Class of 2009 - Sisters in the same time frame
Comments
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M360 -- Thank you for sharing with us. Your daughters are special young women. I'm sending you gentle hugs, and will keep you in my thoughts and prayers. I tried to grow orchids a couple of years ago, but I realized the hard way that I don't have suitable lighting. They are beautiful.
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M360,
Wishing you and your orchids well! It sounds as if you are in good hands. Best wishes in this difficult journey.
pam
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Yes Juanelle --- GARDENING... almost planted one of my drains, thought it was a bulb.
being silly....lol
Alicia0 -
M360, I can't believe how strong you are....a man would have given up by now...you are one tough bird...as you know we are all here for you. This is the best place to be at a time like this...the support is amazing. I have been thinking of you so often....and will continue to prey. I was thinking that with all the prayers that are floating from all over the world, they have got to be good strong prayers to travel so far and make us feel good...
Alecia, shame on you gardening...and making me feel so lazy....
Welcome EPH and Shirly...(big newcomer hugs for you 2)
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micheleboots,
I know it has only been a few days since you told us about your new symptom but I am so anxious for you. When do you see the doctor? We all want to be flies on the wall. Funny image but loving concern.
pam
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M360,
You've been through a lot. thinking of you.
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I hope to get an appointment soon. I see the onc on Thursday. I see him once a week through rads...here in Ottawa there are many places to get a mammogram...there are several hospitals and labs. some take a long time to get into ...he wants me to go to the same place I had my first and second mammo. they still have my films. But if they can't get me in, them he will send me some other place. When I had my second mammo they got me in quite quickly...The lady took me on her lunch...
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M360, I sent you a private message.
Gentle hugs,
Binney0 -
Michelle,
For all the complaining we all do about medical people we mostly do encounter staff who are sympathetic and caring. So far everyone has been great to me and I feel so fortunate to have had the care I have had. Sheer luck as I have just stumbled along.
Keep us in the loop and we will keep you in our thoughts.
pam
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Hey Ladies, welcome to Spring! Hopefully you're all getting some! Alicia, you're not hogging all the nice weather are you? I haven't posted in a while....simply reading along and lurking.
M360, my heart goes out to you and this continued struggle to get the treatment necessary. It blows my mind at just how much our bodies can take. You have my deepest admiration for fighting such an uphill battle. Clearly your determination to get all the facts and question authority is helping to keep the docs on their toes....you go girl!
Just finished my taxes, ugh. I was able to claim some of this medical "whooha" from the past year. Between my surgeries, treatments, PT, doctor visits etc. and my husbands prostate cancer stuff, we drove over 8000 miles. We either had 150 mile round trips to the docs in the city or 75 mile round trips to the cancer center nearby.
With spring here I've been noticing some positive changes now that I'm six months out from chemo and four months out from rads. Strength is returning, I don't faint as often and the neuropathy in my feet is improving. Hopefully this is trend will continue. I am finally being DE-PORTED on Tuesday. I had a dream that after the port came out I bled out through the hole in my vein and died on the side of our road......guess you could say I'm feeling a little anxious about the removal, eh? LOL.
Be well ladies, {{{hugs all around}}} Mary
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Michelle I think of you all the time too. I was wondering about the drainage from the good breast any news on what's up with that?
Alicia, I couldn't help but laugh, those drainages are like a large bulb, I think when you're through maybe plant it and see if anything grows from it. A new recyclable pot and probably critter proof at that.
Thank you ladies for all the support. I'm not the brave one here. I'm able to stay at home and try and work out my BC problems, the real hero's are the ladies who go through all this and work at the same time, I am in awe of them and bow down, with the words "I am not worthy..."!
So I'm throwing this out to any of you ladies, are any of you on cyclophosphamide? I did a lot of research this weekend and found out that they do use this for BC and lymphoma, but even more John Hopkins Oncology Center used this on patients like myself for autoimmune diseases. Could this be my magic bullet? High doses of cyclophospamide alone, then a stem cell transplant. The article says that the immune system is learned not inherited. This process is like rebooting your complete system. I've emailed this article to my Oncologist, and all other Doctors. This is used for BC and autoimmune diseases, so why can't I take this?! I'm writing up a proposal today along with attached studies and I will plead my case. Pray that they agree this is the way to go and they don't say that this is no longer done, the study was from 1998. However, I want to try this, maybe in six months you'll find me dancing in the streets cancer free and autoimmune diseases wiped out. I believe in miracles.
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M360, wow you are such a go-getter...pleading your case nad making a proposal. I am such a cancer wimp...I do what they say and pray like hell...I let them do all the work...you go girl..
as for me, my breasts don't drain..it is just a small discharge when I squeeze my nipple..just a drop. I read it could be a hormonal thing or an infection, and other benign things, but it could also be Padget's disease, a form of nipple cancer or good old cancer...my DH figures it is nothing since I had chemo and that should have killed any cancer cells lurking around...I want to believe it is nothing, but as you all know, cancer ALWAYS lurks in our heads. I am having a bitch of a time sleeping..I wake up around three with a hot flash then my mind just wanders to the dark side...AAHHH
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Michele,
I'll follow you into the dark.... Have you ever order on Amazon, Dr. Andrew Weil has a CD, called Sound Body Sound Mind, it is music that works in your subconsious, mainly for people who have long term illness, or going through surgery etc. It calms the mind & body. I have used it for years and it works. If you want to email me privately I will even send one out to you. I have a couple on hand at all times and even have it on my ipod. I used it going into surgery for BC and afterwards instead of pain killers. It's worth a try, and it even says most people fall asleep during it, but it's still sending the brain messages. Let me know if you're interested.
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m360, you are in awe of all of ladies who have continued to work through all this and I certainly am in awe of you for all you have going and still able to fight the fight. I managed to work, but only because I work for a very good man, who let me take what I need and I am now trying to give some of it back, but I will probably never get it all paid back. Even though you have so many issues to deal with you sound like you will not give up and will challenge the doctors to try new things. I bow down to you and hope that the doctors listen to you and you win this battle. Let us know when your are going to dance in the streets and we will be with you, dancing all the way.
We went to my DH's sister 70 birthday today and had a good time. One of her sons just married a woman who carries that Brac gene and had a double mast last year. She is about 40 and is doing 16 chemos. She does them every two weeks she is doing TC & A. When they did her mast, they did not know she had cancer, but she did. Her mother has BC and is going through for the 2nd time now. My heart just goes out to young women who are having to go through this. She has not had any children and of course she wants them, she had eggs harvested and frozen, just in case she gets to try. Her cancer was caught early and hopefully she will never have to worry about this again.
Alica, I can just picture you plant the drain, what a picture. Glad you are able to get out and enjoy the weather.
echosalvaje, glad you are getting your strength back. I am 3 months PFC and 2 from rads and I am feeling better every day. Hope you continue to improve.
Michele, hope you get an appointment soon, so you will find out it is nothing and can get some rest.
Pam, I am hoping that since I did so good through chemo and rads that the Arimidex will not cause me problems. I already have knee pain, so I might not even notice if I do have some SEs.
Juannelle
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HELLO LADIES
Today i had my first rads zap it went smoothly felt zappy tingles in my boob when it was going on don't know if that was normal and a funny feeling for about 2 hrs after , but i got very emotional when it was over ive had 6 weeks of and feeling free from all this crap then yep back into the same building for more treatment a bit to much bought a bit of anxiety on so i had a good cry a great lunch and some chocolate mmmm now that made me feel better.
JOJO
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Jojo, this is the last step...good for you. I am almost done, only four to go..I am back to work today, yah me. It keeps my mind busy, thank goodness.
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16 zaps down, 5 boosts to go. It felt good to have the adhesive removed from my back and sides. I hope the remainder of the treatments go as quickly as these did.
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Hello Ladies,
M360-You are such a brave and wonderful soul! Praying for you all the time and wishing you peace. I have to tell you my DH got into Orchids last summer and we have about 6 of them in my house right now. He planted them in very pretty pots with peat moss and some rocks. They are beautiful! He is so handy and loves to garden and do things around the house.
JoJo- Glad you started rads, it is your last stop on the BC train, and you will do great
Sending much love your way! BTW, my DH and I have always wanted to visit Australia, maybe we can plan a visit Michele-YAY!!! You are almost done with rads! Happy dance for you:)
Having a hard time typing today. I have my glove on and the wrap on over it and it is very constricting, and very painful. Other thand that, things are going fine with me.
Hope you all are having a great day!
Love & Hugs
Jen
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M360 - sorry to hear of your situation. I'm sending you hugs and prayers that an appropriate treatment plan will be put in place given your other health concerns. You are strong and an inspiration to us all!
Jojo - I had my first rads treatment this morning. Yesterday I started feeling emotional myself. My last chemo was also six weeks ago and I guess I was starting to feel "normal" and the thought of going back to the hospital for treatment brought me down. I shed a few tears this morning too but I'm okay now...relaxing with my little bichon-poodle on the sofa having a tea!
Michelle - let us know how the transition to first day goes. I'll need to start bracing myself for bak to work soon as I've been off since chemo started in December.
Jen - sorry to hear your arm is still giving you trouble and I hope it begins to get better soon.
Lilah - It was nice seeing you post again. Where have you been? I haven't seen you on here much lately.
Juanelle - I hope those of us starting rads have as good results as you went it comes to side effects!
I think a piece of chocolate like Jojo mentioned above is in order.
Sherri
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Sherri -- aw sorry I should have posted: I was away on vacation last week! But I am ba-ack!
It's possible I didn't post before that (for some reason)... I DO try not to post unless I have something useful to add (or a problem).I just got home from my final TE fill -- UGH! -- now I must get through the next few days (the pain usually subsides after a day or two) and then wait til May for exchange -- woo hoo!
Jen -- so sorry you keep having to deal with that arm. I pray the swelling subsides and you are able to resume normal activities.
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M360 Vent away!!! You've earned it sweetheart! If it was me I'd be out kickin some serious a$$. You seem to have passed that stage and taken great care in considering your options. Hang tough sweetie and know that we are here to vent to, laugh with, cry with, pout with, what ever it takes baby. God Bless you and stay strong.
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first day down...ahhhh. Time to relax..I knew it was time to go back to work when my TV died this morning...New tv will have to wait until visa has its money.
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Glad your first day went well, Michele. I had my first day of student teaching today. It was more a day of observation, but I was soooo tired when I got home. Hope it's not too long for the new TV!
M360, Keep on fighting the good fight, I know you will stay strong throughout everything.
jen, I'm sorry your arm/hand is still causing you pain and discomfort. I hope you are able to find a way to get through this.
I started my second week of rads today. Like I said, I was practically falling asleep in the waiting area! I thought the fatigue didn't start for a couple of weeks? I'm not noticing any redness, swelling or itching yet, so I was hoping the fatigue would stay away too. Oh well, guess I'll be taking naps again.
Peace to all,
Shelby
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Hi Ladies!!! I missed you all so much... but I had a great time in Bristol at the race. It was so relaxing to get away for a few days plus we were super excited that Dale, Jr. did excellent in the race on Sunday and ended up 7th in the race and moving up to 8th in the points for the chase!!!! (May not be important to ya'll but to me and my DH we are Nascar geeks!!) LOL!!!!! Dreading going back to work tomorrow, but glad to be home and see my daughter and granddaughter Straitlyn! I missed her sooooo much!!!!!!!!!!!
Michelle, I hope everything turns out well with your good breast and the brown discharge. I'm praying for B9 results.
Alicia - glad you are doing well and feeling up to gardening. I haven't made it to anything like that yet.
Well I'm off to watch New Moon... been waiting for this I'm sooo excited!!!!!!!!!!
Renee
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Hi All,
I am off for my all too frequent mammogram tomorrow AM. I can't believe it is time for another one already! I've lost track but seems like this is about the 4th since Dx;d just one year ago :-( Sure hope it turns out ok and I see the doctor right away. But mammograms are the least of what brreast cancer brings to us so I should not complain.
Good vibes to all you who are in radiation right now. You are getting close to the finish line! Hooray. And Sugar... today was #1? I hope things went well and you have a good team.
pam
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Pam - today went well. I was nervous and got emotional when the technicians were getting things set up. Starting later this week, my co-workers are taking turns driving me and keeping me company for each visit. I'm looking forward to seeing each of them over the course of treatment.
Sherri
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Aw Sherri that is so nice that your co-workers are taking you to the rads... that will make a nice thing out of an awful one. A good friend of mine insisted on going with me to all of my chemo treatments and I have to say it has given me a nice memory of an otherwise horrible time (due to the steroids, which had me pumped afterward, we always went shopping when I was done
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I took my cousin once to chemo, it was a nice break from my DH who often got bored.
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Sherri-That is so great that you have people willing to go to your rads appointments with you. It can get tough going everyday by yourself. That is why I guess some of us develop such a strong relationship with our rad techs. Good luck to you as you go thru rads.
Shelby- I too noticed fatigue early on in my rads treatment. About 2 weeks in, I was just so tired. When I mentioned it to my rad onc, he said that it couldn't be from rads because it was too soon into treatment. But I disagreed with him, what else could I be tired from? I wasn't doing anything else. But, anyway, hope you get thru this with minimal SE's. And thank you for your concern about my hand. It is very frustrating, but I will get thru it one way or another.
Renee-Glad to have you back
Glad to hear you had a great time watching Nascar. Pam-Good luck with your mammo. Let us know how things go
Michele-Glad to hear you are back to work! Hope you continue to feel better everyday
Hope everyone else is having a great day!
Hugs
Jen
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Just sending some smiles to everyone. The sun is trying to come out and dry things up here.
Mimi if you haven't been to Talladega ya gotta go. The track is so fast. It's been a few years but we've been three times.
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