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  • theresap60
    theresap60 Member Posts: 849
    edited April 2011

    Determined - God bless you.  Cancer is a horrible thing.  I am one of many in my family to have it and many have passed on.  You came here to this thread on the night that we meet for prayer, which is why you're seeing so many posts.  We support each other, genuinely care for each other, and most importantly, pray for each other.

    A few years ago, I went through a dark period and my priest advised me to pray, even if I'm angry, even if I don't feel anything.  Just keep at it.  Keep with positive, prayful people.  Graces will come when you need them.

    1) how do you have faith?  I don't know ... it's a gift from God and I'm open to it, on His terms, not mine.  Complete surrender.

    2) how do you continue to have faith in the midst of all of this?  I watched my 43 year old brother die of pancreatic cancer.  I watched him die full of grace.  I watched as friends and family came to visit him wasting away and angry that God should take him.  We get sick.  It's a natural part of life... and yes, sometimes we do things to our bodies to make us sick "unnaturally."  There's no guarantee that we'll live more than a day.  Each day is a gift.  Each experience we have, good or bad, is a gift.  Most of the time, we ignore God when things are good, so the bad ends up being a bigger blessing than the good.  I went through all kinds of emotions when I learned I had cancer... shock, anger, depression, anxiety.  I asked for medicinal help from my doctor which helped.  I'm no longer on it... just long enough to get me through the hell of surgery, radiation and chemo.  It's all a memory now. Life goes on, praise be to God.

    3) i find myself very, very angry. my mom, fam & friends tell me that God loves, me, but i am not feeling it.  That's ok.  We all go through it.  Keep walking, keep praying, He's there.

    4) any suggestions to get over my anger? i  don't think that anyone deserves to be sick, but i must say that i feel upset when i see ppl who willingly abuse their bodies.  i will refrain from specifics, as not to offend anyone.  I suggest the surrender prayer (we have another thread called something like Catholic Prayers and that one is posted)... pray it daily ... meditation.  Try not to think of health and sickness as something people deserve or don't deserve.  It just is.  We all have free will, for better or worse, and we are all sinners to one degree or the other, but God *does* love us.

    Please stay with us, pray with us, we are here for support.

    Pax et bonum.

  • determined3
    determined3 Member Posts: 41
    edited April 2011

    theresap60

    thank you so much for responding to me. i did not know that this was prayer night, just saw lots of posts. so i say thank you. thank you responding to me during prayer night. 

    thank you for suggesting the prayer.

  • Sandy105
    Sandy105 Member Posts: 160
    edited April 2011

    Determined,

    I suppose I would have "survived" the ordeal of being physically unwell had I never logged on this thread but I am completely positive I would not have "thrived" had I not found this thread! I have made so very many friends here and have made real connections with people who have faith far stronger than mine. Their faith just encourages me to seek a closer relationship with Our Lord and the Blessed Mother.

    It is the fact that these wonderful sisters accepted me as one of their own the very first time I posted which made me know I had found my home for this struggle. I found myself suddenly surrounded with earthly sisters who were so happy to listen, to pray for me, and to gently pick me up every time I fell.

    Perhaps you happened on to this site for the same reason! I personally don't believe in things happening by mere chance. Perhaps you were led here.....

    Welcome! Stay and let the love of the gals on this site give you the strength you need for the journey!

    Hugs and may God send special peaceful calm to you!

    Sandy

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited April 2011

    Well--got here as usual late---but a wonderful evening shared with friends. Dinner out with two, got out of the car and  took the darling out to run in the yard and my two neighbors called me over to share a time with them and then got home to a message for a sun . gathering with two other neighbors that have been important in my(greg's) life. And earlier today the other 4th couple that is important in our lives their DS &dil from the UK were here with their two sons for a swim. I felt so blessed, The four couples that were /are most important in our lives impacted my life all in one day-------wow

    Squid and Theresa inspired words. Please think about adding them to the prayer thread.  They are too important not to be archived--lovely

    Add Gertie please.

    Deterimined Theresa's response was amazing---To one and two - I would have said because we choose too.----------sounds simplistic , but everything is a choice. Three- Theresa's answer I agree. Four--That one be careful with, because even though you say you don't want to offend--you are harboring feelings of judgement about what others do, and beneath that judgement is --"well they did it to themselves , yet I didn't, so why do I deserve this." Please study that closely. None of us deserve this ---no one does. On the fourth if my assessment is wrong, please tell me, but think on it for awhile. At first your immediate response will be a wee bit or more of anger-----My response to your statement is a challenging one, but debate either with someone else or within ourselves is a good thing.

     Determined Come and join us, we have all grown in our time here towards a closeness to the spiritual part of us that elsewhere we may not have been able to express. I know it has never happened for me elsewhere. Here we talk with open hearts.

    And if we are late, we still get prayed for and no rulers on the knuckles.

  • sagina
    sagina Member Posts: 849
    edited April 2011

    Determined - When you close your eyes to sleep tonight I pray that Jesus rocks you in His arms and you find the peace for just that moment, the peace where you say to yourself, ah, this is how it is supposed to feel - and then you just trust, that He is with you, that He is carrying you right now, and trust His will to be done.  It is not ours to know, only follow on the path created for us.  The following is one of my favorite songs, perhaps you tube to see if a version is out there? I am praying for you, that you find the dwelling place of God's grace and peace.

    "When You Seek Me" - Carey Landry

    When you seek Me, you shall find Me, when you seek Me with all your heart.  When you seek Me, you shall find me, I will let you find Me.

    I know the plans I have in mind for you: plans for peace, not disaster.  I know the plans I have in mind for you: I reserve a future full of hope for you.

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 762
    edited April 2011

    Welcome Determined!  I can so relate.  Anger is okay, it is part of being human. I am praying for you sister!  I like to imagine the Blessed Mother holding me in her arms and Jesus smiling at me, kind of like those pictures we see of him surrounded by children.  Whatever part of your journey you are on, we are with you! xo

  • theresap60
    theresap60 Member Posts: 849
    edited April 2011

    Sandy - "I suppose I would have "survived" the ordeal of being physically unwell had I never logged on this thread but I am completely positive I would not have "thrived" had I not found this thread!"  Ditto for me too!

    Sheila - it sounds like you had a great time yesterday with your friends!!  How wonderful!  I never had rulers on my knuckles! LOL  I was the good little girl that the nuns liked. :-)  My sisters and brother were a different story!  My poor Mom, widow that she was, getting calls from Mother Superior about her naughty children.  They ended up hiring her as a school secretary, so she was right there at the moment of trouble.  After Mom re-married, our family of 4 children became a family of 8 children and so ended our Catholic school education.  We were a regular Brady Bunch... but not so loving toward each other. :-\

    Gina - nice meditation.

    Ellie is right ... anger is not a bad thing... it's what you do with that anger and the energy it produces.

    Good to see you Anne!

    We're having a nasty weather day ... lots of rain and bad storms heading our way.

    Today is the feast day of my confirmation saint, Saint Bernadette.  Here are some Bernadette quotes:

    The Blessed Virgin did not promise Bernadette happiness in this world but in the next. During her final years on earth, her many physical ailments proved this to be true. Bernadette herself wrly commented. "The first part of these words is coming true; that I'm holding onto, I'm sure of getting it."

    "I must die to myself continually and accept trials without complaining. I work, I suffer and I love with no other witness than his heart. Anyone who is not prepared to suffer all for the Beloved and to do his will in all things is not worthy of the sweet name of Friend, for here below, Love without suffering does not exist."

    "From this moment on, anything concerning me is no longer of any interest to me. I must belong entirely to God and God alone. Never to myself."

    "Love overcomes, love delights
    Those who love the Sacred Heart rejoice."

    "Jesus, my God, I love you above all things."

    "Whatever trials the Lord sends you, whatever sacrifices He asks of you, whatever duties He imposes on you, always have this response of love and faithfulness on your lips and in your heart: 'Hear is your servant, O my God, ready to undertake all, to give all, to sacrifice all, as long as Your will may be accomplished in me and on all the the earth'."

    ~  St. Bernadette Soubirous, From the private notes of St. Bernadette of Lourdes, A Holy Life, by Patricia A. McEachern, Ph.D.

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited April 2011

     want to first extend my hand to you Determined. Sometimes my faith is fleeting, or I may not be "in touch," and am riddled with fear and mistrust. (of whatever situation, or people) That is my challenge, and I encourage you to come back and read or share. Every one of us here are human, have our failings (or aspects of ourselves we would like to work on,) but you do have faith for the fact that you showed up here! We also bring our individual gifts and knowledge to help us all grow. I came around a year ago (REALLY?) asking questions not unlike you have, and Laura responded to me (she started this group.) Here I am a year later, learning, praying....and it may not be exactly the same way all do here (I was not raised Catholic,) but I have really enjoyed learning and sharing with these wonderful wonderful women. So welcome Determined, and I hope to see you again.

    Wow, Thanks for the background on your Confirmation Saint Bernadette, Theresa!I I am about to run to Safeway ahead of this storm, but I wanted to share something that I can relate to with Saint Bernadette. I struggle with all of the physical challenges that I have, and they run deep, affecting relationships and intimacy. Oh, how I have grieved (related to endometriosis, not unlike you Theresa.) Damage from a hysterectomy, multiple surgeries and other "stuff" before losing my breasts. I have held on to the belief that I may not have the full life I see others have...and this does not mean there is not someone waiting for me...those things I think are missing, are I grieve for may very well be mine after I leave my life here. Does that make sense? And I need to reconfigure my normal, and open up possibilities while here, but we are all in different paths. and it brings me comfort, and certainly feeds my active imagination :)

    alright stay safe ladies in the path of this storm, and I have tried to safety proof the chairs etc... on my porch. Get your flashlights and matches, have water, and all of your meds too, K?

    love you all, may we all be safe and protected.

  • Kay_G
    Kay_G Member Posts: 1,914
    edited April 2011

    Thanks for posting Theresa!  Bernadette is my confirmation name as well!  Special prayers to St. Bernadette today for all of us. 

    Raining and miserable here too Shiela.   I'm hoping for a better day tomorrow.  I am going to the Phillies game!!!!  I am a HUGE fan.  Can't wait.  They BETTER win!

    My best to all the new members on the forum.  (I have not been here that long myself.)  I am sorry that I am not commenting to much to you, but I don't feel competent to comment on issues like that.  I can say I have some issues like these at times too.  I also know that Mother Theresa had issues like these.  It really helped me when I heard that.  She apparantly told her confessor that she couldn't feel God's presence.  She just felt nothing.  But she continued believing and praying any way.  Even though I'm not commenting, I'm keeping you all in my prayers.  God bless.

    Take care all. Love and hugs, Kay

  • janet in virginia
    janet in virginia Member Posts: 923
    edited April 2011

    That makes three of us!   St. Bernadette is my confirmation name too!! 

    I tried - but couldn't stay up last night.  Started my morning today by reading all the Fri nite prayers - brought me to tears.  So touching from everyone.  There is a lot of love on this thread - it's wonderful.

    Our pastor likes to tell the story about when he met Mother Theresa in Rome.  At the time, he was still in seminary ( in the U.S.)  He said to her "Mother, I am studying to become  a priest."  She smiled up at him (she was very tiny) with the most intense eyes he had ever seen and she said - "Then be a good one."  :)  

    Know that I keep all of you in my prayers every day.

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited April 2011

    Janet,

    Wondering how your seromna is doing?

    Sheila,

    Sounds like you had a very reaffirming day yesterday, full of love and good memories. And you are getting out and about, makes me Happy to hear :)

    Kay,

    I never knew that about Mother Theresa! I feel better about my shortcomings for sure.

    Sometimes my faith comes from a feeling....a "knowing" and understanding of times before here. These are fleeting, but they are usually based in some deep love or watching the majestic earth, seas and sky "show off." I mean, the night sky (preferably not city) is full of shimmering sparkling wonder, and pictures of space take my breath away. The Mountains call to me, and I feel like I am looking at God when I see a majestic mountain range. I could go on and on about water, being a Pisces and all, but it is very spiritual to me.

    Look at someone expressing deep love for another, be it mother to child, partners, human to "animal" and back. Look at children (toddlers and small children,) and see their fresh clean souls....

    then I think it is easy to have faith.

  • kindone
    kindone Member Posts: 435
    edited April 2011

    Good evening Ladies, Sorry I missed prayers last night got home very late.  I did say my prayers for all you beautiful ladies and your intentions.  I wish I didn;t miss I would have love to add my mom who is also deceased.  I think for mothers day it will be great to honor all our Mothers.

  • Beaglesgirl
    Beaglesgirl Member Posts: 25
    edited April 2011

    Hello everyone. I saw the Catholics thread on the active links and clicked... So glad I did! This is what I have been struggling with and hadn't known who to ask, it's a complex question about faith fear health and hope (or lack of it) and really there is no one stop shopping for all of the above. Or so I thought. I was raised Catholic and have never stopped speaking to God although not always a regular church going catholic I still believe and wish I was better at praying than "please God help"



    I am inspired to learn and will check in here if you all don't mind all though not this week because my dmx sx is 4/19. Thank you to Laura for starting this lovely thread.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited April 2011

    catholic prayer intentions-----a companion thread to this . It helps us keep track of whom we are praying for--beagslegirl --don't forget to add your prayer request there Blessings

    http://community.breastcancer.org/forum/38/topic/760131?page=3#idx_89

    Another companion thread is a prayers listing. It's got many standard prayers and then things written by members.

    http://community.breastcancer.org/forum/38/topic/760274?page=1#idx_25

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited April 2011

    Squid--you are sounding good----several very inspirational posts in arow --you must be feeling better--------very happy for you Namaste sheila

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited April 2011

    Theresa- there was a mean thing that the first grade teacher did to another student. This girl had to pee the nun wouldn't let her go because it wasn't time. Poor girl just let a puddle go in the middle of the isle.  I told the nun she was wrong. Oh that didn't go over well. I guess you could  say it was an overlap of protecting my brother. Has happened ever since. Ergo I was not the darling of the nuns.

  • squidwitch42
    squidwitch42 Member Posts: 1,467
    edited April 2011

    Sheila,

    God Love Ya :) I am grinning from ear to ear because you are being a Nurse detective evaluating the tone of my posts. And yes, I am feeling better thank you. I'm not as nauseated this week, and I think I am finally rid of all of the anesthesia that was hiding out in my fat cells. Talk about feeling toxic!!

    Hi Beaglesgirl,

    You are most welcome here....and I hae to say, this is the first group where I was welcomed with open arms.  I see you are a triple negative sister, so I am giving you an extra hug. I have completed my treatment, and we are here for you as you begin your journey. Are there any special prayers that you would like for Tuesday? How can we best support you?

    Traci

    For my brain purposes, I am hoping to gather all of the new posters from the past 3? months. Do you all mind if I list you all here, or do you want to wave in a post?

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited April 2011

    Squid -yes you got exactly what I was assessing. One nurse to another.

    Which you pointed out and excellent discussion point. Anesthesia. You and I are aware of it. But lay people are not told of this. Everyone here almost has had chemo. We all talk of The infamous CHEMO brain. Anesthesia does the same thing and can last for weeks sometimes months. It especially deleterious  to the older the person becomes roughly 75+  and if there is any dementia it enhances it majorly.

    For example, In 09 I had one chemo(failure --no more)and 4 anesthesias. Basically, It was 6-7 months beyond the last anesthesia that some else would be considered to be beyond all the effects of anesthesia. I was different because of the concurrent closed head trauma--direct brain injury,  being given cytoxan which crosses that barrier---oh well is another whole different problem---don't dwell on my problem unless you also had a closed head injury.

    So, if someone had the original breast sx, then typically 2-4 more sx's for completion of recon +then minimum adjuvant chemo(typically4)in the neg node situation.... or more chemo's in the situation where nodes were involved -------the brain attack, which is my made up phrase, is so significant, months and months to perhaps into the second year, one may feel the brain is not working right.

    There is a wonderful protective mechanism in the brain that is called the blood brain barrier. Some drugs can pass this barrier some cannot. Anesthesia drugs are chosen for this reason through lots of research. One statement that always amazed me in reading about anesthesia, is that it is unknown why deep levels of unconsciousness occurs because of these drugs. What is known is that they do cause these deep levels. So, if you ponder this---how long those drugs affect the brain over time cannot be measured truly accurately, if they admit they don't know why they work. Yes, testing is done, but a test can only measure what the questions are asking. No mental test of any nature measures everything. So, if science readily admits that they don't know why anesthesia works, my theory is --then they can't say for certain what the opposite end --or recovery is. What is known is it is different for each person.

    Soooo, I hope this gives a little help in understanding further why your brain feels discombobulated(sic?). We say that word , but i can't find Merriam to see if it's actually in there LOL.

    Everyone accepts that there is chemo brain------you here little about anesthesia brain. For us that have been assaulted(hence my phrase brain attack) by so many chemicals in such a short space of time have been hit with a double whammy. Then on top of that add in pain meds, antidepressants, and anti-anxiety meds that are designed to cross the blood brain barrier specifically------- well poor brain.

    But our wonderful and magnificent designer created this wonderful organ to be so resilient. Again hope this helps.

    L&H&P NAMASTE SHEILA

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited April 2011

    This is a reprint from a previous post I hope _Determined3-----sees this as one of her questions dealt with a need to know why she got cancer. I hope it helps.

    Feb 12, 2011 01:15 am sas-schatzi wrote:

    To all you wonderful women---surmizing why we have cancer. It's unknown to a certian point and then very predictiable. There are genes that are passed from generation to generation. They have shown up more in the last century and into this century. But not everyone that caries the gene , goes onto the full expression of cancer. What is known is that it is increasing, the unknown is why?

    I believe the  Family gene came from Paternal grandma's side, since a full second cousin was into geneaology search on the paternal side and took his search back to Ireland with only heart disease a problem. Grandma's side on the otherhand many ca's.  But no one has researched that side of the family---so big question mark?  They were basically farmers---????  

    I object to the thought that God gave us this because as a trial or tribulation it would be unkind. To think of an unkind God would make an agnostic very quick.  Genes are fragile, once broken or affected and passed on create havoc down the road----or rather in generations to come. Genes and environmental factors have created our problems. These PROBLEMS have not been identified for BC. But look at all the other cancers that have been associated with enivironmental things. I.E> asbestosis-----regrettfully an answer for the increase in BC will be identified, but not in our lifetime. Gentics and envirorment--------what is the trigger for an oncogene(a gene that triggers cancer) 

    Our medical community is so splintered, they have their own little body part to work with, we have no one looking at the body as as whole organism. The Primary care doc is to be the center of knowledge about the patient. But they don't have the knowledge to know what every piece of info being sent to them means-----the rare ones do---but they are rare. The point being is for all the studies that say there are certain types of people that get cancer there are as many contrary examples of people that have had the same types of historys's, exposures, no history's etc. Yet cancer  didn't occurred.  Why? No one knows! 

    I know in my family there is a bad gene for the women on the paternal lineage through my grandmother. What triggers it in some and not in others would be worthy of research-------can't get any interest. We have tried.

    Anyone outside of this group reading this-----my best advice ---forget a lumpectomy----go for minimun a mastectomy. If their is a strong family history of BC ----go for an elective BMX.  A breast- a boob ---is not worth your life------it's just an appendage. Edit- april 17th 2011--the paternal family bc hx is---10 first cousins and 2 paternal aunts with BC All through the lineage of paternal grandmother. I believe the oncogene that started the whole scenario was related to fertilizer used during her time, but that is only supposition based on all the cancer among that family lineage with so many in farming. This was in a time period when there were much stronger fertilizers used and no saftey percautions, defined as they are today.  They were also in Canada, during times of exposure I don't know, if laws in Canada were different than the USA. It's a question for researchers -----If there is a cluster of cancers that can be tied to a family, why can't we get a research project done--------------in my family it should have be a slam dunk situation-------there has been a genetic break -------which is affecting the females vs males. DUH----------what the cluck are you waiting for. BCO Mods- you all ought to know someone that would say--------wtc ------these numbers are way outside the national average..................I even offered to have a breast bx  when twin was dx'd in 96 to have tissues to compare in the potential event that I develop Bc. No takers-----------Is that stupid or what. It's not just lazy science. It's absense of  a scientific mind to not realize the potential of pre and post change in such a significant cluster yet alone Identical twins---------------Cluckem

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited April 2011

    This is a reprint form an earlier posting for all our new sisters.

    Mar 4, 2011 11:06 pm, edited Mar 4, 2011 11:10 PM by sas-schatzi sas-schatzi wrote:

    Paula--maybe it's time to tell the Namaste story again --it's been quite awhile.

    Their is a nurse Karla on the Nurses thread who described that when she was on a trek in the Himalayas. She would observe the Sherpas greeting each other with hands as folded in prayer. Their greeting was Namaste. She asked for a translation. They told her it meant "I SALUTE THE GOD WITHIN YOU" After hearing that story, it so gripped  me, within the deep soul of me. The strength of the statement in analysis goes to the heart of our belief in God. For if we believe that this statement regarding God-- being within each person. Then he is a part of our being. If that be true, then we are each joined together with him, and therfore we are each apart of each other. So, what happens to the one, happens to all. Yes Paula, thank you for reminding me. A periodic telling of the story helps my forgetful mind. Namaste Sheila

    SAS
  • determined3
    determined3 Member Posts: 41
    edited April 2011

    hi sas,

    thank you for the post and thank you for thinking of me. i appreciate the support from you and others. 

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited April 2011

    determined 3 so glad you got to see this. I did add an edit--you can see why my choice was bmx. no guess work there. There are/were 19 girl cousins and 24 boy cousins-----good Irish catholics in the 30-70's LOL. ONly one male cousin has shown up with Cancer of the prostate. So, why we can't get someone to research it is beyond me, because that kind of cluster is huge.

    Namaste sheila

  • Beaglesgirl
    Beaglesgirl Member Posts: 25
    edited April 2011

    You can list me, whatever works better to remember. I read with much interest the info on anesthesia brain. In 2008 when I was 42 I lost my late husband to a sudden (unexpected) cardiac arrest which started a dominoe effect... It caused a severe headache for me so I went to the chiropractor and they adj my neck, damaged my carotid artery and when I was at the funeral I had a stroke. I was also healthy active have just in the last few months started to see improvement in my short term memory. Will chemo/sx likely set me back? Well, it's alright as long as doesn't make my kids orphans I can carry my smartphone around like a blankie for comfort (alarms to remember everything) for the rest of my life!

  • Beaglesgirl
    Beaglesgirl Member Posts: 25
    edited April 2011

    Thank you for the warm welcome!! Please pray that my children are not scared on Tuesday.

  • janet in virginia
    janet in virginia Member Posts: 923
    edited April 2011

    Traci - great idea to list our new sisters.   I agree w/Sheila - you sound so positive and in a good place. Yes, a persistent seroma.  It's more annoying than anything else.  I'm just tired of having to go in every few days -- takes up half day to get there & back. 

    All our new sisters - each of you brings blessings as our little ministry grows!

    Laura (beagles) - We will definitely be praying for you, your medical team and your children on Tuesday. I had mastec last fall and just had a prophy mastec on the other side 3 weeks ago.  The worry beforehand is a lot worse than the surgery itself!  Everyone is different but I never needed the pain meds - and I'm a wimp.  Find the April mastectomy thread - it helps to have others going through it at the same time - lots of tips.

    Blessings of Holy Week to everyone.

  • sagina
    sagina Member Posts: 849
    edited April 2011

    Hello everyone!

    Sas - from a nurses stand point about the anesthesia - when I had my lumpectomy I heard about 20 seconds of the operating room chatter - and felt hands touching me, not in a weird way, just normal - I didn't open my eyes or anything - but as soon as I came to in recovery I knew I had heard them....

    Anyway, just thought that was interesting....

    Enjoyed Palm Sunday service today, church was a little warm under my floppy hat, but the music was wonderful as was the message.

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 762
    edited April 2011

    I haven't been to church in a long while.  Having a dry period.  I will keep praying.  Welcome to all our new sisters!!xo

  • Kay_G
    Kay_G Member Posts: 1,914
    edited April 2011

    Will definitely pray for you, your medical team and your children on Tuesday Laura.  Praying for a safe surgery and quick recovery.   God Bless.

    Going for round 3 of AC on Monday.  Hope it starts to show some improvement.

  • sagina
    sagina Member Posts: 849
    edited April 2011

    kay-from-philly~ have you had surgery yet?

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited April 2011

    Detrmimed3 again  i'm so happy you stayed  long enough to see my post--Yes there are things that increases peoples risk factors., but there are things we have no control of like genetics and evironmental things that activated those genetics. Why did I wait from 1997 to get an elective. Talked with pcp for three years. BUT something in me said do it now- in 2008----I made the inital appointment with the ocn in june when my Insuranse kicked in and I do not believe I have written about this until know. While working as a home care nurse one day the flip chart that can hold things inside---flipped shut and caught my left areola (the area around the nipple) at the same moment the 3 inch ringer binder that was on top of the steering wheel fell on this The flip chart truly crushing the tissue with added weight.. Well lets talk about pain. I had to deal with getting the ring binder off and then unkockig the flip chart,  That pain to the portion of the areola lasted for months , but it saved my life. The onc was able to use the complaints of pain for further study even though the Mammo was clean. The onc was allowed because of the continued pain at site, to go forward with the next step MRI, the rest is history. Mri found Bc------Then we went from there. I have already quoted family hx. But to get an elective based on family hx in this society is still not a good shot---------no stats--------because I was no longer an elective----I was a fact- I had Bc------------------------think please about the randomness of occurenses 1. I wanted an elective bmx. 2. areolar injury that presisted for months. 3. a clean mammo 4. MRI done in DEC, because it was end of year and I had met my deductibles.-------Then the dx  2 days  later something suspicious-----------MRI is so far superior to mammo----I knew it was positive. Then we go to the day of streotactic bx (probable spelling incorrect). I get a call from the Onc's office on the Mri of the head done 2 days earlier and she says" dr_____  wants you to know that you have a brain tumor" I say what kind , she says I don't know---------My comment -------"Well when the shit hits the fan"........So, I tell the radiologist --just like a good nurse what I was just told , in case it might alter what he would do and it didn't. BUT before he came in the room just like and old Operating room nurse, I reviewed all the Mri films and the mammo films. When we were done, I showed him the films, I picked out those that  had all the same landmarks. Pointed out each landmark which included name etc. Rt and left data. Said this his here this is there. I said to him this tells me it is very aggressive . He paused and said you're right.

    Add into the fact that he trained under the guy that invented sterotactic bx in europe some where (i forget) and added a year to his traininig with him because he knew it was breaktrough science. The people that worked with him did not know that, until the day of my bx because I kept asking questions. He had never told anyone, he was there in it's development and refinement of technique. That's humility in it's grandest form.  Ponder that a test that is done world wide, and he never told anyone he was involved with it's development. Of course, I told him how to suggest improvement LOL. Anyone that has gone through it knows the technicians and nurses have to get way down and stress their backs and necks-----I told him well you doc's didn't consider that as a stress because you didn't do it. So, it needs to be considered. Always the pain in the pattuty.

    What's the point---when someone says you have the best doc ------in this case, he was second best to the inventor---I'll take that, but he kept it to himself rather than bellowing it around. I asked him why? His answer was nothing beyond " wanted to learn from him" . He took and extra year of Fellowship in order to do this.  Which meant 2 years vs 1 year which meant 1year of big buck earnings. Never told his staff. When I left, I asked his nurse did you know anything of what I asked him. She said she had worked with him for x number of years, and knew nothing of what he had told me, during the test. I worked for 40 years in nursing -----------never met a doc with his humility. Still amazed at it and wonder why. 

    BUT I had a question raised by another BCO memeber, who was distraught about something---forget now what it was. I called and he returned the call and we discussed it, got an answer to the ? and I asked why------------docs in that situation will decline because of medico-legal involvement. He said because I used to be a teacher. ---Have great respect for the guy---------suppose it doesn't show at all---duh.,,,,,,,Love that we have great people in this world-.Namaste