Calling all TNs
Comments
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Kymn, I am so angry for you. Of course cancer has changed you. It changes everyone. But so do things like motherhood, a death in the family, all the trials and joys of life as we make our way through and age, mature, and grow. In sickness and in health. For better or for worse. No one ever promised marriage would be non-stop bliss. I hope he reconsiders his responsibilities and commitments - best to you.
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(((((Kymn)))): I am so sorry that you are haivng to go through this. I haven't any advice to offer-I think it's a selfish and mean thing to do to someone going through cancer but I also think cancer not only changes us but it changes how other people relate to us and not everyone makes it through to the other side with us. Big hugs to you and know that we will be here for you as much as we can.
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Suze: I am officially jealous-not only of your 3 day holiday in NYC but that you met Laurajane in person. I just love her!!!
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Suze and Laurajane in NYC? Wow, I wish I could have been there too.
Kymn and Christina: I am also sad to hear about what you are going through. I hope you both get lots of support, I know everyone here wants the best for you.
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OBXK- The tear thing is a good idea, but my husband is pretty good at seeing through the bulls**t! He would probably just laugh at me.My BRCA came back as BRCA 1 negative and BRCA 2 as variant of unknown significance. My onc is treating me as though the BRCA 2 was neg. He says most (there are exceptions) of TNs that test positive are BRCA 1 positive. If my particiular variant ever proves to be positive for BC, they would notify my doctor. My onc says that has never happened in his office yet.
Hope all of those fighting colds get better soon!!
Kymm- I have no words of wisdom, just want to send a hug.
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Kymm- "husband = rat bastard coward". Repeat. Think karma. Somehow, you will fiind your way through this...0
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Kymm and Christina, Heidi is right about this, Karma will get them! In time they will know what they have done. And I agree with Sugar, that you will emerge stronger. Take as loving care of yourselves as you would your dearest child. Be kind and nurturing to yourselves.0
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Kymn and Christina,..no **&&** cancer has changed you....seriously..could you give us their e-mail to we can tell them what an ass they are?
Suze and LJ in NYC..I wonder if there are any shoes left...
I'm having issues with my Mom..I love her dearly..but she complains I don't see her enough..ok..I'm working full time, just got one kid back to college and have a wedding for the DD in less than 2 weeks....I guess I need to find the time..but dang..where is the time?
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I'm sorry to have to post this in so many ways...
I am now Stage IV. The cancer has spread to further nodes (medistatinum sp., etc.) and several bones (pelvis, ribs, and lower back). No organ involvement yet. I will be trying to get in to MD Anderson ASAP, and my doctor will be calling Dana Farber to explore clinical trials. Right now, our goal is to keep it out of my organs for as long as possible.
I did not ask for a timeframe, because who knows? I am hoping for 2 years, but I know my cancer is chemo-resistant, so that is optimistic. I've been prepared for this for awhile, but it is still sinking in.
I plan on having some incredible times with my family while I can, and live every moment. I have every intention of driving my car all next summer.
I am so thankful for this board. I say we all have a NYC meet up in the Spring!0 -
Oh Suze, I'm so sorry! (((Suze)))
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Christina, Kymm, Suze - I wish I could be there to give you all a big hug, I am so so sorry for what you guys are going through. i pray that all the pain and sorrow will go away soon. take care and love yourself deeply.
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Suze - I'm so sorry. Sending you lots of healing hugs.
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Suze, Sorry to hear that news, but glad to hear you may be going to MD Anderson. (((hugs)))
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Suze- I have no words. I would love to meet in NY; let's do it.0
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Thank you guys. This sucks. No other words for it. NYC, here we come!!
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I would love to meet you all in NYC. Let me know when!
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I have never been to NYC, would love to go!
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Christina, Kymm, Suze - Hugs to you ,
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Suze, I am so very sorry. How is your support at home? M.D. Anderson's is a wonderful place with cutting edge research.
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((((Suze))))
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Suze,-
I am so very, very sorry. I was hoping so much for good news for you yesterday and kept checking to see if you had posted. So angry at this FC.
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Suze - Ah crap, I am so very sorry. You seem to have a wonderful onc... I have fingers and toes crossed that you'll get on a trial with a drug that halts or slow the progression. You are whip-smart and a fighter... BC can be so unfair.
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(((SUZE)))) I am all teared up. I love you girlie and you take care of yourself.
Head hung very low today. Seems like just when you get use to your new normal the rug is snatched from under you.
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Suze - this is such crappy news. So sorry to hear it.
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The hardest part of this is telling everyone
. I have always tried to be a realist, but many of my friends and family clung hard to the idea of me beating this. I hate breaking their hearts. I won't tell my kids until we see what the next step is and how well it works. I don't want to upset them if I still can get good quality time, but I also want them prepared. It will be a fine line, I'm going to bring in a grief counselor at some point.
I'll still hang out here, if that's okay. I don't want to scare anyone, but it is a great group. Thank you guys.
And Kymn & Christina - I'm so sorry for what you are going through. Cancer DOES change us, but if your spouse can't handle the change, that is THEIR issue, not yours. Hugs to you both.0 -
((((Suze))): I am so sorry to hear your news. I just hate F*&%$G cancer. Don't you dare go anywhere! You bring so much of yourself here to the boards and you would be sorely missed if you were to go away. This could be happening to any one of us! A big cyber hug to you! New York will be so much closer come November so I am planning a Spring trip for us all to meet!!!
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Suze, everyone is different and i know this is a shocking and trying time. I got the stage 4 talk September last year. Since then I have met these women who have been stage 4 for 14+ years.
At the moment, my theory is this: it depends on what you're willing to put up with to live longer. I refused a chemo that might have turned my cancer way back but i could not stand the SE's. I think other women have put up with bad SE's. So, there is hope for a lot of time, you get to pick which way you want to live.~~~~Kathy
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Kathy: Thank you for coming here and sharing. There are many women living with stage IV! Hugs!!!
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Hello Suze35
I just wanted to say how very sorry I was to read that you have been told that you are Stage IV and I am sending you all my love and best wishes from the UK. I do hope that you will be able to get some excellent treatment in your country. Please keep looking on the bright side as there are many cases now of patients with Stage IV living for a very long time. I know you will leave no stone unturned to get the very best treatment or to get into trials.Live every day to the full and treasure all your time with your family. Laugh as much as you can, as laughter is great medicine. Thank you for all your postings to the UK thread.
I am thinking of you and wishing you all the best.
Love
Sylvia.0 -
Suze, I am so sorry to hear this
Here's hoping your doctors find your personal magic bullet and knock that beast back - best wishes headed your way.
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