Mets to lymph nodes in my neck
Hey everybody -
Just one month short of five years from my original Stage III diagnosis, I was diagnosed with mets to lymph nodes in my neck. A CT scan with contrast of chest and abdomen and a bone scan show no disease elsewhere. The onc has staged me at Stage IV because the lymph nodes involved were cervical rather than supraclavicular (evidently a different chain of nodes).
My onc presented my case at tumor board and there was some talk of more surgery to remove other affected lymph nodes and/or radiation to the area, but they decided that the side effects would outweight any possible benefit. Besides, since I'm stage IV there's no hope anyway (not said in so many words, but that was the impression I got).
The suggested treatment is an oopherectomy and aromatase inhibitors. That's it. I'm only 46 and in good health otherwise, but I feel like they've given up by not suggesting a more aggressive treatment plan.
So now I have questions. First, has anyone ever heard of mets only to lymph nodes in the neck? Should my onc have ordered a PET scan? If anyone has had mets only to lymph nodes, how was it treated? Any other input?