natural girls
Comments
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Hi gang, thanks for the warm welcome. I had my first taxol today and am feeling fine. Just ate practically an entire watermelon when I got home
Lots of vitamins in this guy - K, C, Bs, A sooo good!!!I brought the papers regarding the indole therapy to my onc and he is going to read over everything. Since Im only 25% ER positve I may get out of the tamoxifen all together which makes me really happy. But I know if I decide to move forward with the tamox I am goingto push the indole therapy to ride shot gun to it.
Love! avacados and now I can't wait to grow one in my window too! Good info.
Althea to your question about vitamin c and watermelon. Since Im home, I don't have my notes with me now which I trust more than the internet (and its been years as Im working in cosmetics now) but.... we used to add 0.025% ascorbic acid to fortify our drinks 0.28% for ones that were pasteurized. If a watermelon has 10mg of ascorbic acid in 100g of fruit and you are having 12oz of this daily, you are getting 0.036grams daily and 100% RDI is 60mg, you are at near 60% RDI. I did it two different ways and the numbers are within 0.01+/- I also saw that rose hips has 60x more vitamin c than citrus fruits. I think I can grow that in my garden too!
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Hi PS73, glad you're feeling ok so far. I am so loving watermelon this summer. Knowing it has vitamins A, B & K makes it even better. Beyond that, your answer is geek to me. The only thing I add to my watermelon juice is unrefined salt. I started with my easiest question too! My other favorite drink lately is green limeade, which has limes of course, ginger, 1/2 cuke, 3-4 sprigs parsley, sprouts, apple, 4 drops stevia, some ice and ahhhh, what a refreshing green drink. At some point I'll want to know with some specificity what nutrients are in my juice. For now, I'm satisfied just to know it's delicious and good for me.
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LOL I am a total geek, but you asked
...that drink sounds awesome (so does the sandwich). Have a good evening!0 -
Althea,
You asked for it and you got it:
Just put a search in on the top of the page for any food and you'll get everything they know about that food and then some.
My pc is giving me grief. Does that hit go through? It doesn't for me, yet I can get to it by putting it in my address line.
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In reply to the Advocato thingy... My Dad and Mom had a tree planted right by the house. It took 8 years to produce. It was about 20 feet tall. They got advocatoes off of it for 1 year then it froze. The only reason it probably survived is it was so close to the house that it was probably sheltered from freezing. We get a really hard freeze down here in Louisiana every five to 10 years. I also lost a few orange trees that year.
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Is this the link you meant to post?
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Hi Everyone,
I have just completed 16 roungs of chemo (AC-T). I am going to give Tamoxifen a try. Throughout this crazy journey I have gone completely natural other than the above mentioned. Everything I put in or on my body is natural and free of chemical. Anyhow, my question is I am going to start my reconstruction in January. My first inclination is to have saline implants, but I have heard so much negativity about both saline and gel. Looking for opinions... facts... anything. My family tells me to do what I want. I feel like I am so careful about anything I put in or on me, why would I put gel implants in me? Does it matter? ( I do not qualify for any flap procedure).
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Pat,
That's the one. I might have overstayed my welcome there. Any which way I put it in, com/org it wouldn't work for me. Now it works. I'm trying to find another high source of fiber, like the avocado.
I'm off the tree growing thing unless it's a fig tree. Now that's really good eating. I had my first real fig 2 years ago and I still think about it. It wasn't dried, nor was its last name newton, fresh figs are wonderful.
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Althea, I know it is too cold to grow avocados. Do you have to rub it in! LOL But I could grow one in a pot and take it in. I have a lemon tree and jasmine I keep inside all winter.
Rosemary, I LOVE figs. My grandfather managed to grow one in Chicago when I was litttle. I think all the buildings protected it from the cold. He would wrap it up too. I still remember how great they were. My cousin grows one here too. She burys hers in the ground in the winter. Which reminds me, I need to get over there and raid her tree!
cdean-I don't know anything about implants. I am content with the lopsided look. The stages of a woman's life:
1. To grow up
2. To fill out
3. To show it off
4. To hold it in
5. To hell with it!
I am in stage 5!
But I did have a friend who had all kinds of problems with her implants leaking and finally had them taken out. I always wondered if it is safe to have the stuff that holds the saline in our bodies. If it is made of some kind of plastic, isn't that dangerous? I mean we should not drink out of plastic, is it okay to put it inside of us? But as I said, I do not know of the specifics. Perhaps someone else does.
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Virtually all the implants are made of silicone, or at least the shells are. The shells of the saline ones are silicone. The others are filled with different consistencies of silicone as well. The cohesive and true gummy ones are unlikely to leak, but they can have issues too, especially following an impact. They really don't use the kind that used to leak a liquid form of silicone anymore.
My cohesives feel very much like my breasts used to when I was younger. I understand that the saline ones feel harder, more like a filled bag of water.
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Vivre,
I'm with ya. A raiding we will go. Well I've been running around the net this morn and found this:
http://breast-cancer-research.com/content/11/4/R64
I guess I don't have to worry about getting my vitamin D level higher anymore. We still need it for calcium absorption. And who knows if high levels are heart healthy, so I'll still take it.
I think if we all were asked for a blood sample at the time of our dx we'd have better research info. They don't do it and we'll never really know.
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Rosemary, Maybe PS73 our self proclaimed "Geek" can make more out of that study. For me it just leaves more questions because I am not sure what it means. Did they test D levels at the time of dx? Did they test it years later after Vit D was supplemented or did they just do one blood test and that was it? What I hate about a lot of these studies is that they just seem so incomplete and tend to measure so little, yet they become gospel in the medical world. As you said, it is really troubling that they do not immediately run these tests for us. We should have complete vit and hormone levels measured upon dx. Maybe then we would all have a clearer picture of where our deficiencies are so we could actually do something to change our own personal inbalances. This is why I think they will never find a "cure". They continue to do all the research on the tumor and the cancer cells an do not look into the human aspect. It is so frustrating. But I will continue to take my D because I know it helps me to feel better.
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Vivre,
That was just the abstract, the full report will be later. If I don't take enough D, my hip will ache. So I know it works for some body parts. I wish more people would find out about this important role of D when they first feel the ache. Instead, the medical community just waits till they need to offer a hip replacement.
If they truly want to reduce the cost of medical insurance, research vitamins and minerals and get the word out there.
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Hi Gals. I'm new to this forum, and really feel the need for a support group. I was diagnosed in January, have had treatment and await follow up at this point. I take multiple supplements and try to eat mostly fruits and vegis, grass fed cow butter, some high quality meats. Very minimal processed foods. Also trying to keep my lymph system activated by skin brushing, loofa, dead sea salt baths, jumping-yes I said jumping. I guess you look at it like a glass of water that has been sitting and eventually a layer of stuff is on top. I bought a small trampoline. Also, went to all natural body products and cleaning products. The only thing I haven't given up is my hair dye. Can you imagine? All these years I've been coloring my hair. I've still gotta work on that one.
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TaraMarie-Welcome aboard. Glad to see you do the rebounding! I keep telling people to do it too. It is so good for you, and fun. And I agree, I will not give up the hair dye either. I just have to compromise somewhere. I just hope I am chelating enough toxins with all the healthy stuff. Also, I read that it is the darker dyes that cause the problems. Blonds have more fun anyway!
Rosemary, The only supplement that Doctors are finally giving some credence to is Vit D. I wonder if this study is backed by drug companies who do not want D to be known as a good preventative because it undercuts their business? The fact that the FDA and the drug companies are spending millions to back obamacare really worries me. What is in it for them???? More government control of course. The fact that they are outlawing natural thyroid amour and iodine in Europe, because of recommendations by big Pharma really scares me. I think they will then use that as proof that we need to outlaw it here too. Pretty soon we will be at their mercy for everything.
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Geek alert! Ha, Im very far from a sensory expert. Id agree w/ the pre-menoposal and D being important as mine was 13.5 prior to dx - my GP said it was bc it was winter. Thanks Doc. The study is massive and then very selective so if its a true study from a reliable source where they are not selling anything, I could see it being accurate. Plus, considering all of the studies Ive been searching thru lately, an n over 20K is huge. It dosen't discount the need for vitamin D and how america as a whole is borderline deficient. I read somewhere that D is absorbed in the small intestine and some ppl (like me) don't absorb it well. I read some hints on keeping the small intestine healthy and it point to what do you think? ding - fiber.
Curious about Aluminum and Chemotherapy Drugs - does anybody know if there is any Al in these drugs? In looking I found a site stating that taxol started as a plant. Its a geek read. http://www.phcog.org/Taxus/Taxus_Web.html
...adding that if you do color your hair, watch out for this interesting ingredient.
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Hey Geek! Love the fact that we now have our own resident researcher! Saves me a lot of time. LOL And you are a comedienne to boot-those hair products really can really kill us!
BTW-While walking in the arboretum today I passed the pine tree that they used for the chemo drug taxol. Seems they "discovered" it because the indians use to use it for medicinal purposes. This is my whole problem with big pharma. They take a natural substance, turn it into a drug by reproducing it chemically so they can patent it and then charge us an arm and a leg. Why can't we just use the stuff in the orginal form like the Indians did?
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vivre ~ Big Pharma won't give us those substances in their natural form because they probably wouldn't cause anywhere near the SEs the manufactured drugs create -- nausea, vomitting, low blood counts, kidney problems, liver problems, etc., etc., etc... There'd be no downward spiral to get us into that requires more of their drugs...
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I'm suspicious of the D research. We have to read the full report. It dawned on me that we need to know what level of D was in the blood of the women who got BC anyway. They have such low levels in expected ranges of normal. What's normal to them might be really dangerously low.
I just had one done, and it says 30-60 is normal D range. Phooey. I'm going to re-read the report and see if it makes sense. I just don't trust them. I know, preaching to the choir here.
"We observed no association between 25(OH)D and breast cancer (OR=1.09, 95% CI 0.70-1.68, P trend=0.60) for the top vs bottom quintile. Using a priori cut-points, the OR was 0.86 (95% CI 0.59-1.26), for [greater than or equal to]75 vs <50 nmol/L. Results were not different when the first two years of follow-up were excluded, or in analyses stratified by season, latitude, BMI, postmenopausal hormone use, or by tumor grade or estrogen receptor status. "
Ok, what the heck does that mean?? I wonder if we read the full report will this get any easier to understand?
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Its interesting how the medical profession takes poisonous and venemous plants and animals to cure humans. ie. bee sting therapy, yew tree, snake venom and even holly was given for malaria back in the day. I wonder what Alice in Wonderland was dx with?
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Alice was just on a bad "trip". Remember she ate the magic mushroom. The rest of her day was just one psychodelic, far out day dream. Kind of like the stuff they give to our kids for ADD.
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Naturthroid/Armour vs. Synthroid. I wrote one of my best friends who is an endocrinologist about the thyroid issues in general and asked her why my endo. did not have my iodine levels tested 3 years ago after an enlarged thyroid and removal of one lobe to test for cancer which was negative but left me with only one lobe? I realize now I was prob. iodine def. and this added to or caused the enlarged thyroid. She said they do not know how to test for the iodine levels. I assume I will find info. counter to that remark on the yahoo iodine group discussion but have not gotten there yet. I have seen "the load test" referred to and my new nat. doc. just painted the circle on my inner, upper arm to see how long til faded and faded pretty fast. Also, I asked her more recently if any of her patients ask for naturthroid/Armour? here is her response: please comment on this
thanks
Danette
a few of my patients want "natural thyroid" armour or nature
my concens:
1)it comes from pig thyroid and how do we know they do not have "mad cow" (slow growing virus hard to detect) disease
2)there is t4 and t3, t3 only lasts 6 hours so to take the pills once a day doesn't make sense!
but if they want after saying the above, i let them. a few feel better, overall not.
T4 is pure and well tested and safe. (synthroid)
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Danette,
1. Go to http://www.stopthethyroidmadness.com/ for the low-down on Synthroid.
2. I would estimate 95% of thyroid patients who have used both Synthroid and Armour prefer Armour. Synthroid makes many people WORSE.
3. Your doc says T3 only lasts 6 hours. She is referring to detecting its presence in the blood. Anyone who has taken T3 will tell you they can still feel its presence many hours later so its presence in the TISSUES persists longer. Also, most people take the T3 several times a day. Doctors don't like multiple dosing schedules because it is harder to get patient compliance.
4. Synthroid is the official, medical establishment "standard of care" which is why most docs prescribe it. A few docs have been disciplined by their states for recommending Armour instead of Synthroid.
5. The Iodine Loading Test has been around at least five years. I've found it very helpful. You need to get an iodine literate practitioner, tho, or they won't know how to interpret it and prescribe. A couple people on this group were not absorbing iodine in the beginning.
anom
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Just one comment on the D research article. There was no significant diff found, only a trend toward significance. Not a strong study in my opinion.
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Vivre wrote:
BTW-While walking in the arboretum today I passed the pine tree that they used for the chemo drug taxol. Seems they "discovered" it because the indians use to use it for medicinal purposes. This is my whole problem with big pharma. They take a natural substance, turn it into a drug by reproducing it chemically so they can patent it and then charge us an arm and a leg. Why can't we just use the stuff in the orginal form like the Indians did?
Vivre - big pharma is not stopping you or anybody else from ingesting any part of the yew tree (where taxol comes from). Since it is a naturally occurring plant, it is not patented.
You can buy the supplement from this website:
http://www.google.com/products?q=pacific+yew+tree+supplement&hl=en&aq=f
You can buy the bark and needles here:
http://www.alibaba.com/product-free/11753579/Taxus_Brevifolia_Pacific_Yew_Bark_Or.html
However, if someone is in need of a taxane, they probably have been diagnosed with a life- threatening cancer. I would guess that not many women in this position would like to trust their lives to an unproven plant or supplement.
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Back to the D report. Why they bother to report on something that has a small trend towards significance is beyond me? Anyway, I looked into another reason why we should have high serum levels of D. I found that it helps to prevent lung cancer. I'm back to getting my level up again. Though they didn't say how much is a high level to go for.
Another thing I read about taking D. This doesn't seem to be widely known either. But one Dr. said we should always be taking at least 1200 mgs of calcium with D. He says D draws metals and to offset that, we should be taking calcium. One would think that should be out there and common knowledge but he's the only one who talked about it.
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Here's a nice start to our day, we've talked about chocolate before but now we have a good reason for eating some weekly:
http://newsletter.vitalchoice.com/e_article001535869.cfm?x=bg2kHDQ,b5G6ssw1
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Anyone taking Nutriceuticals?
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Anyone going to the free Encourage meeting at the St. Charles Hospital tomorrow night? The topic is unlock the doors to a Healthier you. It is about raw diets, juicing, detoxification, and Colon Hydrotherapy. Hope to see some of you there.
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I need some advice from you very knowledgeable ladies! My new oncologist wants me to go on Tamoxifen for two years. Even though I am ER-, he feels that I produce a lot of estrogen and that since chemo would not be effective for me and radiation is too risky, it is really the only conventional option for me. I have really not been interested in conventional options, and don't think I am ready to change my mind on this. My onc is concerned about my high risk (35%+) of recurrence as my tumor was poorly differentiated. I have mentioned previously that I have been seeing a naturopath and doing extensive treatments with him. I really don't want to go on Tamoxifen. From what I have read, it is not even effective for ER- cancer, but this oncologist feels that this is not true and that my risk would be cut. I feel that I am cutting my risk by the lifestyle changes and supplementation that I have incorporated. He happens to agree but says there is no way to know by how much (but he also admits that we don't really know how much effect if any the Tamox would have). Can anyone share their experiences with Tamoxifen? Side effects? Positives, negatives? Also, has anyone who is ER- taken Tamox? I would love to hear what you all think.
Deni
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