CALLING ALL STAGE I SISTERS
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Bombaygal, I will PM you.
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I just want to say to all my Sisters that they are affected from Tsunami warnings.
I'm thinking of you.♥
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I live in the East Bay of San Francisco. It's not been very impactful here. There is one harbor (Santa Cruz, south of SF) that has been hit kinda hard because the harbor is narrow and long and the opening is exactly the angle to have the waves come up into it. There have been several overturned/loose boats there and dock damage, but there's really no impact to other property or people here in general in this area...
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ajtina - Good to hear you have not been affected by the tsumami
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Val--just today I thought about you.Good to see you back and soo glad you had a good time...we missed you.Welcome home....
to all my sistas who were affected by the tsunami( or know anyone who was affected) prayers goin up to you.
Have a good weekend my sistas.I know I will..got my blood work back today.everything is in the normal range.YAY.party time...hugggggggggggs K
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Valerie welcome back sister/friend.
♥Hi bombay♥
Granny...Its always nice to see you.
My DD in Hawaii was affected as she called me 1:30 in the morning.
But everything okay now. They didn't get much of anything.
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Sheila---huggggggggggggggs to DD.thank GOD she is ok....prayers goin up again.
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Jo1955, you bet, you guys are a great bunch, I have learned more on this website than my doctors office
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Bombaygal - For a wild and crazy ride you need to take a peek at the Bottle O' Tamoxifen thread. It is informative, supportive and down right crazy at times. See you on the Tammy train. CHOO CHOO
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I have some questions for anyone with experience in this area. I am 3 years and 3 months out from chemo and finished reconstruction with implant and on Arimidex for over 3 years.
Does anyone know how long I need to see Breast Surgeon? I see onco dr. every 6 months for the next year. Then yearly after 5 years out.
Breast surgeon yearly - right after my mamo, I had all my treatments at Sloan in NYC.
I had reconstruction at NYU, in NY. I see him yearly. What is everyone elses schedules? Seems like alot and I thank god everyday that I have a great team of doctors but would like to combine or could I do away with any of these visits? Does it get any easier after 5 years out?
Thanks to you all for any input.
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Hi Desny.....
My schedule is BS once a year. (had lumpectomy)
Oncologist still every 4 months.
Coming off Femara in couple weeks started on March 23 2006.
Mammo once a year.
You asked the magic question about 5 years.
I'm grateful but it didn't get much easier for me. I just got used to it.
It will always be a part of my life.
Hugs.
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Sheila - I don't know what happens 5 years out as far as medicine protection but I believe that we will be seeing our oncs for a lifetime. My DH was first diagnosed with cancer in 2004 and had chemo, onc follow up every 6 months for 2 1/2 years and then a recurrence of the same cancer in a different place, chemo again and now in remission but still sees onc every 6 months. So that is kinda what I am planning on - onc visits for life.
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jo....I was terrified that my DR was gonna say see you in one year. Usually that's how it goes.
And thats what he told me at the beginning once a year after 5 years.
I was even fine every 6 months.
But he said i will continue seeing you every 4 months.
I didn't argue.
I'm nervous enough because of no more Femara.
I feel like no more protection. Its just me and my body.
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Sheila - I would be terrified too. Glad you will be on a 4 month follow up schedule. Does your onc do labs each time? That is almost as important as the mammos, MRIs and the rest of the tests.
I am on a 4 month schedule right now.
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Sheila- if you are off the Femara and want to feel a better sense of some sort of protection or insurance, why not try DIM and Grapeseed Extract? You know when my onc was trying to talk me out of it and to put me on an AI she actually said "Use that stuff when you are off the AI in five years...." Just a thought. Big hugs to you buddy:)
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annettek - Don't want to sound stupid - but what is DIM?
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yes jo...He does tumor marker test everytime.
Annettek....I will definitely study the the grape seed. Is it in a pill form or you need to add to your food.
I googled DIM>
Hugs
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Sheila ~ I am relieved to hear that your Hawaiian DD is fine. ♥
grannyD ~ I am still giving prayers for the continued improvement of your SIL. And, fabulous news that your bloodwork came back great. Wonderful!
Ainm ~ I missed your birthday, I hope it was lovely.
Samsue ~ Belated congrats on your 1-yr cancerversary !!
bombaygal & Teal ~ Sending good wishes for an easy Rads tx. I had 28 reg tx & 5 boosts & I thought it would take forever, but the time really did seem to go by quickly & I was finished before I knew it. Use the creams the Dr/nurses recommend, they really do help. Get plenty of rest if you feel you need it &, oh yes, drink plenty of water to help keep you hydrated & to flush out any toxins. Please keep us posted.
A warm hello to the newbies~ ajtina, MrsChorlton, bombaygal, 1xmastree & anyone I may have missed. I hope you find the comfort & strength here that I have.
xgolfer ~ Thinking of you as you have your post-mamm. I thought it would hurt when I had one on the lumpectomy "girl" at 6 months, but it wasn't as bad as I imagined it would be.
annette ~ Sorry to hear your first attempt at leaving the smoking behind you was not successful. I know you have tons of strength & you WILL succeed. We Warriors are strong. "I am woman, hear me roar!" I will PM you sometime soon because I wanted to ask you about tx after using an AI, which you have mentioned a couple of times.
Hugs to all my dear sister/friends.
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Welcome back Val!!
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Hi Seyla, sorry I don't get over to this thread as much as I should, I get pages behind, but I do like to see what the other Stage I Sisters are up to.
Desny, Seems like a lot of women see their BS a couple times in the first year, then go to once yearly up to the five years. I am about 1 & 1/2 yrs. out from my lumpectomy, and had a normal healing, so just last week I saw my BS and told him I was not coming back. His comment was, "I like to see my surgical patients once a year, but as long as you are being monitored regularly and getting the CBE, I am o.k. with that. It's your choice." My MO is doing my main f/u visits now, plus the GYN also does a CBE on me, so I end up seeing a doc every six mos. on average, besides having the six mo. mammos. For me, that's enough.
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Bombaygal .. I am from Southern California .. I too, went for 2nd opinion .. ended up at St. Joseph's Hospital and Cancer Center... there in Orange, CA.
If you like my Oncologist information .. please send me private message .. His RN, NP both went thru breast cancer and chemo and rads ..
Vicki Sam
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Just wanted to thank all my sistas for all the prayers that were sent for my SIL.UPDATE---
after 42 days in a coma I finally got up enuf courage to go see her.She opened her eyes the day before so when i got there by brother told her to open her eyes that I was there.I told my son to stand behind me in case i fainted.(never did that).she opened her eyes and smiled.soooo now after one week they removed all the tubes and moved her yesterday to a nursing home/rehab.So far so good.Altho she is responding to commands she is still not out of the woods.Can you please continue to pray for Judy????
And im waiting any day for GGranddaughter to be born.God is good.
huggggggggggggs K
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I am praying for your SIL Granny and how cool about your new your grandbaby:)
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Grannydukes - Great news about Judy - will continue praying for her. Sounds like she is doing well. Too cool about the great grandbaby. Someone else for you to spoil.
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Hello to everyone new!
Granny: So glad Judi has opened her eyes and had tubes removed! That's really great! How exciting it must be to have new grandbaby on the way!
Valjean: Thanks! Simulation is on Wednesday. Can't wait to meet the machines! I went shopping yesterday to hunt down all my lotions and potions so I am ready! BRING IT ON!
Happy time change everyone! I love having more daylight, but it takes me at least a week to 10 days to adjust and I feel so cheated over that missing hour. I know we get it back in the fall, but still...!
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Teal - I love daylight savings time too. I can water my plants in the evening while it is still daylight. It will also take me some time to get adjusted to it. It would not hurt my feelings it the time was left alone and we had the longer daylight all year long.
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Hi, I am reading and reading and reading catching up as it has been far to long since I have posted.
Granny, I am happy to hear the good news about your SIL. I will keep prayers going for her continued progress. Wonderful news about a new little one on the way in your family!
It feels as though it has been a whirlwind for the past couple months as you all know only to well. I have finished Taxol recently and am continuing with the Herceptin for the rest of the year. I am wondering if anyone has experienced or has info regarding menopause side effects happening and getting stronger (hot flashes constantly) after recently finishing Taxol? I thought that during the medication the body would be temporarily put into menopause, but now am thinking that it may have thrown my body into it for good. I am 40 now. I have not started Tamox yet. Can this happen?
I am happy for the extra daylight and the thoughts of spring coming around the corner, but was not a happy camper waking for my daughter's gymnastic meet at a ridiculous hour this morn!
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Onestep - Welcome back - we have missed you. Sorry I can't answer your question about chemo and menopause. I did not have chemo and have been post menopausal for 3 years. I know someone else will chime in and help you.
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