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CALLING ALL STAGE I SISTERS

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Comments

  • barbaraa
    barbaraa Member Posts: 3,548
    edited March 2011

    GD, prayers are still coming. Hoping for a happy healthy GGD.

    Have a great week all my stage one sistas!

  • FireKracker
    FireKracker Member Posts: 5,858
    edited March 2011

    Thank you my sistas for the prayers and well wishes.I do believe in Miracles!!!!!

    AND im still waitin for the Great Granddaughter to come.She is due in 4 days but the dr told her 2 weeks ago to be ready to go.Why do they still do that??????

    I just finally got my haircut so I dont look like broom Hilda when this baby is born.I was afraid to cut my hair for fear i would lose it during the rads.I didnt believe anyone.i needed to see for myself.I have crazy different reactions to meds.GOD was sooooo good to me.I feel good.God bless all of you.All my love K

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2011

    granny....That's wonderful news about SIL and the GG child. Hugs

    onestep.....Welcome back from Hawaii. Was this your first time. Which island did you go?

    Val...Nice to see you back sister.♥

    Elimar...I love it when you stop by. Come againWink

    Teal......I'm glad your getting close to your treatments. Ask for a blanket when they working on you. That room was so cold.....

    (((Sisters)))♥

  • Desny
    Desny Member Posts: 73
    edited March 2011

    Hi, Thanks to everyone who shared their doctor experience.  I think I am on overload.  Between all the breast cancer check ups and onco appointments now my gp wants to see me every 3 months because of hypertension.  (under control now) with meds.  I really think I'm anxious due to being checked out all the time!  Also, my husband had an a-fib with mini-stroke, he is fine now.  But needs an ablation which is scheduled on March 30th.  I've been on an eat-a-thon I think from nerves.  I quit smoking 3 1/2 years ago!  Now to lose the my fat!

    Anyway thank you all.  I pray all of us that we stay NED and god gives us strength.  Thank you for your support. 

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2011

    Desny...It gets overwhelming.

    I see my GP every 3 months for hypertension  (well controlled) and cholesterol also well controlled. I'm glad your husband is fine.

    HUGS

  • eph3_12
    eph3_12 Member Posts: 2,704
    edited March 2011

    daylight savings time is FAKE time!

  • onestep
    onestep Member Posts: 106
    edited March 2011

    That is so true. I was trying to explain it to my kids tonight and I should have just said your line, Eph3_12, because it would of made better sense.

  • annettek
    annettek Member Posts: 1,160
    edited March 2011

    yikey...am really getting ramped up with nerves good and bad about the exchange this week...bouncing off the walls....gonna work off some of this energy by going to houston rodeo tonight! hee haw:)

  • Meece
    Meece Member Posts: 10,618
    edited March 2011

    Desny, I had an ablation about 4 years ago and what a difference it made!  Your husband will feel so much better, and recovery is not a big deal.

  • jo1955
    jo1955 Member Posts: 7,545
    edited March 2011

    annette - Good luck to you on the exchance this week.  The rodeo will do you somd good - go and enjoy.

    Gentle hugs to you. 

  • onestep
    onestep Member Posts: 106
    edited March 2011

    Annette, Lots of luck to you with the exchange. I am a bit behind you as I have mine scheduled for the end of April. What were you told about the recovery? I was told it is day surgery at the hospital I go to and will have to go easy for awhile, but have not got details yet. You will do great.

  • Desny
    Desny Member Posts: 73
    edited March 2011

    Meece,

    Thank you for your response about the ablation.  My husband and I really appreciate knowing that others have had it and what to expect.  The only thing the doctors tell us is that he will feel like he got hit by a truck. 

    I am happy that you are okay after it and it has made a difference.  My husband had prostate cancer 7 years ago and this had been a 6 month deal with medications that left him no quality of life.

    Thank you again!

  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 210
    edited March 2011

    Ladies here a an article that I came upon this evening having to do with Tamoxifen, felt that maybe some of you might be interested in it.

    It was just published online today:-

    http://www.drugs.com/news/breast-cancer-tamoxifen-saves-lives-medical-costs-study-30098.html

  • annettek
    annettek Member Posts: 1,160
    edited March 2011

    thakn you all for the kind words- the rodeo was just what I needed-had a total blast once I remembered how to be me...it was great. Roller coaster, a huge slide and my family smiling...not a bad thing...

    Charmaine- I read the same article, the only thing that disturbed me was the mish mash of studies it was based on and how outdated much of the data was. I had it sent to me through my work feeds dozens of times over the past 24 hours and thought it must be important....I am thinking not so much. It seems more like another assumption that needs much more true clinical data -pure clinical data-before releasing a headline like that. It kind of makes me cringe to think of the fear spurring scores of women to take a drug that may be of no help and that could possibly cause so many problems. That is just what I think.

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2011

    Good Night Sisters

    Turks & Caico's

  • charmainejensenvoisine
    charmainejensenvoisine Member Posts: 210
    edited March 2011

    Annette:

    Several years ago my mother got breast cancer for the first time, and yes to go on tamoxifen at that time for 5 years and only within approximately 3 years of finishing the Tamoxifen to get breast cancer the second time around.

    I am on Tamoxifen, I have read somewhere that one can after a few years of being on Tamoxifen get ovarian cancer?  Wonder how true is this?

    Charmaine

  • Thatgirl
    Thatgirl Member Posts: 34
    edited March 2011

    I don't like the fact that neither Susan or the ACS gives one cent to patients. I understand they are looking for a cure and trying to educate everybody on the fact that they are looking for a cure but a lot of people can not afford cancer care. I think most people think when they donate to Susan or ACS they think they are helping someone who needs help.

  • tinat
    tinat Member Posts: 2,235
    edited March 2011

    I keep finding new threads and I guess I fit into this one.  I'm about 3 weeks post NSBXM with TE.  Left nipple is struggling so haven't had any additional TE fills yet.  My invasive lobular and DCIS were found very early due to my insistence on an MRI (dense breasts, no family history, no palpable lumps).  Will be starting Arimidex in a few weeks.  Adjuvent! Online indicates very little advantage to chemo so have opted out.  However, I asked for the Oncotype DX to also be done and am awaiting results.

    I feel so fortunate to have found my cancers so early.  It's hard to read some of the tough struggles many women are going through.  I almost feel guilty that I'm getting off so "easy".  Nonetheless, it's been a pretty tough few months!

    Good to be here!

  • jo1955
    jo1955 Member Posts: 7,545
    edited March 2011

    Tina - I , too found my cancer early.  Lump would not have been found on self exam or routine groping by GYN.  Found on routine mammo and confirmed by diagnostic mammo & US.  I felt I was getting off easy at times and had periods of guilt.  But I have to tell you, I had a really rough 6 months and got through this.  So I can understand your thinking.  I also felt fortunate that I did not have to have chemo.

    The ladies here and on a couple of other threads really helped me through this journey and for that I an eternally grateful.

    Good Morning Everyone and Have A Great Day. 

  • Meece
    Meece Member Posts: 10,618
    edited March 2011

    I don't know where the rest of the conversation about Komen and ACS and patient donations is, but I need to make a correction, ThatGirl. (Not trying to be snarky, just have some info others can check out)

    When I was going through chemo I was a good distance away from the cancer center.  I had to fil out some paperwork, but ACS sent me money for transportation costs.  It wasn't a lot, but it sure helped me in a bind.

  • annettek
    annettek Member Posts: 1,160
    edited March 2011

    welcome Tina....yeah, this whole stage 1 is a little tougher than we thought, eh? Mine was an eensy 5 mm found thanks to a mammo and followups...I am beyond grateful and constantly humbled by those who were found to have so much more invasive/advanced BC. I actually have started crying over feeling guilt after crying over being scared and exhausted and in pain as a result of getting  BC ...now there's an illustration of frustration. I am so grateful for this stage 1 board, I don't feel like an absolute sh*t for complaining when others are facing greater terrors. Our more advanced sisters teach me something everyday on other threads-I am simply amazed at their compassion and strength for all of us...yet, in my opinion, it would be so wrong of me on so many different levels to prance into one of the heavier threads and whine about my arimdex fiasco...way beyond the apples to oranges comparison. I realize a stage 1 could can advance and recur, but our reality today is where we are today. Oh, geez, it looks like I am going to be given to a lot of lengthy emotionally posts with little seeming point as I prep for tomorrow's exchange...and don't you know that some of the biggest supporters of my often precarious mental health are in Stage IV...I did not even know that about one in particular until some time had gone by...blew me away...anyhow...

    Charmaine- all I have learned with this BC crap is that nothing is written in stone. It seems to be all educated guesses as to what will be with any of us in regards to our reactions, journey and outcomes...for some, everyting works the way it was developed, for others, not so much, your mom's experience does not predicate what will be for you...simply because we are all different. That one armidex pill literally screwed me up beyond what I ever thought one pill could and others take it with no more than a case of mild heartburn and some minor aches...luck of the draw. I think we have to learn as much as we can and ultimately hope we make the right choices...listen to our bodies and hope they do not betray those choices...as for the ovarian cancer from tamox...hell, in my mind it is as true that it does cause it as it does not cause it. That is the quandry with it all. My goal became to get to a place where I was open enough to consider what I could do to live without being completely floored by fear. I have to constantly perform my own little *scans* of body systems.

    Funny thing of note, I had to stop all of my supplementation leading up to my exchange tomorrow...guess what...I can feel the fricking estrogen surging through my system like a horse out of the gate-poor old body is saying sister what are you doing-you lose it naturally by aging and then try to totally eradicate every last speck of it inside your body and then open the doors for it to bounce back...Of course, I will be back on everything following the surgery-had to stop for the blood thinning factors the supplements might add...so, while I am a bit freaked over knowing I have lots of estrogen enfusing me for a few days-I am oddly becalmed by another indicator beyond a full hormonal panel that my regimen is working. I am playing the odds again, that a week of this won't feed anything bad and of course it is making me nuts knowing how bad I miss the actual balance my body is feeling right now...it is pre- premenopasual levels...which I do attribute to what happens when you hold something down really tight and the let it go..it will spring back a little further at first before settling back in somewhere...ok...I will hit submit before this turns into a complete novel...

  • mom2westies
    mom2westies Member Posts: 18
    edited March 2011

    It is a beautiful,wonderful,thanks to God day because I heard that my mammogram of last week was deemed normal.When I went back to the same imaging center today for a bone density test the intake worker bent the rules and told me what the letter(which I should receive tomorrow) would say. Thanks to all of you for the replies of support and the knowledge that I and others can come to to this board for understanding and empathy.

    Jane

  • jo1955
    jo1955 Member Posts: 7,545
    edited March 2011

    xgolfer - Big congrats on the clear mammo.  What wonderful news.

  • onestep
    onestep Member Posts: 106
    edited March 2011

    xgolfer, that is great news. :)

  • annettek
    annettek Member Posts: 1,160
    edited March 2011

    xgolfer...that is indeed a thing of beauty:) SO HAPPY FOR YOU and people that break the rules sometimes...

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2011

    xgolfer its time to dance. Happy for you.

    Annettek...Just sending hugs I didn't read your post yet.Wink

    HI Sisters♥

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2011

    Welcome Tina.....We all fit very nicely here.Wink

    Glad you found us.

  • annettek
    annettek Member Posts: 1,160
    edited March 2011

    settle in for a bit sheila...it's another long one:)

  • deborye
    deborye Member Posts: 2,441
    edited March 2011

    Happy Dancing for you!

  • sheila888
    sheila888 Member Posts: 9,611
    edited March 2011

    OK Annette My jumping goat friend. Wink

    If you are in the mood explain what exchange surgery is either way i want you to know i will be thinking about you tomorrow.

    Hugs are sent to your way from NY.

    ♥                ♥                    ♥