CALLING ALL STAGE I SISTERS
Comments
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Eph3 - Thank you, that has been the best laugh I've had in a while. Bless you.
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Sheila - I've had a number of transvag ultrasounds - I had a history of severe endometriosis with ovarian masses, multiple surgeries, etc. Also fibroids. Depending on what they're evaluating and where they often have better access to see everything from this angle. It's been a few years so it might be standard operating procedure now. Much preferable (especially in an emergent situation) than trying to fill the bladder via drinking water, IV, or catheter. I've had both male and female techs. Either way they always had me insert the probe myselr while they stepped out of the room and always kept me covered with a towel. If a male tech did the exam policy was for there to be a female in the room.
Does that help?
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Hi Sheila, my GYN does a transvaginal ultrasound at my yearly checkup and that has been for over six years now. It's just a tad uncomfortable. Nothing to worry about. He started doing it when the pelvic ultrasound wasn't showing my right ovary. Apparently, your ovaries shrink after menopause.
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Thanks kathindc....Do you get it every year?
I don't really have any symptoms just mentioned it to my GYN today
She gave me a referral
LOL about the shrinking...i always say they are rusty now
♥
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Hi Sheila, I get it every year. My GYN has his own sonogram equipment so he talks to me about it while he does the exam. It's nice having the immediate feedback. I can even look at the screen while he does it. Glad he knows what he's looking at!
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I've had several and they are a tad bit uncomfortable. I think it would be cool to have my doctor be the one doing the US. I like the idea of talking about what it being seen as it is viewed.
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Hope everyone is doing OK. I don't check in as often as I used to, but still think good thoughts for all of us. I had revision surgery recently so still lying low and healing up. Also just found out from my PCP that despite taking great care of myself and doing all I'm supposed to do I've crossed over from osteopenia to osteoporosis (on Arimidex for 2 years). She is recommending yearly Reclast infusions so will see what my MO says at upcoming appointment.
BC - the gift that keeps on giving
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Tina so sorry to hear this. I'll be thinking and praying for you.
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Hi Tina, I've been away for awhile, but always have everyone in prayers. I too was osteopenia before bc( 2 yrs 8 mos) now I am osteoporosis. Thanks to Arimidex.My onco wanted to put me on FOSOMAX I showed him the side effects sheet and said NO THANK YOU. I started doing weight bearing exercises and walking 4-5 days a week. I looked up other RX's for osteoporosis and they all seem to have side effects I am not willing to risk. I started looking into other alternatives and found THe Save our bones program. You may want to google it and see if that is something that may or may not be for you.?
I also started having sharp prickly pain- it started in my scalp(left side), moved to my rt forearmalong with weakness, left foot I pretty much feel all the time and back left shoulder blade. Does anyone have this happening to them or know of the forum that I should be checking? I'd sure like to find out what is going on-scarey.lower mri shows no nerve involvement. I have no reflex in my knee and ankles-neurologist said my reflexes were dead. He certainly isnt a pro active Dr. because he didnt follow up with any other test. I wouldnt go back to him anyway. Not a fir at all. Any info from anyone would be so appreciated! Thank you, Mariann
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Eph thanks for the good laugh.
I had a couple of transvaginal US years ago, I remember them being a tad uncomfortable but nothing bad.
Tina sorry you are now osteoporosis. I am on the Zometa protocol. I get an infusion every 6 months and have three more to go. I have not had any bad SE from it. I do have to drink lot's of water for a couple of days, but I don't find that hard to do.
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Sheila I too have had a transvaginal US... because I was having pain in my lower abdomen and (LOL) I've had all parts removed other than my bladder. So my doc had one done in his office. He had the US tech do it and there was really nothing uncomfortable about it, but I had no parts to irritate. That is the one and only one I've had done.
Welcome to all the new ladies... I hope and pray that all your treatments go well.
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Thanks, everyone!
mtks - I have been vigilant about daily exercise since starting Arimidex - 30-90 minutes of walking, yoga, or workout (cardio, light weights, etc) at the gym. No days off except right after surgeries. I find that if I move every day the joint pain and stiffness from the Arimidex are a bit better.
GYN mentioned putting some water bottles in a backpack and wearing during walks. Sounds cumbersome, so have been checking out weighted vests specifically designed for osteoporosis. Has anyone used one of these?
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Hi to my stage one sisters...feeling rearly anxious re- up coming mammo..not till 20th May, i thought it would get easier as time went by.
At my last mammo they said they could see some cysts in good side, an appointment was made for 6mths instead of a year.....i guess my mind just wandering into neg mode...
Usually upbeat....Thankyou all for being here Kaza xxxxx
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Kaza....I had the same experience so had to go for another mammo in six months too....my "cluster of cysts" are close to my tumour site. GP and surgeon explained that they are "just cysts" and not "life threatening"....to be left alone, but I guess next year at my next mammo will will be taking a good look, I'm assuming, but will certainly check it out myself. Good luck...you can, of course, PM me anytime....❤
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Scottiee 1....thankyou you have certainly uplifted my spirits, i guess getting close to mammo and thinking, just be glad when its over.
Going to try and put to the back of my mind now. How are you?
The same thing happened to you, i cannot feel them when doing self exam ....
Thankyou sending you a HUG Kaza xx
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kaza
I just went in for my first mammo ( 1 yr) after LX. I was sooooo afraid they would ask for more pics of my left breast.
Instead, they came out and asked for more of the right. (YIKES)
Come to find out it is an area of density that was there before. It does make me nervous, but I am starting to see that feeling is normal.Sure hope you get the ' all clear'. Deep breaths and good luck to you !
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Kaza, I'm fine!!! I can't feel mine either. It was my surgeon who told me about them during my surgery follow -up. She said nothing to worry about but wanted a mammo in 6 months instead of a year. Everything fine. I'm sure your news will be the same...❤
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Wishing you the best for your upcoming mammogram.
The only good thing that came out of my breast cancer is that NO more mammograms for me! Because I have no boobs (chuckle chuckle).
I hated that feeling of nervousness every time you get a mammogram and their suspicious. Then it's ultra sound time, biopsy time and stressful time.
Just relax and breathe and most importantly, think positive thought,0 -
Thankyou..Scottiee 1.....purple32....Doragirl34....your support is truely uplifting, just having each other here is wonderfull
Thinking of you all ....Group hugs Kaza xx
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YW kaza...this site has been the best support for me.
We are all pulling for you / let us know how things go
Take Care!
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Here's wishing everyone a Happy Mother's Day and to let you know how grateful I am that you are here though wishing none of us had to be. If you have to be here it sure is good company to be in. Again Happy Mother's Day and thank you!
Carol
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♥
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New to discusssion board and so greatful I found all of you. DX 04/05/2013 ICD Grade 2/3 ER/PR+ HER2-. Surgery May 15, 2013-Lumpectomy/SNL. Cancer stage not determined until SNL biopsy. Scared out of wits and don't know if lumpectomy with HDR brachytherapy vs mastectomy is right choice. Tumor small.
Suzanne0 -
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Happy Mother's Day to all my sistas.
Xo grannydukes0 -
Right back atcha, grannydukes!
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purple32.....thankyou ...so pleased we have ech other here...thankyou for your supportive words. The unknown gives us a sinking feeling in the pit of the stomach...will update after next monday. sending you a hug xx
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Hi to all, hope everyone is hanging in there!
OK, you can ignore this next part and skip down to the end....just venting....Off to my 6-month MO appointment. I already know from my internist that my DEXA scan shows I am now in full-blown osteoporosis due to the Arimidex. "Increased risk of non-traumatic fracture in the lumbar spine". Internist put me on mega-doses of ibuprofen which really helped the bone pain from the Arimidex, but had to go on extra Protonix to deal with the reflux from the ibuprofen which lead to more bone loss. Ultimately pulled off the ibuprofen because it made my blood pressure go through the roof and then was on blood pressure med. Now off BP med because blood pressure too low since off ibuprofen. Trying Tylenol for the bone and joint pains and have a PT appointment for exercise counseling to protect my lumbar spine. Meanwhile, still in healing phase from my breast reconstruction revision, but all going well on that front at least. ACK!!!!! OK, back to your regularly scheduled program........
BC - the gift that keeps on giving. Have a great day and a wonderful week
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Hello Stage 1 sisters! I've been a member for several months now, but just discovered this group so I'm jumping right in. It's been comforting to me to read about your journeys and to know that indeed, we have each others backs.
I had a UXM in Dec. of last year and am having my remaining breast removed on May 22. At the time I had my UXM, I made the decision not to remove my other breast. I consulted with an oncologist of course, but not with a plastic surgeon. The PS I chose for reconstruction is 3.5 hours away and I saw him in Feb. of this year. Prior to my appointment, I was required to send him my initial MRI which was read by one of their radiologists. A follow up mammogram and ultrasound were clear, but my first BC was not detected by those tests so I decided to forgo a biopsy and have it removed.
In hindsight, I wish I would have made the decision for a BMX in Dec., but I am not going to beat myself up. I know it was the right decision for me at the time. I'm not sure why I am sharing all of this, maybe just to say that BC forces you to make some tough decisions (as many of you know!)
Thanks ladies, you are all so wonderful!
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Thank you everyone for your words of support. I will update soon.
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