Calling all TNs
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it really is a gorgeous place - I love it xx
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Hello, everyone.
Abloorable I'm going to try to follow your example. it would be great if I could have a fraction of your spirit.
I'm a little down because my MRI results came back and said that the tumor has grown into the muscle, but the surgeon says it is at a superficial level and the neoadj chemo might pull it back so she won't need to remove muscle. On the upside, according to Monday's ultrasound my axillary nodes are clean. She doesn't think there will be major removal there, either.
Met with the genetics counselor today - get those results in 3 weeks. I'm really having a hard time deciding if I want a prophylactic mast on my healthy breast or not. Both my oncologist and surgeon seem like they don't think it's a good idea but haven't come right out and said it.
Best to all!
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Agatha, I hope the chemo shrinks your tumor enough to avoid muscle involvement. If I had it to do over again, I sometimes think I should have gone the mastectomy route; however, then I read about some ladies who have really struggled with tissue expanders or implant issues and think not. So many difficult decisions with no truly "right" answers, darn it! :-(
Keep us posted...
Lyn
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VLH - I also sometimes question not getting a mastectomy. My TN tumor was hiding behind the biopsied ER+ tumor and wasn't found until surgery. I went back to BS and asked if I should get a masectomy now and he said no. The majority of the time I am confident in my decision. I admit I did not want to part with my breast. Some of my family questioned my decision, as if I wasn't throwing everything at this cancer. As if! It is just so hard and personal and our decisions need support. This place is great for that.
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Hey Agatha we all have our days precious lady! I trust my doctors know what they are doing. I'm risk averse myself so I take the precautionary measures - while I didn't have your situation - I wanted a double mastectomy but my Dr told me I'd be fine with the extreme lumpectomy - lol it's ok -- but once all of this is over ---- for my health and peace of mind - I may do a double M - minimal reconstruct... it's such a personal choice xxx it's good to speak with others who have done both and get as much info as you can - wishing you peace of mind and happiness always
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Agatha, I first had bc seven years ago - I had both lobular and ductal. The ductal was triple positive. Because I had two cancers in different quadrants of my breast a mx was the only way to go. I asked my breast surgeon to remove both breasts, and he wouldn't do it.
Five years after that first bc I developed triple negative bc in my "healthy" breast. I was so angry with my breast surgeon - I wanted that breast removed five years previously and he wouldn't do it, so I was facing another big battle.
Everyone is different. I now have both breast gone, and I chose not to have any sort of reconstruction. I also rest easier knowing that with both breasts removed, my risk of it coming back in the breast area is drastically reduced. I understand I still have some breast tissue left - they can't get it all.
As I said - everyone is different, and only you can make your choice. Sometimes it's a hard decision, and sometimes it's easy
You have to be happy with whatever decision you make.((((hugs))))
Trish
xoxox
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I am about to celebrate my 5 year cancerversary in December. However this has been overshadowed by my 11-year-old grandson being diagnosed with high-risk Acute Lymphoblastic Leukemei (ALL). I am extremely close to him emotionally. I am a wreck.
His chemo treatment makes mine look like a walk in the park. There is a high probability he will also need a bone marrow transplant and radiation, although that decision will be made middle of October. I am beside myself. Trying to take one day at a time. He is exactly the wrong type of kid to get this. He is highly physically active and has been highly social since toddlerhood. He will be homeschooled as soon asap but has to stay away from groups of kids or enclosed spaces such as movies or restaurants. He is being brave and positive.
Please pray for Jack.
Peggy Sul
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Oh, Peggy, my heart just sank as I read your post. But the tears came when I read the name of your sweet grandson. I, too, have a grandson named Jack. I call him my Jackie boy. Sending love and Prayers for Jack and your entire family.
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Dear PeggySull - I will think of Jack as I say my prayers tonight. He has a strong, brave grandmother to inspire him and I'm sure you do.
Thanks everyone for supporting me as I try to figure out re: mastectomy. I think I have to have another real talk with my oncologist about chances of recurrence of ILC triple neg. She doesn't like to talk rates, percentages, etc. since all patients are different. I need more information.
All the best to everyone.
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PeggySull, - I, too, send BE WELL wishes to Jack! You have shown your strength, and now you will see that Jack is just as strong, - and has youth on his side to help even more!!
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PeggySull, - I, too, send BE WELL wishes to Jack! You have shown your strength, and now you will see that Jack is just as strong, - and has youth on his side to help even more!!
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Peggy Sul...I also have a grandson, Jack, who I love dearly. Your news made my heart break. We are able to handle our own health issues with strength. But, when problems hit our grandchildren, that's another situation. I will pray for your Jack as I would for mine, that he will be surrounded by love and support and come out on the other side healthy and ready to live a wonderful long life. 🙏🙏🙏🙏❤️❤️❤️
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Peggy, you must be sick with worry. I'm sorry that your family is facing this incredibly difficult situation.
Lyn
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Thanks for all the caring responses! I really needed those prayers and empathy and encouragement. Your responses meant the world to me.
Last night I learned the the "cancer club" of a neighboring high school are going to give Jack the VIP treatment in honor of pediatric cancer month. How wonderful these teens give their time for cancer patients and that Jack will have the first positive experience since his ordeal started earlier this month. I can't wait to hear about it!
Again, thank you from the bottom of my heart.
Pegg
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PeggySull so sorry to hear about your grandson. I'm sure he sees how strong of a fighter you are and he will fight just as hard. Prayers
Got results from my ct scan. All clear...yah
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Yay DIV! Congrats on the clean scans. And on getting to drive again. (Saw that on another thread).
Glad to hear you're doing so well.
Trish
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Peg, the human spirit is amazing and I bet your grandson, Jack, has a full dose of love and encouragement from family and friends. I'm putting all I can into sending him positive energy and I'm betting he's gonna pull through this and become an even more amazing individual and with this experience he is going to "move mountains" in giving back to others!!!!
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YAY, Div!!! SOOOO happy for you.
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YAYYYY DiV!!
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Peggysull, I am late to this but am sending prayers to your grandson, and celebrating your clean scans. Woot!!
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Wise advice Trisha-Anne and exactly the reason I was happy to have a double mx - now I'm in the same boat as you.... ticking time bomb... x
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Any of you ladies ever get a red spot that itches on your breast. My wife has one now that we fear could be IBC. It's pink and a little bigger than a silver dollar and it's on the oroginally affected breast. Any thoughts? Headed to the Onc on Monday. Closed today.
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No experience with this, Al.Husband. Glad to hear she is seeing the Onc tomorrow. Sending positive thoughts... Please update when you can.
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AlHusband, - in the mean time, has she tried an over the counter cortisone cream? My ob/gyn often suggests that for skin related issues and if it doesnt help to then see dr. I hope it's nothing serious and clears up quickly!
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AL, hope the appt goes well today! Keep us posted
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Prayers Al.. Don’t know about this either. Thinking of you all today.
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Thanks all. Seeing Onc at 1pm central today. Praying it's nothing.
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Hello Al....could be something with her implant rather than BC?? I have heard of this before and has turned out to be simply irritation.
Prayers here.
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Batesburg I hadn't considered that. Thank you
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Congratulations Peggy and at the same time, I'm so sorry about your grandson. Many prayers. He sounds like a fighter!
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