CALLING ALL STAGE I SISTERS
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Well I got my path. results yesterday and my cancer has returned. It is a recurrence on my mast. side. Going to have a lot of scans over the next several days, then meet again with my breast surgeon on Tuesday to discuss surgery and tx options. I am doing okay, just ready to get on with it all. Thank you all for your prayers and support.
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Good Morning everyone,
I went for my check-up after the lumpectomy found out I need to do a reexcision, but the sentinal node biopsy showede no cancer,,,I was encouraged to hear that and felt better. i will have surgery next thursday. Hope this time that will be all of it....they have not talked to me about radiation, but the Dr. told me it will begin after about a month after surgery......Wish me luck and hugs to you all for the support......luv ya
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labarbera: So sorry to hear your results. Sending a prayer out for you and your family. ((Hugs)) to you.
TCK
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Labarbera,,,,,,,,,So sorry to hear of your results,,,, but I know you will be strong again.l...hugs 0
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Ty Hannah and catlover for your thoughts.
hugs
Labby
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Labarbara, I am so sorry to hear that you are going through this again. Once should be plenty for any of us. I will be keeping you in my prayers. I will as well for you, Catlover, as you have surgery next week.
Meece
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labarbera - so sorry to hear the report. Sending positive thoughts and prayers for swift and successful outcomes.
{{hugs}} and all the best to you and your family,
E
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Labarbara & Catlover -Lots of prayer & positive energy headed your way from Southern Oregon. Joni
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Labarbara.. good Luck on your surgery. Hugs.
Catlover...I also needed re excision and it worked out fine. I wasn't put under General Anesthesia second time.
Sheila
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Labarbara, and Catlover,
I'm praying for you both, that your surgeries will go smoothly...
Hugs
Harley
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Thank you for the welcome.
Meece, My husband is a pastor of a church to the US military in Okinawa. We have a school and I teach. We live about 15 minutes from Kadena and have several families in our church that live on Kadena. There are I think, 13 US military bases on Okinawa. Fun to meet someone who knows something about the area.
We are not in the military.
Didn't sleep well last night. I guess the port makes the whole thing very real for me. Also, they do not have Emend here and I throw up at the mention of any narcotics. Not sure what will happen with chemo. Was never able to physically have children, so never had morning sickness to compare to it. I am VERY nervous about this whole process. The other day when I asked the doctor about sending me home with Zofran, he said that I just needed to come back to the hospital and they would give me another shot for the nausea. I'm not sure I feel like going anywhere if I am sick. I am trying to be prepared for anything.
Well, I am off with my daughter for a leg and foot massage, and a pedicure! It was a Christmas present from my husband, but had to wait until after port placement. Thank you again for the warm welcome.
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Labarbera- So very sorry that you are having to go through this again. I know this is a very ignorant question, how does one get a recurrence where there was a mastectomy? I will be praying.
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Labby ~ Sending lots of strength your way for this new round of tx.
Catlover ~ Sending positive vibes for a clear reexcision & it is good news on your SNB.
You are both in my prayers.
Welcome Chris & Grace (I lived in Machinato on Okinawa when I was a teen & my father was in the Navy-it is a beautiful island.)
hugs to all
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Grace, I am so sorry they don't have Emend for you. It was my saving grace. In fact they nurse at my dr's desk refused to let me have it on treatment #2 and I was in tears. If there is something I hate, it is to be nauseous. My NP made sure I had it for the remaining tx. She had sample packs she gave me. My insurance didn't cover it. I also got Zafran to take home with me.
You will have to PM me the information about your church. I have been trying to encourage DS to begin attending church over there. He is facing some health issues right now and his faith is shaking. I would appreciate the info.
I know how nervous you can be in your shoes. Know that we, your BC sisters, are here and you are in my prayers.
Meece
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Labarbera - So sorry to hear about your dx. Wishing you peace and courage as you confront this beast again.
Catlover - Wishing you a speedy recovery from your reexcision.
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O.K. Ladies - As of today I am one year out from surgery! What a terrible year it was, but I am feeling more optomistic. I go for a mammo and MRI next month. Hopefully all will be clear. Just wanted to share my anniversary as this is something only my BC sisters can really appreciate. Thanks for the support. You are never far from my thoughts. Wishing you all good health and happiness.
Sue
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Congratulations, Sue. I have one week from today and I will be 6 years out from my surgery. It feels good to look back through a lot of years. Although, the memories of treatment and the whole thing still seem pretty clean.
Do something nice for yourself today. Maybe a small bag of Cheetos to eat all by yourself.
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Hi Musiclover,
thank you for your note. I appreciate everything you've gone through and after hearing your story, I think I would have done the same thing. When I first knew I had IDC, I told the surgeon, "Cut them both off" (I am 58 years old). I said, "I don't need either of them". She looked at me calmly and said, if we do that, your chance of recurrance is 8%. If I do a lumpectomy and you have the radiation, your chance of a recurrance is 8%. That is when I decided to go for the lumpectomy. We do back to the surgeon this Monday for the pathology report from the surgery (which was done on January 8th..a week ago today). If the surgeon tells me they have to do more surgery as they realize more cancer is evident...I will be insisting on a MX. Not sure if I need a double MX as no cancer signs on the left breast. I also had an MRI which shows on the left breast a benign 5mm smooth node. My surgeon said these are common and are not cancerous. I sure hope she is right!
I guess I will be getting my score when I meet with an oncologist...but who knows...after Monday I may be needing to meet with the surgeon again...oh my goodness...what a state of affairs we've all landed in together. Where has our normal lives gone to? It seems like only yesterday I wasn't thinking about all of this....LOL. You really do have to laugh because if you don't...when will the tears stop? Take care and again, thank you for your note...it is insightful.
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I know this sounds stupid, but how can you have a recurrence in your breast if don't have a breast? I don't get how a lumpectomy and mastectomy can have the same recurrence rate.
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((((((((((((((((((Labarbera))))))))))))))))))
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hannahbearsmom-hello (and to all of the ladies). I have had my last fill on 12/30 and I see my PS on the 20th. No date has been set for my exchange yet, but he says anywhere from 2-3 months. Depends on progress. I'll be glad when that part has passed. One can only take this journey one step at a time. The fills weren't too bad as I only needed 3. Didn't want any Dolly Parton's--I'm a small person
. His reply was I have a long way to go to get to that point!Do you live in the Triangle area?
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Keno41 - just because we have our breasts removed there is still the chance that a few cells are left and YES you can have a recurrence any place in your body. I have a few ladies in my local support group who have had BMX's and they had Inflammatory Breast Cancer come back in their skin... 32 nodes positive from one armpit... all this just 2 years after BMX. It scares me to think of everything I have been through and I am still not out of the woods yet! Metastatic BC is still BC even if its in your lungs or liver or bones. Another woman at my group has it in her brain...
Lindagarside - you are so very welcome... anything you want to know, just ask... I was perfectly agreeable to have the lumpectomy then rads, but it was not in the pathology report to stop there. That was my plan and what the oncologist had planned, but thank goodness for the pathologists! They did their jobs and found what was not showing up yet on tests! I will be forever grateful for their obsessive nature of pathology!
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Hello to all,
Larabarer2006...sending you prayers and hugs!!!!!
Keno41 - about recurrence after a mastectomy. I was told that if you have a recurrence it will usually occur around the scar tissue. Plus when they remove the breast tissue....there is still a very small amount of tissue that is left. They can not remove it all or your skin will not be thick enough for them to do reconstruction. I don't know how it could still be the same % as the lumpectomy...unless it has something to do with what type you have and where it is located.
Sydny6/Meece - CONGRATS!!!!!
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Keno41: Hi and thank you for your note. My surgeon (and research confirms) that a lumpectomy and radiation will give you the same chance as a MX....but I believe you must consider the age of the patient as well as what is feeding the tumor. If I was pre-menopause, then I would have probably had a more aggressive approach. Due to my age (a young 58) and the size of my tumor (1cm by 2cm) and that it was 100% estrogen positive, the surgeon said I'd have the same chance either way. If the tumor was not estrogen positive or if I was pre-menopause, she may have suggested a MX. I have to say though...regardless of what anyone else says...I've made up my mind that if my margins are not clear or cancer was found in my lymph glands...I will be requesting a MX for the right breast. I have now heard of many patients who have had their breast(s) removed but the cancer has come back...because it can that's why. :-(
Musiclover: Hi, and thank you for your note. It sounds as though the pathologist had some sort of insight to what your cancer was going to do. I'm starting to understand that cancer is like teenagers. You never know what is going on, and why bad behaviour is happening...and then for no reason at all, things change. Sometimes for the good and sometimes for the bad. You don't like the cancer/kids at all and wish it/they would just get lost. But you know the cancer/kids are yours and you have to deal with it.....ughhhhhhhhhh LOL. :-)
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Linda
Great analogy! I can relate!
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reeltchr: Congrats on your last fill! I do live in the triangle area. I'm being treated at UNC. How bout you?
TCK
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labarbera2006 and Catlover - I am so sorry to hear that both of you have to continue to struggle with the bc beast. My heart and prayers are with you both as you journey down this new path in your fight. Just remember that we are all here to support you!
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Thanks for the information. I do realize that it can come back, I know nothing is 100%. I guess I was just more unsure about it being the same % chance. I also know that everyone is different and have to do what they feel is the best way to get through this horrible disease.
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I have a very good oncologist that we appreciate very much but I must confess that I am a little confused in terms of the third year tramament analysis of estradiol increased from <10 to 16, although my doctor says are parameters I have to take tamoxifen and clarified that my treatment is not included in the first place because tamoxifen had polycystic ovaries. It is good to take tamoxifen considering adverse reactions?
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Hi ladies,
Just getting caught up on this board after a few days away.
Larabarer2006- As many of us have said, sorry to hear about your recurrence..! DARN CANCER! I am hopeful with all the treatments available today, there will be a good treatment option for you. Please keep us posted and educated. My thoughts and prayers are with you.
Sue- Congrats on the 1 yr mark, every milestone is worth a big celebration, at least this is how I justify spoiling myself!
As for the other ladies going through reconstruction, etc... I am thinking of you all. Although I did not have a ful mast, I had a partial, I am going to see the PS later to discuss some recon options. What I didn't realize when I was going through RADS is that having plastic surgery after can be tricky... hence the reason I have not had it done to date... at least this is my issue based on where my tumor was and the scar tissue.
Have a wonderful weekend ladies!
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