Class of 2009 - Sisters in the same time frame
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Hi guys,
I am here, just lurking and trying to absorb neurologist appt. Too fresh to talk about it but I am alive and half-well. :-) I'll feel like sharing once I get my head on straight.
Love to all.
pam
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Pam we will be here when yo are ready.
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Pam, hope it wasn't too bad, but we will all keep you in our prayers and be here for you when you are ready.
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Oh Pam.... thinking of you. Please share when you are up to it.
Worrying about you.
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Pam I wish you all the luck of a Chilian Miner....good news for them, good luck for you.
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((((Pam)))))
Hugs to you...
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Hugs for you Pam.
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Pam, Praying that things are going to get better and if not that at least they are problems that you and your family can emotionally and physically handle. You are not alone, we all are here for you for you are our "leader", and have been a strength for so many of us with our battle.
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Pam I haven't been on in a few days but I have been thinking of you. I hope you know that we all are sending you much love and saying prayers for you. The nurse part of my brain is spinning out of control with worries and what ifs... take care of yourself. Big Southern Hugs!!
Renee
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Pam, I don't know what else to say, just want you to know I'm thinking about you too.
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Pam... please tell us what is happening. Thinking of you ~
Hugs,
Alicia
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hugs Pam
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Hugs to you Pam!
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Hi All!
I haven't been on much lately - been busy with lots of activities with both kids and visiting family.
I am feeling well - got back on the Tamoxifen (post surgery) quite easily with just a bit of headache and leg cramps initially. Now it's just another pill to take in the morning and doesn't bother me at all.
It's funny but I'm starting to forget about stuff that I went through last year. My hubby reminded me that this time last year I was going through chemo and was starting to lose my hair.
Was it just last year? It seems like ages ago. I guess it's kind of like child birth - as time passes you forget how bad it really was...
It's still early days for me but I want to tell you that the reconstruciton is coming along nicely. It felt so tight I could hardly breathe the first few days after my TE surgery, then I had the muscle/nerve inflammation but I'm working hard at not having that happen again. Lots of exercises and arm raises. The other night I was sitting watching TV with hubby and I raised my arm straight up. He looked at me and said "Yes Marie you have a question" It was too funny!
I had a fill earlier this week and it was so tight - like the iron bra - but after a couple of days (and lots of arm raises and rowing motions) it is much better and I swear the muscle has stretched and popped out the boob.
My hubby says I'm like a proud 12 year old being visited by the "Boob Fairy". I keep smoothing out the new boob and saying "look at this!" I can't tell you how many friends I've showed it off to these last few days!
I hope to have another fill the first week of November before my trip to Bermuda to even things out a bit for my bathingsuit. Right now I've got saggy right side and perky left side. It's quite a sight!
Oh well that's what's going on with me...
I hope you all have a wonderful weekend doing what you love!
Hugs to all,
Marie
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Marie, good to hear things are shaping up for you. Will you get a lift on the right side when they do the exchange? My onc said that is what they will do for me.
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Marie ~ so glad to hear you sounding so good ! Glad you are feeling good and the TE is not giving you any trouble. Hard to believe it was just 1 year ago we were petrified to have that first chemo going into us and then the hair falling out. I find I am very emotional right now remembering where I was this time last year. But I am grateful I am here..........
Loving your hair by the way ~
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Marie I am going to agree with Michelle and Alicia... you look amazing!! Don't stay away so long next time. Pam we are still missing you and I am still praying that all is well. We love you. Big Hugs and I hope you are enjoying some quite time walking on the beach this time of year as I know the early mornings and late evenings are very peaceful and breezy.
Juanelle still not seeing you around here much either, but I am sure you are very busy with work. I know all to well that's all I do is work, work and work!
Take care my sisters!
Renee
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Hi and much love to everyone.
I am embarrassed to be so overwhelmed by my current medical problems. You ALL have been so kind to think of me and worry about me. I am just having a hard time getting a grip on current situation.
My neurologist finds I have early Parkinson's Disease. My symptoms co-insided with starting Arimidex and got markedly worse when I switched to the generic three months ago. He said not to blame the Arimidex but it is hard for me to not think of it as a triggering agent. I am still reeling a bit from the news. I have been such a healthy person all my life. I can't help but wonder if the stress of breast cancer and the SEs of the treatment do not play a huge role. I have dieted, exercised and positive thought my way through treatment and have lately felt like I was failing some "strength of character" final exam.
The good news is that I have started a new medication that is really helping the tremorous condition I was finding so difficult. I feel almost normal. I did stop my AI in late September so that has helped a lot too. I see my onc next week and plan to insist on Tamoxifen or nothing.
All of your kind thoughts are helping keep my head above water here! You are the first friends I have mustered the courage to tell. I just feel like I am letting everyone down. I always thought of myself as low maintenance but I am sure turning into a high maintenace model! :-(
Wishing everyone a good weekend. Now that I have been able to say "it" aloud, I guess I will start dealing with it.
Love and hugs.
Pam
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Pam ~ I am so sorry to hear of your diagnosis of Parkinson's. Although I am a bit relieved you do not have brain cancer I know Parkinson's is no fun road. I hope through medication they can keep it at bay and keep you feeling good. Thinking of you.
Big hugs............ we are here for you!
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Pam: I'm so glad you found the courage to post and let us know what is going on on. It totally sucks that you have been diagnosed with Parkinson's and, further, that you have the doubts and suspicions that BC treatment may have brought it on. I'm sure you're getting a crash course in Parkinson's and are well aware that treatments are improving by leaps and bounds. (My cousin suffers from it.) I hope with all my heart that with the right medications, you can continue to feel well and do all the things you want to do, for years and years into the future.
Pam, it says a lot about your character that you worry you are letting others down, that you are failing some sort of strength of character exam. But please don't even think that, no matter how low you feel! You have been an inspiration to many of us, and while I don't post a lot on this board, I have drawn strength from your posts. And I continue to do so. Not that any of that matters... just focus on coming to terms with your condition and staying well, okay? Focus on you!
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Pam, your quote of Lennon's is one I think of often lately. Strange days indeed for those of us who have always felt we were "in charge" & able to handle the ebbs & flows of life. I know the thought process of feeling that I've let others down thru this journey & the things is, it's usually just ourselves we have let down because we aren't that invincible, wonder woman, we thought (or hoped) we were. We hesitate to let the help come to us because WE are the ones who help. Well, girl. Let it go! And tell Park&Sons that they decided to mess with the wrong middie this time, cause you have people!
Love,
Joni
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OK... you guys have got my back! I will be okay with a little help from my friends! :-) Thanks for the moral support.
pam
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Pam, I'm sorry to hear of the new diagnosis. Sometimes, it seems like you can't catch a break. But you have such grace and strength, I know you can face this new challenge.
Well, I went to meet with the surgeon that my onc referred me to for my ooph. As he started the exam, he got quiet for a minute, then said that my uterus was deviated and high. He had wanted to do a biopsy, but because of the weird position of my uterus he wasn't able to do it (even after pinching it and pulling it down - yes, that hurt as much as it sounds by the way). He said that happens because something is pulling it out of position. Of course, you know where my mind is going. So, he has me scheduled for an ultrasound next week. This really has me freaked out.
Of course, life doesn't stop to give me time to process any of this, so my anxiety level is terrible. I could barely sleep last night, running over scenarios in my head. Today, I've tried to get the truckload of work done that I need to do, and I'm not being very successful. I just can't think straight. I feel like I'm being pulled in a million different directions at once, and as a result, I'm not getting anything done to any great degree of quality. Sometimes, I just want the world to STOP and let me get a break, but it doesn't seem like that will happen anytime soon.
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Pam, I am so relieved and yet scared for you all at once. Thank goodness it is not BC (brain cancer). Parkinson's, well I admit I don't know a lot about, I will be a google queen after I make my post. Is it something that can be controlled with drugs? All I know is that Michael J Fox has it...look how sexy he is. You can be our new Foxy Pam. Don't forget you can let someone else be the strong one for once. We are here for you no matter what your ailment.
Shelby, jeepers, can't a gal get a break? Sending you happy positive vibes.
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txstardust...thinking of you while you wait on that test. Praying all goes well.
Pam so glad it wasn't mets. Will still keep you in my prayers too.
8 more days till my hysterectomy. I am feeling so much better since stopping the tamoxifen. My nightly headache is gone, my backache is better...now if the darn leg cramps would go a way. Got my sleeve yesterday. Hopefully the compression bra will be in before surgery too. Doing great for a change...shhhh don't say that tooo loud. lol
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Pam ~ we have your back for sure !
Kitty ~ glad you are feeling beter. sshhhhh
Shelby ~ try not to panic, I don't know. I have a good feeling for you. Will send up some big prayers that all is ok with your uterus. What day is your ultrasound? Thinking of you............
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Pam as a nurse in geriatrics I have had many residents/patients over the last 27 years with a Parkinson's dx and even had a great aunt that was dx with it. Of course she has long since passed and is no longer with us and she lived with it during the time when there wasn't all the advancements in medications/treatments. The best thing you can do when you have Parkinson's is exactly what you are doing, eat healthy, get regular exercise, and plenty of rest, take your medication as prescribed and have an Excellent Neurologist (this is the biggest key of all). The neurologist will make adjustments in your medications by what you tell him is going on with your body and your symptoms. Be vigilant in treating your own health. We love you!!! You are a fighter and as much as I hate this dx for you I was afraid it was MS. Still praying for you every day and night.... someday there will be a cure and there will be no more cancer or parkinson's.
Renee
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Pam, I think everyone has said it for me. I can't really add much more. Just know we do have your back and I think of you often. Don't feel like you have to be the brave one here, let us help you through this.
Shelby, sorry to hear you are having problems also. Once we get started on this journey, we just can't seem to catch a break.
Hope everyone had a great weekend. I spent most of mine with Carson and that is always fun. He keeps me so busy, I don't have time to think of anything else.
I am getting fitted for a sleeve on Thursday. No problems, just a precaution. I am scheduling a business trip to Washington state and don't want to fly without one.
Love all you guys,
Juannelle
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Hello everyone-
Pam- I don't know what more to add. I am scared and relieved for you all at the same time. We have your back and we all love you. You are the rock of this thread, so let us be your rock on this one. Thank you for confiding in us, that really means a lot. You are a brave beautiful woman and you are strong.
Shelby- I am so sorry to hear you news, I hope everything turns out good for you. I hate that whenever we get a little ache or pain or something weird happen that we wouldn't have thourght twice of before cancer, now we freak out and get scared and think the worst. I wish the best for you
I had my own scare this weekend. Last Thursday I had some soreness by my ear, it hurt so much I could barely hold a phone to my ear, then later that night I noticed the lymh node behind that same ear was swollen, hard and painful and I had a lot of pain in my jaw. Everyone of you knows where my mind went with that one! So, I called the dr on Friday, went in to see my GP on Saturday, all ready for them to tell me they would need to biopsy that lymph node. And she diagnoses me with TMJ!!! I was so relieved!! I am now on a steroid pack and it is feeling much better. But, that just goes to show, that little things send our brains into a frenzy!
I have to say I love the energy the steroid pack is giving me. I spent all day yesterday cleaning my house from top to bottom and I also did yard work on top of that! I was a machine!!
Hope you are all having a beautiful day!
Hugs
Jen
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Jen....... whew ~ so glad it is only TMJ ! Amazing the diagnoses we will now take in stride. Enjoy the steroid high.
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