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  • apple
    apple Member Posts: 1,466
    edited August 2010

    we are so not ready to move on Friday.  i've hardly packed.  I need to hire an army of God.

  • mmm5
    mmm5 Member Posts: 797
    edited August 2010

    Hi ladies...prayers for all of you!

    Laura, re: Taylor please please follow your gut instincts. Press the issue. You know things aren't right and that is your guiding force, trust it! I have been in Medical for 18 years and I will tell you you must push the envelope.I am praying for Taylor and for you!

    Angel my heart breaks for your families trials and all you have had to put up with re; Cancer. It makes me just want to push hard for more progress! I will pray for your brother and offer up his name in our Novena.

    Apple - I am sorry for your loss, I pray for your family as well! So glad you are enjoying your new job. 

    Ladies I am working hard to let go of anxiety and depression. I am very blessed and my family is well, but like Estepp I suffer so much from the aftershocks of treatment. I am being sent to a rheumatologist. I think the year of chemo, instant menopause, and daily drug (clodranate) just does not make my body feel very good. I will say that I try very hard to overcome, I am exercising, physical therapy, meditation, eating well. I just need to find peace. I ask that you include me in your prayers for peace. Also I think you all know my 9 year old was dxed with juvenile diabetes the same  month I was dxed so I am struggling with that as well. He is doing well, but worry about him so much.

    Nancy I am so happy your daughter is OK, there is nothing like the anxiety we have for our children. It makes one realize how fragile and out of our control things are.

    I pray for all of your families and children today. 

    Thank you Lord for your many blessings and for hearing our prayers here, please bless and care for Taylor, Angel's Brother, Apples family and all of our special children.

    AMEN! 

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 762
    edited August 2010

    mmm5,

    I will pray for you  sweetie.  Depression and anxiety are so tough.  It sounds like you are doing good things for yourself.  It also must have been a shock andadjustment when your little guy was dsed with juvenile diabetes.  We never stop worrying about our kids.  I will keep you and all or bc sisters and their families in my heart and we strive for peace.  Amen xo

  • Angel10
    Angel10 Member Posts: 347
    edited August 2010

    mmm5...prayers for you this evening...

     You are not alone in your anxiety and depression and all of heaven wants you to be at peace.  Perhaps reading these words will help. They have helped me....

    http://directionforourtimes.com/docs/booklet-depression.pdf

    God Bless!

  • apple
    apple Member Posts: 1,466
    edited August 2010

    i too pray for you mmm5

  • Estepp
    Estepp Member Posts: 2,966
    edited August 2010

    Oh sweety... depression..anxiety... grrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrrr

    It is all SO HARD! I am saying a special prayer for you. Know that I want this all to leave you. I wish sometimes, we all lived closer to eachother.. so that we could just go over to eachothers houses

    xxxooo

  • Janathan
    Janathan Member Posts: 80
    edited August 2010

    Prayers for all of you BC sisters.  I don't post often but do read your posts and continue to pray for you and your families.  It's been a whirlwind year for us, and I can't believe I survived it without having a breakdown of some sort.  I was diagnosed with my second breast cancer in May 2009, and my BMX was a little over a year ago...July 22, 2009.  Then our youngest son's wedding was in September in Monterey, oldest son's wedding was in October in Seattle, my dad was in the hospital in Nov/Dec, his wife died of cancer New Years Day, DH's shoulder surgery was in early March, I had my exchange surgery in late March, we recently got our rental house ready to sell, and finally our daughter's wedding was on July 10, 2010.  We have two more weddings to go to this year...a nephew's this Saturday and a niece's in September in Idaho.  All these weddings meant lots of bridal showers, wedding planning, shopping, rehearsal dinners, etc...plus I have a full-time job.  One thing about large Catholic families...there's never a dull moment...and ours is more like a Catholic clan and growing by leaps and bounds.  It was quite an overwhelming, stressful year...and there were times I didn't think I could take one more thing being put on my plate, but I made it...thanks to my faith and lots of prayers. I also kept the Nike slogan in my head, "Just Do It."  All 3 children are now happily married and independent, and my DH starts back to work Monday after being off with his shoulder injury for 5 months.  Things are definitely looking up and life is quieting down again. I just PRAY it stays that way for awhile.  My dad has early Alzheimer's, so I take care of his needs, but he's doing okay at this point.  DH and I are actually going to take a vacation in September and then go on to the wedding in Idaho. I know many of you have had stressful times with many things to worry and pray about, too.  Hang in there.  It's nice to be able to share on this thread and pray for each other.  Your special intentions are in my prayers...and thank you for sending some prayers my way.  I'm sure they helped.

    God bless.  I wish peace for each of you.

    ~Jan

  • mmm5
    mmm5 Member Posts: 797
    edited August 2010

    Thank you all...Angel the readings brought tears to my eyes, I wonder why it is so hard when it is so clear and basic that we just need to let go and give God our trials. Sometimes I get it so well and feel so good, then just as easily I lose it.

    I hope all of you are well today, Apple I saw pix of your beautiful kitchen on another thread. Congrats and how lucky you are to have such a talented hubby.

    Continued prayers for our children, Taylor, Angel's brother and my little Brooks dealing with Diabetes. Much love and prayers to you and all of your families. 

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2010

    Hi, I'm a Catholic-----from the -50-72, raised in the tradition of guilt for everything from grade school to hs --12 years of nuns of the old school, then three years of Jesuits. I have always described myself in two ways. 1 I have no clue what normal is. 2. I have no sense of humor , I had 12 yrs of nuns and 3 of Jesuits, tis a wonder I'm not insane. Only Catholics really get it.

    Laura made me aware you all are here. Now I'm here. Both my Dh and I have CA. Mine is BC and in remission (never cured). DH is in the last stages of lymphoma ,his name Greg. Laura tells me that she has had you all Praying for him. He just came through the last crisis and is home.

    I want to thank you from the deepest part of me, for your prayers. 

      The small ,but great miricale that happened for us this week in the hospital. Is a priest came by, almost left because a doc a nurse were in the room . I chased after him. Brought him back. he annointed my DH. Made him sit. Poured my heart out that the most troubling thing to us was the MASS (Funeral). We had decided on cremation. But the ridiculous idea of 6-10k for a funeral was not what we believed Jesus or God intended. But in order to have a Mass, what could we do. ANd we weren't practicing Catholics. His answer "When I annointed your husband he made thee sign of the cross without hesitation. That tells me you are still practicing your beliefs. ANd when I saw how you took your husbands hand, it tells me you are still practicing your marriage. You will have no trouble with me when the time comes". This has been very heavy on our hearts and souls, and minds. He was in the wrong place--he was supposed to be in another room. Also, he had to be 1 hr and 15 minutes away for a funeral, and by the clock was already 3 minutes behind schedule. All of what transpired took < 5 minutes. He is a priest in our home parish that we don't attend. So, a great weight was lifted. It had been what I had been praying for guidance. So, all of those that prayed here and family from USA, Canada,Mexico , friends form around the globe either through BCO or Families of friends in England, France and Ghana. The heaviest thing has been lifted and we can go forward.

    My husband has already lived many months beyond the average expectancy for his dx. Richters transformation. It has been only by the grace of Jesus ,his Father,and Mother mary. Mother Mary has always been the one I've turned to my whole life. Now I'm including all the saints in heaven and my Mom and dad and aunts and uncles who have preceded him. Each day small little miricales happen. I know that each of you understand what I mean by that. When something happens that ordinarily wouldn't have happenned , their is a Guiding hand. Like the Priest at the door that was in the wrong place.

    Their is another BCO friend who started each of her posts with Namaste. When I asked her the meaning she related this story. When on a Himalaya trip the Sherpas would greet each other with their hands folded as if in prayer. When she asked for a translation. They told her it meant "I salute the God within you". It has grabbed by being. It may be of Buddist origins. But we all have the same God, we just worship differently. The strength of that statement, I beleive Christ would embrase. And maybe someone with a better knowledge of the Jesus's teachings can relate that this was part of his teaching. In spirit I know it was, but can't quote chapter or verse. Maybe Nicea wiped it out.

    Namaste. I have been told that it is used in Yoga, but has a different translation. I can't remember the translation because it didn't carry quite the same message. I choose the thought of------ I salute the God within you-----It's already beginning to help me forgive unkindnesess. When I can think this thought about the person I still harbor great ill will for, I will have made a great transition to forgiveness.

    But back to present, the collective prayers of many have an untold positive affect. I thank you and Laura for yours. Namaste-I salute the God within you--Sheila

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2010

    Hi, I'm a Catholic-----from the -50-72, raised in the tradition of guilt for everything from grade school to hs --12 years of nuns of the old school, then three years of Jesuits. I have always described myself in two ways. 1 I have no clue what normal is. 2. I have no sense of humor , I had 12 yrs of nuns and 3 of Jesuits, tis a wonder I'm not insane. Only Catholics really get it.

    Laura made me aware you all are here. Now I'm here. Both my Dh and I have CA. Mine is BC and in remission (never cured). DH is in the last stages of lymphoma ,his name Greg. Laura tells me that she has had you all Praying for him. He just came through the last crisis and is home.

    I want to thank you from the deepest part of me, for your prayers. 

      The small ,but great miricale that happened for us this week in the hospital. Is a priest came by, almost left because a doc a nurse were in the room . I chased after him. Brought him back. he annointed my DH. Made him sit. Poured my heart out that the most troubling thing to us was the MASS (Funeral). We had decided on cremation. But the ridiculous idea of 6-10k for a funeral was not what we believed Jesus or God intended. But in order to have a Mass, what could we do. ANd we weren't practicing Catholics. His answer "When I annointed your husband he made thee sign of the cross without hesitation. That tells me you are still practicing your beliefs. ANd when I saw how you took your husbands hand, it tells me you are still practicing your marriage. You will have no trouble with me when the time comes". This has been very heavy on our hearts and souls, and minds. He was in the wrong place--he was supposed to be in another room. Also, he had to be 1 hr and 15 minutes away for a funeral, and by the clock was already 3 minutes behind schedule. All of what transpired took < 5 minutes. He is a priest in our home parish that we don't attend. So, a great weight was lifted. It had been what I had been praying for guidance. So, all of those that prayed here and family from USA, Canada,Mexico , friends form around the globe either through BCO or Families of friends in England, France and Ghana. The heaviest thing has been lifted and we can go forward.

    My husband has already lived many months beyond the average expectancy for his dx. Richters transformation. It has been only by the grace of Jesus ,his Father,and Mother mary. Mother Mary has always been the one I've turned to my whole life. Now I'm including all the saints in heaven and my Mom and dad and aunts and uncles who have preceded him. Each day small little miricales happen. I know that each of you understand what I mean by that. When something happens that ordinarily wouldn't have happenned , their is a Guiding hand. Like the Priest at the door that was in the wrong place.

    Their is another BCO friend who started each of her posts with Namaste. When I asked her the meaning she related this story. When on a Himalaya trip the Sherpas would greet each other with their hands folded as if in prayer. When she asked for a translation. They told her it meant"I salute the God within you". It has grabbed by being. It may be of Buddist origins. But we all have the same God, we just worship differently. The strength of that statement, I beleive Christ would embrase.Abd maybe somrone with abetter knowledge of theJesus;s teachings can relate thet this was part of his teaching. In spirit I know it was, but can't quote chapter or verse. Maybe Nicea wiped it out.

    I salute the God within you. I have been told that it is used in Yoga, but has a different translation. I can't remember the translation because it didn't carry quite the same message. I choose the thought of------ I salute the God within you-----It's already beginning to help me forgive unkindnesess. When I can think this thought about the person I still harbor great ill will for, I will have made a great transition to forgiveness.

    But back to present, the collective prayers of many have an untold positive affect. I thank you and Laura for yours. Namaste-I salute the God within you--Sheila

  • Estepp
    Estepp Member Posts: 2,966
    edited August 2010

    Jan... I cannot even take a breath for you.. WOW sister ! It is all I can say.... WOW! I am GLAD you have passed all that. When you put it into words , on paper, it seems... UNBELIEVABLE huh?

    Shelia.. glad you stopped in. I think it is nice for us to see the people we have prayed for... on BCO... to stop by and give an update... and thank us here for praying... because PRAYER WORKS! YES !

    TAYLORS brain is OK.... THANK YOU GOD!

    His Parathyroid is low and calcium high and magnesium high... more blood tests in the AM... but it SURE sounds like he has Hyperparathyroids Disease. If this is what is going on.... a simple surgery can cure it! PLEASE let this be it Father!

    thank you so much for praying for my family.

    God Bless you ladies!!!!!

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2010

    Laura -------wonderful --- still Please it doesn't explain single sidedness numbness and tingling of one arm.................but they are getting closer to an answer.....small miracles everyday that guide the doc's ....they are working------------it was not nice when there was too much time between test. Have them check pituitary function. and kidney function. I will keep praying . it's easier here than there, but have been praying all the time for the doc's to have guidance namaste sheila

  • Janathan
    Janathan Member Posts: 80
    edited August 2010

    It was definitely quite an unbelievable year, Laura.  I forgot to mention our kitchen fire two weeks ago.  It was scary, but thankfully no one got hurt and we got the fire out by throwing several wet towels on it (something I remembered reading in one of those forwarded e-mails).  Our house filled with thick smoke and the fire burnt and popped the porcelain right off our range, so we need a new one.  We had to totally wipe down the entire kitchen...ugh...a layer of soot everywhere and it smelled pretty bad.  That's enough excitement/stress for one year!  Exhausting to say the least!!

    It's good to hear they are getting closer to diagnosing Taylor.  Good news so far.  He's in my prayers, Laura, as well as you and the rest of your family.  You've had quite a year yourself.

    Nancy, thank the Lord your daughter is okay. Good grief, what a scare!

    Angel, I'm so sorry to hear about your brother.  He and his family are in my prayers.

    Lots of prayers and support here, Sheila.  I will add you and your DH Greg to my prayer list.

    Life has its struggles, but thanks be to God for our daily blessings and hearing our prayers.

    ~Jan

  • nancyd
    nancyd Member Posts: 557
    edited August 2010

    Greetings in Christ, ladies. I've been absent due to a ton of work and long hours that don't get me home with more than an hour or two to spare before I have to go to bed. But there are some interesting things/changes underway that may mean a track for advancement that's been lacking since I started work there 13 years ago.

    At home, we're starting to work on this house (part of my Dad's estate) so it can be put on the market. The job seems overwhelming at times, because there are only two or three of us who have the committment to go through all the stuff and make decisions...sometimes hard decisions. Other siblings don't live close enough or are just making plans to not be available. :-(  We're going to be at it all weekend. Making three piles 1) garbage  2) keep  3) sell.  And then garage sale next weekend, hopefully. I think we'll have to do this a couple more times to get everything.

    I need prayers for energy...and patience...and a touch of wisdom to know which things to let go, even if it hurts.

  • Estepp
    Estepp Member Posts: 2,966
    edited August 2010

    oh sweet Nancy.... YOU CAN DO THIS.... you can get through it! Prayers for peace and strength... ! ((((((hug)))))))

    Sheila, I am a realist. I get you and what you are saying. I thank you for posting it here, on this thread. Pituitary... I will read up on this. His Kidney function has been tested. In blood test. Should we look into this more?

    I will know more Monday when the last of the 5th blood panel comes back. If you have any info for me Sheila, you can share it. Again, I am a realist. I do not want ANYTHING to happen to this amazing boy/man.... but I want to research anything...and I want to get him the BEST treatment for what is wrong with him.

    Thank you.

  • Janathan
    Janathan Member Posts: 80
    edited August 2010

    Prayers for strength for you, Nancy.

    ~Jan

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2010

    Laura, If it is parathyrioid glands that are malfunctioning  ask if it is  a primary malfunction or is it a secondary malfunction . The pituitary is the master gland,  it controls the function of all other endocrine glands and function of release of chemicals that control all endocrine and exocrine /kidney function. Go to wickipedia and read on each.Start with pituitary and it will lead you to the rest.

    I still believe an MRI of the neck is warrented. If the Mri of the neck shows something as I taked about on fv, Lets talk by PM.

      If it comes back that there is a parahthyriod malfunction, also ask for vitamin d levels and a bone desnity test .They may have run some of these studies, because you said on Fv that they took many vials of blood. Except for bone density.

    OUr prayers are answered in many ways. Maybe I'm supposed to be your questioner. SAS

  • mcjonsie
    mcjonsie Member Posts: 4
    edited August 2010
    HI, I am "fighting irish mom" (I work at Our Lady's University - Notre Dame, IN) and just dx poorly differentiaited infiltrating lobular cancer, and it is in noes too (HUGE lump under armpit) it is er1, pr 1 and her2+. My immediate reaction was just take them both off, but onc wants me to enroll in clinical trial of no surgery. I HAVE TO DECIDE by tomorrow - do I go ahead with mastecomy (or ies, up to me) on Thurs, or start chemo tues a.m. (Of course this is all contingent upoon bone scan results, which I am praying are fine.) I am unsure if chemo tues includes herceptin. But, bottom line is I am incredibly intelligent person but simply unable to make this decision on my own. I am now leaning towards "the Golden Mean" - remove only one breast, go with chemo etc.

    Please let me know your thoughts! Thank you

    poorly differentiated infiltrating lobular er/pr -, her2 +.

    AND I WILL NOT TAKE ANYHTING THAT INVOLVES hESC so please let me know if you aware of anything that invovles this! Thanks and God Bless!

  • val61
    val61 Member Posts: 969
    edited August 2010
    debmcjones - God bless you, sweetie!  What an incredibly difficult decision to have to make in such a short time.  I wouldn't begin to feel comfortable advising you one way or the other, but what I can say, is that whatever you decide, we're here for you.  I also had infiltrating lobular, but mine was fairly well differentiated.  There aremixed opinions regarding lobular, because it's just not nearly as common, but the one thing that stuck with me was its tendency to recurr in the other breast, though I think some more recent studies have shown non-statistical differences regarding that.  I know trying to do research at a time like this is very hard, so you might want to ask your onc about that.  He obviously thinks the trial has merit, or he wouldn't recommend it.  We'll keep praying for you.  Please keep us posted....   (and that campus is just gorgeous....you are lucky to work there)
  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2010

    DEBMCJONES-----Yours is a rare diagnosis, which doesn't make it an easy or quick study. Your doc has added an additional layer of a study, that you don't have time to study. I looked at BCO's info on ILC and two threads one ILC and one on one mastectomy vs both. The ILC sight had a poster that had hyperlinks to ILC articles. She admitted they were small studies and old. But had difficulty finding recent material. This is already sunday evening.  The way I read your post you see your onc monday morning.... To reiterate what I see in your post is INfiltrating Lobular-poorly differ. with node involvement. The best I can come up with is some questions for the ONC

    1. Why is he recommending the study---all studies as you likeky know already described the theory of what they beleive is the value of the study. Who can be included and expected outcomes.

    2 In your case because of the large node. Why is shrinkage with chemo, chemo/radiation/ radiation--not the first consideration

    3. In your case -is mastectomy, the first considerstion vs chemo and other routes described in number 2

    4. Why not do bilateral mastectomies if available studies identify a high recurrence in other breast?  Followed by chemo ?

    5 If it was his wife or daughter what would he recommend to them. Push him hard on this question. Watch his face every moment he's responding. If he can't look you in the eye direct, is he holding back?

    6 What about a second opinion?

    Doc's are taught to give you options, followed by the statement that "it has to be your decision." That takes them off the hook in a bad outcome, because it is your decision. It would be great to have a second opinion.(added that as #6). This thread for people of faith, doesn't mean we have the inside track on knowledge or guidance. But I definitely see and feel why coming here seems to be where your mind and soul-- see the hope that the answer will come to you by being here.

    I hope you have gone through all the teaching sites on BCO and the other forums. I have found very few people are unhappy with the final choice they made. But I may have missed entire forums in that regard, because I am attracted to Threads that are more upbeat because that is my need at this time in my life.

    I myself chose a bmx, it started as an elective because the Guiding spirit in me said it was time to do it. Very strong family history and a twin sis with BC. I waited 14 years after twins BC. Then a areola injury got me going. First that was done a --Negative mammo. Then MRI found it.  Off the girls came. Had I not acted when I did I would either not be here or would be in much later stages, as it was very aggressive. I looked at my breast as killing machines, since 12(includes me) first cousins and 2 paternal aunts have had the disease. Some are alive some are dead. I have a different few of what the breast can be.

    Listen to what your heart, brain, gut, soul, beliefs are telling you. Get your answers from your doc. Then quite yourself in prayer. Ask whomever it is that you pray too most often, to guide you. I believe an answer will come to you. I find when this happens I have a great sence of calm. It's then I know that the guidance has been provided. May Mother Mary comfort you and the whole Court of Heaven help you find this peace and take from you this fear that is blocking the decision you now must make . Namaste! I Salute the God within You, sas

  • mcjonsie
    mcjonsie Member Posts: 4
    edited August 2010

    Dear SAS and VAl61 - thank you so much for responding. I am acting very upbeat to family, coworkers, friends etc. but I am terrified. I profiled (hit wrong option button!) wrong dx - it has been corrected - it is poorly differentiated infiltrating lobular er-pr- and her2+. Insurance will not cover 2nd opinion out of this small area (even though I am close to Chicago) so that's not an option. In either of your situations, did your surgeon have any advice? Or are they just going on Onc's advice? I would like to see my surgeon again  and get his opinion, maybe try that in the morning. Best advice SAS re prayer -I always to turn to Mother Mary so here I go again! Fr. Corapi said "your momma wears combat boots" and he is right! She is strong and aewsome!

    God Bless all of you, and God (PLEASE!) Bless the USA!

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2010

    DEBMCJONES----- I need to get my head wrapped around this a bit more.

    The onc is directing the plan . You have had at least one office visit with onc. Follow up visit is tommorrow.

    You have had the biopsy(so, you had one office visit with surgeon and were scheduled for bx>>pathology report returned to onc and surgeon--thats at least one week if everything was moving fast). You likely had a return follow up visit with surgeon. Thats a 3rd week. You have a chemo chair scheduled (that usually can happen quickly without much time delay). AND you have a slot scheduled in the operating room (this can take from one day to a month plus).  So, i'm quessing the time for all this to occur  from onc appointment, to bx, to follow up office visits,  to surgey schedule has been at least one month from the first phonecall to onc. Thats fast these days. The days of doing surgery within one week of bx are basically long past, because of insurance approvals and doctor availability.

    Your 3 options are to

    1.begin chemo tues or

    2. have a mastectomy Thurs. or

    3. do no surgery---does that included chemo? you didn't mention?

    If you begin chemo Tues. that will immediately start killing cancer cells. Since you have nodes already involved there may be a benefit to starting chemo right away.

    Did your ONC mention whether thery was any advantage to this in your situation.

    Some tumors benefit by begin shrunk before being cut out. Did he mention this?

    onc---disadvantages of not starting oncs plan this week?

    There are at least 5 options/problems, I think in re: to a second opinion.

    1 clarify why your insurance company will not pay for a 2nd opnion. Most will because it can save them money if  2nd opinion offers a different treament plan that will cost them less money. 

    2.You need to get the name of a particpating  oncologist in your insurance plan.They may not be in your area, but they could still be in your insurance companies network.--call your insurance company for several names.

    3. If you make an appointment with the 2nd opinion doc. You won't know until , you talk with there offices how long it will take to get an appointment. If  you would be able to get a same week appointment --Yes the angels would have to work that one.

    4. If there is no one connected with your insurance plan, then they would truly be Out of Network--very expensive. Insurance companies will approve sometimes, but it is case by case. Only you can determine how important it is to you to get another opinion.

    5. A second opinion could delay chemo plan or mastectomy plan by minimum 2 weeks or  more likely 3-5 weeks .

    YOUR onc needs to clarify for you if this is dangerous based on your pathology report. i.e. how aggrressive does the path report state that your tumor is.

    My delay from bx to bmx was 3 weeks. I went from grade 2 to a grade 3---no sampling error. So, mine was very aggressive.  I knew it, and was very pushy about making things work, but I knew the system because of my background. I knew what buttons to push. My surgeon actually said he'd see me in 2 months. He was very surprised that I got everyone where they needed to be in 3 weeks at the surgery table.

    I suggest that you print of your orininal question to us and VALs and my response. Make 2 copies. Highlight questions in yellow.  Take them with you to your ONC visit tommorrow. I have spaced it so you can write on the paper. this will avoid having to do alot of rewriting tommorrow when you are already so stressed. Blackout any identifying info of val and I. Hippa ---you may want to cut out vals portion if you are unable to get her permission 

    Your onc may have already covered this, but as soon as w hear the C word our brains go into overload with fear-----our brains turn into mush.

    Try and take a friend that can listen and write while you just listen to him/her.

    Mother Mary guide this woman to the best answers and allow her to focus on what the onc is saying without fear or any other troubling thing getting in her way. Namaste sas

  • g94u67
    g94u67 Member Posts: 91
    edited August 2010

    Prayers & Hugs to everone on BCO. Angel, 3M, Sheila's DH & Nancy

    Dear Laura, Praying that the Lord finds what's wrong with Taylor and heals him.

    Debs- Sas has very good points. I wouldn't recommend a clincial study until after standard chemo/Rads & surgery.I agree too you should be entitled to a 2nd opinion. (Even out of network-I did only afterwards) Neoadjuvent (chemo before surgery) may be for you? I know it's all sooo much to take in. But I definitley recommend a 2nd opinion. Look the bc isn't going much farther if you wait another week. Even if you have to pay for that appt. I think it's worth it. I do agree w/all the authorizations (especially summertime) delays occur but you want the best Dr. with the best TX plan.  I rushed my TX with a Dr. who was not familiar w/my TN bc. Needless to say if I had to do it all over again...a lot would be different. May the Lord lead you in the right path and give you strength!

    Please also keep me in your prayers sisters.  I am having breathing difficulties (Asthma?) with RADS.  I can barely walk up the stairs. Going to my Dr. Wed.

    God Bless everyone in Jesus name.

    Jeannine

  • jan508
    jan508 Member Posts: 724
    edited August 2010

    Hello Everyone:

    I am very new here.  I hope the guy who hit me on the side of the head last Friday with a cancer diagnosis had a lovely weekend Money mouth

    Anyway, my biopsy results show 2 areas

    #1 is 12 o'clock left breast LCIS and invasive mammary LC classic type

    #2 is 1-2 o'clock left breast LCIS and scattered foci of invasive mammary LC classic type

    hormone is

    Estrogen 100% (3+) - positive

    Progestrone 90% (3+) positive

    Ki-67 is 10%

    That's all I know so far but going for MRI this Wed morning and waiting for appt with oncologist.

    Can anyone let me know exactly how to interpret these results?

    God Bless and Thank you

    Jan

  • mcjonsie
    mcjonsie Member Posts: 4
    edited August 2010

    Jan I just started on this roller coaster as well - I can't help re interpretation (yet) but the other women on this site are amazing and helpful - someon eI am sure will reply. - God Bless you, mcjonesie

  • mcjonsie
    mcjonsie Member Posts: 4
    edited August 2010

    Sas- my once sharp brain is in panic mode and I cannot think straight (or crooked a tthispoint!)

    2nd opinion not option i am taking, they are having a roundtable/conference of specialist s in my area on Thurs and I am going to insist on waiting until after taht to make decisions, while taking into account answers THEY NEED TO GIVE ME re the all the questions you and val have asked  and a few of my own. I need to slow down by 2-3 days - i need to think clearly, logically, prayerfully and then make a decision. The only thing I am pretty sure I am ok with at thispoint is chemo weds (was tues, now weds as my son arrives tues eve) and, as long as it does not preclude single or double mastecomy, surgery for the chemo port to be put in thurs.

    GOD BLESS and I cannot tell you how VERY VERY comforting and empowering it si knowing you/thjis site are here. 

  • Estepp
    Estepp Member Posts: 2,966
    edited August 2010

    Hi newest SISTERS ! YOU ARE NOT ALONE!

    I have been offline for a few days...

    I just wanted you ladies to know that we are here for you, on BCO. I pray a lot. I am NOT NOT NOT a perfect person...LOL LOL.... but I trust in our Father. Shoot... with all that life can throw at us.... I don't know how anyone lives without Christ....:)

    St. Peregrine is the Patron of Cancer. He prayed for me daily as I fought a sad DX. They gave me a 50/50 shot at life... after they found all the node involvement... but... BECAUSE of our FATHER ... and the prayers of the saints and eachother.. I am here. CANCER FREE...

    PLEASE look into ST PEREGRINE on google.... :)..... I will always have a devotion to him..... I think he must have been an amazing guy in his life!! Heck... I think I'd hang out with him..if he was on earth today!!! ~ wink~

     Your sister in Christ... and the Church!

    Laura

    Dear Father,

    We ask for your strength. There are so many of us starting cancer treatments, in the middle of them, and done with them... wondering. I ask one thing of You tonight. I ask, humbly, that you help us give ALL our worry and fear and sadness to you to take care of. This is SO hard for us. You promised us, that if we truly give You our worries... You would take them ALL and free us. It is so hard to do this. We are so so week. While I was going through treatment, I was able to give You it all... and I have never been so peaceful in my life. I truly gave it all to you for the first time in my life... and You took it all. I pray for ALL my sisters here to Give it to you, like I once was able to do. I pray you show them how, like you showed me... even if it hurts.. because I know that the end result... YOU... is perfection and peace.

    I pray this in the name of Jesus Christ.

    Amen.

  • lovemyfamilysomuch
    lovemyfamilysomuch Member Posts: 762
    edited August 2010

    AMEN

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited August 2010

    There is nothing like having a hugely long message go to computer netherland--I wrote to you all and it's gone.

    Lets us pray for each other  and find peace Love in Christ sheila

  • jan508
    jan508 Member Posts: 724
    edited August 2010

    Thank you MC:

    Yes, this certainly is a roller coaster ride.  One minute I'm up and then I start to cry. I go for an MRI tomorrow morning.  My fear is lymph node involvement.  How can you make a decision on BMX if you don't know?  I pray and I am on alot of friends prayer lists.  I'm sure GOD will take care of me.

    I wish you only the best in your journey also.  Since we both have ILC and are so close to diagnosis and treatment, would you like to be my CB? (cancer buddy).

    God Bless!

    Jan