip. I'm sure you can still have the test done if you are not doing IV drips. Do you see a naturopath? I'm not sure if a regular doc would do this test.

  • althea
    althea Member Posts: 506
    edited September 2009

    I'm so glad to hear avocadoes have that much fiber!  I eat one nearly every day.  My favorite sandwich this summer has been avocado with sunflower seeds and sprouts on ezekiel bread. 

    Vivre, you can only dream of growing your avocadoes.  It gets way too cold where you live.  Rosemary, you could probably give it a go, but trust me, they don't come off a plant.  They grow into BIG trees.