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  • Bigapple09
    Bigapple09 Member Posts: 247
    edited January 2010

    NewBride, I am so sorry.

    Sometimes the tumor can be hiding in the margin of a fibroid. Mine was, because of my family history I elected to have an excisional biopsy of the mass they saw on the films. When they took the mass out, it was as they expected B9, but right in the margin,hiding behind the fibroid was the tumor, it was smaller than the fibroid so they never saw it.

    For a long time it shook my faith in doctors and technology, because the inital advice was a needle biopsy, which never would have shown the tumor and it would have hidden back there growing for many years before it was visable and by then,my chances would not have been very good. Odds are I would not be here today and my daughter who was 8 at the time would be growing up without her mom. It was only after I asked my Dr. what he would do if it were his daughter with my history and he said he would do an excisional just to be safe, but that was emotional and not medical.

    Your treatment options are not set yet until you have more details including your onco-type, it is scary and overwhelming and it is your right to be mad and scared and to feel betrayed by your cells and by medicine, just know that the smoke will clear and the choices will be there for you and we will be here for you to do what ever little things we can to make you feel safe and cared for.

    The time of waiting till after the holidays is not a huge amount of time, its not a year, it was a smidge in the big picture, I waited many months based on their thinking it was nothing, because I wanted surfing season to be over and wanted to be healed before snow boarding season started. In the end,it made no difference in my treatment options.

    These are scary times for you and for what it is worth, we are here for you and collectively, there is a lot of knowledge here.

    (((((NewBride)))))

  • AnnL
    AnnL Member Posts: 22
    edited January 2010

    New Bride,  I am thinking of you a lot.   Your latest report is awful.  Exactly as others have said, you will sort it all out.  My IDC was about 1 cm, and although I am awaiting my onco-type score, it is very doubtful that chemo will be recommended.  Also, there is new research that tumors are not all the same.  They do not grow at the same rate.  Some are slow.  Your path report might give some indication of the "aggressiveness" of the tumor.

    The people on this thread are so smart, and have run their treatments with such intelligence and deliberation.  We will be right here with you.  I think doctors are great, but they are not infallible and we each have only one or two of them.  Here you have real life experiences from really smart people with additional doctors.  Lots of reliable sources of information.  Professional advice is based on fact, but it is judgment not fact.  So it is good to get lots of facts.

    I guess your next decisions are whether and what tests to do next?  How difficult is it to do a SNB now?  I had a CT organ scan AND a CT bone scan before surgery.  Those tests were a pain in the butt, but no big deal.  All over with in one morning.  I am like you and hate IV's  Cna you ask them to put it in your elbow instead of the back of your hand?  That hurts a lot less for me.

    Much love,

    Ann

  • Meg9
    Meg9 Member Posts: 306
    edited January 2010

    NewBride, I'm sorry to hear about your pathology report. I was originally dx with dcis in my right breast. My BS sent me for an MRI of both breasts and found DCIS in my left breast that was not detected by a mammogram. I did not have any nodes taken or an onco-type test or a PET scan.  My BS said if the pathology report after mx showed any invasive cells he would go back and take the nodes then. He explained that most patient dx with DCIS have negative nodes so he does not take any because of the possible side effects from having the nodes removed.  After my bmx pathology report I saw my oncologist who said the same. I did get a second opinion and was told the same.

    I'm sorry you are scarred. I would be also. Waiting for the results for these tests results will be difficult. When I was dx with bc I knew there was nothing I could do to change it. I prayed that I would get through it the best I could for me and my family. Your DH sounds like a great guy. You also have the support and knowledge here from all of us. Many here have had invasive cells and neg nodes. Hopefully, your tests will be over soon and the results will be good news. I will be thinking of you and praying for good results. (((HUGS)))

    Carole, Too much sun on the golf course and speed walking through the neighborhood! Cover up! :o)

    Okiegal, Sounds like a good plan...I hope you find answers.

    A couple of weeks ago when I visited my PCP for the pain in my back/shoulder she had me take an EKG. A young male nurse came in the room to do it. As soon as he walked in I felt uncomfortable. He asked if I wanted a female nurse... he would call one. I was relieved and said yes. I really did not want this young male nurse to look at my nipple-less, scared breasts.  I was surprised by my reaction. That's when the reality of it all hit me. BYW, the female nurse took a good long look and asked if she could touch one to see if it felt real! That sure didn't make me feel better!

    Ann, I am OK, Shoshi, I hope your feeling better. Ann, Yuk! Drink the bottled water!

    Ally, Upcreek, and everyone ...Thanks for all the support. I hope every has a good day!

  • okiegal
    okiegal Member Posts: 333
    edited January 2010

    NewBride, I felt sick hearing your report, but am a little less freaked out with every helpful and informative post I've read. I hope these new perspectives give you a bit of encouragement and help calm your nerves. I will keep you in my prayers too.

    Meg9, I had an unexpected male EKG trainee or new hire. He was being supervised by a young woman. I think he was more nervous than I was and fumbled around quite a bit. I was a little freaked out too, but more embarassed because I hadn't shaved my legs!

    AnnL, Nasty! A dead squirrel!!!!! I hope you are feeling better in a few days.

    Let's see, I have two requests for vaccuuming. I need to go pick up the vaccuum from the shop first, but then I'd be happy to oblige. Carole, I'll start with you. Your weather will be much nicer than what's in store for us. The weather service is predicting up to an inch of ice, then sleet and finally 4"-12" inches of snow with gusty winds. We are preparing for the electricity to go out, for 10 degrees at night and to have lots of broken tree limbs. Ugh. So, if I don't post in the next few days, it will be due to weather. But if we have electricity....I might be posting everywhere due to cabin fever!

    Hope everyone is feeling a little better today.

  • Bigapple09
    Bigapple09 Member Posts: 247
    edited January 2010

    I can top all the male nurse tech stories.

    I had a day of testing at Memorial, I had my MRI and they gave me a sedative before because in the old days the MRI took forever. The tech was a guy, who seemed very nice, after the MRI I had an hour till my next test, i was still pretty dopey. The tech came out to the waiting room and said, your next test is at 1,and you really should eat something, but we are a little worried about you wondering around by yourself, I'll go with you. I'm thinking,wow that is so nice.

    Next day, calls me up to ask me out. EWWWWWWW

    Oh, and he was (or still is) married. Double EWWWW

  • NewBride
    NewBride Member Posts: 126
    edited January 2010

    As usual, all of you have helped to re-engage my sanity and keep fear at bay.  I can't thank you enough for that.  Or for all of the prayers etc.  I do feel a little better today and even have a tiny bit of good news to report.  BS called today to talk about pathology.  Here's the tiny good news:  no cancer behind the nipple so if it survives the surgery (and it looks like it might), I get to keep it.  I think I may have misunderstood BS regarding SNB in our meeting yesterday. She is telling me today "No SNB after MX."  This was kind of my understanding prior to surgery.  Other nodes can be taken but I guess it's kind of a crapshoot whether you get the one that might have cancer.  I guess PET isn't perfect either.  So we wait to see what OC has to say. 

     I have reviewed my pathology and am beginning to understand how my tumor may have been missed.  The medical term for the day is: colloid  carcinoma.  I Googled it and found out a little about it.  It's kind of rare.  About 3% of BC is colloid carcinoma. It is sneaky.  Because of it's mucinous nature it can be hard to detect. It "rarely" enters the lymph nodes so maybe I'll catch a break there.  It's what I'm praying for.

    As AnnL pointed out , I do share this thread with smart, sensible women  with lots of experience and resources.  I would like to arm myself with as much info as I can before my OC meeting on Fri.  If you have any input regarding colloid carcinoma I look forward to hearing about it.  And I am really interested in Oncotype DX.  How is this accomplished?  I believe OC said in our first meeting that oncotyping is not for non-invasive BC.  Of course we thought we were dealing with only DCIS at the time.  So maybe now I'm a candidate for it.  Please let me know what you think. 

    I'll end on a positive note for now.  Day 7 post-op and I continue to heal well and have not even taken any pain med today.  The incision continues to improve and my poor battered nipple even seems to be trying to "stand up" as I rub the Silvadene cream on it.  I guess I'll take that as a good sign.  Drainage is down to about 50cc.  Maybe I can lose the drainage torture tool at PS appt on Mon.

    Thank you again for everything and God bless every one of you.

  • fortunate1
    fortunate1 Member Posts: 467
    edited January 2010

    NewBride, This is just a hit and run message. You sound much better. I like the sound of "rarely enters the lymph nodes". Oncotype.... YES. It is for early stage invasive BC that has not spread to the nodes. I think they are now doing it for some women with a little node involvement too. These patients are difficult to decide about whether chemo will do any good or not. The test (on a piece of your tumor) can clarify the choice for many. They give you a recurrence score. Chemo carries its own risks and you don't want to do it unnecessarily. 

    I had a sneaky tumor too, not as rare. Lobular is about 15%, I think, and spreads out in sheets and little fingers. Hard to find on a mammo. I don't much like being unusual in that way, bah!

    Hugs.

    Carole, I didn't say Happy 6 months! A good landmark!

  • ally1423
    ally1423 Member Posts: 183
    edited January 2010

    i_am_ok......sorry you are not feeling well.....you mention pain under your good breast towards your ribs, and cold symptoms for 3 wks, have you been checked out by your primary doc..with a chest x-ray....maybe you need to rule out pneumonia or bronchitis.....i hope you will feel better tomorrow.

  • ally1423
    ally1423 Member Posts: 183
    edited January 2010

    new bride...you're amazing.....glad you can keep your nip. and the news today sounds pretty good, as fortunate mentioned rarely entering the lymph nodes.....you should have some answers and choices pretty soon

  • Tinkerbell99
    Tinkerbell99 Member Posts: 193
    edited January 2010

    New Bride i am so sorry..my thoughts & prayers r w/ u. Meg, hope ur feeling better too. as for me, i can reach easier, but i am still in pain..my foobs swell up...i put ice pk on it (very carefully) only where i have sensation & w/ a cover over the ice pk & over my shirt. This helps a little...i wish i  knew what i could do/ i a, takinhg 600 milligrams 3x a day of motrin..any other ideas?

  • Tinkerbell99
    Tinkerbell99 Member Posts: 193
    edited January 2010

    sorry to keep bothering u, but another way i can explain it to u is i feel like i am wearing a very tight bra & i aint wearing any!!  it is 3 wks post op

  • upcreek
    upcreek Member Posts: 157
    edited January 2010

    Shoshi:  I felt the same tightness like I was wearing a bra.  The muscles will relax and you won't feel so tight.

  • I_am_OK
    I_am_OK Member Posts: 55
    edited January 2010

    shoshi, three weks post op looks like some milestone. Three weeks after surgery I felt extreme tightness too, and I remember Ally complained at the same time.  I was doing some exercises to relax my chest. Also, I started massaging as soon my drain was out, it helped too. By the week four I felt much better. You can take muscle relaxer.

    New Bride, welcome to the rare cancer club. I had phyllodes tumor, which is less than 1% of all BC tumors. It  doesn't enter the lymph nodes too, GOOD NEWS, so I was safe on this side. Hope you will be too. To have Pet Scan is a good idea, I had it for whole body and got my peace of mind. Also, ask you ONC or BS if they can present you case to the Tumor Board.

    Ally, thank you for your concern. Today my ribs are a little bit better, hope they are not getting worse.

    Have a good night everyone!

  • Bigapple09
    Bigapple09 Member Posts: 247
    edited January 2010

    Shoshi

    Please put a towel between you and the ice pack, and don't use it if you are sleepy. I would have been fine if I did not fall asleep and the heating pad had not shifted. Sorry to be so frantic about it, but it was such a stinky thing to go through.

  • Meg9
    Meg9 Member Posts: 306
    edited January 2010

    NewBride, It is 8:15am. I'm checking in to see how you are. Thank goodness for some positive news! I have not heard of colloid carcinoma, but thankfully it does not spread to the lump nodes! I'm praying for more good news when you see your oc.

    Shoshi, Tightness and pain at this time is normal. I was taking Tylenol, but many here had muscle relaxers that helped. Be careful with the ice pack...my PS said no ice. A patient of hers got frostbite and lost skin!

    I AM OK , Ann, I hope you're feeling better today.

    Okiegal, I found another chore you can do...last night I clean the very large exhaust fan & hood over the stove. Something I missed during my pre-surgery anxiety cleaning! Lots of reaching! Ouch!

    It is freezing today and snowing.

    Have a good day everybody!

  • okiegal
    okiegal Member Posts: 333
    edited January 2010

    NewBride, I'm sure you've done more research than me at this point, but I just read a quick bit and wanted to post what sounded like positive news from about.com.

    Prognosis

    Mucinous (Colloid) carcinoma of the breast usually appears in older women (ages 48 to 82) and is a medium- to- low-grade slow-growing type of breast cancer. Since it is not aggressive, your outlook, or prognosis if you are diagnosed with this type of breast cancer, is better than most other invasive breast cancers. A study done in western Australia found that, in most cases of mucinous carcinoma, the cancer did not spread to the lymph nodes nor metastasize to other parts of the body.  

    The article went on to list the types of treatment and "chemo" was not on the list. Another bit of positive news? I certainly hope so. I'm sure you will learn more from the ONC and will keep us updated. I'm happy for you that it's possible that your nipple will stay.

    Shoshi, I've recently been reading a lot about Lymphedema and I agree with Meg9. The ice pack might be ill advised. With Lymphedema, they discourage any extremes in temperature and although you don't have that as a diagnosis, in my opinion, you can't be too cautious.

    Wish it was only snow that was predicted for us. We are being warned to prepare for up to a week of power outages. I'm preparing for a few days, at least, but hoping for no problems! Laundry this morning and vacuuming!

    Best to all!

  • AnnL
    AnnL Member Posts: 22
    edited January 2010

    Shoshi was asking about that tightness.  3 1/2 weeks out, I know the feeling she is talking about.  When I have a snug sports bra on, it is not as noticeable.  But it does seem to come and go a bit.  I still have times when it is bothersome, but those times seem to be less frequent and less bothersome.  Maybe now just when I am trying to sleep.  I will try to pay more attention.  Is it something to just be patient about and wait for it to slowly diminish?  I have noticed that activities that use the pectoral, such as opening a heavy stall door, are much more comfortable now.

  • NewBride
    NewBride Member Posts: 126
    edited January 2010

    i_am_OK, Thanks for the welcome.  The Rare Cancer Club.  I guess we should include Fortunate1 as well.  I wish we were in a better club but at least we're in good company.

    Okiegal, I have perused the web just a little and found the same article as you.  I think you read it more thoroughly than I did (thank you for taking the time).  You are right it does sound encouraging but I did also find the small thread on Colloid carcinoma that is here on BC.org.  I posted my little bit and looked around.  Then I found the profile for Aliceann who is Stage IV.  I haven't had the courage to go back yet.  I do think her tumor was somewhat larger than mine.  Scary tho.  Maybe BS got mine out in time.  Praying for that.  Praying for Aliceann too.

    I go to the OC tomorrow. So far the consensus is that he is a really good Dr.  I will ask him about bringing me up in a tumor board meeting.  Maybe BS too.  Of course I'll keep you in the loop.  You are all turning out to be my best weapons in my battle against cancer. Also against fear and depair.  Thanks for that . I hope that I prove to be as helpful here somewhere along the line.

    On to the positive.  Here is the day 8 post-op report:  Healing appears to continue.  Nipple looks like it's still hanging in there (Go, Nipple!).  Drainage is down to about 40cc.  But  I think I may have tried to do a little too much on my own as the drainage this morning seemed a little redder than it had been for the last few days.  I know.  Take it easy.  I will.  I promise.  I may be beginning to feel that pectoral tightness that so many have been experiencing here.  I'm still not taking any meds but I do notice a little soreness at the end of the day too.

    Now for the news of the weird:  When I sniffle,  I can feel it vibrating around my nipple.  I also get that cold drink going down feeling that a few of you mentioned.

    That's it for now.  I hope all are doing well today.  I will check back after my walk.

  • carolehalston
    carolehalston Member Posts: 8,213
    edited January 2010

    Yesterday I played golf!!!  Not well, but I enjoyed being outside on a lovely day that started out cold but warmed up.  First I shed the quilted vest.  Next the lightweight pullover sweater.  A light weight cotton turtleneck was comfortable after that.  Oh, and I was wearing slacks, too! 

    Afterwards I hurried home for a shower and off to apptments with the BS and PS, married to each other.  I was amazed when the BS walked into the room herself.  Expected to see the NP.  Really like Dr. L, a big outgoing woman.  She did ultrasound on my underarms.  I asked about the mammogram for a baseline on the underarms.  She decided it wouldn't be that helpful in my case, so no mammogram EVER again.  Yeah!!!!

    Here's the screening routine.  I see the BS every 6 mos for 2 yrs.  After that once a year.  Blood work once a year, and she will be checking tumor markers,whatever they are.  She said there are new ones.  At this point, PS entered the room.  Again scrutinized my reconstructed breasts.  He's not satisfied.  Still wants to do further work on his project.  I told him maybe in a year if the weather isn't good for golf.  Then said casually that someone had told me we were in for a wet El Nino spring this year.  Wet isn't good for golf.  Unbeknownst to me, PS passed by the appointment desk after exiting the room and left instructions that he wanted to see me again in 2 mos.  Guess he's banking on a wet spring.  That man is determined to insert bigger implants and improve the placement of the right implant so that I have a perfectly matching pair.  Visited with my cousin Iris this afternoon who had followup surgery to replace implants because of a leaking problem.  This was 15 yrs back when saline was the only option.  She said the followup surgery really isn't bad as far as recovery.  So who knows?  Maybe Dr. C. will persuade me.  Maybe he will insist!  I find the situation amusing. 

    At any rate, I'm extremely thankful to be enjoying my new normal 6 mos out from surgery.  To all of you who are much newer BC survivors, take heart.  Time passes.  Healing occurs.  Memory dims.  Looking at my faintly pink scars, I recall the redness immediately after surgery and the NP's concern.  She had me come in twice a week to make sure I wasn't developing infection.  I used two different creams on the problematical left incision and on a thin spot on the right aureole, which now looks perfectly normal.  In short, I wasn't a good healer, which disappointed me greatly because I wanted an A plus in healing.  Thank you, Fortunate, Okiegal and Meg for getting me through that worrisome period. 

    I'm thinking of NewBride, AnnL, I am OK, and Meg and hoping you had a better day today.  Hi to everyone else.  Hope all of you had a good day, too.  I had a very nice day with my mother.  We met my niece for lunch after my mom's hair apptment. 

    Bye for now.

  • ally1423
    ally1423 Member Posts: 183
    edited January 2010

    okie.....great post on colloid ca....i feel better already. seems like pretty good news for new bride....shoshi...i sure had that tightness and pec pain....still do, but not as bad....i may not be the right person to advise....as i have an extremely low pain tolerance, always have.... my nurse friends say i have "those extra nerve endings," i was on pain meds for 5wks. that was how i dealt with the pain, and the meds didn't even get rid of all the pain, just made it bearable. Meg...i know you must be feeling better.....you're cleaning. I_am_ok...great info for new bride....i hope you are feeling better.,,carole....no mamos....great....i'm curious about the underarm ultrasound. why do they do that? you sound very content with your new normal, i certainly don't blame you for not wanting revision surgery....some other threads mention fat grafting as revision surgery which doesn't involve disturbing the original implant......lipo from the abdomen with the fat transferred to the foobs via injection. AnnL....you're amazing...opening heavy stall doors.....i'm still paranoid about heavy lifting........bye

  • Tinkerbell99
    Tinkerbell99 Member Posts: 193
    edited January 2010

    sorry to bother everyone again but i feel like i am having a nervous breakdiwb b.c of pain & tightness ...,besides Motrin & percoset, can anyone else PLEASE tell me what drugs have helped u..what strength, doses etc & anything else to help......i  know ur all going thru ur own things & I just feel like i am falling apart here..i know when i go back to work it will help a little but i'm scared shitless abt that too for the pain!!!!

    thank you & hugs!!!!

  • NewBride
    NewBride Member Posts: 126
    edited January 2010

    Hi.  Me again.

    Shoshi, I think Soma might be what Ally and Okiegal took for that crazy tight feeling.  I'm sure they will be back by to tell you about it.

    Carole, Glad you got to play today.  Thanks for the info on future screening.

    I have a little more news to report.  Since my last post I have spoken with my nurse navigator.  She tells me that BS will be presenting my case at breast board (like tumor board but for BC only).  She tells me that OC regularly attends these meetings also.  I will make a point of of asking him to go this time.  Hopefully for me the outcome will be the benefit of input from many experts in the field and not just the ones I've chosen.  The outcome for them may be that they will push harder for those SNBs.

    I guess I should screw up my courage and go back to the Colloid carcinoma thread just to post that there may be some new info coming out of this.  Maybe it will help.

    On another note, a good friend said I should do hyperbaric treatments to promote healing.  I think I will ask PS about it on Mon. Didn't Tracyanne do hyperbaric?

    Wish me luck at the OC tomorrow!

    I'll be back later.

  • mantra
    mantra Member Posts: 189
    edited January 2010
    Shoshi - I'm sorry but I haven't read your past posts but see you are in a lot of pain. I'm not sure what surgery you had, but I'm wondering if you've talked to your surgeon. I don't recall being in as much pain as you are and I'm wondering if something is amiss and needs correcting. I had a SNB, mastectomy and tissue expander and although it wasn't exactly a walk in the park, my pain was well managed by a muscle relaxant and Tramacet. Neither are heavy duty meds and I actually went home two hours after the surgery. I know I did find things improved when the drain was removed. As I said, I haven't had a chance to read your past posts but IMHO, it just seems like your pain is more than it should be and perhaps it should be something you talk to your surgeon about.
  • Tinkerbell99
    Tinkerbell99 Member Posts: 193
    edited January 2010

    Mantra thank u!! I have a BMX w/ 1 step w/ allorderm.  I am having mjor problems on the thr right side where they siy is b/cc that is where i always had biopsies,lumptenectomies.  Its swollen, it hurts, i take Motrin 3x a day 600  milligrams, percoset evry 4-6hrs 10/325.  I was told it was ,muscular thay had to dig deep , i was on valium..nada..so i was wondering what others have used here & the doses...i spoke both my drs ..my bs said tramadol but that can be short term only b/c of kidneys..i asked them abt Soma b/c i have heard it here, but they never heard of it.  So i need to know exact info to telll the 4 me to try. i have seen both & they said i look g8t. no infections, no cc...so if  u have any ideas, please let me know....

  • mantra
    mantra Member Posts: 189
    edited January 2010

    Soshi - Did you have a SNB on the right side? I too had my biopsy and lumpectomy followed by a mastectomy one month later. I haven't had one stelp alloderm ( will be having it in April when I have my other breast removed). I'll tell you one trick I found and maybe it will help you. As mentioned, I went home two hours after surgery. I really did nothing except live on my recliner (including sleeping in it). I only moved to go to the bathroom. Family completely catered to me. Fast forward to my first fill. After the fill, the pain over the next 48 hours was so severe I wanted to get the TE ripped out of my chest ASAP. I almost passed out from the pain. DH dashed in for the final catch. I was so upset and the pain was causing me to have anxiety attacks. He gave me an ativan sublingual. A few days later I went back to the surgeon and said I didn't want any more fills; just get the TE out of me ASAP!! She said it should not have been that painful and asked me exactly what I did. I told her I went home, sat on my recliner and did nothing. She said WRONG THING TO DO. She said I needed to take a muscle relaxer (she prescribed Flexeril) and a pain killer (Tramacet). She said get my a$$ off the recliner and start to move and most importantly do deep breathing. So the morning of my next fill, I took the drugs she prescribed and let her do another fill. She told me to sit up straight and do deep breaths. They hurt for the first several breaths and then the pain greatly diminished. She told me to go home and keep doing my deep breathing. Each time I started doing the deep breathing, it would smart for the first 4 or 5 breaths and then it would subside. She said by resting on my recliner, and being afraid to work my chest muscle via the deep breathing, I was causing myself a lot of unneccessary headache. I slept in the recliner but stayed up until 3 AM, doing deep breathing. I woke up in the morning fully prepared to pass out from the pain like I did during the first fill. I was beyond pleasantly surprised when I woke up with zippo pain. I kept doing my deep breathing every time I thought about it and I went through two more fills without any pain. I should also mention my fascia was removed during the surgery. So maybe your muscles will feel better if you start doing some deep breathing. Be prepared for several painful breaths but the more you breath, the pain greatly subsides. I guess it is like stretching an injured muscle you haven't used in a while. When you start to use it, it hurts like heck, but then it loosens up and feels pretty good. Several hours later you try and use it again and it is once again still and sore. So you work it and it stops being painful. You do this over several days until the muscle no longer hurts.

    I don't know if this is your problem, but when you mentioned muscle pain, I went from almost passing out from the pain, to realizing the more I moved it (deep breathing . . . over and over again), the less it would hurt.

    Let me know if this helps.

  • okiegal
    okiegal Member Posts: 333
    edited January 2010

    Shoshi, I think Mantra may be on to something. Muscle movement will increase circulation which promotes healing. So definately move around, sing some Broadway tunes or do some deep breathing, but definately start to move some.

    I was prescribed "Soma", generic name Carisoprodol 350mg,  I can't remember if I took it every 6 hours or every 8 hours. No matter, it's a muscle relaxer, that's the important part. Get one of your doctors to prescribe one, you'll probably feel much better, sooner.

    NewBride, I'm sure I would be very anxious if I was in your shoes, I'm glad we are helpful in some way and I'm sure your daily posts are helpful to someone else! Sounds like your doctors will have the benefit of plenty of knowledge at the tumor board. Here's hoping they got it all with the MX. It wasn't TracyAnne....but who was it that had the hyperbaric treatments? A vibrating nipple?!!! Now that's a trick!

    Ally1423, you sound good! Carole, you PS sounds like quite a perfectionist! I kept feeling pressure to go ahead and "finish the job" by having the tattoo done, but I keep putting them off by telling them I'm waiting because of the "pins and needles". I'm somewhat unhappy with the final outcome, but I don't want to tell them just yet. I don't want uneven tattooed nipples, so I'm in no rush.

    The electricity is still on, but we'll see what the rest of this storm brings. For now, I'm warm and happy!

  • carolehalston
    carolehalston Member Posts: 8,213
    edited January 2010

    Okiegal, sure hope your electricity stays on.  What will you do if it goes off?  Do you have a wood-burning fireplace? 

    Ally, I've been meaning to tell you how much I admire your posting style.  You get more said in one paragraph that I can say in a page!  And it's all perfectly clear.

    Gray day here with rainstorms forecast for the afternoon.  A golfing buddy, Dh and I got in 9 holes and then quit.  Such a shame to get more rain just when the golf courses have dried up enough to be playable.  The revenue is so low at our club with members unable to play much since Thanksgiving that some employees have lost their jobs.  That won't do anything to improve the economy and bring the recession to an end.

    Dh and I are going to the movies with another couple later on this afternoon to see Avatar.  Dh isn't much on sci-fi but agreed to go and be a good sport. 

    I highly recommend a book I just finished reading.  THREE CUPS OF TEA.  It's about an amazing man, Greg Mortenson, who has devoted years of his life to building schools for girls in Pakistan and Afghanistan.  I saw an interview with Mortenson recently on PBS and afterwards downloaded the book onto Dh's Kindle.  It gives such an insight into tribal life in remote areas of those two Muslim countries.  Very readable.

    Shoshi, I'm sorry I can't offer you any advice or help about pain management, but I hope your pain eases soon.  

    Wishing everyone a good weekend. 

  • carolehalston
    carolehalston Member Posts: 8,213
    edited January 2010

    Ally, just remembered you asked about ultrasounding the underarms.  The two places where recurrence could happen after BMX are the chest wall and the underarms.  BS cautioned me to keep up on other screening like colonoscopies.  She said people who've had cancer can be more likely to develop other cancer.  Lovely thought.  So I guess I'll have a colonoscopy in 2010.  My last one was 6 years ago.

    BS is a colon cancer survivor herself. 

  • Meg9
    Meg9 Member Posts: 306
    edited January 2010

    Hello Everyone,

    NewBride, Good luck with your OC appointment. My BS, PS and OC are all part of a team with other BS, PS and OC's. They meet once a month to discuss all their patients and collectively they decide the best treatment. Vibrating nipple! I don't have any nipples, but I do have phantom nipple feelings...very strange.

    Okiegal, I hope you stay warm during the deep freeze! Think the veggies will make it?

    Shoshi, I wish I knew of something to help you. I took Percocet 4-6 hours for the first 2 weeks...then Tylenol. We all have different pain tolerances...did you also experience bad pain with your other procedures?  

    Carole, Good report from the BS! My drs always said no more mamos after bmx. I will go for a MRI every two years to check the health of the implant. I see my OC every three months and the BS every 6 months....since I am not on any med, I will see BS for one year.  OC told me I have to go for colonoscopy also.... Are you happy with your breasts results? I think we are fortunate that we got this far without any major complications. I am afraid to go for the second surgery for "tweaking" and then regretting it. Some how the bad stuff always seem to find me!... Hope you enjoyed the movie...I'm glad you didn't remove any more clothing!   Tongue out

    Ally, I still hesitate to lift anything heavy. I'm just starting to feel OK lifting lighter things. I have been vacuuming, but I am beginning to feel less strain doing so. It does take time...longer for some, but it definitely gets better!

    I went to my chiropractor this morning and I am no longer feeling any pain in my back. Then I went for a hair cut....Why is it that they sometimes cut your hair the way you want it and then other times they decide to do something different? UGG!

    Hope everyone has a good weekend!  Stay warm!

  • ally1423
    ally1423 Member Posts: 183
    edited January 2010

    good morning......shoshi...i was taking the soma that okie recommended.....it was that dose 3x daily. i could only take it at night....because i was working and it makes you drowsy....my percocet dose varied. 10mg every 4h. for the first 2wks...but it didn't help. i increased to 20mg every 4h for 2wks. i would not recommend that high dose, as it is very constipating....but i just had to. at about the 4th wk. i was feeling better and decreased to 5mg maybe 2x per day. after that i took advil for about one week, and at 6wks i just felt better, i think the massaging helped. but i didn't massage until the ps told me to, also i agree with okie, moving around is very important.....carole...interesting info about recurrence underarms and chest wall. i declined the first colonoscopy recommended when i turned 50. i think i'll be having one in 2010. glad you like my long island, new york slang....i think most of us tune in here just to read your descriptive posts, in fact the other day when there was alot going on with all of us...i was going to ask you to describe some delicious dinner that dh would be cooking...i thought it would cheer us up......meg....so glad you don't have back pain now, i have to stay away from heavy lifting too, or just over doing it....when i mentioned that you were feeling better because you were cleaning, i actually meant that i know cleaning is like therapy for you. okie...i agree with your decision to hold off on tatooing, when you are ready you might discuss with  the ps if your nip placement can be revised......have a wonderful weekend everyone, okie...hope you are not hit too hard with the storm.....it's freezing here.