natural girls
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Thank you all for the birthday wishes and for sharing!!!!! It really made my day
.anon, I did e-mail the place you recommended. You always make me laugh and I love to laugh!!!! I am still thinking of all the "I should have said" to my surgeon like: Ok mr wonderful I will get the mam but first you put your little pecker on that machine and get it quished then we will talk again. I have been getting mams for years and every time I would think "this can't be good for the girls". I will not get another one. When I send the letter to him, with the bill for our time wasted on him, I will send it certified so I will know the f**ker gets it.
vivre, The dim I have been taking is not agreeing with me. I know you are on something like it (can't remember the name) and I know you get it from your pharm. What do you think of the stuff that is sold on line. Is it just as good? I'm post men and I'm thinking the dim is to much for me.
Thanks again girls and love to all.
Patty
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Patty, love your little pecker joke! I should have thought of that when I spent my whole one year checkup with my surgeon, arguing because I had not had a mammo. I had had 3 thermographs, and he would not even look at them! I had lost 40 pounds and he did not even notice. He just kept going on and on about how I need to get a mammo. I too will NEVER have one again. I have been radiated enough to last me a lifetime. The therms are the only way I will go. If they are suspicious, I will follow up with ultrasound. The only reason they do not use these methods is because they are cheap. Why would they tell us to get a cheaper test when they can make millions on the one they already do? I love having the therms. I can do them often and see the results for myself, immediately. I can do them often and not worry that I am being exposed to more radiation or that cancer sells are being squished and spread. I can it often and not dread the pain, because it is totally painless. We have a right to choose , and if we do not have a doctor who wants what we want, we have a right to look for a new doctor. It took me a year and half, but I finally found doctors who can actually help me to get and stay healthy, not just prescribe a pill and "monitor" me. Yes, they said they wanted to monitor me for the next few years! I do not want to waste money running between cancer doctors just so they can collect $$$ and argue with me about what I am doing. So I do not see any of them anymore. But I am not going it alone. I do believe it is important to find doctors who understand what tests to do and how to keep us balanced. I am not saying that my cancer doctors where terrible. They were wonderful caring doctors who got me through a terrible thing. But I am cured now (even though some will not use that word) and now I need a different kind of support.
Patty, the supplement is called myomin. I am reluctant to order anything from the internet and I am lucky that I have a wonderful compounding pharmicist in my town who believes in hormone balance, iodine, and makes his own formulas, based on the same research that I read about. Maybe you can find one near you or call mine and ask them if they know of a reliable source. PM me and I will give you the number.
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Deni, thanks for sharing your story yesterday. I just want you to know that some of us, who live outside of NYC,still remember you all on the day we should never forget.
Fairy, I am so happy you are in this with me for the long haul, trying to help others learn about how to get and stay healthy. I sure hope you will keep it up on my new site. I finally found someone willing to do all the techie stuff, so hopefully we can get it going soon.
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Yay Vivre!! I can't wait till you have it up and running!
Patty! I always said if men had to put their peckers in a mammo machine there would have been an alternative years ago LOL!!!
L
ox
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I am still nervous about using DIM though I have been on it now for over a month. I could use some positive reinforcement and encouragement.
For those of you who have had your blood/saliva tested after using DIM did you see your bad estrogen levels decrease and the good estrogen levels increase? I need facts to help decrease my worries.
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Fairy
Can you be specific about what they tested in your blood to let you know all was well?
Thanks
Merilee
Fired my Onc too for similar demenour. So ugly.....
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Merliee, they do a tumor marker blood test, not sure of the name, CA something?
L
ox
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AMAZING, MY ONCX NEVER OFFERED THIS TEST EITHER
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All the oncs that I have seen did not want to do tumor marker tests. My naturopath does mine every couple of months. The oncs said that it wasn't an accurate measure. Maybe it is not 100%, but to me, if there is a way to keep an eye on things and have a baseline, why not use it since there are so few tests that give us an indication of what is going on in there. I also do a urine test every few weeks to monitor.
Viv - I agree that everyone of us in this country (and most places around the world) feel the pain of 9/11. It is a sad day for all of us to reflect.
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Here is something I found that I thought others might like to read as well. TheCA125 test you mentioned fairy looks to be a test for ovarian cancer. Thanks for sharing this I had no idea it was availible. I am going to see a naturalpath soon and I will ask for this test
What is a uPA + PAI-1 TBreast Cancer Tumor Marker Test?
By Pam Stephan, about.com
Question: What is a uPA + PAI-1 TBreast Cancer Tumor Marker Test?
After an initial diagnosis of breast cancer, your doctor will need to know as much as possible about the type and nature of your tumor. Your doctor may order a tumor marker test, uPA + PAI-1, to help determine what treatment is best for you.
Answer: A urokinase plasminogen activator (uPA) and PAI-1 test is a prognostic test that is done on a sample of tissue that is taken from a breast cancer tumor. The results of this test will tell your doctor if your cancer is aggressive and what your risk of recurrence may be.
About Urokinase Plasminogen Activator (uPA)
Urokinase is an enzyme that occurs naturally in your urine and blood plasma. It is produced in your kidneys, and helps dissolve blood clots in your kidneys or bladder. Tumors can also produce urokinase, and researchers think that it may encourage tumor cells to spread. Plasminogen is a substance that, when activated, becomes plasmin, an enzyme that digests fibrin, an insoluble protein that forms when your blood clots.PAI-1 Inhibits uPA
Plasminogen activator inhibitor 1 (PAI-1) is a special protein that inhibits urokinase. If the levels of PAI-1 and uPA are both high, it may mean that your tumor is overproducing urokinase, allowing cancer cells to spread beyond the tumor. Your high levels of PAI-1 may not be able to inhibit the growth of the cancer without additional help from chemotherapy.What Are the Benefits of a uPA and PAI-1 Tumor Marker Test?
If your lymph nodes are clear of cancer cells (node-negative), and your tumor is hormone sensitive, low levels of uPA and PAI-1 may indicate that your risk of recurrence is quite low. In this case, chemotherapy would not improve your survival, or if you opt for chemo, your survival will be improved by only a small percent. If you have high levels of uPA and PAI-1, your risk of recurrence is high, and chemotherapy would benefit you. A treatment plan that includes cyclophosphamide, methotrexate, and 5-fluorouracil (CMF) chemotherapy would improve your survival chances.Sources:
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I had 2 tumor marker tests done (reluctantly, by my 2nd oncologist; the first oncologist refused, hence my need to find oncolotist #2). The first one was CA 15-3, which I believe is specific to breast cancer and the 2nd one was CEA, which I think looks for protein levels in the blood that may be caused by the presence of varying types of cancer, including breat cancer. My oncologist told me they weren't reliable, but I wanted them done as a baseline so I could see how I'm doing every 6 months or so (she won't retest sooner than 6 months). Both my numbers came in very low....was quite an emotional boost to see that I didn't have "off-the-chart" numbers!
Melissa
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you girls have lifted my spirits...Happy birthday Patty, and your story makes me so sad....you hang in there and I am sure things will start to look up and you will find the best health care. I loved the story about the pecker too....I have never thought about that one.
I asked my breast surgeon after my diagnoses too about those dreade mammograms....not detecting my tumor....and why get them....he just told me then in 2008 that it was standard procedure to get them done...
then at my August check up he told me he wanted to start doing breast MRI's at my next 6 months....that they were more accurate for premenopausal women with dense breast tissue..I was a bit relieved....never though the mammo's were good for breast tissue.
And Vivre....I agree with you on the thermography....i have read about it...but I haven;t mentioned it to my doctor...and I don't know of anyone around my neck of the woods where the procedure is offered....who knows but maybe in the near future the thermography will be standard procedure rather than mammo's and MRI's....wish so!!!
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I'm still trying to figure out what to eat and what not to eat. I am trying to change as much as possible to organic. Should I eat baked potatoes or avoid them? Is it good to drink Just Pomgranate and Just Blueberry juice or should I stick to whole berries instead? How much of my intake should be fruits and how much should be vegetables? Are organic eggs okay? Should I or should I not eat the yolks?
Thank you for any help you can give.
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my bad, the onc doesn't do the CA125, that is for ovarian cancer, he does the ones specific to BC, also he monitors a bunch other stuff that can indicate if anything is going on i.e white blood count, red blood count blah blah, I was anemic on the last blood test, looks like I am not this time around yay! He does it because his reasoning is, that should things change he would catch it early, I know for me, its nerve wracking every 4 months!
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I've been researching natural aromatase inhibitors. Has anyone else learned anything about chamomile tea as an aromatase inhibitor? If so, how much a day should someone drink?
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Luna, start by getting some good books on nutrition. I think the best diet is to be as gluten and sugar and dairy free as possible. This my sound like eliminating a lot, but you can do it slowly. I kind of went cold turkey. When I started to feel better, that was my incentive to keep it up. Now if I eat something high in gluten or dairy, I pay for it with really bad indigestion, further incentive to keep eating better. I do not use a lot of juices because of the sugar in them. I prefer to use fresh fruits and veggies, though I do make smoothies with frozen fruit as a treat on hot days. I try to balance the sugar in it by adding lots of cinnamon and some nuts. Organic eggs are great, and I eat them regularly. Saute them in a little coconut oil instead of butter for added benefit. Do not eat eggs with toast, it is a bad combo. I believe that we need to eat clean, unprocessed foods as much as possible and a lot of variety. I am not a vegan, but I eat meat in small amounts and make sure it is the good stuff, not processed.
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Mr. Farrar,
My husband and I arrived at your office on September 10, 2009 at 3:15 for our scheduled appointment with you at 3:30. Our original appointment was for 1:45 but your office called and asked if we would mind a 3:30 appointment. So we reschedule. My husband had already taken that day off but if he had known your office was wanting to reschedule he would not have had to.
We waited in the waiting room for a half an hour and was called back and put in a room to wait on you. We waited in that room for well over an hour.
You finally came into the room and I started asking questions. You seemed VERY put out with me. You were condescending and belittling to me. I did not appreciate that all. This letter is to inform you that I am FIRING YOU. You seemed to have forgotten that you work for me. I will not put up with your actions again.
This is also a bill to you for all our wasted time for you. I am charging you $500.00. Our time is precious too. If that seems outrageous well we think you charged us an outrageous amount for your services. I expect full payment within the end of the month.
Sincerely
Patty
I thought you girls would get a kick out of this letter that I am sending to my surgeon. Note I addressed it to Mr. not Dr. that should really piss him off !!!!!! I'm doing some kick ass!!!!
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Vivre, Does not eating eggs with toast include not eating them with Ezekiel bread? Why is it a bad combo? Thanks
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Patty, I am giving you a standing ovation!!! I just hope you are not waiting around to get paid. I once had the same experience with a pediatrition. He kept charging me for seeing my son, who was running a fever for more than two days, and he did nothing but lecture me on how new mothers tend to overreact. I was so damn mad. We waited to see this clown with a crying baby, and he talked down to use like we were children. He kept billing us for years. I kept telling his office I would not pay and why. I finally told my regular pediatrition(his partner) that they were wasting a lot of money on postage and staff to keep sending this bill, and if they wanted to take me to court, go ahead. The bills finally stopped. Sometimes right is just right.
Luna, I do not know anything about ezekial bread. I rarely eat any bread. But I read a while ago somewhere that one should not mix protein and grains. They are digested best alone. So I now just eat a couple of eggs by themselves. But tend to eat a lot of small meals now instead of big meals with all the "courses". I found it keep me on an even keel and I think this is why I have been able to lose weight for the first time in my life, and have kept it off for over a year.
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Yahoo Patty! You go!!!
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Happy Birthday, Patty, and loved your letter to your horrible onc. That comment on getting cancer somewhere else because you had one positive node is absolutely ignorant fear-mongering at its worst, and made me think we need to start a "black list" of bad doctors -- although that's probably not realistic for a number of reasons. But if we could, he'd get my wholehearted support for inclusion.
I wanted to share an article a friend emailed me today -- one more reason to be sure our Vitamin D levels are where they need to be:
http://www.foodconsumer.org/newsite/Nutrition/Vitamins/270820090705_canada_looks_at_vitamin_d_for_swine_flu_protection.htmlDeanna
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Thanks so much Deanna!! He is on my "black list" for sure. I read the article on vit d. I am glad I have been taking 5,000 a day. No oinking for me!!
Vivre - no, I'm not going to wait to get paid. I just love to get my point across!!
Patty
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Loved your letter patty! Hope it makes you feel better.
Luna, the opinions on food range far and wide. The one topic where experts seem to agree is that processed food is not good for us. Oils with hydrogen added to prolong shelf life are particularly heinous. One of my favorite books is Raw Food Detox Diet by Natalia Rose. I've tried just a few recipes and every one is divinely delicious. She talks about proper food combining also, which is another topic of widely differing views. She suggests, for example, that watermelon be eaten alone on an empty stomach. It has a high sugar content, and will pass through in just 20 minutes if consumed by itself. Combined with other food, the stomach will focus on the more difficult to digest foods, and things like sugary fruit can ferment in the process. Her approach is based on 'quick exit' combinations, which allows your body to digest food quickly. Improper combinations will require more energy to digest the food.
A good place to start learning is crazysexylife.com, a blog by Kris Carr and her 'awesome posse' of guest bloggers.
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Patty, you are my hero. Kudos kudos kudos. You should make a template of a bill and keep harrassing him monthly. Im sure I can find an overdue medical bill to scan to you if you need it.
Very worried, my vitamin d came back at 21. Ive been taking 4000IUs daily w/ a 50,000IU supplement once a week. Nobody can give me answers, they just keep upping my dose. By the time they check it again, Ill prob be done w/ my Dr. and off of his hands. Has anybody done the SPTS test? The GNC lady was all over the place and although a wealth of info, she was kinda scattered and muttered this test off. I can't find too much vitamin d info on it.
I felt ok this weekend exc that my breasts hurt, literally felt pain in my 'good' boob. Can you get cancer again while on chemo? My hubby says doubtful but just curious.
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PS73 ~ Perhaps you're not absorbing the particular D you're taking. Is it D3? Also, Vitamin D gets absorbed from the small intestine, and people with intestinal and bowel issues (celiac, crohns, etc.) often have a malabsorption problem. Maybe a different brand would work better for you. Deanna
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Ok, ladies eat your walnuts!!!!!
Walnuts May Fight Breast Cancer
Study Suggests 2 Servings of Walnuts a Day May Keep Breast Tumors at Bay By Charlene Laino
WebMD Health News Reviewed by Louise Chang, MDApril 21, 2009 (Denver) -- Just two handfuls of walnuts a day may keep breast cancer away, a study in mice suggests.
And if you have breast cancer, walnuts may help curb tumor growth, the study suggests.
Researcher W. Elaine Hardman, PhD, associate professor of biochemistry at Marshall University School of Medicine in Huntington, W.Va., credits the disease-fighting omega-3 fatty acids, antioxidants, and in particular, phytosterols, in walnuts.
"Phytosterols bind to estrogen receptors, so they would be expected to slow growth of breast cancers," she says. Estrogen fuels the growth of some breast tumors.
Eat More Walnuts or Not?
Although the study was done in laboratory animals, people should heed recommendations to eat more walnuts, Hardman tells WebMD.
"Research suggests that walnuts can be a healthful part of the diet for the prevention not only of breast and other cancers, but also diabetes and cardiovascular disease," she says.
But Peter G. Shields, MD, deputy director of the Lombardi Comprehensive Cancer Center in Washington, D.C., says it's "outrageous" to recommend that people eat more walnuts based on a study in mice.
He notes that animal studies once suggested that beta-carotene reduced lung cancer. "But when we did the [pivotal] study in humans, smokers given beta-carotene got more lung cancer," he tells WebMD.
"This is a nice study that calls for more research. There needs to be a lot more understood" about how walnuts might prevent breast tumors, Shields says.
The findings were presented at the American Association for Cancer Research 100th Annual Meeting.
Walnuts Delay Breast Tumors by 9 Years
Hardman and colleagues studied genetically altered mice that were programmed to develop tumors within six months.
Half consumed a diet that contained the human equivalent of two 1-ounce servings of walnuts per day. "One serving fits in the palm of your hand," she says.
The other half was fed a diet that did not include walnuts.
Standard testing showed that eating walnuts cut the risk of developing breast tumors in half.
"If mice did get breast tumors, the growth rate was also slowed, by 50%," Hardman says.
Looked at another way, eating walnuts delayed the development of tumors by at least three weeks in the mice. "Extrapolating to humans, this would be about a nine-year delay," she says.
The researchers are now testing the benefits of the walnut-rich diet in male mice genetically altered to develop prostate tumors.
Hardman says she expected similar results, with the nuts both preventing and slowing the growth of prostate tumors.
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PS73 - I too had low D3 level (in the 20s) for a year. I took 12,000 IUs D3 daily for 3 months and finally jacked it up to 70! Perhaps it takes a while? Don't give up, and maybe it is the brand...?
Patty, way to go girl! I copied your letter and saved it on my hard drive in case I ever need to use it on a doc. U R my hero!
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yeah Patty, Yeah walanuts !!!!!!
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i have heard that about walnuts--good reminder-- I need to eat some daily. It doesn't take very much apparently...
PS73--my vit D was low also. I am taking 1,000 IUs and will get tested again in a few months so we'll see if that helped. I know I can up it...
I would look into what helps vit D3 absorption. Am sure you can google that...that's what is tricky--it's not just what we take, but sometimes what we take it with, etc. Lots to have to know!
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I love this thread and am always checking it and learning something new to incorporate into my own natural healing plan. Thanks all. Walnuts - wow! Love them, and dontcha just love how they look? So round and brown the shell, so oddly ying/yang on the inside. I do believe in the magic of the natural world of foods and nutrients.
I'd like to ask a question though - how far can we take this forum topic? Can we talk about self-healing, naturally, from within? If this idea is too "far over on the crazy bench", (as we call it elsewhere), then just let me know and I will quit. But if not, I'd like to throw this article out for discussion: "Placebos are Getting More Effective: Drugmakers are Desperate to know Why", from Wired Magazine (www.wired.com/medtech/drugs/magazine/17-09/ff_placebo_effect). Do you think it's possible that our consciousness can actually affect us on a cellular level? And if so, how do we learn how to do that on purpose, not just sub-consciously?
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