Calling all TNs
Comments
-
Cheering for you Marsha!
0 -
Sylvia and Marsha thanks for checking back in and support us.Happy Holidays !!
0 -
Happy Holidays to all of you wonderful ladies!
0 -
Marsha and Sylvia, - so wonderful to hear from you!
I dont post as much as I read, but I am always here, cheering and holding hands with all here.
I came on to wish Merry Christmas, Happy Holidays and Happy HEALTHY 2019 to you and yours!
But, I also need some calming words right now.
I have a swollen gland right behind my jaw and I am trrrrrying to keep my imagination from running away. I keep thinking mets, or lymphoma from the AC. Of course, the more I touch and check it, the sorer it feels. I have an appointment with my GP on Thursday, and will call my onc, but of course, no one is in the office tomorrow and they are always SO busy even without holidays.
I apologize for adding this to what I planned to be a happy, upbeat post. Thank you for understanding.
0 -
It's way more likely to be due to cold and flu season... I hope it's something simple like that. Do not let needless worry intrude on your holiday!! Or go to urgent care, if you want to be proactive (as it's more likely you have a virus or bacterial infection). Try deal with facts only... and the fact is, it's Christmas!
(((hugs)))
0 -
Thank you, santabarb! ( I hope you're right!)
Have a wonderful Christmas eve! and day!!
0 -
anothernycgirl, it cld be a tooth infection as well. I experience lump at back/ bottom jaw and it was a tooth..and yes, the more I touched the more it was irritated. You could take anti-inflammatoriy pain pill. See if it helps. I have to agree with Santabarbarian if its a cold or flu go to urgent care.
Cyber Hugs and Happy Holidays..
0 -
Thank you undrago! I truly appreciate your response!
sending hugs and holiday wishes!
0 -
Good Morning Friends,
Just stopping by to share with you my 7-year healthy victory celebration, which is officially tomorrow (12/27) the dx date.
I always find it hard to log in and post, because it is hard to celebrate when there are still so many more being diagnosed. I do so though, because I know you wonder "where are the other survivors, and what are they up to these days?" LOL And because your happy thoughts help reconfirm that collectively, we can do this.
I am sending prayers out for our entire community, as well as for the researchers and medical professionals who lead the advancements into novel therapies that can benefit everyone who has or ever had any type of cancer.
And while you are all so dedicated to doing everything just right in health, nutrition, and wellness - remember to let up for a moment or two, to enjoy one of your favorite past times - then you can get back to it!
Cheers to a wonderful 2019, and I hope that all of you stay positive and that you know you have many survivors around the world thinking of you and sending prayers daily, even if they/myself don't log in to post.
Much love, hugs, and peace to all of you!
Debra
0 -
Hello Debra,
It was wonderful to see your post on the thread, and I want to say congratulations on your 7 year survival.
I have never forgotten you and all the wise posts you sent on here and on my thread.
I have just reread the details on your nutrition tips and of course I heartily agree with them. I am still eating in the same way but am not taking metformin.
Please pop in to say hello to the ladies on my thread.
Lots of love.
Sylvia xxxx
0 -
I had the same gland thing going on and saw my Doc today. Just the normal work of the glands working against all of the crud going on this time of year! Yours will be the same.
Saw our Dolce friend on here and am so glad she is far away from this. My wish for all of us is that we worry less and enjoy more in 2019.
Hugs,
Anne
0 -
Good to read your post, Debra.
Anne, - thank you so much for your response.
Hugs to all
0 -
anotherNYCgirl, I have a swollen area under my jaw. Had an ultrasound, it’s a salivary gland. *shrug
0 -
Thanks for sharing with me, LoveMyVizsla!
I saw my gp today, he felt the glands and said seems ok, but all this touching has made it feel more sore tonight! I will have routine blood work tomorrow. I will wait for those results, and then see how things are next week.
It is sooooo helpful to have this board to 'talk' to!
With much appreciation, hugs, and as always, BE WELL wishes to all here!
0 -
Per our earlier conversation about "types" of TNBC, here is another interesting approach
0 -
sitting at Maine Cancer specialists. I have been feeling a lumpy area on either side of my mastectomy scar, and figured I should have it looked at. They couldn’t fit me In for an ultrasound Today so I have to come back Monday for an ultrasound of the area. My MO didnt seem overly concerned but enough to set up an ultrasound. I thought it was probably scar tissue but now I’m feeling a little nervous. Anyone ever have this
0 -
Cccmc2, yes, and it was scar tissue and some fat necrosis.
0 -
Yes. As a matter of fact I had my ultrasound today. Turned out to be fat necrosis, a few water cysts and general scar tissue. The radiologist even came in to reassure me that all findings were benign (what a sweetheart!).
From what I've read, it sounds pretty common.
Hope this helps,
Vickki
0 -
thank you !
0 -
Hi, Helen
Nice to hear from you down under! Sorry it's so hot there, here it is -3 C this morning. Our weather has been up and down all winter, we were at 15C a few days ago. Not good for my poor old sinuses. They like consistency, of one sort or another.
I'm glad to hear you are almost finished with treatment, glad the Xeloda wasn't too bad. The end of treatment is a strange time. I know I felt that while I was undergoing treatment, I was actively battling cancer, and when it was over I felt as if I was still in a battle but disarmed. At the same time I was very relieved to not have the drugs going in my body. Then I began to realize slowly this was my life now, for however long, and I had better live it as well as possible in my rather battered body. I try not to get stressed over things, and also to take advantage of opportunities to do things with friends and family. If I want to travel, and can swing it, I go and see new places. I now try very hard not to get emotionally over-stressed, but still do once in a while and it's very unpleasant, I am very aware now of what it does to one physically as well as mentally.
Yes, good health and good fortune do seem to be one and the same to all of us here, I'm sure. I also wish that for all of us in 2019! Take care, Helen, hope to talk to you again soon.
Later, love, Mary
0 -
Hi, Gill
Although tripe in chili sauce was very tasty to me, tripe in hot milk and onions sounds very odd, but I'll take your word that it was good. Seeing the blood sausage made is what turned me off as a child and persists to this day; walking into the kitchen and seeing the buckets of blood sitting on the floor as my aunts bustled around cleaning sausage casings while getting ready to prepare it was too much. They made another sausage with ground-up liver and other organs, didn't like it either. The only one I did like was the sausage made from scraps of meat too small to be anything else. The haggis sounds rather like the liver sausage, I would try it, can't promise I would like it!
Susie must tell us about jellied eels, I suppose. It doesn't sound like something I would rush off to try.
Something we all liked after a butchering was the brain of the animal. If you went in certain restaurants you could get a brain sandwich. Beef brains were better than pork brains, I thought. Now I think the selling and eating of brains is illegal because of the mad cow disease, and also very oddly, one of my brothers died of CJD at age 61. It is a horrid and very rare disease, and is related to the mad cow, although he had a form which is called sporadic, which means the docs have no idea why he got it. The only good thing about CJD is that it kills one quite quickly, but it is always fatal. That was a dreadful time.
I hope your PICC line got flushed allright, I wonder why they make such a big deal of it. When my husband had his, it was a matter of flushing the lines before and after each use. That consisted of putting in a syringe of saline before running the IV, after running the IV another syringe of saline and that would be followed by a syringe of heparin. Heparin keeps the blood from congealing in the line, I think. They gave me boxes of the stuff, and we kept up with it.
I hope you are feeling better after having a nice Christmas, and will be strong and ready for next time! Here's hoping we all have a great 2019!
Talk to you soon, love,
Mary
0 -
Hi, Sylvia
Sugary treats are everywhere, and at all times. Hard to miss! Now we will be approaching Valentine's Day, so the candies wrapped in green and red will be put all in red and formed into hearts. Funny how pagan festivals become Saint's Days, and those days become only the means to sell little bits of chocolate!
Grocery shopping is to be done around the outer perimeters of the grocery stores, I do venture into the aisles for olive oil, coffee, spices and popcorn. One of my vices is my afternoon salty tooth, it seems every afternoon about 3 PM I really want something salty. I keep a bag of organic, air-popped popcorn handy and snack on that. I don't buy bags of unpopped popcorn because I don't eat it fast enough, it is usually past its' prime long before it's gone.
I will look up Debra (inspired by dolce), I remember her too.
I do venture into other places on this site too, I have posted in several. About neuropathy, and managing life after cancer treatment, and a few others.
The work on my farmhouse is finally starting to look like something good, he has tiled the bathroom and it's beautiful. Could I have opinions please on the following question: do you think the ceiling in a shower should be tiled? Right now he has tiled the shower walls, the floor but not the ceiling. In his opinion it's not necessary. In this house I have 2 showers and they are both tiled on ceiling, as well as walls. Would having bare ceilings with only fiberboard tiles be asking for trouble inside a shower?
Closing for now, I have one more Christmas today, and hope it will start early and be done early. Then on to 2019, which I hope brings health, happiness and serenity to all of us!
Talk soon, love, Mary
0 -
To all here:
Apologies! I meant to post my long rambles on another thread, accidentally put them here, and also there. Can't seem to get them off so here they will stay I suppose!
While I am here, I want to wish you all a very happy New Year, with good health and good luck! God bless us every one!
Mary
0 -
Good Morning. I got my mri results, my tumers have shrunk significantly with neoadjunct chemo. I have a lumpectomy scheduled for Jan. 4th. I was good with this decision then people keep questioning me why not mastectomy? Now I am not sure if I am making the right decision. My surgeon feels since my BRCA was negative there was really no difference statistically between the two. Any thoughts or advice from anyone i would appreciate. Obviously the people questioning my decision have never been down the road we have. Thank you. Not sure if my stats are showing but I was diagnosed i. June. TNBC, hig k167, small breast lump on yearly mamogram, IDC, spread to one lymph node.
0 -
volleyballmom
I am close to your diagnosis, though I do not know my K167. I had one lymph node that was cancerous with another couple of slightly swollen ones. Stage 2B. My surgery was two days ago. I opted for lumpectomy, for a few reasons... mostly to have the less radical surgery if the survival stats are the same.
I have had friends with lymphedema and want to avoid that if I can. Also with TNBC you have to get radiation, even with MX. I had a very good response to the chemo... we'll see if they find any live cells in my pathology in a few days. I have done a lot to support myself nutritionally and with complimentary practices, so I think my system is now way less "friendly" to cancer. Plus you can have a recurrence with a MX anyhow... chest wall, scar site, etc.
I think people feel less afraid of recurrence with MX but there are definitely advantages to a less invasive surgery as well. I guess that's why they leave it up to us.
0 -
Volleyballmom, I think people questioning your decision might simply not be up to date on current research about outcomes and overall survival. I think it's important to be able tune out or dial down the volume on questions or advice from people who are not super knowledgeable about breast cancer.
There are very good reasons to choose a lumpectomy over a mastectomy and if your oncology team didn't think it was a good option, they would not have recommended it. A mastectomy is much more involved surgery, more risks of complications in the short and long term. Some women really do need them (or want them - & that's ok too) , and I was and am still prepared to do it if it turns out I need it but I'm ok with my lumpectomy decision (I'm a year post surgery now).I think sometimes people might make us feel that if we didn't choose mastectomy we're not treating as aggressively as we 'should'. I also think some people underplay lumpectomy surgery; I've had people say things like 'oh you only had a lumpectomy?" as if it's nothing and means your cancer isn't as serious or something. Again, I've found I just have to shrug off people's uninformed input. If it's not my breast surgeon or my oncologist talking, I don't take their comments very seriously.
Look at all the information and remember, you can always have a mastectomy later on down the line if that's what you and your medical team decides makes sense then. I'd suggest you be at peace about your surgery on Jan 4 and tell yourself you can always reoperate later. Once you get a path report and find out about margins etc, you can make another decision about what to do next.
0 -
Thank you Santa Barbara and Moth. I never second guessed my decision until yesterday. You girls have talked me down with your experiences. Moth it is so true others don't know and further decisions can be made down the road.
Have a healthy and happy new year. Let's pray for a good 2019.
0 -
I had a right sided mastectomy for a rather small lump, but I was misdiagnosed as E+ and had surgery prior to chemo. I was so overwhelmed and undereducated at the time. I don’t really regret my decision to have a mastectomy but I wish I had been better informed. I actually have a scan tomorrow for a lump I feel under my scar site. Praying it’s nothing to worry about. And I wasn’t offered radiation with my mx. Some are and some aren’t. I think it depends on lymph node involvement but not 100% on that.
0 -
Sorry to hear that you had such difficulty during such a difficult time. Good luck on your scan tomorrow.
0 -
thank you
0
