CALLING ALL STAGE I SISTERS
Comments
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Thanks for the feedback on PET and bone scans. My RO told me he would order one if it made me feel better. I will talk to my BS again next month and then make a decision.
Am suppose to have mammogram next month but have a seroma that is tender so am wondering if should look at Ultasound instead.0 -
bgail, I have a large seroma. I had a mammogram and the radiologist stated that because of the seroma he could not visualize the breast adequately. They did a US and said it was probaly okay but reccommended an MRI. I would definately talk to your Dr before having what was a very uncomfortable mammo due to the seroma.
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bgail & ptdreamers...I noticed that your surgeries were last year..when did you get your seromas? I had my surgery a month ago and have a seroma in the the area of the surgery. It has gone down in the last week or so, but I start radiation tomorrow and heard that it can cause a seroma...wondering what caused yours.
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I dont want the "diagnostic " mammo ...specifically. I feel it is too much compression with breast LE>
Sure, Id love an MRI , but will my ins. pay ????!0 -
If your dr says its medically necessary, they should. Thats what I had to have so they would pay.
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Junif, I have had mine since surgery. Drained five times. Going for 2nd opinion on Oct 1st. Am also trying a "swell spot" placed over the seroma in a sports bra to see if that will stimulate lymph drainage. Will see.
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THX MrsCich
Aaaaaah, Doctors! Such egos and yet they hold the RX pad !
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Surgery was Nov. 3 and seroma came in March of this year. Is a little larger now. Don't know if rads was involved or not. Is right on surgery site.
BS said it was from surgery, but he want drain it unless necessary. Said it would come back and could get infected from needle. THE NEW NORMAL!
Hope everyone has a great day.0 -
Morning ladies. I got my call from my Onc. The tumor board met and even the pathologist that did my actual biopsy was there. He showed the images of before and after the biopsy and my the size of invasive cancer in my tumor was 1.2 cm and .6 of it was DCIS. So I do get to join the dreaded chemo club. She said all of the Drs were unanimous in their recommendations. Even though I'm reassured that all the head drs at my cancer center reviewed my case and agree on a treatment, I was still hoping for less than .5 being invasive. Blah!!!
The other mass that was quite large was mainly high grade DCIS but she's not ruling out that some invasive was in there hiding as well.
I'm waiting my call for my first treatment. I told her I want to start ASAP so I can get it done with ASAP.0 -
MrsCich,
Sorry you received such dissapointing news, yet happy that you have a good team willing to fight the monster with you. Keep your chin up and as you feel up to it, post updates. We are all pulling, praying and hoping for good results for you.
Vickie
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MrsC, you will make it through, might not be fun, but you can do it. Waiting to start is hard. Much love
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Well it's all moving right along. I start chemo on Friday. I sit in the dreaded BGC at 1030. They are calling in my Zofran and Decadron now for me to start the Decadron tomorrow. Labs today or tomorrow.
So I guess since they say you start to lose your hair in the first week or so, I should enjoy this weekend and week with my hair (if im not deathly ill from the chemo), huh? Blah!0 -
Hi everybody,
I am stage 1 (T1 N0 M0 ), No chemo, No Radiation, 2 X 3 cm
nice to mmet you all
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Welcome fadheir! Nice to meet you too.
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Welcome fadheir, sorry you have to ne here, though.
MrsC,in my tx, I didn't start losing my hair till right after my second tx. So about 21 days. I think most are around 14 days, but it varies. Most people complain about the scalp feeling " tight" right before it starts to come out. So enjoy the weekend. And MAKE SURE YOU DRINK A LOT OF FLUID. much love.0 -
MrsC, take a big cup of ice chips into the treatment room & suck on them through the whole procedure, each time. Keeping my mouth cool kept me from getting any mouth sores + had added bonus of hydration.
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Hey Val...sista/friend......see you have been gone for so long sistas forgot you....NOT ME THO....i know most of the sistas are on the thinking out loud thread....gotta check it out....
Miss you and the rest of the old gang.
hugggs to the newbeees and good luck.
was away to PA since friday....been spreading the word about PINKWASHING.....
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Val, Granny, thanks for checking in! I sure do miss everyone here....will have to check out the new threads too.
Val - just remembering the rads set up thing...all those scans/xrays whatever....then they wanted to send me for x-ray and i said but u just did all those scans and they said that they were low resolution just to configure where things were and were not useful for anything else. I forgot about that one...that was a 2.5 xanax day for me.
Yup - those appointments are draining...this fall I forgot 2 appointments and have to do makeups now. I still see BS, RO and MO regularly. Mine were all good and I hope yours will be completely uneventful!!Granny, glad you are still lurking around....gotta find a way to get together. I will PM.
Hugs & prayers for all the ladies here who are recovering and starting treatment ... you will find a way to get through.
Joan0 -
RE:Mouth sores....
my husband was on chemo for 9 mos. Dr RX something called " Magic mouthwash'. Worked like a charm!
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T minus 1 hour and 30 minutes until I sit in the BGC for chemo. Blah
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Good Luck! You'll come through like a trooper.
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Does ayone know what meds/supplements are no no's while on the once a week Vitamin D 50,000 units? My onc who put me on it didn't say anything.
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I wasn't told by either my doctor or pharmacist to avoid anything while on the D (same dosage). I take it with several supplements and have had no issues. You can Google drug interactions and ... to see if there is anything on there, but I'm not aware of anything. If you find anything, please share.
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Will do Mini.
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Joan & K, you are both so sweet.....
I just don't know why I am getting so worked up over my 6-mo check-up ~ what the heck is going on??
Just read my issue of CURE today, why did I do that??!! Excellent article on The Estrogen Effect: The search for new ways to lower hormones in breast cancer. (I read to educate myself but I scare the hell out of myself as well! - what's a gal to do?!?)
And another good article on Staying Strong: Remaining active during treatment gives patients a sense of control. I remember walking all around my backyard during my Rads tx in January & February. We didn't have much snow at the time (surprising for MI) & it did make me feel energized & I felt that I was doing something.
Welcome to the new sisters, I am so very sorry you have to be here, but I am very glad you found us. It is a very scary time, but we are always here for each other. Even if we disappear for a while!
How was your first tx, MrsCich?
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hEY vAL....always so nice to see you come home.....and this is our home.....
lots of sistas struggle with the drs.apts.for years....I know for a fact quite a few...
I have too much on my plate now to even think about it....i just pretend its just a regular checkup(which it is) and i promised myself no more stressing over the checkups anymore.And I dont.
Last year i was so nervous when i went for my mammo my breast swelled...that did it...never again...so far so good...
Come visit more often....I miss you sista.
huggggggggggs K
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Hi ladies,
Sorry I haven't updated. I had my first round of AC on Friday (9-28). I also had my port put in that same morning so it was an exhausting day. The first night I felt alright, I had some minor nausea but I took some claritan/compazine and that helped. Yesterday I ate well and only had minimal nausea. I slept well yesterday/last night. This morning I am pretty dizzy so I am laying in bed as I type this. I can only hope some of this dizziness goes away soon. My port is quite sore so Im hoping that goes away soon.
As for my tissue expanders, they look amazing! I mean I can't wait to switch to the silicone ones but for now, they at least look beautiful!
Sending positive vibes, hugs, and prayers to all of you!!
Justine
P.S. Read this amazing story about my friend Adam. www.stjude.org/the-fighter
Even though he is not battling breast cancer, his battle with bone cancer surely puts my own fight into perspective and reminds me that I CAN do this!0 -
Valjean - Another sister from the mitten. Nice to meet you. :-)
I hear you about reading. In an attempt to educate myself I also end up second guessing myself and letting fear inch its way in. Such a hard balance. Even watching Pink Ribbons, Inc, which was awesome btw, simoultaneously acknowledged and validated my feelings and scared and angered me, as well. Everything these days seems to be a delicate balance. I'm trying to learn to look at it as an opportunity to live concienciously every day; that is beginnning to include choosing not to ignore my health, but also not to dwell on what isn't at this moment and what is instead. I'm better at it some days than others.
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justegan - Look at your cute super-short hair...you are beautiful! Sorry you're feeling the spinnies; hopefully, that will ease off as time passes. I'm glad you're one of the lucky ones (I was too) for whom the TEs look pretty normal and don't cause pain. So many complain of odd shapes and painful fills. I had healing issues after NSBMX, but the TEs and fills were really easy and pain-free for me after the initial tightness. I hope you find the same.
Feel better!
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