CALLING ALL STAGE I SISTERS
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Thanks, Meece. Can I also tell you how cute, smart, etc they are?
I still want your wings or shells or whatever is behind you in that great pic.
The only thing behind me now is my BEHIND!
Gosh, I am so clever during a new england rainy day........Sue
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I am not ready to give up my wings, but I will listen to you extol the wonders of your grand babies.
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Sheila, What do you mean I have no more restrictions?
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Redbarb....Now you can only posts 5 times in 24 hours. After you reach 50 posts you can post as many times as you want.
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Speaking of posts...seyla888 you and I became members of BC.org about the same time. How the heck did you get ~8,000 posts more than me???
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Elimar... you are so funny. hahahahahaha
At one point I used to play the humor games when kbugmom was alive.. Sometimes we went all night. I miss her. I still play it but very little.
And I cant type fast I still look at the keyboard when I'm typing.
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Rae...Welcome from all the way from New Zealand and Thank You for all your compliments about our Forum.
Welcome Oma261...I'm on Femara and have no visible SE. Not everybody gets the same reaction from the same medication.
Sue....Thats a wonderful news. Congratulations.
Meece....Are you taking care of yourself?
Renee.. I'm thinking of you and your father.
Sheila
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Sheila, Meece and other wonderful ladies... thank you so much for all the wonderful prayers and thoughts of my dad and family. He is some better today, at least stable. He has spinal fluid collected on his brain and they are considering putting a shunt in on Monday to drain the fluid off. Right now they are using medication to try and pull the fluid off. They are also hoping the bleed on his brain will clot itself off. They will be doing follow up Cat Scans through out the weekend and we won't know for sure till Monday morning.
Oh a diff note got my car back yesterday and after being in the repair shop for 4 weeks it's got to go back againg tomorrow. The cost of the repair was $900.00 but at least he will "fix" whatever is wrong with no additional charge. :=)
Otherwise I'm just peachy!!!!
Renee
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Mimi, I am sorry things seem to be piling up. Sometimes just venting here tends to make the pile a bit less intimidating. I will continue to pray for your father and your family. If you are feeling peachy, make peach icecream!
I am trying to take care of myself, Seyla. I figure I will be back up to speed in the morning.
Redbarb, after you have posted 50 times, you can post as many times in a 24 hour period as you want.
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Hi, I'm new to this tread. I finished chemo on Feb. 8th and am now going through rads. I will be done next Wednesday....only three more boosts to go. I've read back few a number of screens and recognize a few ladies from other threads. I'm looking forward to sharing and exchanging with others on this thread who are same stage.
Sherri
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Welcome Sherri...I recognize you from the humor and games Threads.
Now you found bunch of other sisters who really care for each other.
Sheila
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Hey, Sherri. I've seen you elsewhere but never noticed you are a TN as well. Welcome to the Stage 1 sisterhood.
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Welcome all the newbie's! I am sorry you had to join this club, but you won't find a better group of ladies to help you along in your journey! Stay strong and believe!
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Hello Ladies,
I finished RADS March 30th and Chemo February 2.
I read that some have had difficulty with the reincision with sentinel node biopsy? I had my first surgery September 17, and then the 2nd surgery October 5th surgery. The second surgery was the revision of the margins and sentinel node biopsies. I cannot describe it, but I am getting this discomfort in the area of the incision up to where the sentinel nodes were removed.. hmmm and sometimes even a tightness. But the odd feeling I am getting is almost an abnormality - like a feeling that I should not be getting if it is healing correctly. I have to wonder if something went wrong in the healing process once I started RADS (from repetitive motion of my having to constantly raise arm above head for RADS) over 21 days... I find when I get up each day/morning that I have to put my hand over by incision/underarm when I get up from lying down position...
Charmaine
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Welcome to Rae & Sherri! {{hugs}} to you both.
Sue ~ A new grandbaby on the way, how wonderful!
I must get to bed, just wanted to check on everyone & let you know you are always near my heart.
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Charmaine--I don't blame you for being a little nervous. Bc makes us be very concerned about changes, etc...especially where we have had surgery. I think that I would contact my bs just to make sure.Sue-congrats on new grandbaby. So cool! Do you live close to your children?
Thanks about the posting re: 5 posts in 24 hours until you get to 50 posts. I was wondering about that. Does not make sense to me, though. Do newcomers need to prove that we will use the site before we get unlimited posts? Or is it to make sure that we are legit members--not posting inappropriate stuff, etc...
My husband is in Germany on a business trip. Was supposed to return today but with the volcano, etc...has been delayed. Told me this AM it may not be until mid or end of next week. I had my TE surgery April 7th and am still on limited activites from my ps. UGH! My teenage sons are helpful but not the same as having my hubby.
Jean
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Charmaine, since lump/sn surgery last Oct., I have been having irrritating hard rock sandspur/burr feeling under the skin at sentinel node scar area, I am still sore and it feels like I have to hold that area when I get up out of bed (feels heavy). I have complained to everyone of my docs on follow-up visits...The rad doc said it's a hematoma..not!!!!!...The onco said it is a fibrous band..not!!!..The surgeon said it just needs more healing time.....Well, low and behold, I just had my 6 month follow-up mammo/us and asked the tech to check out that area, there on the mammo is a clump of surgical clips!!..at least 6 of them bundled together, all in that area of concern...When I saw my surgeon a few days ago he said that these clips are left in all the time and that is not the cause of my irritation and that he did not advise removing them, I am telling you that I know that it is, it feels exactly like it looks on the mammo....He told me to ignore it, I wish I could.. When I told him that I had tightness around and down my arm, he also said that could not be the cause...I believe it is the cause because this clump of tissue and clips probably are hindering blood flow in that area, it only makes sense!!..I found a website of over 150 comments of people having problems with areas where clips were placed and thier doctors trying to tell them that the clips are not the cause of thier concerns just like mine!!!
I would advise all of you to actually ask to view your films from mammo/us to see if and where these clips might have been left in your body.. esp., if you are not healing as you should.....
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Somanywomen. I can't believe they won't remove the clips. Did you think of going for a second opinion with another surgeon? Now I am concern because I had a sentinel node biopsy done on Feb. 25 and now I am having some pain to the right of my scar under my arm. I am having a re-excesion on Tuesday so I will definently talk to my surgeon when I see him. I just figured it was still healing. Thanks for the info. I will make sure I ask to see all my films!!!
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Redbarb, I did get second opinion from a Breast Cancer Surgeon (my surgeon is general surgeon but suppose to be the best in my area) I saw her last week the day after I saw my surgeon..She basically said the same thing as he did, to leave them be that they are left in all the time and it would cause more problems if I had them taken out..Apparently surgeons stick together on this topic...Seem to think it is a non issue...I wish I could post a photo of my clump of clips, it is exactly where I have been feeling these irritating pains...I am trying to ignore it as much as possible since I am lucky to have had a clean mammo...I just wish one of these docs would admit that these things could possibly be the cause of my slow healing irritating area....I am going to talk to my primary and see if I can get him to admit that he has heard of this before....The best of luck on your re-excison......0
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I'm Karen and I was diagnosed with IDC in Feb. 2010. Surgeries are behind me now and I start radiation treatments next Friday. When that is finished I will start on tamoxifen. I am really worried about the side effects of tamoxifen and not looking forward to that at all. I am looking forward to the support of this group to get me through this journey. It is so nice to be able to share this journey with others who have been through it. Thanks!
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Welcome, n50karen. You will definitely benefit from the support here. I am TN so I cannot interject anything on Tamoxifen, but I can root you on as you go through rads. Before you start, ask your radiologist about skin creams for treating the areas affected by the rads. Originally mine told me a regular unscented skin lotion, but eventually I got a rx for Biafine cream, it was such a blessing. Good luck, and again, welcome.
Meece
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Thank you for letting me know. I haven't started Ameridex yet. I'm just a beginner at all this. I'm told to expect osteoporosis from the medication and to also take Fosamax. I have been fortunate until now not to take any meds and now it seems it will snowball.
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Hi Karen...I share your concern about the side effects. Keep us posted as to how you are doing.
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Welcome Karen.......
Like Meece said take care of the radiation treated area.
I don't know much about Tamoxifen. I take Femara.
Remember we are all different someone might get a Side Effect but others will do fine.
In my case many women complains about Femara. For me I'm fine.
We are all here to support you.
Sheila
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Thank you so much for all the welcoming comments. Wow, what a great feeling! I will definitely ask about the skin cream on Friday when I start my radiation treatments. Have a great day everyone! Karen
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Hi all. I, too, am (was) a stage 1er. Had bilateral masectomies by choice (also had LCIS) and have had over a year now tied up in hospital/surgeries/etc. and you all know this drill well. Did not have chemo (did not have too and the breast surgeon said she'd kill me if I did) but am still struggling to get the reconstruction thing to work (have had infections and retries and currently am getting ready to be off all antibiotics and praying that nothing else rears it's ugly head) and am also getting the monthly Zoladex shots until everthing clears and I can yank out the ovaries. I'm looking forward to all this stuff being over and trying to get on with life. I am feeling blessed to have all this support from all of you sisters and I pray for everyone here and others dealing with this awful disease and the effects of treatments. May we be understanding of each others' feelings and decisions as we all deal with this in our own way and may we be blessed AND HEALED.
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Welcome Karen, I am glad you found us. Everyone here has been a great sure of information and support for me. I will be watching your posts with great interests. You will be a treatment ahead of me. I wish you luck with the side effects, pray for none! I will start chemo the beginning of May and then radiation and tamoxifen. I'm not looking forward the the SE. I'm hoping and praying I am one of the lucky ones.
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I found that having a positive attitude really did help. It didn't stop me from having the SEs, but it helped me deal with them. I think being able to connect online here might help that, because you can vent and stomp your feet, then return to your daily stuff.
Does that sound like I was using rose-colored glasses?
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Tabby - welcome. Our dx looks similar (mine was DCIS last June). I didn't have chemo either because Oncotype DX indicated zero benefit, but did opt for BMX after pathology from lumpectomy. I read a lot of posts on this forum to help me make decisions and now I check in to see if what I am experiencing is with the "new normal". You will find the ladies on this thread to be very helpful and supportive.0
