CALLING ALL STAGE I SISTERS
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Congrats! That's exciting!
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Thanks Wren..♥
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Sheila....congrats .....so so wonderful. ❤
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Thanks Scottiee...♥
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Sheila,
Eight years, wow!!
Best wishes for the future to one of the most special, caring, loveliest Sisters I have had the pleasure to know.
♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥
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Sheila,
You give so many of us courage, especially those of at the beginning of this journey wondering if we will see that eight years. May your future continue to bring good health and happiness. Thank you for all the encouragement you provide on these sites.
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VAL....Thanks..I'm so glad we met.....you're my sister/friend..♥
Seabeal...What a lovely post...Thanks...you brought tears to my eyes....♥
HUGS
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Oh Sheila.....congrats sista....8 years....wowo....you give lots of sistas hope.
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Thanks my friend....Actually that's one of the reason I posted
I know nobody knows where i'll be next year...but I'm grateful for lot of things
♥
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Yea Sheila! And many, many, many, many more.
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Thanks kathindc......♥
I consider myself lucky and feel kinda guilty at the same time because
I never developed LE
Femara didn't give me SE
HUGS
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Fantastic Sheila. Hope all of reach eight and many more beyond.
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Thanks ptdreamers...My wish is that when you reach eight....or even 3 ....they will already have a cure
like Advil for headaches...you get cancer and take a pill and that's it
♥
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Right now I couldn't take a pill or anything else. I took the flu shot in September but I came down with the flu or something yesterday. I have been going both ends constantly since then. I am becoming very deyhdrated. Dr suggested Pedialyte and I am giving that a shot. Haven't had my Aromasin for two days but figure that is the least of my problems. Five pounds down but a hell of a way to lose weight.
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I had an inverted nipple but had a cleam mammogram. After doctor told me he wasn't concerned I went back two months later and insisted on further testing. Scan showed a mass behind my nipple. I had a bilateral. Orginally I was diagnosed with stage IIA but due to the mammoprint the stage was reduced to IB. That was the left side - right side had stage 0 that was found with further testing before surgery on the left. Now on femara but clean and clear!!! So I guess I can qualify for stage 0, I & II!!! Occassionally I need a little support so I'm glad I found you ladies - sorry you are all here but glad I found you!!!
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Hi Ladyluck11 and Welcome aboard! we love to have new ladies to chat with and to support each other with. Sometimes we are serious and sometimes we like to have fun and misbehave and fun with each other a little bit. But through it all we are sisters through and through. If one hasn't experienced it there is someone else here that has or knows someone that has and can help with advice. We all love each other. We may not show up to the board every day, I usually don't, but I try to check in a few times a week. I always want to make sure my girls are o.k.
Ptdreamer I hope you are getting over the flu soon and the nausea and voimiting goes away... what a nasty thing to have this time of year. Prayers coming your way for a quick recovery.
Granny are you around? I hope you are still doing well and getting better each day.
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Thanks mimi. I am able to keep alittle down now. Still have the diarrhea. Just resting and hoping this goes away soon.
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ptdreamer...i hope you are feeling little better...i know what you mean...if you want to loose weight it has to be your choice.......Hugs
Ladyluck Welcome to our group
Please feel free to discuss anything you want....We always listen...hugs
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Granny...Thinking of you at 2 pm tomorrow.....
I hope you're better after the Sunday scare......
Hugs and more hugs from rainy NY
♥
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Had to say congrats to Sheila! Fantistic.
Also hello to the Newbies0 -
HI Sisters This is my first post. I am almost 7 weeks post op Bilat MX I have Tissue expanders(turtle shells) in and am awaiting the results of my oncatype Dx to determine if chemo will benefit me. I will be put on Arimidex soon? IDK what the hold up with my treatment or if I am just anxious to get this going so I can say I survived. I am Stage 1b grade 2. Forgive me if I post this incorrectly or if I repeat myself. I have been lurking about and reading alot and found this site to be so helpful from the first day I was DX. Feb 4th 2013(World Cancer Day..ironic, eh?)
What I know is tha I still have alot of pain with these expanders in. Sorry again, if this is posted in the wrong area. I felt I needed to finally join in and not feel so alone.
I will read on and thank you all for allowing me to gain knowledge from people who can truley relate.
Much love to you all
D
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Welcome runnermom, i don't think there are too many wrong places to post on this wonderful site. Sorry your TE's are so painful. I haven't had too much with mine but my PS has taken the fills slowly. Only a few more weeks of waiting for my squishy swap, cant wait!
Hang in there and post whatever moves you.0 -
I am glad you found us runnermom, heck, I'm glad I found us. I'm also glad you to see you posting. As iatiger stated, there are no wrong places to post. We all need to hear from each other as this is how we work through our emotions, fears and accumulate knowledge. You will find you emotions are like a roller coaster and somedays you can be all over the page. This is a safe place to vent and ask questions. No one knows exactly what you are going through like another survivor. Which reminds me, as someone told me during my first days post dx, you are a cancer survivor, you become one the day you received your dx and everyday is another day we have survived. Don't get to worried waiting for you onco score, it took about 3 months before I got mine. I'm not sure if that's the average wait or not but it seems the doctors aren't as concerned about it as we are.
Good luck with your treatment and know that you always have friends here whether you are just gathering information or needing to vent (we all have)
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Runnermom, hi, don't worry about where you post, (except probably the Stage 4 ones) they will probably just help you find one that will have more info that can help. You might want to check on the reconstruction boards for help with TEs. Or surgery boards (there is usually one for every month) for help with what you are going through now. I can't post links on my phone, or I would list those for you, but you can search for them. Welcome anyway, much love.
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Hi ladies!
I'm another newbie. Just joined this site and writing for the very first time after hours of reading postings in numerous threads.
I'd really like to hear from Stage I gals, as generalised information is already overwhelming. I'm at the point of having to decide on adjuvant therapies.
I'm 34yo , got diagnosed in february with IDC, had a lumpectomy, got two sentinel nodes removed and both were clear, also no calcifications, 1,8cm , stage 1, grade 1, ER+/PR+ (both98%), HER2-, Ki67 10%.
An oncologist so far told me that prognosis is really good but he nevertheless recommends both radio and hormonal therapy. He spoke pro Horm therapy only as I will talk with the radio peeps next week. His benefit estimates of Tamoxifen (only option as I'm pre-menopausal) is around 4%, he talked very dismissively about side effects and ruled out chances of developing long term chronic/irreversible conditions because of it. He did not convince me as it seemed different from a lot of literature I found so far. I have done tons of reasearch (it's my job after all, though I'm a physicist not a doctor) and am very much on the fence.
can you weigh in, please?
I also smoke and am a bit sedentary though the latter is changing drastically, as will my diet which was realtively good but has started to transform into super healthy and focused/balanced on this issue. As per smoking.. not quitting right this moment. I have no BC cases in my family (but grandparents with other types, osteoporosis in my mum who also reacted very badly to RHT)
Oh and FYI I just got diagnosed in Italy. I am from Italy but had been living in the States for 7 years researching and teaching phil of science at the University. Got a temp job in Italy that I did not expect and three days after arrival back in Europe I did my first ultrasound without symptoms and found it early. Lucky, as I would not have done it in the states with a not-that-good insurance plan as a foreigner with no symptoms. Here it's free.
So I'd be very grateful to hear your radio/horm.therapies stories, although I imagine you have told them many times already :S
I'm researching also: Iodine and Iodine protocols, melatonin (both per se as alleged cancer remedy and to investigate as potential risk factor for em the fact that for years I went to be after 3-4 am), Somastotin, alkaline diet, having endocrynological visits as I always had very irregular periods and alleged hormonal problems, also checking thyroid because of familiarity..
I feel a bit alone in here, especially with regards to my diagnosis. Basically NO-ONE questions the medical praxis and authority in Italy, especially if they say you don't have to do chemo: adjuvant therapies are taken like a simple blessing even when the treatment is not personalized and the care received very poor and totally lacking empathy and co-operation. I've been often told I'm a terrible patient given all the questions I "inflict". I've been away too long and can't quite connect with my fellow compatriots as well, too much of my mentality has changed... But I feel strong and positive (most of the time).
I want to make the best decision to live as healthy and as long and high-quality a life as I can, and I'm sure this won't sound new to you.
Finally and marginally, have you found statistics on LONG term survival for this diagnosis? What I find is 5-10 years survival rates.
with gratitude and apologies for the long post,
marilena
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Hi Marilena and welcome to the group. I am 3 1/2 yrs out since my diagnosis and this Oct it will be 4 yrs. I took 39 treatments of radiation therapy for a stage 1 IDC (I thought it was a bit much but that is what the Radiation Oncologist wanted to do). The week after I completed my radiation I started on Tamoxifen 10mg (the normal dose is 20mg), and I had a total hysterectomy including the ovaries at that point it had been 8 yrs. But I had heard so many negative things about Femara and Arimidex and Aromasin (all AI's)that as a nurse I was a little fearful of them and really didn't want to have any pain, etc. I did really well after the radiation, though I did get some burning and my breast got really hard and constricted (it happens occassionally). I did well on the Tamoxifen also, but then he increased my dose to 20mg after about 1 yr and I started gaining weight and tried losing it and couldn't. I complained to the Medical Oncologist and he talked me into trying Arimidex. I took that for about 8 months and was having really bad side effects, my hair was coming out in handfuls, I had a really bad stomach problem occur and I lost like 20lbs in 6 wks because of a diarrhea issue that seem to be related to the Arimidex. I was also having terrible pains in my feet when I got out of bed in the morning. So after taking myself off the medication my symptoms alleviated. The medical oncologist left me off for another 2 months and then restarted me back on Tamoxifen 10mg and I have been taking that now for the last year and I have had NO side effects at all.
Please keep in mind that everyone reacts differently to all medications and not everyone has side effects. The majority of people really don't have any significant side effects and if they do it's only for a short time and then their body adjusts and the side effects go away. This is just my side of the story and how my body reacted to the medications. I'm sure you will do fine on Tamoxifen. The biggest problem you will have will be remembering to take it every day. Once you get use to taking the little white pill daily there will be no problem. And always remember, if you have a problem or a question call and talk to your medical oncologist about it. I even talked to my radiation oncologist about medication issues when I would go see him between visits. They are vast books of information. Good Luck sweet lady
FYI: My irradiated breast is no longer constricted. I had reconstructive surgery 10 months after my radiation was completed.
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Good evening ladies! I've been away for awhile, trying to catch up on all the posts. Welcome to the newbies!
Hugs to those who need it!
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Welcome to the new ladies. Marilena, my sister was on Tamoxifin for five years. She had a unilateral mastectomy, no radiation kept her uterus and ovaries. She is now nineteen years out and going strong. Good luck to you. I do believe in an organic diet and I use melatonin 1.5 mg for sleep but after research I am holding off the iodine, alkaline etc. unless it has more proof that it is effective.
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