Class of 2009 - Sisters in the same time frame
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HI LOVELY LADIES
MICHELE
Your in my prayers i agree, onco jumping the gun a bit, try not to think about it to much i know its hard but your mind doesn't need to take an unnecessary trip down that road just to freak you out .
JUANNELLE
Happy anniversary, time flys ah hope ,your day is great enjoy .And hope your arm is now going to behave itself or i might have to get my magic wand out on it.
wELL IVE BEEN SO BUSY CAUSE IVE BEEN FEELING SO GREAT THAT NOW IM SOOO TIRED SO GOING TO DO VERY LITTLE TODAY AND I MIGHT EVEN GO DOWN TO THE BEACH LATER THIS FOR A NICE SWIM IN THE OCEAN
PRINCESS JOJO
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HRH JOJO,
I will never get used to summer down under while it is still winter here! Very strange. Nice that you are feeling good. Seize the moment.
pam
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Jojo, I am so jealous. I love the ocean. I would sell everything to live by the sea.
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Good evening ladies, hope everyone is able to relax this weekend.
DH, Sophie and I went out to eat. She is so good you wouldn't believe that she is only 10 months old. She hardly ever cries and just smiles and laughs at everything. It was a good day to celebrate an anniversary. My DH couldn't think of what to get me, so he went to an antique store and bought me several little jewelry boxes. All of them different. Of course, we had talked about gifts the other day and I thought we decided that we would get Iphones next month and that would be our presents. I bought him a card, but could I find it, no I couldn't. I will come across it one day when I least expect it.
Jen, you could just say I have lymphedema with no further explanation. If they ask what it is tell them to look it up in the dictionary. I just can't believe the nerve of strangers and the questions they can ask. I would never even think of asking you what is wrong with your arm. Maybe it is me that is strange.
Renee, the decision is up to you, you will make it and if you decide not to take it, then go on and never look back. But like Pam said, you could give it a try and if it doesn't work out, then you can always stop and then the SEs should go away.
My arm is better today, put it could be the hydrocodone. JoJo you can get your wand after it at anytime. I need all the help I can get.
michele, michele, suzanne, pam, shelby, lilah, and sherri hope you are all getting to relax and enjoy the weekend.
Hugs to all,
Juannelle
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Juanelle - happy anniversary! That sounds so thoughtful of your DH to scout out and purchase antique jewellery boxes. He sounds as sweet and thoughtful as you are.
I didn't feel like cooking tonight and my taste buds are back so we went to Red Lobster. Yum, yum.
I hope everyone is having a great weekend.
Sherri
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Michele/Escriibe ~ saying a prayer those liver lesions are BENIGN.
Juanelle ~ Happy 37th Wedding Anniversary. woo HOO
Jen ~ so sorry about the arm, I like the bee sting explanation.
Hope everyone is doing good.
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Thanks and hugs to everyone for their best wishes for me.
Juanelle! Congrats on the anniversary! Heartwarming to see couples that close after so many years!
Jen, so sorry about your arm! I have no advice for you but I hope that it improves soon! Perhaps, as someone said, you should sling it when you walk that far?
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MICHELE
YEH sell all and move over here its Gods country as me and Sam say , there is a house a few doors down from us going cheap for what it is, and we can be neighbors,YEH ill bring you some home made choc chip cookies as a welcome gift !!!!yeh .come on .
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Hi ladies,
Jenn I saw you are doing the Avon Walk this year! How awesome that is!!! Which city are you participating in? I usually do the Washington DC Walk (I've walked and crewed) but of course this year will not happen for me as I'll be in the middle of radiation by May. BUT, my 13 year old daughter Lauren, was accepted to be on the Youth Crew this year! I am sooo, sooo, proud of her and am so excited for her to experience it all. What an empowering experience. Don't push yourself too hard after your D&C Jenn. Don't want any complications to arise!
Take care,
Sharon
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Michele, let's both go move in by Jojo! I LOVE the beach, I make sure to go at least twice a year. I love the sound of the ocean waves and the salty air, taking long walks in the sand. Enjoy a day at the beach for me, Jojo...
Sharon, congrats to your daughter for being so involved, that's very exciting. How has she handled your dx? I have a 13 year old and a 15 year old. My younger daughter seemed to take everything in stride, but my older daughter is still nervous and worried. I don't know how to assuage her fears. Anybody have any ideas?
Well, I must get started on my homework - big project due tomorrow evening!
Peace to all...
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Jojo, I am packing my bags as I type..Shelby I will pick you up on the way down south.
Shelby, I am not sure there is a way to assure our kids that everything will be ok...I still havn't convinced my self yet. Every day I have feeling of fear. I think at least 80% of the time I am thinking of cancer...when will that end? Or will it?
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That's a great point, Michele. I know I still have a lot of fear, and cancer is at the forefront of my mind. I just wish there were a way to keep that away from my daughter. Maybe because she is a little older, she is more able to pick up on my subtle or subconscious cues about my fear. I hope this fear fades as time goes on...
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Hi ladies,
I have had one heck of a day! I went for PT this morning and the lady that sits at the front desk knows me, she is a survivor. She told me that one of the rad techs that took care of me while I did rads died last week. I immediately started crying. I can't believe it! He was only 52 years old and had no wife or kids. He was found alone in his home after not calling into work. I went to the cancer care center later this morning and hugged and cried with my rad onc, one of the other techs there and the nurse. I am just in such shock, and I am so glad I took a photo of the crew on my last day there. At least I have a little reminder of him. Bill was his name, please pray for his family. He was such a funny guy, they all were witty and said things to make me smile during treatment, and we all know how important that is. How do you deal with the death of a caretaker? I don't know where to begin.
Sharon- I am doing the walk in Chicago. I am really excited to do it, I am over half way past my fundraising goal. I think I pushed it a little hard doing the training walk on Saturday, I am still crampy and bleeding today and I had the D & C on last Thursday. Don't know if that is normal.
Thank you all for your support and encouragement as I try to deal with this lymphedema monster. Today in therayp, she didn't wrap my arm back up, instead she put some tape on my arm that goes down into my hand and spreads out and is supposed to create tension to draw the fluid up into my arm. My hand and wrist are very swollen and sore. My arm is doing better.
Love you ladies!
Hugs
Jen
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Jen - so sorry to hear about your rad techician...what a shame. I'm assuming it was heart related. Good for you going in a walk and being so far into the fundraising. I'm hoping to go in the CIBC Run for the Cure this coming October in Toronto.
I hope everyone is doing well today. We're getting quite a snowstorm right now...finally!!!
Sherri
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Jen, sorry to hear of the rads tech...we do become quite attached to these wonderful people who are trying to help us live longer lives..He is in my prayers..
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JEN
Sorry for your news thats sad, glad you got a picture of him .
Good on you girls for doing the walk and the run i don't have any energy, i think i was over zealous with the bit of energy i had and now I'm fooft out (don't know what fooft means but it just sounds like it suits how i feel mmmmm)
WOW Shelby and Michele ill start baking now ok , it would be great to hang down on the beach with you two in our chairs with the water lapping up on our feel we can go down every day for an hour or two just imagine out tans !!! and how relaxed we would be and of cause no work well maybe a day or two just to keep us from getting skin cancer lol im excited oh are the hubbys coming ?
PRINCESS JOJO
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Jen - I'm so sorry to hear about your rads tech Bill. I will definitely be praying for his family and friends. That is sooo sad. I also, had a rads tech named Bill, and he is about 52 as well. Isn't that odd? I hope your lymphedema starts to improve soon. In regards to your d & c, I have had one in the past and it is not unusual to still have bleeding and or brown spotting since it was just last Thursday when you had it. It could last for a couple of weeks. Do call you doctor if it gets heavier than your normal period ever is, has a fould odor, your start having severe abdomnial cramps or running a temperature. I'm sure these are all things that they told you at the hospital, but once a nurse always a nurse. Sorry
I saw my docs today and received good reports. I have to go back and see my breast surgeon in 3 months for a follow up on my seroma (which he didn't drain, said if he did it would make me an A cup instead of the B cup I now am) and he wants to get a baseline new mammo. He said it was too soon only being finished with rads 2 weeks to do it now. He did give me a referral to a plastic surgeon for reconstruction due to the significant changes in breast sizes (a B on the rads size and a D on the other side). My Medical Onc doesn't want to see me again for 6 monts. He started me on Tamoxifen 10mg daily. It was his idea to do the Tamox because of my age to prevent the bone loss and he is giving me a lower dose of Tamox than normal because I am so menopausal. He said I didn't need the usual 20mg daily. He did tell me if I started having side effects to call him and we would do something different. Not to suffer with them.
I really like him more everytime I see him. He is such a nice man.
Renee
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Jen ~ so sorry to hear about the rads tech.
Hope everyone else is doing well. I am still recovering from chemo. Frustrating how my family and friends think BOOM I should be fine now. It has only been 2 weeks and I am still rather exhausted to say the least.
Hugs ~
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I am like you Alicia, I can't climb the stairs without needing to sit down. It feels like I have run a marathon. Can't wait to get my strength back.
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It takes a while to recover from chemo. I am 3 months PFC and still do not feel 100%, BUT I feel so much better than I did, and it will only get better!
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I agree with Gilly, ladies - hang in there it will get better! Two weeks after finishing chemo I still had bad lower leg/foot pain... in a few weeks you should start feeling the return of some energy but it's a gradual thing. I'm 4 months PFC (though still on Herceptin) and still feel a bit creaky and probably only back to 90% of my old energy. Definitely feel MUCH better though.
Lilah
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Alicia, I know what you mean about other people expecting you to be back to "normal" (whatever that is). I'm almost 4 weeks PFC, and am still lagging significantly. And I still have rads to look forward to. My brothers, who used to call every week or so, have gone back to the old routine of essentially ignoring me until and unless I call them. My mother still is solicitous, but she's my mom and she's always that way. Hubby asks how I am all the time, but I get the feeling he's getting frustrated with me and tired of hearing how tired I always am. School is kicking me in the butt, I have a huge assignment due tomorrow and I'm just not sure how I'm going to get it done by then. My chemo brain is slowing me down a lot, and I don't know how to explain what that's like to my DH. Also, I think I'm getting depressed for some reason. UGH. When will the day come that I'm not constantly dealing with cancer cancer cancer???
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Hang in there Stardust - I'm in the middle now too but I am certain there is a light at the end of the tunnel.
Lilah
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I'm 5 weeks PFC and still taking the occasional nap and going to bed early most days.
I just don't have the energy these days for much.
Thank goodness my kids are off school for the Olympic break! I t's nice being able to sleep in and not rush them around all day.
I saw my surgeon yesterday and he has told me that I can exercise now that I have full mobility back of my arms but I just don't have the energy!
I'm also going to be starting radiation the second week of March.
I remember reading that we should give ourselves as much time as we had in treatment to recover after treatment. I think that was good adivce and so I'll just coast along until I'm all done and then I'll slowly try to get back to where I was before this all started.
Marie
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MarieK - there is a thread for March Rads set up. It's filed under March 2010 Rads Group. Let me know if you want me to send you the link.
Edited to add the link:
http://community.breastcancer.org/forum/70/topic/748461?page=1#idx_3
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Thank you for the kind words everyone. I am still in shock, but I know everything happens for a reason. I am just happy that I have the kind of relationship I do, that I was able to go to the office and talk with them and hug and cry with them. They are a great group.
My arm is doing much much better, on a happier note. On Monday she took the wrap off and decided not to put it back on. Instead she applied Kinisio tape to my hand and extended it up into my forearm. I is so much improved I was able to put my wedding ring back on yesterday
That alone made me happy. My wrist and back of my hand are still swollen, but it is manageable and the best part is, I can move my arm and it doesn't hurt. And I am not restricted by the bandages. Thank you all for your support and words of encouragement, you ladies are my lifeline.
Alicia- I hope you feel better soon. Just give yourself time to heal, you had lots of toxins pumped into your body, and your family needs to understand you won't just bounce back from that. Take care of yourself sister
Renee-I am glad you have such a great relationship with your doc, that is so important. Glad to know you are doing well.
Hope everyone else is having a great day!
Love and hugs
Jen
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Thanks girls, it is nice to know I am not alone on being so tired and not feeling like myself.
Shelby ~ I am with you on the depression thing ~ also I am just so scared of it coming back. ugh. Hope you get your school work done.
Jen ~ glad to hear your arm is feeling better and it sounds like that has lifted your spirts a bit.
Hugs to all you great ladies !
Alicia
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Hi all!
Had tx #5 of 6 TC yesterday. So far so good. Was given the go ahead to take claritin to help with bone pain from neulasta inj. I received today so I picked up a box yesterday along with my trusty percocet. Usually I don't eat for a few days post chemo because of the horrible taste in the mouth however this time I can actually taste my food and tongue and mouth not burnt up from taxotere. I can kinda see the light at the end of the chemo tunnel. Yay!
I have in the past weeks begin reading up on the radiation phase. Are there anythings that I can do to make this a smooth process as well? I'm triple neg. so it'll kinda be bittersweet so to speak when I complete rads.
Wanda
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Good luck with the chemo and rads Wanda and Welcom to the class of 2009! But I am more than sad :=( that you had to join us. My wish is that they find a cure for this dreaded BC disease and that there would never have to be another woman join the forum or board. Hugs to you all.
Renee
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Wanda - I like your screen name! I did the Claritin for Nuelasta and never had any bone pain. I was also on TC and finished two weeks ago. I'm triple negative as well. For the mouth, a tip I was given early on was to chomp on ice chips throughout the Taxotere infusion. It helps with the yucky taste and mouth sores, etc. I never had any mouth sores and the yucky taste really only lasted through days 4-7.
Sherri
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