Calling all TNs
Comments
-
Heidi, we live on a lake and surrounded by forest so there are a lot of wild animals around.... fox, marten, fishers... (they are mean) chipmunks, several varieties of squirrel, loons, mallards, many bird types... my fav. are the ravens, they are soooooo smart. Fish and turtles, frogs, deer and wolves and bear but we never see them (bear or wolves) near us, we have heard the wolves at night but never have seen them... and I'm ok with that!! and of course our 5 french bulldogs. we lost our 17 year old siamese during the winter, so no more cats.
0 -
I have two fish and I forget to feed them all the time lol dont think i would do well with fur babies lol.
Hope everyone has a wonderful Easter Weekend
hugs
0 -
Happy Easter to you too Kymn and everyone else on here who celebrates.
0 -
Happy Holidays to those of you who celebrate!!!!
0 -
Wishing everyone a wonderful holiday, or just a wonderful weekend!
0 -
I don't know if this has been posted here before:
http://breastcancerchoices.org/files/InsulinBreastCancerConnectionJCO.pdf
0 -
Happy Easter everyone!
My niece and her husband had their second little girl yesterday. My DD and I visited them at the hospital today...of course the baby is absolutely beautiful...My DH said she had a big nose...men...are they stupid or what????
I'm watching the Ten Commandments...what an awesome movie...my kids are home for the long weekend and I'm finally digging out from tons of laundry.
Love to you all
0 -
Titan, enjoy your weekend. Isn't it great when the kids come home? My grocery bill triples and the laundry goes non-stop, but it's wonderful! I have a few days now with my older son who's back from school and moving into a house with friends May 1; then the younger one returns from Whistler on May 15, can't wait to see him!
0 -
Soaking up the sunshine in the side yard after a great brunch with my family. Finally, some nice weather! Happy Easter!
0 -
Luah..I have been to the grocery store 4 TIMES since they came home..Yikes..I just told my son it was time for him to go back to school because we are broke.
Jealous of the sunshine Heidi..I'm beginning to think the sun hates Ohio.
0 -
Oh..and remember me telling you guys about the 29 year old with Triple Neg Stage 4? This was 6 months ago and she is now NED...Her doctor's told that yes..she is still terminal..but for NOW she is cancer free...good stuff.
0 -
Titan - thanks for sharing. NED for her....what wonderful news!
0 -
Titan: That is just wonderful news about your friend being NED!!! Love to hear good news!!!
0 -
Just awesome - love hearing about the NED stories - like me! I'm stage 3c and now officially NED (since March!)
0 -
Having a reaction to the Botox for my neck I think. Incredible, debilitating, nauseating vertigo. Awful... and scary. Waiting for doctor to call.
0 -
Pamdo - I always like to read NED...we need to celebrate (...again!)
Heidi - oh no, try to relax if you can. Please keep us posted when you can.
0 -
Oh Heidi! I don't like how that sounds! My mom had debilitating vertigo that would make her sick... it's a hard thing to describe unless you've had it yourself. Very scary, especially if you happen to be driving!
0 -
Titan - such great news for your friend! Very inspiring!
pamdo - That is so wonderful! Being Stage IIIc and TN is so disheartening sometimes, and stories like yours give me hope.
Heidi - have you had vertigo in the past? It almost sounds like my first attack 13 years ago, out of the blue. Did you have to keep a certain position for any length of time during the Botox injection, i.e. lying down with your head to the side? I hope you can figure it out, vertigo is horrible. If necessary, an ENT can do the Eppley procedure that is can be very helpful.
Hope everyone had a great weekend. Starting my radiation on Thursday, and more than ready. Meeting with Dana Farber on May 5th to talk about their clinical trial. Nothing is moving fast enough for me, but that's how it is.
0 -
I just wanted to introduce myself to this thread..I was diagnosed on 12/15/10 with TNBC, Stage IIa, Grade 3, 3mm tumor, no lymph node involvement. So far treatment has included R mast on 12/21 followed by chemo starting on 1/20. Have completed 4 rounds of DD AC, and am currently on my 6th week of 12 weekly taxol. ...and must admit the whole TN thing freaks me out (not that the breast cancer thing doesnt!..just an added stress)
0 -
Hey Marial..well..if you are going to freak out you have come to the right place...sounds like you are doing aggressive treatment..good thing...and you are almost done with treatment....hang in there....ok..it will be over soon....
Speaking of freaking out..I have a mammo 2 weeks from 2day...plus onc and bs 2 days later.. I feel like I'm putting my life on hold until then...
Heidi..vertigo! Yikes..nasty stuff...
Pamdo..woo hoo in the NED...!!
Actually my friend is 25 instead of 29..my bad...she has been through "H"... Chemo made her very ill so they had to wait a month or so to get her blood counts up to operate. I just hope that this NED lasts for her...and for each and everyone one of us...and I mean you too Jenn3 and Paulding Mom..it can happen..
0 -
Marial - welcome and so sorry you have a reason to be here. I am more of a lurker than an active poster, but read here a lot (my family would say obsessively....). I was dx in November 2010 and am just finishing a trial with surgery coming up in 2 weeks. Am ready to get whatever is left out and know how well the trial worked. I know the 'freaked out' feeling and have found lots of hope here in the stories of women with similar stage/size tumors as mine that are doing well.
For everyone else - I have a question - what did your docs tell you about bone mets symptoms? I have lower back pain and the bones I can feel in the aching spot are sore to the touch when I press on them (at least it's painful when I press there and I can feel bones so I am thinking it's the bone that's sore - does that make sense?). I am not scheduled to see the oncologist again until after surgery, which doesn't happen for 2 more weeks. Not sure if I should try and get an appointment or not, but am driving myself crazy. I didn't do anything unusual as far as physical activity so can't think of a reason I would have sore muscles....So, just wondering if anyone got any input on what to worry about re: symptoms in bones.
dlcw
0 -
Had my 3-month checkup with my surgeon this morning.
About 2 weeks ago, I noticed a BB-sized bump/lump on the incision scar. I was freaking out a little, but knew I had this appointment coming up, so I waited. I was pleased that my doctor took it very seriously and immediately pulled in the ultrasound to have a look at it. And it's just a bubble of fluid trapped in the scar tissue. He said it was likely from the accumulation of fluid (seroma) that had been under the skin just after surgery and that had taken nearly a month to completely reabsorb. He said it may eventually reabsorb or not, but it was nothing to worry about. Yay!
I don't want to turn into a complete Nervous Nellie, but every bump or pain tends to make me wonder if it's back. So, taking the advice of many fine ladies here, in the future, I'll wait 2 weeks before rushing to the doctor with something like this. It'll be my compromise between being vigilant and living in fear.
0 -
Looks like we cross-posted, dlcw! If it's going to be 2 weeks to surgery and the onc doesn't see you until after that, maybe it wouldn't hurt to just call and run it by them and see if they want you to come in prior to the surgery.
And my onc didn't tell me anything about what bone mets feel like.
0 -
Riley702 - I have the same thing around my insicion. The first one I felt I freaked out but then when I felt small bumps all around the insicion line I calmed down. Called my ps and he said that it was from the surgery (which was only on the 4th) and I have an appointment next week so he will check it out. Scary stuff.
0 -
It really is, Jen. I know we TNs have higher rates of recurrence, and earlier than the hormone-receptor + gals, so I feel like I have to really be on top of things in case this damned thing tries to come back. But constant fear is no way to live, either. Who knew the human body has so many unexplained lumps, bumps, and pains? I sure didn't. Hence, my compromise; if it's still bugging me after 2 weeks, call the doc and ask him to check it out.
0 -
Riley702 and JenC - looks like we are all dealing with that fear of recurrence - I'm doing my best to remain logical but am struggling. I like the 2 week idea, but I think I'm going to email my onc and see if she can see me before surgery...if not, then she's going to need to call in a refill to my Ativan prescription!
Riley702 - Glad to hear your lump was nothing to worry about and JenC - I will be hoping that yours is the same.
dlcw
0 -
So glad I found this site. Tomorrow will be the one year anniversary of my biopsy and the beginning of such a crazy year so I'm feeling a bit weird tonight. Very emotional but I can 't really explain it. I had a lumpectomy and 12 nodes removed, 6 rounds of the red devil cocktail, 35 radiation treatments and 10 lymphedema massage treatments which all finally ended last week. I would highly recommend the massage treatments if you feel any swelling at all...it was the best decision I made. It sucks that we are all here but at least we aren't alone. My new short curly, dark hair is quite comfortable and just might be my permanent style for a while! Thank you all for your posts...
0 -
Welcome, Deanna, and all the others who have joined us lately. Sorry you have to be here, but glad you found us. This site has saved my sanity many times, just by listening to the words of experience of those who've gone through this earlier. What a wonderful concept - tens of thousands of women with breast cancer just talking to each other! We know we all "get it" in a way others in our private lives can't.
0 -
I remember the dr told me I would have bone pain occassionally from chemo and radiation, after we are done with treatment. If so how long. The last three days I have a new pain and I didn't want to run to the dr in a panic. It is not a constant throbbing, but I have noticed it over the past couple of days off and on and I don't remember doing anything that I think would cause the pain in that area.
0 -
I have constant throbbing pain in my legs from hip to toe.... none of the pain relievers help me... I have a dr. appointment tomorrow so I am going to mention it, I am sure they will tell me it's normal but there are times I can't even think straight the pain is so bad.I have had this for over 2 weeks. Before this pain I had severe muscle pain like I ran a marathon every day. I will let you know what they say.
0
