MIDDLE-AGED WOMEN 40-60ish
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Happy Easter everyone, from "Sparkle Sunshine".
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Happy Easter - from Thumper Cotton Tail :-)
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Nibbles Cotton Tail!
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Whisper Clumsy signing in....
...why did I get the silliest name!!!Happy Easter to all my peeps!
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Happy Easter from Wild Sunshine and careful folks....cause this is your brain on peeps
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Lol linda.
Hope all are enjoying this Easter Sunday doing whatever it is that you do.
((hugs)) from Whisper Sunshine.
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LOL, Linda! Had to forward that one to my peep-eating son who can't be at home this year.
>>>> Easter hit with downsizing...It's the Easter Hamster now. <<<<
p.s. Going to copy off marlegal today and whip up some pineapple stuffing to go with a ham. Never made it before. Cross fingers.
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I bought some pineapple yesterday and didn't remember why! Thanks, e, what is the recipe now?
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thanks, Linda, that was funny! Can I share on other threads?
Have searched Pinterest for the pineapple stuffing recipe. Is yours very different?
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Help yourself 2nd time ar!!
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thanks Linda!
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you and me native mainer...... nibbles cottontail.
I have not been feeling well, so all the laughs are so welcome! peeps......
My DS and I went on ancestry.com today. He is really into history. Most of the older generation especially on his dad's side is gone, so it is really cool finding out about those relatives. We found his great, great granddad that he was named after, I just thought the name sounded good with the last name, very scottish. Then I named my DD after a friend of mine because the name went well with my DS's name, but my MIL thought I named her after her husband (their granddad). ha, ha, I let her think that. His name was Donald and my DD's name is Dawn.
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Daffodil Bubbles checking in,.. Happy Easter!!!
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Hi Lakegirl1...
From your signature, it looks like we have a lot in common and I am about one month behind you! I am meeting with MO for the first time tomorrow and I'm guessing she will say chemo is in the cards for me
although I don't have my oncotype score yet...I read your posts in the April Chemo thread and second your thoughts!Sending good wishes to my fellow Illinois gal!
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HI teachermom4...it looks like we are definitely going down a similar path as we are very similar in diagnosis. I do have my onco score, which is 6. On the surface it would appear very low, no chemo. However, do to my age(43), my kids age(6&8) micro in SNB and tumor larger than initially thought, he recommended chemo.
I go back May 1 to meet with MO. We shall see what he says. Initially, the plan was for lumpectomy, rads, then chemo. Well, as you can see things changed drastically as I ended up with bmx. I also got a staph infection, which required IV antibiotic via PICC line. I am curious to see if that changes anything.
Good luck tomorrow, the not knowing part throws me off my game too. Hopefully, you will get the answers you need and a good action plan. I may not be in control of this journey, but feel much better with an action plan.
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googled "where do peeps go after Easter?" and this is what I found out:
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teachermom4, best of luck tomorrow, hoping for the very best.
Wishing the best for you too, lakegirl1
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Lakegirl1, The thought that comes to my mind is that while you would be doing chemo (which, by Onco score results, would not seem to offer much benefit,) you would be delaying the start of Tamoxifen (which, according to Onco results, would give you greater benefit.) It is puzzling as to how that all would balance out. Did your doc, by any chance, show you a bar graph from Adjuvant Online? That's a program that also weighs the benefit of chemo, based on your own individual factors. That is a bummer about the staph infection.
teachermom4, I don't know that you should jump to the chemo conclusion. You have Grade 1 BC, and I would not be surprised if your Onco score came back very low as well. Grade 1 is just not fast growing, and because of that it is not as susceptible to chemo. With that and being ER+/PR+, your greatest benefit may also come from Tamoxifen (or an AI, if you are menopausal.)
Welcome to you both! Let us know what your treatment plans turn out to be.
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Cute 2xA!!!
Lakegirl, I'm surprised your onco type score was only 6 with a grade 2 tumour! So much for the way they used to treat us, eh?? Grade 2 would have been chemo all the way. Why did you have to end up with bmx?
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love the new header!
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Barbe1958...the bmx was totally initiated by me. There was no love lost between me and my boobs!!! When I was prego with my 1st, mastitis 3 times in 6 weeks, scars from nursing...too big, saggy. My thoughts were if I have to endure this, I want new ones!!!
Elmira...I met with onco the last week in January. I don't recall if he showed me that info, but I will ask. I was thinking the same re: tamoxifen ...I thought sooner, in my situation, was better than later.
I see him May 1, I will follow up with what he says.
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Sorry I didn't see the posts about the pineapple recipe before Sunday
Next time I'm on regular computer I'll PM those interested with the recipe. It never disappoints and the leftovers re-warm nicely. Thoroughly enjoyed the dd's and g'sons even more 
All my best to those having tests this week. I'm available for pocket filling
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Lakegirl1, I'm sorry if I wrote a confusing post to you. It does seem like your doctor is not trusting of the Oncotype score alone, feeling that other factors warrant the use of chemo. For a lot of us, the use of chemo amounts to doctors taking their best guess on whether we need it or not, and we can never really know if it has helped us or not. The kind of BC that responds to Tamox. does not grow very fast. That is why Tamox. is usually given last in the treatment series.
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Elimar...I'm just trying to wrap my head around this chemo thing!!! I'm just not quite there! I am looking for info anywhere I can to make the best decision. I can take the surgery, large fills in TE's, no narco pain meds, but the chemo is my Achilles heel...I am honestly looking for anyway to get out of it. BUT, I will do whatever it takes to see my girls grow up!!! They are my reason for all I am doing!! I think part of my problem is that I don't know "the plan" for chemo, which is driving me crazy!!! (And I am having a very hard time with the hair thing).
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Hey Lakegirl1 - I think you should consider getting a second opinion on the chemo thing. I was/am a little uncomfortable with my chemo plan and I am getting a 2nd opinion on that part of my treatment. I am going on Wednesday for that. I told my MO that and he was very supportive of the idea. I think I need the 2nd opinion just for my peace of mind. I am pretty sure I will get the same answer from the other MO but my current MO said if it is different we can decide which way to go. These decision that we are making now are not small everyday decisions - these are big ones and a 2nd opinion is not a bad thing.
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Linda505...I have been thinking the same thing!!! I will be looking into that today!!!
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Yep, I'm with Linda and would always encourage a second opinion if the plan is dubious or some aspect of it doesn't sit right. On the other hand, Lake, I totally get the fears and resistance to chemo, as it is a big intervention, and even if it is undoubtedly the top choice for tx, its a force to be reckoned with. I feel for anyone facing this and am totally there for support and commiseration!
Cancer treatment is grownup stuff.
Hugs, Mame
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Lakegirl, While you are looking into things, check if you can find how many times Onco scores are erroneous? How many times false low scores are given? In other words, what is the margin for error on that test. This may be what the doc worries about. I am only being a bit of a devil's advocate here because you don't have the most clear cut case to do the chemo.
I did chemo, myself (but it was for another cancer.) I had cancer in a few nodes. Although the cancer-y nodes themselves were out, I had to wonder if anything got past them? So, my chemo was "just in case," and many BC patients get it under the same circumstances.
The hair loss is really the least of your chemo worries. Although you can't see it, you have to wonder what the chemo is doing to all those healthy cells in your body, like your heart and liver cells. That is the real worry. If the chemo upsets your stomach, you won't even give your hair a thought, unless your wig falls into the toilet. Speaking of hair and wigs tho', this could be a time release your inner red head, or get that "Farrah" or "Rachel" 'do you always thought about.
If you do end up in a grey area as far as chemo decision, you can not think of any decision as being right or wrong, just the one you are least likely to look back on and want to kick yourself for making. What I wrote might make you think I am anti-chemo; I'm not. (Well, I am, but only in the sense that I think they are all poison and no one should ever have to do them.) It is up to every person to get all the info. and make a choice yay or nay. On this thread, we surely will support whatever you decide to do. Chemo is the devil, but the bigger devil is BC.
Also, it is normal for your brain to explode while weighing all the thoughts about these medical decisions. Some go with the chemo option for the simple reason that they are too scared not to do it. I felt too scared not to do it, and I know I have not been the only one.
linda505, Not sure if you have posted on here before but, if not, then welcome. Just looking at your Dx, I am not sure why AC/T is part of your treatment plan? Did you have the Oncotype test and have a high score or something? With your Dx, both Herceptin (for HER2+) and Tamoxifen or an AI (for ER+/PR+) are very common. I am not understanding why they want to use the "big guns" in a small, slow-growing, ER+/PR+ situation. How much can you actually benefit from it? Did the doc ever break down the actual benefit for you? Chemo is always a risks vs. benefits thing. Good Luck with your decision too.
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Elimar...I was looking at my path reports., specifically the info re the nodes.
Nodes with macrometastases = 0
Nodes with micrometastases = 1
Nodes with isolated tumor cells = 1
Largest metastatic deposit= 0.55mm
Total of 3 removed.
Also, ER+95%/PR+70% HER2-
I'm just not sure what to think.
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>>>> Easter hit with downsizing...It's the Easter Hamster now. <<<<