Sign the Petition Against the new Mammography Guidelines

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Comments

  • etucker
    etucker Member Posts: 1
    edited January 2010

    Waiting for my appointment with the surgeon this coming Thursday - am concerned.  Have a history of breast cancer on my mother's side of the family.  I am 46 - if I waited until I was 50 where might I be by then?

  • tiffanymccormick
    tiffanymccormick Member Posts: 2
    edited February 2010

    I was diagnosed with stage 3 breast cancer at the age of 32.  This was confirmed by a mammogram.  I never had a lump that you could actually feel, just simply some breast discomfort.  I told my internest and thank God she had the wisdom to suggest a ultrasound and mammogram based on my family history.  My mother was diagnosed with stage 3 breast cancer at the age of 34 as.  As it turns out we have the BRCA 1 genetic mutation.  My mother's lesion was also confirmed by mammography.  Ladies, my mother has been a survivor for over 28.  She is my hero and my inspiration!  Stay strong, keep fighting the fight.  Here's to not just surviving, but thriving Wink

    Tiffany McCormick

    Cancer free for 1 year 8 months (but who's counting)!

  • tiffanymccormick
    tiffanymccormick Member Posts: 2
    edited February 2010

    Tony,

    First of all I'm sorry.  I too am a survivor.  A double mastectomy, 16 chemo infusions and 27 rounds of radiation.  That's what 4 positive nodes got me.  I have the BRCA 1 genetic mutation.  I was curious to know if you have been tested?  If not, I would strongly suggest you have a conversation with your oncologist about it.  I hope you are doing well.  Take care.

    Tiffany McCormick

  • allaboutlife
    allaboutlife Member Posts: 1
    edited February 2010

    I am being tested for genetic cancer. If im positive, or even if im not not my 3 wonderful children will need the mammograms done BEFORE 50!!

  • deborahmae
    deborahmae Member Posts: 1
    edited February 2010

    I was just 50 when diagnosed, found by my yearly mamo, My sister was 47 when she was diagnosed, found by her yearly mammography. I protest sternly against these new guidlines.Women should make this life saving decision with their doctors as to when mamo's are needed and how often. Our yearly mamography's probably saved both our lives!

  • AnnieBird55
    AnnieBird55 Member Posts: 3
    edited February 2010

    Anne Leight - Diagnosed age 52

  • VMcCabe
    VMcCabe Member Posts: 1
    edited February 2010

    Stage II tumor discovered July of 2009 at age 40. Had bilateral mastectomy and chemotherapy. Doing great.

  • kclark
    kclark Member Posts: 4
    edited February 2010

    Kim Clark - Diagnosed age 41.  DCIS found with routine Mammogram.  MRI revealed invasive cancer that had spread to Lymph Nodes.  Denying access to tests that lead to Early Detection is murder!!

  • Irishmom
    Irishmom Member Posts: 11
    edited February 2010

    Kathleen Hennessy - Age 46 - Forest Hill, Maryland

  • kerriannrose
    kerriannrose Member Posts: 1
    edited February 2010

    I'm 42 and just got biopsied yesterday.  Nothing but a mammogram would have detected the calcifications in my left breast.  I've been getting mammograms since I was 37 because a friend of min was dx at 35 (survivor).  Neither of us are considered high risk.  Waiting on my results.  Wish me luck.

  • sestes
    sestes Member Posts: 1
    edited February 2010

    I was diagnosed this summer just before turning age 43.  My tumor was found with a routine mammogram and a MRI revealed the cancer had spread to my lymph nodes.  How could anyone promote denying access to the very procedure that saves lives over and over?! I agree with the previous post that this is equal to murder!

  • Mema
    Mema Member Posts: 1
    edited February 2010

    Mema1961-dx May 2005-age 43.  Mammogram showed DCIS and IDC in R breast.  Mastectomy in June 2005 with a diagnosis of Stage 2, Grade 3, ER+/PR+, HER2+.  Chemo X 8, Radiation X 35, Herceptin X 48. Prophylactic mastectomy (L) and bilateral reconstruction in NOLA in March 2007 with modifications in November 2007.  If I had waited until I was 50 to have my mammogram I would be dead.  My maternal aunt who was only three years only years older than me passed away from this insidious disease in June 2006 and my maternal grandmother was diagnosed with breast cancer, but is still with us at 93.  I'm BRCA negative, but there has to be some other genetic factor linking us that has not been found. There are NO benefits in changing the testing guidelines, unless you are a supporter of National Health care in which case you do not care if we have testing any way.

  • shawna41653
    shawna41653 Member Posts: 3
    edited February 2010

    This for my Aunt my angel, WANDA JUSTICE dx age 42, stage 4 and her mammogram was wrong and she had a 6cm mass pop up 5 months after her mammogram, still fighting and doing well, we need better breast cancer test, but her insurance would not pay for a digital which would have found it sooner, This is a shame 

  • Chloe5
    Chloe5 Member Posts: 1
    edited February 2010

    Diagnosed in with BC '07, 47 years old, treated at Vanderbilt, now very healthy and enjoying a productive life. Oncologist estimated two years survival without treatment. Waiting until 50 for a mammogram is going to waste a lot of lives.

  • heleninengland
    heleninengland Member Posts: 1
    edited February 2010

    I feel humbled by all these posts and do appreciate that I`m extremely fortunate..had preventative mastectomies. More screening means more cancer PREVENTION. You probably know about the breast cancer prevention research of Prof. Ann McTiernan @ Fred Hutchinson Cancer Research Center, Seattle, who is an international scientific advisor to The Genesis Prevention Centre, Manchester, UK:  my wholly positive experiences here & visit to Seattle on              http://www.bbc.co.uk/mystory/stories/175302                                                                   Empathy from England.  Helen X

  • kimt
    kimt Member Posts: 6
    edited February 2010

    Diagnosed at age 41 - no family history of breast cancer (but did test positive for BRCA2).  Mammogram was labeled 'stable" from one year prior, but ultrasound found the cancer.

  • Methusala
    Methusala Member Posts: 10
    edited February 2010

    I am really glad to see this on here.  Thank you from the bottom of my heart to whoever spearheaded this.  Under the proposed guidelines, my daughter, now 18, would have to wait til she's 40?? for a baseline routine mammo.  Seeing as how I lost a sister in her 30s to BC, my other sister and I and a frist cousin are all BRCA 1 +, AND I'm a triple neg, and I lost a 1st cousin to ovarian cancer.... and I and my first cousin both have breast cancer... You'd THINK the gov. or SOMEONE would WANT her to have early intervention... but no... the new report says early intervention doesn't have proven benefits.... if I've been following this issue correctly.  The 'new report' is also put out by the government.  Please read the latest from the CDC

    http://www.cdc.gov/Features/CancerRegistries/ 

    apparently now they are spending millions to find out why we cancer patients are a burden to society.

  • alligans
    alligans Member Posts: 4
    edited February 2010

    I would like to sign the petition.  I am 100% against the new mammography guidelines.

     I have a friend who was recently diagnosed at 46 with stage 0 breast cancer.  If she had had to wait until 50 she'd be in a very advanced stage.  Her cancer could not be felt and was only see as calcifications on her mammogram.

     I think that at 30 women should be getting at least an annual breast ultrasound.  At age 33 I was found to have a fibroadenoma which I cannot find nor can my doctors.  Although my lesion is benign and will hopefully remain so, it's 1.6 cm and cannot be felt.  Some cancers much smaller and probably even larger cannot always be felt.  You can't always feel cancer and the key to fighting and winning this terrible battle of breast cancer is best fought at an early stage which can only be done through breast imaging.  Additionally, women should not be told not to do monthly self exams.  We are our doctors eyes, ears, and touch.  If we don't notice and point out a problem, then a doctor isn't as likely to find it.

  • JFBCADVOCATE
    JFBCADVOCATE Member Posts: 12
    edited February 2010

    I would also like to sign.

  • MAC39
    MAC39 Member Posts: 1
    edited February 2010

    Diagnosed at age 46

  • gina0808
    gina0808 Member Posts: 2
    edited February 2010

    Diagnosed at 39 with no family history.

  • budoml
    budoml Member Posts: 1
    edited February 2010

    Diagnosed at 46 with no family history

    Marilou  

  • Alishar
    Alishar Member Posts: 2
    edited February 2010

    Diagnosed at age 49; family history:  sister who passed away from cancer five years ago (she was 47 at the time); one aunt on mother's side; one aunt on father's side.

  • Bellz
    Bellz Member Posts: 10
    edited February 2010
    Diagnosed at age 43 by mammogram. NO family history at all Surprised.   FIVE surgeries just to get all traces of the cancer out.
  • bcincolorado
    bcincolorado Member Posts: 4,750
    edited February 2010

    Diagnosed at 48 with mammogram.  No lump felt and no family history. 

    Just met someone in late 20's or barely 30 who had been told 2 years ago when she found a lump she didn't need a mammo.  Now she is Stage IV and has tumors in her liver, and lungs as well.  No family history for her either.

  • sas-schatzi
    sas-schatzi Member Posts: 15,894
    edited March 2010

    NO GOVERNMENT AGENGY MAKE RULES LIKE THIS WITHOUT PREDICTING CASUALITIES. IT'S A STANDARD RULE OF WAR. HASN'T THE BATTLE AGAINST CANCER COMMONLY BEEN REFERRED TO AS A WAR.

    SO, HOW MANY HUMAN LIVES, MEN AND WOMAN, DID MY  DID MY GOVERNMENT PREDICT WERE EXPENDABLE. 10,000-30-50-100,000. MY GOVERNMENT OF THE PEOPLE, FOR THE PEOPLE, AND BY THE PEOPLE. 

     ON TOP OF THAT, MY GOVERNMENT, HAS KNOWN FROM THE PUBLISHED 2003 RECOMMENDATIONS BY THE GOVERNING BODY OF RADIOLOGY, KNOWS THAT MAMMOGRAMS CAUSE A GREATER RISK OF CAUSING CANCER BECAUSE OF THE RADIATION EXPOSURE. MY GOVERNMENT, KNEW FROM THAT PUBLICATION THAT MRI AND ULTRASOUND TESTING WAS A SAFER AND MORE EFFICACIOUS DIAGNOSTIC TOOL FOR IDENTIFYING BREAST CANCER AND DID NOT INFORM THE PUBLIC OR REQUIRE THAT WOMEN BE INFORMED OF THE RISK. NOR DID THEY REQUIRE THAT IF A WOMAN ASKED FOR A MRI OR ULTRASOUND, THAT SHE COULD NOT BE DENIED OR COULD ONLY RECEIVE THE SERVICE AT EXCESSIVE COST

    MY PERSONAL INFORMATION REGARDING MY CANCER HISTORY OR THAT OF MY FAMILY IS BY THERE OWN WRITTEN HIPPA LAW --- PRIVATE.

    I AM BUT A STATISTIC IN THEIR  NEW GUIDELINES. IT,ALSO, TELLS ME THAT MY LIFE IS EXPENDABLE. A CASUALITY OF WAR.  THAT MY LIFE COUNTS FOR NOTHING

    WHEN GOVERNMENTS  DO AN EVIL THING. THAT EVIL THING EVENTUALLY WILL BRING ABOUT THE DEMISE OF THAT GOVERNMENT. LOOK AT THE EVILS PROMULGATED BY THE THIRD REICH, RUSSIA, ROMAN, JAPAN.  GOVERNMENTS THAT DO EVIL THINGS TO THEIR OWN PEOPLE FALL IN MUCH THE SAME WAY . LOOK AT RUSSIA,  THE BRITISH EMPIRE, AND FRANCE.

    TRUST ME ON THESE WORDS, THE AMERICAN WOMEN DO NOT PRECIEVE THEMSELVES AS EXPENDABLE. WE NOT ONLY WANT BETTER GUIDELINES WE WANT ACCESS TO THE SAFEST TESTING AVAILABLE  WHICH IS MRI AND ULTRSOUND, AT AN AFFORDABLE COST.

    MY GOVERNMENT ARE YOU IGNORANT OF THE POWER WOMEN HAVE. WE UNITED COULD STOP THE FUNCTION OF THIS COUNTRY IN ONE DAY. DOES MY GOVERNMENT NOT REMEMBER THE POWER OF BLACK WOMEN UNITED  IN MEMPHIS DURING THE CIVIL RIGHTS MOVEMENT.

    RECONSIDER YOUR GUIDELINES MY GOVERNMENT, IT IS IN YOUR BEST INTEREST , TO NOT TEST THE IRE OF ALL WOMEN UNITED. FRANKLY, IT WOULD BE A GOOD CIVICS LESSON AND A REMINDER OF WHAT THE CONSTITUTION STANDS FOR.

  • mozinga
    mozinga Member Posts: 1
    edited March 2010

    Diagnosed 9 years ago at age 48, IDC, found on mammogram, no family history

  • Maggie66
    Maggie66 Member Posts: 71
    edited March 2010

    Dx @ age 43 (8/09), extensive DCIS not seen on film mammogram year before, but "caught" on digital. No "lump" per se and yet I had cancer throughout both breasts. Bilateral mastectomies 9/09 but didn't require radiation or chemo. Would I have lived to 50?  Would I have required even more invasive therapies? Where does quality of life fit into this new equation? Where do my four kids fit in? Why is the bar set at "death" and not quality of life? Maggie

  • joanpatricia
    joanpatricia Member Posts: 1
    edited April 2010

    joan patricia weeks was diagnosed in 1984.  i found the lump thru a self-exam!! my dr. said that it was nothing due to the fact that i was 30 at the time and we would wait 6 months to get a mammogram.  it grew so fast that 3-1/2 months later i was having my first mod. rad. mass. they found 5 positive nods and i had stage 2 breast cancer.  what is wrong with our government. they are taking we woman back in time at least 50 years.  may i remind all, these are the years that most woman with breast cancer died due to the fact they did not receive early detection.  we would be in much better shape if the federal government would stay out of our business and let the doctors make the guidelines and not the government.  we have too much government in our lives and this proves that they are not looking after our best interest...

  • Pepperhargrove
    Pepperhargrove Member Posts: 2
    edited April 2010

    Stephanie Wilkinson