HER2 Positive-anyone 10 years out?
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Fabulous, Richgirl!!!! Wonderful news---keep posting and reminding us!!
Stephanie
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richgirl--great news! Thanks for inspiring the rest of us and I wish you every success and happiness!
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I was diagnosed in November 2006. I am doing well with no problems.
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Congrats Richgirl and Sassa!!! I still have a few years to go to reach 10 years free... but am excited for each person I see posting!!!
And richgirl... congrats for finally getting online here!
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- thank you very much
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thank you very much
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Thank you very much
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thank you very much
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thank you very much
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just back from my twleve year Onc visit, orig dx stage IIIC dx, 12 out. of 14 pos nodes, her 2pos. Lymph & vascular invasion, no clear surgical margins, Paget's of the nipple, bal , blah,blah. Really really sad faces and rotten prognosis I.
I am well, living and laughing every day... Eternally grateful for the life I have.
Only advise.. Fight the beast with everything you have and live fearlessly
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Way to go LindaK. I'm 4yrs her2 clear... in the middle of a minor bump in the road with a new hormone positive cancer contralateral breast. But none of that nasty her2. Congrats on your 12 years!
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lkc,
What a wonderful post! Here's to you!
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I randomly decided to check the boards here. I am 8 plus out ! I did have a little brain met in 2011, but the rest of my body remained completely free of cancer. That nasty little bugger didn't have a chance. Completely NED since then:)
Jessica
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That's great Dharmamama! Thanks for coming back. One question: were you treated for the brain met?
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Dharmamama--Fabulous to see your post and thank you for posting--so glad you "randomly" found this thread! So happy for you that you're living your life the way you should be!! Just wondering what your treatments were--TCH?? You didn't post that. Also, do you have a certain diet or lifestyle that's helping to keep you healthy?
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Dhar-that is great! I am heading towards 16 years as a survivor, but not NED.
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Next month, I will be 6 years out and was only able to have 3 months of Herceptin because of heart damage. I am doing great!
I have talked to countless women who are now over 10 years out and who were Her2Pos.
Met one gal while getting a pedicure. She spotted my Lymphedema sleeve and came over to talk. She was only in her 20s
when diagnosed with Stage 3 Her 2 Pos. She said she put her life on hold for 10 years. When she made it to 10 years, she decided
to start Cosmetology School as it was something she always wanted to do.
She brought me much hope that day!
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Denise what a heartwarming and hope giving story. Thanks for sharing it.
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Hi Denise-g
Just wanted to drop a note saying that I have read many of your posts both here on this Website as well as your blog. You give me (and I am sure many other women) so much hope and inspiration. Every time I freak out about suviving this disease I think of you and I am able to breathe. Thank you.
To Denise and all the other long term survivors.
Keep doing what you are doing. Newbies like me need to hear long term survival stories and get as much encouragement and hope as possible. And that's what you and many other women on this forum are doing. So thank you. Thank you. Thank you.
Saadia
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i just want to echo what saadia said about Denise! Denise, you truly care about making a difference for the women who are walking this path ---you are a star! Thank you!
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Denise--So good to see your post. You have been one of the ones from the beginning who encouraged me. And how is your sister?
Cyber hugs and best wishes to all--
Stephanie
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I agree Denise! Your posts have always been such a huge light for me when I've been going through dark times. You are such a blessing to everyone on these boards!
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Hi Ladies!!
My name is Tracey and I will be 10 years out this coming spring!! I was diagnosed in 2008 with ER- PR+ HR+. My tumor was 2.9CM and I was stage 2B. I had adrimyacen/cytoxin and Taxotere. Followed by a year of Herceptin. By the grace of GOD I have been healthy ever since!! I did a bilateral with reconstruction. Expanders to implants. I am still on Tamoxifen.
I was always one who worked out but since the diagnosis I stepped it up more. I work out 5 days a week combining running and weight training. I no longer eat meat. I don't have anything against meat it just scares me! LOL! Just know that there are many women who were HER2+ and end up in the arms of strength and health! I want to encourage you that your story has been written just for YOU! It is uniquely yours! I remember when I got diagnosed I would often compare myself to those that weren't doing so well. I did this all the time. I was SO afraid and terrified when I'd hear of a loss in our community. I would internalize it. Then God's wisdom whispered in my ear and said your journey is for YOU and YOU alone. Ladies you are gonna be FINE!!
I'd like to share with you that in 2012 I was chosen by Under Armour to be one of the 3 athletic survivorfaces of their Power In Pink Line. I had to send in pics and write my story. A part of my story goes as follows "I remember the doctor telling me that I would have to jump through hoops to get well, and I thought, well, show me the hoops! Now when I look back at all that I have been through on this journey I just smile, shake my head and say wow I never knew I could jump so high!"
Be encouraged and know that God's got you girls! I love you my sweet sisters! Chin up and celebrate life! We ARE ALIVE!!
Sorry for the long post!😳
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Traceyz- I love you post! Thank-you so much, this is what I needed to hear right now. This I will come back to read often, it is an answer to a prayer, I have been scared and driving myself crazy.
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Tracyz
Pls don't apologize for the long post. It was exactly what I needed to hear. !
I hope I can join you the ranks of the long survivors. Still have major panic attacks and yeah I do tend to compare myself to worst case scenarios so hearing your and other long term survivors gives me hope.
Love
Saadia
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Tracy -- thank you for this wonderful post! So encouraging -you are a beautiful person--beaitgul inside and out !Thank you so much!
I have question--it sounds like you are very athletic . Do you have implants under the muscle ? My doctor has told me that exercises that activate the pectoral muscles are out of question for ever. I think he is very conservative. I just wanted to ask you whether you have limited yoru activity and exercise in any way due to the implants ?
Thanks so much !
Love and hugs to you
Tara
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Saadia1 and Mistyeyes!
Such SWEET words from both of you! I'm so happy to know that my story and how we are connected has encouraged and helped in some way! Mistyeyes I use to drive myself NUTS with fear until I realized that my story is MY story uniquely written just for ME! So take that with you and know that it's true! Hugs to you both. You ladies are AMAZING and BADASS!! LOL
Tara!
THANK YOU!! Sweet compliments!! I feel blessed and I appreciate your words! As for the implants yes my implants are under the muscle. For the first few years if I tried to do push ups my pecs would be so tight and uncomfortable! So I stopped doing any chest workouts. Now I do 100 push ups every other day and I'm fine. I would not work chest muscles for a while. Actually until you can work your chest without it being tight. You can ALWAYS work surrounding muscle groups like shoulders, back, and arms! Thats what I did and I then hadno problems with tightnes. Listen to your body and your doctor but also don't ever cheat yourself out of a good workout! You will figure out what you can and shouldn't do. Your chest muscle WILL left you know! LOL
Thank you again ladies for the love and sweet words. If you/we ever need words of support it's good to know we have each other! We just get it!😘😘😘
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Great posts traceyz !!!
Since I have bilateral lymphedema, I was told not to do any of the Nautilus exercises any more. I am limited to lift no more than 15 pounds per arm forever. I had 37 nodes removed from the left side, and 18 from the right. But good for you to be able to do so much!!!!
tuckertwo...I am a 15 year survivor of Stage 4 BC with original metasis to my liver. Gemzar with Herceptin cleared my liver in 9 months. I was in remission with Herceptin only for 6 years.
I had a recurrence 6 years ago to 3 lymph nodes in my chest, and am now on Kadcyla, which is a super-Herceptin. I did have another remission with Kadcyla 2 years ago and took a 9 month break and went back on Herceptin only.
But the cancer did recur, so it will be Kadcyla forever for me as long a the nodes don't get too big.
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I am following this thread for sure and beyond happy to read your posts. I am only on year 2...
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Hi everyone,
I'm ten years out this Saturday from being diagnosed with Stage 1 HER+ breast cancer. I was treated post-lumpectomy with 12 infusions of Taxol and Herceptin, followed by 33 or 35 (can't remember) radiation treatments, then for the remainder of the year with Herceptin every three weeks. I have CIPN that makes walking a challenge and was treated in 2015 for a rare form of Hodgkins lymphoma (unrelated to the BC), but otherwise I feel fine and realize with every passing day how precious this life is.
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