CALLING ALL STAGE I SISTERS
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Chabba, thank you for the reassurance. I know if I don't take Tamoxifen, I will regret it if I get a reoccurence. I guess I have read too many horror stories about the bad SE's that I never wrapped my head around the mild SE's that some people experience. I hope I am one of the lucky ones that will have mild SE's.
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Slinky - I encourage everyone to at least give them a try. That is what made me try - I didn't want a lingering doubt in my mind that I had not. There are some who have no SEs, and I wish that had been me. I am convinced our body tells us what it can and cannot take. I am a pretty tough cookie as a rule but I could not ignore my violent reaction. It is ok, at least I now know. Good luck to you.
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Hello Ladies,
it has been quite sometime since the last time I have posted in this forum. I was in discussion with Barbe about a delayed side-effect and/or complication of radiation therapy that I have now or have had for the past few months and she suggested that I post in this forum and see what feedback you ladies can contribute to my thread.
I finished 25 sessions of RADS and 5 BOOSTS March 31 2010. A few months ago I started to have difficulty with my right arm/shoulder. From my shoulder to just down the upper part of my arm a bit I cannot raise my arm straight up.... it is completely locked in position. However I am also feeling often pain in the shoulder and upper part of my arm allot of the time too.
I have googled these symptoms on the net and find allot of reference to this possibly being a side-effect and complication of radiation therapy and also indications that this couple possibly happen within 8 - 10 months to years post radiation therapy.
Have any of you ladies heard of this happening and/or has this happened to any of you. Would appreciate any and all feedback.
Thank you so very, very much.
Charmaine
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Charmaine
Try posting on Radiation Therapy, Before During and After threads or Lymphedema after Surgery. (Or both.)
This is what came to mind from reading your post.
http://www.stepup-speakout.org/Radiation_Induced_Brachial_plexopathy.htm
I'm sorry you've been having such a hard time.
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Charmaine, I've also had some trouble with the arm near the radiation. I've had to go to a LE therapist and they discovered that I have cording. The pain sometimes gets really intense. I'm not able to extend the arm straight over my head without difficulty. This also could be frozen shoulder if you haven't been using the arm. Have you gone to anyone to check it out. A good massage therapist could help you with the frozen shoulder and the LE therapist can help with exercises.
Good luck.
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Charmaine...I didn't reply because I really don't have any answers.
I hope you get the bottom of this and get some relief.
Hugs
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Sharon:
Thank you so much for posting a link to 'Brachial Plexopathy', from what I read of it sounds much like what I am reading. If I try to lift my arm up too high and/or in the wrong way as also per the article my arm goes into extreme spams of pain. There does not apparenly seem to be any type of cure for it and mine seems to be getting worse. I also feel a bit of a tightness in the upper part of my chest as well, go figure? I hate this though as I am right-handed and it is getting hard to wash the left side of my body, and to shave my left underarm, and I am starting to have difficulty with brushing my hair using right hand and difficulty holding blow dryer with my right hand..
Hate this big time.
I see the breast surger on the 22nd February, also gonna request a xray just to see if there is a possibility of a rotator cuff injury that may have happened from radiation therapy as have heard this happening with people.
Thanks so much for your help. Charmaine
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Samsue:
You mention 'cording' can you please tell what this is? As for a LE Therapist I will have to see if I can find one that is covered by my Ministry Health Insurance.... as for a Masseuge Therapist I would be afraid to go to one of them unless I could find one familiar with people that have gone through radiation therapy and having the kind of problem I have. The prices they charge around me are like $30 for 20 minutes to me that is allot of money unfortunately.
Thanks for your feedback.
Charmaine
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Charmaine, I've been seeing a R.M.T. for nearly 3 years now. Sadly,OHIP doesn't cover my visits.
If you go to the Step Up Speak Out webside there are links where you can find a qualified massage therapist hopefully near you. Your surgeon or rad. onc. may have a list as well.
Good luck.
http://www.stepup-speakout.org/Finding_a_Qualified_Lymphedema_Therapist.htm
About cording.
http://www.stepup-speakout.org/Cording_and_Axillary_Web_Syndrome.htm
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Hi All....
I saw my oncologist today. Definitely coming off Femara next month.
But he still wants to see me every 4 months for a year after the femara and every 6 months after that.
And he will continue the Tumor Marker test.
I went in with high anxiety.
I feel better now knowing he still will be on the top everything.
♥
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Sheila - Good news you are feeling better about stopping the Femara. I know you had alot of concerns about that. Seems an oncologist will become our friend for the rest of our lives and yes, they will stay on top of things. That alone is a comforting thought.
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I wish I had that good of a relationship with my onc... we tolerate each other
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Sharon:
I read the article on cording and what I am going through with my right arm/shoulder do not appear to be that of 'cording'. So when I see the doctor tomorrow will bring up the other condition you spoke of have it written down.
Thanks, Charmaine
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its' good to read all the posts. congrats for finishing, et. al. i could never catch upo with you ladies. just know you're loved. Grannydukes, im so happy about your SIL!
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DR just called. We are both very happy with my results.
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Woooowhoooo Shelia!!!!!!!!!! So happy for you!
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YAY YAY YAY---GOOD NEW SHEILA.IM DOIN THE HAPPY DANCE.XOXOXO
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Sheila - Good News - Doing the happy dance for you.
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Congratulations .. doing the hap hap happy dance
Sheila ... yay!Vicki Sam
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For Caring.....
Good Night
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YEah Sheila!!!!!
OUCH! I just got filled today to 400cc and my poor self is feeling like an elephant is sitting on it...yet, the end is in sight...i go back to PS in 2 weeks for one more possible fill..although he does not think so, then a week later my exchange. For all my bitching about the oncologists-I have to say the PS is magnificent. So cautious and caring and vigilant through this...listening to what I want, recommending what he thinks...and well, it just feels good to have mutual respect with somone who will have my life in his hands while I am under anesthetic... gonna post the pics for this step of the journey on the pic site and then try to fall asleep now that I took half a vicodin that has me not caring about the boulders on my chest....
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get some sleep sweetie. tommorrow you'll not only look better, but feel better, as well.. 3jays
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((((((((((((Sheila))))))))))))
I am so very happy for you, dear sister/friend.
♥ ♥ ♥
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{{{SHEILA}}}} Happy dance, sista!!
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annette - Today will be a better day. Hang in there - the end is in sight.
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In case anyone misses me, I will not have fallen off the face of the earth.
I will be at my DD#2's home to celebrate my sweet Granddaughter's 4th birthday with her. I leave this Friday morning & will be back the following Friday.
Be safe everyone.
♥
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Have a great trip Val!!
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Sheila .. it is good to hear your news. Perhaps you can arrange a big party for us.
Val.. happy journey. Enjoy with your grandchild.. my warm wishes for her ..
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